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Chorionic villus sampling (CVS)
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Has anyone had more than one FISH test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
steve_canada
in
CLL Support
3 years ago
Covid trial in UK examines mixing different vaccines
A UK trial has been launched to see if giving people different Covid vaccines for their first and second doses works as well as the current approach of using the same type of vaccine twice. The idea is to provide more flexibility with vaccine rollout and help deal with any potential disruption to supplies
A UK trial has been launched to see if giving people different Covid vaccines for their first and second doses works as well as the current approach of using the same type of vaccine twice. The idea is to provide more flexibility with vaccine rollout and help deal with any potential disruption to supplies
Jm954
Administrator
in
CLL Support
3 years ago
Strange case of CLL remission
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
mkawass
in
CLL Support
3 years ago
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5 positive tests then negative but hcg still in blood?
Hi. So last week I did 5 pregnancy tests..all positive, one was a clear blue with the reading 2-3 which to me was great. Saturday night I had pinkish discharge so got sent to a&e. Urine dip was negative at the hospital so they did bloods. Hcg is in my blood but low. They checked me internally with a
Hi. So last week I did 5 pregnancy tests..all positive, one was a clear blue with the reading 2-3 which to me was great. Saturday night I had pinkish discharge so got sent to a&e. Urine dip was negative at the hospital so they did bloods. Hcg is in my blood but low. They checked me internally with a
Chickennuggets1234
in
Pregnancy and Parenting Support
3 years ago
Webinar - Living well with CLL - 3.30pm Monday 15th Feb
Lymphoma Action and Leukaemia Care are back with their next joint webinar on Monday 15th February 2021 at 3,30pm Please join to explore strategies that may aid you to live well with a CLL diagnosis, regardless of what stage of the journey you may be at. The experienced panel of clinicians and patients
Lymphoma Action and Leukaemia Care are back with their next joint webinar on Monday 15th February 2021 at 3,30pm Please join to explore strategies that may aid you to live well with a CLL diagnosis, regardless of what stage of the journey you may be at. The experienced panel of clinicians and patients
Jm954
Administrator
in
CLL Support
3 years ago
*Sensitive*
Good afternoon all, Firstly I'm so sorry to all those that have had treatment stopped for Covid. It sucks and I was there in March of last year so I do know how it feels. I hope this does not trigger anyone and if so, please scroll on past. I have had a positive pregnancy test after my FET and my hCG
Good afternoon all, Firstly I'm so sorry to all those that have had treatment stopped for Covid. It sucks and I was there in March of last year so I do know how it feels. I hope this does not trigger anyone and if so, please scroll on past. I have had a positive pregnancy test after my FET and my hCG
hifer
in
Fertility Network UK
3 years ago
Preparing for next FET after miscarriage!! Need your advice!!
Hi ladies again, I'd like to thank you all for your lovely supportive words due to my miscarriage last cycle. That really helped me passing the tough time, it was a hard experience to lose everything in moments after seeing a positive test for the first time in my life 💔. But here we are continuing
Hi ladies again, I'd like to thank you all for your lovely supportive words due to my miscarriage last cycle. That really helped me passing the tough time, it was a hard experience to lose everything in moments after seeing a positive test for the first time in my life 💔. But here we are continuing
HANAHANA
in
Fertility Network UK
3 years ago
Richter’s Transformation - Results of my Pseudo Richter Human Genome study
Hi. As I mentioned earlier, Professor Elias Campo did a study of my Ricther to try to understand the behavior I copy and paste the result Our cases are helping that Richter's transformation is not the great unknown within the world of CLL. We have sequenced the entire genome of the CLL and the lymph
Hi. As I mentioned earlier, Professor Elias Campo did a study of my Ricther to try to understand the behavior I copy and paste the result Our cases are helping that Richter's transformation is not the great unknown within the world of CLL. We have sequenced the entire genome of the CLL and the lymph
Priss69
in
CLL Support
3 years ago
Colds
Hi everyone so i know because of our immune systems we are more likely to catch things i was just wondering does anyone else catch a cold as much and as easy as i do? Like i say i know its what comes from having a autoimmune disease its just out of everything i seem to get A LOT of colds and they are
Hi everyone so i know because of our immune systems we are more likely to catch things i was just wondering does anyone else catch a cold as much and as easy as i do? Like i say i know its what comes from having a autoimmune disease its just out of everything i seem to get A LOT of colds and they are
emma88
in
NRAS
3 years ago
Hcg levels low?? Any advice
I’ve just had my hcg levels come back at 39. They were looking for 50. I don’t have any symptoms. I’m starting to panic has anyone gone through this and been successful. This is my 5th time. I have to go back Monday for more bloods.
I’ve just had my hcg levels come back at 39. They were looking for 50. I don’t have any symptoms. I’m starting to panic has anyone gone through this and been successful. This is my 5th time. I have to go back Monday for more bloods.
