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Update after consultation w/Royal Marsden
I promised I would address some requests for information following my consultation with Prof. Johan de Bono and his team at the Royal Marsden Hospital. The trigger was a marginally raised PSA (now 4.4) and some evidence on more bone mets, failing Enzalutamide and being offered a course of chemo (which
I promised I would address some requests for information following my consultation with Prof. Johan de Bono and his team at the Royal Marsden Hospital. The trigger was a marginally raised PSA (now 4.4) and some evidence on more bone mets, failing Enzalutamide and being offered a course of chemo (which
CrocodileShoes
in
Advanced Prostate Cancer
11 months ago
POST PROSTATECTOMY RECURRING PSA DIAGNOSED BY PSMA PET #1: ARE PSMA PETS #2+ THEN LIMITED OR DENIED TO CONFIRM CONTINUED PSA RECURRANCE?
Does anyone have experience receiving a total of 2 or more PSMA PETs to confirm PSA recurrance as evidence of the rate of prostate cancer metastisis prior to a second treatment decision to consent to additional treatment options, beyond prostatectomy, namely, hormonal treatment ( ADT) or
chemotherapy
Does anyone have experience receiving a total of 2 or more PSMA PETs to confirm PSA recurrance as evidence of the rate of prostate cancer metastisis prior to a second treatment decision to consent to additional treatment options, beyond prostatectomy, namely, hormonal treatment ( ADT) or
chemotherapy
Johnnyred
in
Advanced Prostate Cancer
1 year ago
Swollen Legs after Chemo
I just finished ten rounds of Docetaxel for stage 4 PC. At around the 8th cycle, I noticed my legs and ankles were swollen. Now that I’ve completed the chemo, the legs/ankles are still swollen and feel very tight and heavy. My thighs have also ballooned in size. I had an ultrasound to rule out blood
I just finished ten rounds of Docetaxel for stage 4 PC. At around the 8th cycle, I noticed my legs and ankles were swollen. Now that I’ve completed the chemo, the legs/ankles are still swollen and feel very tight and heavy. My thighs have also ballooned in size. I had an ultrasound to rule out blood
carguy
in
Advanced Prostate Cancer
11 months ago
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live with prostate cancer
Since 2021 I was diagnosed with type 4 metastatic prostate cancer ,started my chemo with texatere my PSA is below 0 , taking lupron injection every 6 months my PSA is normal since then Now in july 2023 my PSA start increasing to 2.96 and no sign of cancer in my last Pet scan Now my Oncologist
Since 2021 I was diagnosed with type 4 metastatic prostate cancer ,started my chemo with texatere my PSA is below 0 , taking lupron injection every 6 months my PSA is normal since then Now in july 2023 my PSA start increasing to 2.96 and no sign of cancer in my last Pet scan Now my Oncologist
Mkhaz
in
Advanced Prostate Cancer
11 months ago
Future after Erleada/Lupron
I met with a new MO today for a second opinion. I've been taking Erleada/Lupron for almost four years with few side effects (for which I'm grateful). I'm aware that my results have been very good and I wasn't looking for advice regarding a change in my care....I just wanted to have a second doctor
I met with a new MO today for a second opinion. I've been taking Erleada/Lupron for almost four years with few side effects (for which I'm grateful). I'm aware that my results have been very good and I wasn't looking for advice regarding a change in my care....I just wanted to have a second doctor
NorYug
in
Advanced Prostate Cancer
11 months ago
Cabazitaxel, can you return for a second round.
I was only on this chemo, Cabazitaxel, for three infusions, then was approved for Pluvicto . PSA was creeping up slowly during that time, from 63-141. Has anyone gone back to it and had success with 8-10 infusions? I am now being treated with docetaxel(50%) and carboplatin, both at a reduced percentage
I was only on this chemo, Cabazitaxel, for three infusions, then was approved for Pluvicto . PSA was creeping up slowly during that time, from 63-141. Has anyone gone back to it and had success with 8-10 infusions? I am now being treated with docetaxel(50%) and carboplatin, both at a reduced percentage
docbulldog
in
Advanced Prostate Cancer
11 months ago
Lynch’s syndrome
With three surgeries since (last one not so successful) and three rounds of
chemotherapy
, presently on maintenance Avastin. Does anybody know anything about Lynch’s syndrome.
With three surgeries since (last one not so successful) and three rounds of
chemotherapy
, presently on maintenance Avastin. Does anybody know anything about Lynch’s syndrome.
