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Thank you
Thank you for all your comments...ive got so many things wrong with me apart from CLL. Ive got spinal stenosis, chiari malformation, heart failure, its just one thing after another. I'm 63. Just really hoping I won't need chemo if this iron infusion works. Thank you all x
Thank you for all your comments...ive got so many things wrong with me apart from CLL. Ive got spinal stenosis, chiari malformation, heart failure, its just one thing after another. I'm 63. Just really hoping I won't need chemo if this iron infusion works. Thank you all x
welshlady52
in
CLL Support
11 months ago
Rachy
Hi my father's been diagnosed with a terminal stage 4 brain tumour he's had chemo and radiotherapy but sadly his treatments had to stop due to the effects of the steroids etc he's no longer mobile,he was told he had 14 months 19 months ago lm his full time carer and due to a fall due to having a seizure
Hi my father's been diagnosed with a terminal stage 4 brain tumour he's had chemo and radiotherapy but sadly his treatments had to stop due to the effects of the steroids etc he's no longer mobile,he was told he had 14 months 19 months ago lm his full time carer and due to a fall due to having a seizure
Lezpopz
in
Glioblastoma Support
11 months ago
Boron and Fasting for the Prostate
I read taking boron as a suppl was good for the prostate and could lower psa . Has anyone tried Boron ? I went on a 10 day water fast and my psa went from 23 down to 15 in 1 month. but went back up to 24. Who knows when it comes to psa other than doubling time or if it drops to normal. Their is a person
I read taking boron as a suppl was good for the prostate and could lower psa . Has anyone tried Boron ? I went on a 10 day water fast and my psa went from 23 down to 15 in 1 month. but went back up to 24. Who knows when it comes to psa other than doubling time or if it drops to normal. Their is a person
85745
in
Advanced Prostate Cancer
11 months ago
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Swollen Legs After Chemo
Hi all, I recently completed 10 rounds of Docetaxel for my stage 4 PC. I noticed that after cycle 8 my ankles and legs were starting to get swollen . After completing the chemo, the legs/ankles are still swollen and feel heavy and tight. My theighs also ballooned in size and are very hard. I had an
Hi all, I recently completed 10 rounds of Docetaxel for my stage 4 PC. I noticed that after cycle 8 my ankles and legs were starting to get swollen . After completing the chemo, the legs/ankles are still swollen and feel heavy and tight. My theighs also ballooned in size and are very hard. I had an
carguy
in
Advanced Prostate Cancer
11 months ago
Update after consultation w/Royal Marsden
I promised I would address some requests for information following my consultation with Prof. Johan de Bono and his team at the Royal Marsden Hospital. The trigger was a marginally raised PSA (now 4.4) and some evidence on more bone mets, failing Enzalutamide and being offered a course of chemo (which
I promised I would address some requests for information following my consultation with Prof. Johan de Bono and his team at the Royal Marsden Hospital. The trigger was a marginally raised PSA (now 4.4) and some evidence on more bone mets, failing Enzalutamide and being offered a course of chemo (which
CrocodileShoes
in
Advanced Prostate Cancer
11 months ago
Swollen Legs after Chemo
I just finished ten rounds of Docetaxel for stage 4 PC. At around the 8th cycle, I noticed my legs and ankles were swollen. Now that I’ve completed the chemo, the legs/ankles are still swollen and feel very tight and heavy. My thighs have also ballooned in size. I had an ultrasound to rule out blood
I just finished ten rounds of Docetaxel for stage 4 PC. At around the 8th cycle, I noticed my legs and ankles were swollen. Now that I’ve completed the chemo, the legs/ankles are still swollen and feel very tight and heavy. My thighs have also ballooned in size. I had an ultrasound to rule out blood
carguy
in
Advanced Prostate Cancer
11 months ago
live with prostate cancer
Since 2021 I was diagnosed with type 4 metastatic prostate cancer ,started my chemo with texatere my PSA is below 0 , taking lupron injection every 6 months my PSA is normal since then Now in july 2023 my PSA start increasing to 2.96 and no sign of cancer in my last Pet scan Now my Oncologist
Since 2021 I was diagnosed with type 4 metastatic prostate cancer ,started my chemo with texatere my PSA is below 0 , taking lupron injection every 6 months my PSA is normal since then Now in july 2023 my PSA start increasing to 2.96 and no sign of cancer in my last Pet scan Now my Oncologist
Mkhaz
in
Advanced Prostate Cancer
11 months ago
Future after Erleada/Lupron
I met with a new MO today for a second opinion. I've been taking Erleada/Lupron for almost four years with few side effects (for which I'm grateful). I'm aware that my results have been very good and I wasn't looking for advice regarding a change in my care....I just wanted to have a second doctor
I met with a new MO today for a second opinion. I've been taking Erleada/Lupron for almost four years with few side effects (for which I'm grateful). I'm aware that my results have been very good and I wasn't looking for advice regarding a change in my care....I just wanted to have a second doctor
NorYug
in
Advanced Prostate Cancer
11 months ago
Cabazitaxel, can you return for a second round.
