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Help, what happens now?
Hi everyone, I hope you are as well as you can be. I have a question please. My mum was diagnosed Jan 2019 with stage 3A hgs. Full debulking and 6 round of carbo and taxol and NED. Recurred Feb 2022, started with carbo and Caylex x 4. Ned at the end. Started Niraparib but it seemed to grow back
Hi everyone, I hope you are as well as you can be. I have a question please. My mum was diagnosed Jan 2019 with stage 3A hgs. Full debulking and 6 round of carbo and taxol and NED. Recurred Feb 2022, started with carbo and Caylex x 4. Ned at the end. Started Niraparib but it seemed to grow back
N-A-58
in
My Ovacome
1 year ago
Clinical trials for ATM gene
Have ATM gene and castrate resistant. Stage 4b lymph nodes spread. Anyone have any luck with any clinical trials for ATM gene? Have already had chemo and failed Zytiga.
Have ATM gene and castrate resistant. Stage 4b lymph nodes spread. Anyone have any luck with any clinical trials for ATM gene? Have already had chemo and failed Zytiga.
mysticmini
in
Advanced Prostate Cancer
1 year ago
Should I be worried? CT scan shows Splenomegaly since I got COVID.
OK, now I am scared! I had COVID-19 this past Dec.,I was in the hospital 5 days due to hypoxia. (post COVID) and a CT scan showed my Spleen is enlarged and
pressing on my left kidney
. My urine elimination has changed now and
I have to "push" it out by tightening my muscles
otherwise I
OK, now I am scared! I had COVID-19 this past Dec.,I was in the hospital 5 days due to hypoxia. (post COVID) and a CT scan showed my Spleen is enlarged and
pressing on my left kidney
. My urine elimination has changed now and
I have to "push" it out by tightening my muscles
otherwise I
RandyM
in
CLL Support
1 year ago
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Small Increase NODE
Hi beautiful ladies, My mom was diagnosed in 2018 with Stage 4 High Grade. She has since had Taxol/Carbo and major debulking surgery. She was NED for 2 years. She then had a small increase in her external iliac node and she received 6 rounds of doxil/carbo. At this point her CA125 was 63. She was NED
Hi beautiful ladies, My mom was diagnosed in 2018 with Stage 4 High Grade. She has since had Taxol/Carbo and major debulking surgery. She was NED for 2 years. She then had a small increase in her external iliac node and she received 6 rounds of doxil/carbo. At this point her CA125 was 63. She was NED
Lind58
in
My Ovacome
1 year ago
waterproof PICC covers
hello. I’m new on here. I’ve just finished my chemo and am hoping to go swimming again. I still have a PICC line in for my regular Avastin and would like a completely waterproof cover for it. Does anyone have any recommendations?
hello. I’m new on here. I’ve just finished my chemo and am hoping to go swimming again. I still have a PICC line in for my regular Avastin and would like a completely waterproof cover for it. Does anyone have any recommendations?
Wirralian
in
My Ovacome
1 year ago
Anyone recently finished chemo/radiotherapy?
Hello everyone, hope everyone is okay. I’ve just got a question about ongoing vulnerability after treatment and wondered if anyone else is feeling the same or if anyone has any advice/experience to share. I finished my current treatment course a few weeks ago and I’m wondering how long my immune
Hello everyone, hope everyone is okay. I’ve just got a question about ongoing vulnerability after treatment and wondered if anyone else is feeling the same or if anyone has any advice/experience to share. I finished my current treatment course a few weeks ago and I’m wondering how long my immune
OrdinarySoul
in
My Ovacome
1 year ago
Good news post!!! 🥳❤️🩹
Well had my over the phone oncology appointment yesterday as I've had this covid again 🙃 1st scan since surgery and finishing
chemotherapy
and after my oncologist talked about starting parps and reading the consent then sorting my avastin around having a port fitted I asked her if she'd had my scan
Well had my over the phone oncology appointment yesterday as I've had this covid again 🙃 1st scan since surgery and finishing
chemotherapy
and after my oncologist talked about starting parps and reading the consent then sorting my avastin around having a port fitted I asked her if she'd had my scan
Newbery3
in
My Ovacome
2 years ago
More decisions - Avastin, Niraparib or Letrozole
My Mum, who has done 6 rounds of chemo, 2 with Avastin, has just been told she still doesn't present as suitable for surgery. We have mixed emotions about this as she is in her early 80s, although previously very fit and healthy. She has been given 3 options to try to keep things at bay before possibly
My Mum, who has done 6 rounds of chemo, 2 with Avastin, has just been told she still doesn't present as suitable for surgery. We have mixed emotions about this as she is in her early 80s, although previously very fit and healthy. She has been given 3 options to try to keep things at bay before possibly
Vinney52
in
My Ovacome
1 year ago
anyone on a uk trial for 2nd line relapse maintenance?
hello this is my first post though I have been given hope by reading other ladies brave stories. My journey started in 2017 age 69 . My OC is HGS. After debunk op and 6 cycles of Chemo, all was good until last Octobers CT scan showed relapse to Spleen and Liver, stage 4a. In December surgery
hello this is my first post though I have been given hope by reading other ladies brave stories. My journey started in 2017 age 69 . My OC is HGS. After debunk op and 6 cycles of Chemo, all was good until last Octobers CT scan showed relapse to Spleen and Liver, stage 4a. In December surgery
Towergirl
in
My Ovacome
1 year ago
How soon will Pluvitco going to be available?
I’m getting chemo and radiation treatments to get to Pluvitco! Hopefully I will not be late!
I’m getting chemo and radiation treatments to get to Pluvitco! Hopefully I will not be late!
p1411887
in
Advanced Prostate Cancer
1 year ago
Bad reaction to Doxataxel
This my first experience with
chemotherapy
. I had a nuclear stress test 2 days before and was told by the MO and cardiologist that there would be no problems. The nuclear test results were all negative. The test was given to check for heart damage from Afib.Anyone have any problems like this?
