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things get worse !!
feeling a bit low today , do you really feel this bad when coming up to your last chemo !! Blood clots , tummy cramps , tummy injections no energy what’s so ever , sorry for the moan xx
feeling a bit low today , do you really feel this bad when coming up to your last chemo !! Blood clots , tummy cramps , tummy injections no energy what’s so ever , sorry for the moan xx
Cazy1010
in
My Ovacome
9 months ago
A Wish Fulfilled, and a Legacy
This endeavor, called “Project Renewal,” recently updated the dosage label for the oral
chemotherapy
drug capecitabine (Xeloda) to make it more tolerable, and there will likely be more to come!
This endeavor, called “Project Renewal,” recently updated the dosage label for the oral
chemotherapy
drug capecitabine (Xeloda) to make it more tolerable, and there will likely be more to come!
Bestbird
in
SHARE Metastatic Breast Cancer
11 months ago
Enzalutamide (Xtandi): Start at half standard dose to extend efficacy time span?
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
KGU1
in
Advanced Prostate Cancer
9 months ago
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Update
Hi Ladies, l hope you are as well as you can be! I haven't posted for some time as things have not been to great.After the chemo last July l had to have several blood transfusions and magnesium infusions. Well to cut a long story short l had to go for a bone marrow biopsy and the outcome of this was
Hi Ladies, l hope you are as well as you can be! I haven't posted for some time as things have not been to great.After the chemo last July l had to have several blood transfusions and magnesium infusions. Well to cut a long story short l had to go for a bone marrow biopsy and the outcome of this was
Lewisriley47
in
My Ovacome
9 months ago
Do I still say I have cancer?
I had the upper left lobe of my lung (that's a mouthful) removed in February. The tumour was crimping a pulmonary artery and when examining the removed bit it was shown to have active cancer cells - they couldn't remove the lobe cleanly enough without nicking the artery so I was told. Consequently
I had the upper left lobe of my lung (that's a mouthful) removed in February. The tumour was crimping a pulmonary artery and when examining the removed bit it was shown to have active cancer cells - they couldn't remove the lobe cleanly enough without nicking the artery so I was told. Consequently
olwman
in
The Roy Castle Lung Cancer Foundation
9 months ago
3rd recurrence
Hi ladies, need advice on my mother's current situation. She's 3c high grade carcinoma ovarian cancer patient. She was diagnosed first in 2016 then 2019 then 2022. Her CA markers are up again. It has shoot up to 17 from 10. Same pattern was there last time 10,12,17,35,68,140.... Doctors are not going
Hi ladies, need advice on my mother's current situation. She's 3c high grade carcinoma ovarian cancer patient. She was diagnosed first in 2016 then 2019 then 2022. Her CA markers are up again. It has shoot up to 17 from 10. Same pattern was there last time 10,12,17,35,68,140.... Doctors are not going
HealthyBeing
in
My Ovacome
9 months ago
PSA still low but cancer progressing
I've been on ADT plus Xtandi for about a year (see my profile) and my PSA has steadily reduced and stayed low. However, my latest CT scan shows that the tumours on my bones and lymph nodes are increasing in size and there are now a few small lesions appearing in my liver for the first time. Not the news
I've been on ADT plus Xtandi for about a year (see my profile) and my PSA has steadily reduced and stayed low. However, my latest CT scan shows that the tumours on my bones and lymph nodes are increasing in size and there are now a few small lesions appearing in my liver for the first time. Not the news
Benkaymel
in
Advanced Prostate Cancer
9 months ago
Hydroxyurea vs Besremi
Which drug is considered less toxic on the body - hydroxyurea or besremi? My MPN specialist put me on hydroxyurea a few years ago with the plan to switch over to besremi in a couple of months. I did get insurance approval for the besremi a long time ago but I've been hesitant to make the switch. At
Which drug is considered less toxic on the body - hydroxyurea or besremi? My MPN specialist put me on hydroxyurea a few years ago with the plan to switch over to besremi in a couple of months. I did get insurance approval for the besremi a long time ago but I've been hesitant to make the switch. At
ERei
in
MPN Voice
9 months ago
Met with the MO
Hi all, looks like I will be starting triplet in mid October. From what I have learned here since I joined is I should be very grateful for that and I am......but, I gotta be honest, I am kind of nervous about what the chemo will do to me. 6 rounds over 18 wks. I am a positive person and will fight
Hi all, looks like I will be starting triplet in mid October. From what I have learned here since I joined is I should be very grateful for that and I am......but, I gotta be honest, I am kind of nervous about what the chemo will do to me. 6 rounds over 18 wks. I am a positive person and will fight
Yzinger
in
Advanced Prostate Cancer
9 months ago
update on Azacitidine
I’m sure my local haematologist is thinking “be careful what you wish for”. In recent communications with Claire Harrison she tells me that the the fourth cycle is supposed to be the turning point when your body starts to adjust to the drug. I hope she is right as I’ve just finished the 4th cycle and
I’m sure my local haematologist is thinking “be careful what you wish for”. In recent communications with Claire Harrison she tells me that the the fourth cycle is supposed to be the turning point when your body starts to adjust to the drug. I hope she is right as I’ve just finished the 4th cycle and
beetle
in
MPN Voice
9 months ago
1st Recurrence
Hello I know some chemo regimes are similar to ours in the states for the most part I have another appointment with my Onc this Friday with my concerns regarding 6 Carbo/Taxol/Keytruda cocktail would love to hear what was chosen for a 1st recurrence and how your doing. Thank you!