I was only on this chemo, Cabazitaxel, for three infusions, then was approved for Pluvicto . PSA was creeping up slowly during that time, from 63-141. Has anyone gone back to it and had success with 8-10 infusions? I am now being treated with docetaxel(50%) and carboplatin, both at a reduced percentage
I was only on this chemo, Cabazitaxel, for three infusions, then was approved for Pluvicto . PSA was creeping up slowly during that time, from 63-141. Has anyone gone back to it and had success with 8-10 infusions? I am now being treated with docetaxel(50%) and carboplatin, both at a reduced percentage
docbulldog
in
Advanced Prostate Cancer
11 months ago
Update
My husband David is receiving
chemotherapy
(Vidaza) to improve his blood counts. His MDS is a serious stage, described to us as "refractory anemia with excess blasts 1." His blood counts are all extremely low with an ominous increase in "monocytes."
My husband David is receiving
chemotherapy
(Vidaza) to improve his blood counts. His MDS is a serious stage, described to us as "refractory anemia with excess blasts 1." His blood counts are all extremely low with an ominous increase in "monocytes."
dwolden
in
CLL Support
6 months ago
Recurrence in Peritoneum
She explained that they'll stop the Avastin, and move instead to 6 sessions of Caelyx
chemotherapy
over six months, followed by taking a daily PARP inhibitor.
She explained that they'll stop the Avastin, and move instead to 6 sessions of Caelyx
chemotherapy
over six months, followed by taking a daily PARP inhibitor.
georgialocksss
in
My Ovacome
1 year ago
High fat ketogenic diet envisioned as potential life-saving therapy to combat low platelets in cancer patients
An estimated 1 in 10 patients receiving
chemotherapy
develops thrombocytopenia, according to the authors of a new analysis in Science Translational Medicine. "Therapeutic options for
chemotherapy
-induced thrombocytopenia are limited by severe adverse effects and high economic burdens," reports Dr.
An estimated 1 in 10 patients receiving
chemotherapy
develops thrombocytopenia, according to the authors of a new analysis in Science Translational Medicine. "Therapeutic options for
chemotherapy
-induced thrombocytopenia are limited by severe adverse effects and high economic burdens," reports Dr.