This my first experience with
chemotherapy
. I had a nuclear stress test 2 days before and was told by the MO and cardiologist that there would be no problems. The nuclear test results were all negative. The test was given to check for heart damage from Afib.Anyone have any problems like this?
toml77
in
Advanced Prostate Cancer
2 years ago
When a surgeon says he "got it all," it doesn't mean he did
Although cancers can be completely removed through surgery, cancer cells can also spread to lymph nodes and other parts of the body despite tumor removal, and follow-up
chemotherapy
might be necessary.
Although cancers can be completely removed through surgery, cancer cells can also spread to lymph nodes and other parts of the body despite tumor removal, and follow-up
chemotherapy
might be necessary.
Tall_Allen
in
Prostate Cancer Network
2 years ago
Radiotherapy RED CHEEKS???
hi all.Having radiotherapy to prostate. Was going to be 6 sessions, once a week for 6 weeks. Now is 5 sessions as they say they can do what they want in 5 sessions??? I've had 2 seesions, feel sort of tired??? Maybe just generally lower energy mentally and physically(nothing anywhere near like chemo
hi all.Having radiotherapy to prostate. Was going to be 6 sessions, once a week for 6 weeks. Now is 5 sessions as they say they can do what they want in 5 sessions??? I've had 2 seesions, feel sort of tired??? Maybe just generally lower energy mentally and physically(nothing anywhere near like chemo
Mrtroxely
in
Advanced Prostate Cancer
1 year ago
Intrusive thoughts
I finished my series chemo (first time I've had it) almost a year ago. Great news! But, I have to go for 3monthly checks and am finding it really difficult to forget about cancer. I get lots of intrusive thoughts about it. I'm about to have a second series of counselling, just wondered what anyone else
I finished my series chemo (first time I've had it) almost a year ago. Great news! But, I have to go for 3monthly checks and am finding it really difficult to forget about cancer. I get lots of intrusive thoughts about it. I'm about to have a second series of counselling, just wondered what anyone else
Jax68
in
OvaCare
1 year ago
Next Steps?
Prostatectomy May 2018; Radiation April-June 2019;
Chemotherapy
August-December 2019. Was on Firmagon (monthly) and bicalutamide until April 2021 when oncologist suggested I go off it as my PSA was undetectable. Bloodwork every month. Started to rise this summer. it is now 0.30.
Prostatectomy May 2018; Radiation April-June 2019;
Chemotherapy
August-December 2019. Was on Firmagon (monthly) and bicalutamide until April 2021 when oncologist suggested I go off it as my PSA was undetectable. Bloodwork every month. Started to rise this summer. it is now 0.30.
OldChappy
in
Advanced Prostate Cancer
2 years ago
worry about the future with stage 4 cancer and RLS and ILMD
Surgery for this is not possible so I am going to have an aggressive
chemotherapy
starting in January. So I feel my chance of giving up Ropinerole (4mg a day) has gone. Now I am really concerned that the chemo drugs will affect the Ropinerole detrimentally. Also what about my end of life?
Surgery for this is not possible so I am going to have an aggressive
chemotherapy
starting in January. So I feel my chance of giving up Ropinerole (4mg a day) has gone. Now I am really concerned that the chemo drugs will affect the Ropinerole detrimentally. Also what about my end of life?
Ruffabug
in
Restless Legs Syndrome
2 years ago
Chemo vs Pluvicto study
My friend is going to be in a trial comparing Pluvicto to Docetaxel. My question is why? Docetaxel has been around for so long that I would think they have all the info on it. PFS as well as OS. As well, the study was announced in 2021 so why are they still recruiting?
My friend is going to be in a trial comparing Pluvicto to Docetaxel. My question is why? Docetaxel has been around for so long that I would think they have all the info on it. PFS as well as OS. As well, the study was announced in 2021 so why are they still recruiting?
gsun
in
Advanced Prostate Cancer
1 year ago
My mother's good news
Hello ladies, Once again, I wanted to share the good news with you because I know how important it is to see positive stories and examples. Today we got my mother's PET results (her last PET scan was in September 2022) and they showed stable disease. She will continue taking Olaparib. We are beyond
Hello ladies, Once again, I wanted to share the good news with you because I know how important it is to see positive stories and examples. Today we got my mother's PET results (her last PET scan was in September 2022) and they showed stable disease. She will continue taking Olaparib. We are beyond
Uniquem
in
My Ovacome
1 year ago
Diagnosed with CLL March 2022
I was diagnosed a year ago after going to the doctor for frequent infections , night sweats and feeling very fatigued . My labs came back abnormal. I went through a series of tests after. I started treatment in November 2022 and finished January 2023. I did Bendamustine and Rituxan. After my first treatment
I was diagnosed a year ago after going to the doctor for frequent infections , night sweats and feeling very fatigued . My labs came back abnormal. I went through a series of tests after. I started treatment in November 2022 and finished January 2023. I did Bendamustine and Rituxan. After my first treatment
Jbeebe
in
CLL Support
1 year ago
Parts, which one?
Hi, Jacki here from the U S. I have needed a group and so happy to have each and everyone of you. Have been so blessed to be reading everything I have been going through. The fears and the not so good outcomes but the good outcomes keep me going! Thank you all. I had been diagnosed with fallopian
Hi, Jacki here from the U S. I have needed a group and so happy to have each and everyone of you. Have been so blessed to be reading everything I have been going through. The fears and the not so good outcomes but the good outcomes keep me going! Thank you all. I had been diagnosed with fallopian
Jacquiemoo
in
My Ovacome
1 year ago
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