Sukiba
in
Fertility Network UK
3 years ago
too low hcg for 13dpt.. any success story??
i only have. 14.64?? is it okay?? but doctor said it is positive but not ideal level.. is there posibility to increase in 3 days? any success story having low hcg but increase gradually and having a healthy pregnancy??
i only have. 14.64?? is it okay?? but doctor said it is positive but not ideal level.. is there posibility to increase in 3 days? any success story having low hcg but increase gradually and having a healthy pregnancy??
lex8719
in
Fertility Network UK
3 years ago
Hcg
I found out I was pregnant on Boxing Day. Early scan showed 1 sack about 4 weeks pregnant . sack empty. I should now be 6 and a bit weeks today . Sack still empty. But can see 2 . Unsure if it’s fluid or not. Still empty sack. My hcg levels are 52707. Said this is very high for not seeing anything inside
I found out I was pregnant on Boxing Day. Early scan showed 1 sack about 4 weeks pregnant . sack empty. I should now be 6 and a bit weeks today . Sack still empty. But can see 2 . Unsure if it’s fluid or not. Still empty sack. My hcg levels are 52707. Said this is very high for not seeing anything inside
Suvs3929
in
BASHH
3 years ago
An HCG level of 22 (first beta)
I am distraught. Recieved bad news yesterday 10dpt after my beta bloods were 22. I'm going back on Thursday to check if they have doubled. Has anyone had such a low beta before and still went onto have a successful and healthy baby? I'm beside myself :(
I am distraught. Recieved bad news yesterday 10dpt after my beta bloods were 22. I'm going back on Thursday to check if they have doubled. Has anyone had such a low beta before and still went onto have a successful and healthy baby? I'm beside myself :(
Hidden
in
Fertility Network UK
3 years ago
Self-introduction
Hi, I'm a 72-year-old USA male, no symptoms, but diagnosed a month ago with CLL through routine blood workup (plus the usual FISH-followup after high WBC noted). So I've been reading assiduously, and trying to figure out when/how to assemble a team. For me it's W&W, with another blood assay in 3 months
Hi, I'm a 72-year-old USA male, no symptoms, but diagnosed a month ago with CLL through routine blood workup (plus the usual FISH-followup after high WBC noted). So I've been reading assiduously, and trying to figure out when/how to assemble a team. For me it's W&W, with another blood assay in 3 months
Felixgratus
in
CLL Support
3 years ago
Low HCG levels ?
Hi everyone, I had my transfer 10 days ago. My pregnancy tests (clear blue) have been getting stronger but totally deflated today after my bloods indicated a low postive, they are repeating them on Thursday. Has anyone had any success with similar? I am distraught tonight. Thanks in advance x
Hi everyone, I had my transfer 10 days ago. My pregnancy tests (clear blue) have been getting stronger but totally deflated today after my bloods indicated a low postive, they are repeating them on Thursday. Has anyone had any success with similar? I am distraught tonight. Thanks in advance x
Hidden
in
Fertility Network UK
3 years ago
***sensitive**** rising beta levles
Okay so we got the results of my second beta hcg levles today and they jumped to a 1275 from a 385 in just 2 days..... is that a normal range for 12dp5dt? Seems high but either way I am so excited she is growing away in there!!!
Okay so we got the results of my second beta hcg levles today and they jumped to a 1275 from a 385 in just 2 days..... is that a normal range for 12dp5dt? Seems high but either way I am so excited she is growing away in there!!!
Jldurham73
in
Fertility Network UK
3 years ago
***sensitive** BFP and high hcg level...ovulation induction
Hi to anyone reading this... I feel very grateful to be writing this but just wanted to put it out there as worrying here. I had ovulation induction treatment with trigger coming up to 3 weeks ago now and have had 1st blood test today and hcg has come back at 1612....has anyone had experience of this
Hi to anyone reading this... I feel very grateful to be writing this but just wanted to put it out there as worrying here. I had ovulation induction treatment with trigger coming up to 3 weeks ago now and have had 1st blood test today and hcg has come back at 1612....has anyone had experience of this
Emrevic
in
Fertility Network UK
3 years ago
CLL Glandular Fever - Diet -M.E known as chronic fatigue
Sorry every one 🙈 these things keep popping in to my head . Sorry if these questions have already been answered in the past . Just wondered if anyone has suffered with Glandular fever at any time . I have had it 4 times. Last was 3 years ago ..... Any been diagnosed with M.E I wast 26 been very
Sorry every one 🙈 these things keep popping in to my head . Sorry if these questions have already been answered in the past . Just wondered if anyone has suffered with Glandular fever at any time . I have had it 4 times. Last was 3 years ago ..... Any been diagnosed with M.E I wast 26 been very
Stavrou1
in
CLL Support
3 years ago
Negative insti hiv test after 4 month
I took a hiv 1/ hiv2 insti rapid hiv test first after three weeks and then 4 month. I took the test yesterday. It was negative. Can this be a false negative test or should I just relax when I had two negative hiv tests after 4 month?
I took a hiv 1/ hiv2 insti rapid hiv test first after three weeks and then 4 month. I took the test yesterday. It was negative. Can this be a false negative test or should I just relax when I had two negative hiv tests after 4 month?
Loubbis
in
HIV Partners
3 years ago
Off we go again 🤞🏼🙏
Just started a full bleed from the chemical pregnancy phoned our clinic and they are happy to start the progress for the next frozen transfer from Monday, so first things first baseline scan and to double check HCG is back to below 1! I hope everything is ok🤞🏼 Going to ask what we can do different
Just started a full bleed from the chemical pregnancy phoned our clinic and they are happy to start the progress for the next frozen transfer from Monday, so first things first baseline scan and to double check HCG is back to below 1! I hope everything is ok🤞🏼 Going to ask what we can do different
LibzyRxx
in
Fertility Network UK
3 years ago
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