Seasid
in
Advanced Prostate Cancer
1 year ago
Inoperable Glioblastoma
My dad has glioblastoma in his left frontal lobe. His right arm/hand is now completely paralysed and his speech is getting poorer every week. It’s taken 5 months to finally start treatment due to stroke misdiagnosis. Due to location they cannot de bulk the tumour. As he is 68 he opted for 3 weeks of
My dad has glioblastoma in his left frontal lobe. His right arm/hand is now completely paralysed and his speech is getting poorer every week. It’s taken 5 months to finally start treatment due to stroke misdiagnosis. Due to location they cannot de bulk the tumour. As he is 68 he opted for 3 weeks of
Casper438
in
The Brain Tumour Charity
11 months ago
New to board
Recently told that I mostly likely have recurrent prostate cancer. This is based solely on PSA and other risk factors (age, etc.). I have had a PET PSMA, NM Bone scan, CT Chest and Pelvis scan, and all have come out clean and clear. Local oncologist (while admitting he doesn't really know where the
Recently told that I mostly likely have recurrent prostate cancer. This is based solely on PSA and other risk factors (age, etc.). I have had a PET PSMA, NM Bone scan, CT Chest and Pelvis scan, and all have come out clean and clear. Local oncologist (while admitting he doesn't really know where the
Raflo
in
Prostate Cancer Network
11 months ago
Infections during Chemo
After my LRP (2010) I had UTI's continually for ~2 years. I have no idea what finally shook them off -- a change from a tropical to a temperate climate, maybe? I am not coming to the end of the oral treatments available to me. At some time in the not too distant future I will be moving to docetaxel
After my LRP (2010) I had UTI's continually for ~2 years. I have no idea what finally shook them off -- a change from a tropical to a temperate climate, maybe? I am not coming to the end of the oral treatments available to me. At some time in the not too distant future I will be moving to docetaxel
BrentW
in
Advanced Prostate Cancer
11 months ago
Abnormal liver function
Hi all, did any of you have abnormal liver function which was deemed just related to the stress of the surgery. I am 12 weeks post debulking surgery for mucinous ovary stage 1C3. My tumor markers currently normal which I am pleased with. I have not had chemo. my liver function was noted to be abnormal
Hi all, did any of you have abnormal liver function which was deemed just related to the stress of the surgery. I am 12 weeks post debulking surgery for mucinous ovary stage 1C3. My tumor markers currently normal which I am pleased with. I have not had chemo. my liver function was noted to be abnormal
Jholly4
in
My Ovacome
11 months ago
Progression and Niraparib
Morning everyone I was on Niraparib since last June 22 but this June it was stopped as my CT scan showed progression to my liver and possibly spleen. Also in peritoneum. My oncologist felt the Niraparib wasn’t working. Am now back on Paclitaxel and carboplatin and just had my first round. Due to have
Morning everyone I was on Niraparib since last June 22 but this June it was stopped as my CT scan showed progression to my liver and possibly spleen. Also in peritoneum. My oncologist felt the Niraparib wasn’t working. Am now back on Paclitaxel and carboplatin and just had my first round. Due to have
Skyeplus
in
My Ovacome
11 months ago
Secondary adrenal insufficiency after immunotherapy
First of all, I am so happy to have found this forum! I`ve been searching for the last two months for an active forum where I could find somebody like me, with secondary adrenal insufficiency. Last summer I was diagnosed with Triple Negative breast cancer stage 2(no limph node involvement). I begun
First of all, I am so happy to have found this forum! I`ve been searching for the last two months for an active forum where I could find somebody like me, with secondary adrenal insufficiency. Last summer I was diagnosed with Triple Negative breast cancer stage 2(no limph node involvement). I begun
Outandabout-1
in
Thyroid UK
11 months ago
POST PROSTATECTOMY RECURRING PSA DIAGNOSED BY PSMA PET #1: ARE PSMA PETS #2+ THEN LIMITED OR DENIED TO CONFIRM CONTINUED PSA RECURRANCE?
Does anyone have experience receiving a total of 2 or more PSMA PETs to confirm PSA recurrance as evidence of the rate of prostate cancer metastisis prior to a second treatment decision to consent to additional treatment options, beyond prostatectomy, namely, hormonal treatment ( ADT) or
chemotherapy
Does anyone have experience receiving a total of 2 or more PSMA PETs to confirm PSA recurrance as evidence of the rate of prostate cancer metastisis prior to a second treatment decision to consent to additional treatment options, beyond prostatectomy, namely, hormonal treatment ( ADT) or
chemotherapy
Johnnyred
in
Advanced Prostate Cancer
1 year ago
Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
AussieNeil
Partner
in
CLL Support
11 months ago
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