Experiences with

Childhood cataracts

I've been poorly so didn't take my Abatacept injection I now need to take itcan I take methotrexate the same day, both are injections x thank you

With my first time with GCA (2017) I tapered to 0 in 4 years. Then, after 1 year of 0 prednisone, I had a relapse . Now it’s 2025 and I’m on my second bout of GCA , this time with Actemra . It’s been over two years now and I’m trying to decide what to do. For the last 8 months, I’ve been on 1.5

I have a cataract that i was told was not ready to have fixed yet that was blurry vision then 2 days later had eye stroke same eye. Vision is like looking through dirty window. I have had an eye injection but vision still the same...dirty window vision. I am wondering if no imorovement is Because

Hi, does anyone know if having ET +JAK2 can contribute to getting cataracts? Had sight test at weekend & was informed sight has changed a lot & that I now have cataracts & put on yearly check ups. Back story is high platelets picked up at a regular blood donation in April 2023, finally referred to

I’ve had a sort of aura thing - area of pulsing light in the middle of my field of vision, gradually extending and flashing, then stopping - every morning for three mornings. Got an appointment with local minor eye clinic on the recommendation of the local eye hospital. I had something less dramatic

Anyone any information on the use of these in helping with parkinsons?

I am due for a combined Vitrectomy and Cataract removal soon. As I also have Glaucoma I must be careful post op not to increase my eye pressures by having my head lower than my heart. Can anyone recommend a suitable aid to help with the possible pronation position post op ? As I could be called in any

Hello everyone! I will be grateful if you share your experience of combining anesthetics and Jakavi. I have myelofibrosis and take Jakavi 15 mg 2 times a day. I will have an open surgery for an inguinal hernia with anesthesia with novocaine (procaine) very soon. I wanted to see if there is an interaction

hi, Golfforlife...I just saw your 1 yr old post & wanted to relay my experience. I am 75 with CLL & ITP. My maternal grandmother died in her 50s of cervical cancer. When I was the right age. gardasil was not around. Now I know about it & want the immunization. My onc/ hemat said ok & so does my GP, but

I’m ET on Hydroxycarbamide. Have recently had Diflucan treatment for Thrush ( 150 strenght capsule day 1 and 150 strength capsule day 4) I am looking for recommendations for best probiotic .. Thank you

My understanding was that there were 3 disease modifying studies at phase 3 trial.1 Exenatide has failed. 2 Ambroxol is on going 3 lactobacillus acidophilus I can't find any study details for via google. Does anyone know more ?

I had macular hole surgery last year and because of this I developed a cataract pretty quickly . I have been shortsighted in both eyes for a long time but worse in my operated eye . I had a cataract operation just over a week ago and had a check up with the surgeon yesterday who confirmed it’s all looking

Hi all, Im needing another cataract operation as the lens they put in 17 years ago has dislocated and dropped. Now I’m on Acalabrutinib will I have to stop taking it before the op and then after for a week or so, any experience would be appreciated, thanks Will

I have GCA and osteoporosis, currently taking 1.5 mg prednisone, Actemra and Boniva. My front teeth have been slowly moving inward, and it was suggested to have Invisalign (clear retainer like braces). The treatment should take 6 months. My rhemy says it’s probably ok, and to check with dentist.

Hi everyone, just looking your thoughts , i take bisoprolol and multaq, my chadsvasc score is 0 but next may changes to 1, when first diagnosed was given bisop as pill in pocket , then upped to smaller 1.25mg daily along with multaq 2x400 per day, what are your thoughts on returning to bisoprol plus

Has anyone here had problems arise with their vision after taking HU for a long time.?? I’ve got field vision loss …, been in HU over 10 years. My neuro ophthalmologist has said that Hu is known to cause problems with oeripha field vision. I now also have peripheral neuropathy - another known side

My husband was diagnosed in June of this year (2024) with GCA, unfortunately, lost complete and permanent sight in one eye, was treated with three days of prednisone infusions, started at 80 mg of oral preds, went on Actemra weekly injection and had been tapering off until down to 12 1/2. A few days

Just completed week 5 run 3. I’d been dreading stepping up to 20 minutes running, however, not as bad as I had been expecting. All in the head!!! Starting again after being diagnosed with rectal cancer and undergoing a colostomy operation in May. I was feeling pretty down for a while, thought useful

Hello PMR/GCA friends! I had GCA/PMR in 2017, and slowly tapered prednisone over 4 years to 0. Then after almost a full year off of prednisone, in 2021 I had a relapse. Started again on 60 mg prednisone and Actemra injections . Right now I’m taking 1.5 mg prednisone and Actemra every other

Hi again everyone. Last time I posted I had had a relapse of the GCA after having to pause the Actemra infusions due to pneumonia and sepsis. I am now back on Actemra (had my first infusion last month) and back down to 15 mg prednisone from the increase to 30 mg when I had the relapse. I have just found