2016Mags
in
My Ovacome
1 year ago
Inoperable Glioblastoma
My dad has glioblastoma in his left frontal lobe. His right arm/hand is now completely paralysed and his speech is getting poorer every week. It’s taken 5 months to finally start treatment due to stroke misdiagnosis. Due to location they cannot de bulk the tumour. As he is 68 he opted for 3 weeks of
My dad has glioblastoma in his left frontal lobe. His right arm/hand is now completely paralysed and his speech is getting poorer every week. It’s taken 5 months to finally start treatment due to stroke misdiagnosis. Due to location they cannot de bulk the tumour. As he is 68 he opted for 3 weeks of
Casper438
in
The Brain Tumour Charity
11 months ago
New to board
Recently told that I mostly likely have recurrent prostate cancer. This is based solely on PSA and other risk factors (age, etc.). I have had a PET PSMA, NM Bone scan, CT Chest and Pelvis scan, and all have come out clean and clear. Local oncologist (while admitting he doesn't really know where the
Recently told that I mostly likely have recurrent prostate cancer. This is based solely on PSA and other risk factors (age, etc.). I have had a PET PSMA, NM Bone scan, CT Chest and Pelvis scan, and all have come out clean and clear. Local oncologist (while admitting he doesn't really know where the
Raflo
in
Prostate Cancer Network
11 months ago
Infections during Chemo
After my LRP (2010) I had UTI's continually for ~2 years. I have no idea what finally shook them off -- a change from a tropical to a temperate climate, maybe? I am not coming to the end of the oral treatments available to me. At some time in the not too distant future I will be moving to docetaxel
After my LRP (2010) I had UTI's continually for ~2 years. I have no idea what finally shook them off -- a change from a tropical to a temperate climate, maybe? I am not coming to the end of the oral treatments available to me. At some time in the not too distant future I will be moving to docetaxel
BrentW
in
Advanced Prostate Cancer
11 months ago
Abnormal liver function
Hi all, did any of you have abnormal liver function which was deemed just related to the stress of the surgery. I am 12 weeks post debulking surgery for mucinous ovary stage 1C3. My tumor markers currently normal which I am pleased with. I have not had chemo. my liver function was noted to be abnormal
Hi all, did any of you have abnormal liver function which was deemed just related to the stress of the surgery. I am 12 weeks post debulking surgery for mucinous ovary stage 1C3. My tumor markers currently normal which I am pleased with. I have not had chemo. my liver function was noted to be abnormal
Jholly4
in
My Ovacome
11 months ago
Progression and Niraparib
Morning everyone I was on Niraparib since last June 22 but this June it was stopped as my CT scan showed progression to my liver and possibly spleen. Also in peritoneum. My oncologist felt the Niraparib wasn’t working. Am now back on Paclitaxel and carboplatin and just had my first round. Due to have
Morning everyone I was on Niraparib since last June 22 but this June it was stopped as my CT scan showed progression to my liver and possibly spleen. Also in peritoneum. My oncologist felt the Niraparib wasn’t working. Am now back on Paclitaxel and carboplatin and just had my first round. Due to have
Skyeplus
in
My Ovacome
11 months ago
Secondary adrenal insufficiency after immunotherapy
First of all, I am so happy to have found this forum! I`ve been searching for the last two months for an active forum where I could find somebody like me, with secondary adrenal insufficiency. Last summer I was diagnosed with Triple Negative breast cancer stage 2(no limph node involvement). I begun
First of all, I am so happy to have found this forum! I`ve been searching for the last two months for an active forum where I could find somebody like me, with secondary adrenal insufficiency. Last summer I was diagnosed with Triple Negative breast cancer stage 2(no limph node involvement). I begun
Outandabout-1
in
Thyroid UK
11 months ago
Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
AussieNeil
Partner
in
CLL Support
11 months ago
Update
My husband David is receiving
chemotherapy
(Vidaza) to improve his blood counts. His MDS is a serious stage, described to us as "refractory anemia with excess blasts 1." His blood counts are all extremely low with an ominous increase in "monocytes."
My husband David is receiving
chemotherapy
(Vidaza) to improve his blood counts. His MDS is a serious stage, described to us as "refractory anemia with excess blasts 1." His blood counts are all extremely low with an ominous increase in "monocytes."
dwolden
in
CLL Support
5 months ago
My Small PCa Cells Don't Produce PSA
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Bandit99
in
Advanced Prostate Cancer
11 months ago
Trodelvy and dizziness
Hello everyone! I haven’t posted in awhile because I have been trying to make it through my new chemo regime. I am on Trodelvy and seemed to hit the jackpot in experiencing lots of the side affects. I have had one full cycle of it. ( 2 doses at 100 percent strength). Lots of nausea that I don’t
Hello everyone! I haven’t posted in awhile because I have been trying to make it through my new chemo regime. I am on Trodelvy and seemed to hit the jackpot in experiencing lots of the side affects. I have had one full cycle of it. ( 2 doses at 100 percent strength). Lots of nausea that I don’t
Ticket123
in
SHARE Metastatic Breast Cancer
11 months ago
Tagrisso vs Erlotinib
Hi All, Dad had results of liquid biopsy and EGFR positive, Oncologist has recommended Erlotinib ( NHS treatment). We understand that his diagnosis T4 N2 M0 is non curative but trying to balance quality of life and length; chemo and a standard biopsy were deemed not tolerable for my 89 yr old dad. Silly
Hi All, Dad had results of liquid biopsy and EGFR positive, Oncologist has recommended Erlotinib ( NHS treatment). We understand that his diagnosis T4 N2 M0 is non curative but trying to balance quality of life and length; chemo and a standard biopsy were deemed not tolerable for my 89 yr old dad. Silly
Adaughter
in
The Roy Castle Lung Cancer Foundation
11 months ago
Another exciting installment in the further adventures of a slightly scared intrepid bypass owner.
Well things are still happening, not quite in the order originally expected. A appointment to see Mr A on Tuesday the 25 to explain things.I thought that I was going to have started my chemo and radiation therapy by now,but on the phone Mr A has told me that the is a slight delay in the histology results
Well things are still happening, not quite in the order originally expected. A appointment to see Mr A on Tuesday the 25 to explain things.I thought that I was going to have started my chemo and radiation therapy by now,but on the phone Mr A has told me that the is a slight delay in the histology results
Rogo23
in
British Heart Foundation
11 months ago
Appetite Help Please
Hi I am currently undergoing
chemotherapy
for adenocarcinoma (surgery not an option) final round is 8th May then onto immunotherapy. I have lost a lot of weight which I am keen to put back on, however I struggle to find anything other than cereal and soup appetising/edible.
Hi I am currently undergoing
chemotherapy
for adenocarcinoma (surgery not an option) final round is 8th May then onto immunotherapy. I have lost a lot of weight which I am keen to put back on, however I struggle to find anything other than cereal and soup appetising/edible.
Gardenfairy1
in
The Roy Castle Lung Cancer Foundation
1 year ago
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