Hello I know some chemo regimes are similar to ours in the states for the most part I have another appointment with my Onc this Friday with my concerns regarding 6 Carbo/Taxol/Keytruda cocktail would love to hear what was chosen for a 1st recurrence and how your doing. Thank you!
Saintgermain
in
My Ovacome
9 months ago
oncologist Today
Hi Everyone , ok so John went back to oncologist to hear the plan . She wants him to have a biopsy on biggest lymph node to see if cancer as changed into small cell as its different treatment , then she suggests to go with chemo first before Lu 177 and also another option is to change his medication
Hi Everyone , ok so John went back to oncologist to hear the plan . She wants him to have a biopsy on biggest lymph node to see if cancer as changed into small cell as its different treatment , then she suggests to go with chemo first before Lu 177 and also another option is to change his medication
palser1
in
Advanced Prostate Cancer
9 months ago
Blood Transfusion day after Chemo
Hi allI've had many units of blood over the years during my chemo, but I'm having a unit of blood today and my chemo was only yesterday. I know this might sound daft but will having more blood in my system only 1 day after chemo mean that the chemo drugs will kind of be watered down!!? Never thought
Hi allI've had many units of blood over the years during my chemo, but I'm having a unit of blood today and my chemo was only yesterday. I know this might sound daft but will having more blood in my system only 1 day after chemo mean that the chemo drugs will kind of be watered down!!? Never thought
Kouyate
in
My Ovacome
9 months ago
Bloating and weight gain solutions anyone?
I read that hydroxycarbamide treatment is likely to produce a weight gain. Even though I am now on the smallest dose (500mg/day), dealing with a bloated tummy is so difficult. I should add that I have ET and have been on treatment now for close to 3 years. I exercise religiously but feel so frustrated
I read that hydroxycarbamide treatment is likely to produce a weight gain. Even though I am now on the smallest dose (500mg/day), dealing with a bloated tummy is so difficult. I should add that I have ET and have been on treatment now for close to 3 years. I exercise religiously but feel so frustrated
Hidden
in
MPN Voice
9 months ago
Options when Docetaxel stops working
Hi everyone- My brother was diagnosed with stage 4 prostate cancer in April of 2021. His PSA was 52 at the time of his diagnosis. He went on Lupron and Abiraterone which took his PSA to .03 and kept it low until Oct 2022. It went to 8.9 and his doctor put him on Docetaxel chemo. His PSA has continued
Hi everyone- My brother was diagnosed with stage 4 prostate cancer in April of 2021. His PSA was 52 at the time of his diagnosis. He went on Lupron and Abiraterone which took his PSA to .03 and kept it low until Oct 2022. It went to 8.9 and his doctor put him on Docetaxel chemo. His PSA has continued
TerryR123
in
Advanced Prostate Cancer
9 months ago
Sola, What a gift!!!
My beautiful brother is currenty undergoing
chemotherapy
for lymphoma and i dedicate every run to him. He could walk for miles but not now every step is an effort we are so blessed those who can run no matter how slow or fast.
My beautiful brother is currenty undergoing
chemotherapy
for lymphoma and i dedicate every run to him. He could walk for miles but not now every step is an effort we are so blessed those who can run no matter how slow or fast.
JetSetWilly
in
Bridge to 10K
1 year ago
Suppliments that help with chemo?
A friend on their own chemo journey recommended the following - wondering if anyone agrees, or is this the equivalent of snake oil? Thanks for any help you can give. Pao V “FM”® is a dietary supplement composed of Pao pereira extract (Geissospermum vellosii) and "Quassia amara" powder. Ginkgo V® is
A friend on their own chemo journey recommended the following - wondering if anyone agrees, or is this the equivalent of snake oil? Thanks for any help you can give. Pao V “FM”® is a dietary supplement composed of Pao pereira extract (Geissospermum vellosii) and "Quassia amara" powder. Ginkgo V® is
Tinuriel
in
Advanced Prostate Cancer
9 months ago
Had my 2nd appt with my Haematologist today
She said it is not really like main stream
chemotherapy
and the small risk is worth it to give me a good quality hopefully long life free from a debilitating stroke etc.
She said it is not really like main stream
chemotherapy
and the small risk is worth it to give me a good quality hopefully long life free from a debilitating stroke etc.
Pachena
in
MPN Voice
1 year ago
Hot flushes help
Hi teal ladies, struggling with hot flushes keeping me awake most of the night. Has anyone found a useful supplement not contraindicated for us teal ladies? I also have a bit of liver impairment since debulking surgery in May without a known cause yet so need to check that wouldn't be a blocker for trying
Hi teal ladies, struggling with hot flushes keeping me awake most of the night. Has anyone found a useful supplement not contraindicated for us teal ladies? I also have a bit of liver impairment since debulking surgery in May without a known cause yet so need to check that wouldn't be a blocker for trying
Jholly4
in
My Ovacome
10 months ago
Capecitabine (Xeloda)
I have for the past 2 and a half years been taking Ibrance and letrozole. Unfortunately my last two scans have shown that they are no longer working and the cancer cells have started to grow. Tomorrow I start taking Capecitabine ( Xeloda) a chemo drug. 3 x 150 twice a day. 2 weeks on 1 week off. I
I have for the past 2 and a half years been taking Ibrance and letrozole. Unfortunately my last two scans have shown that they are no longer working and the cancer cells have started to grow. Tomorrow I start taking Capecitabine ( Xeloda) a chemo drug. 3 x 150 twice a day. 2 weeks on 1 week off. I
LorryLou
in
SHARE Metastatic Breast Cancer
10 months ago
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