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Flair trial v FCR
I will ask the consultant next time I see here but in the meantime I thought I would ask here The registrar at my last visit s aid when treatment is needed we can offer me the above. On a trial you monitored a lot more closely I would assume but how would it compare to having FCR ? I am thinking
I will ask the consultant next time I see here but in the meantime I thought I would ask here The registrar at my last visit s aid when treatment is needed we can offer me the above. On a trial you monitored a lot more closely I would assume but how would it compare to having FCR ? I am thinking
Hidden
in
CLL Support
9 years ago
Low red blood cell count
Hi All, Went to have first of two rituximab infusions only to find my red blood cells are very low low (7.5). I still had the infusion but my consultant phoned my two days later to explain low cell count and has called me in for a further blood test and says we will take it from there. Just wondering
Hi All, Went to have first of two rituximab infusions only to find my red blood cells are very low low (7.5). I still had the infusion but my consultant phoned my two days later to explain low cell count and has called me in for a further blood test and says we will take it from there. Just wondering
Shine44
in
LUPUS UK
9 years ago
My first rituximab infusion
Just wanted to post that I received my first infusion today, went well and had no reaction at all. Just felt very tired and ready for a good sleep tonight........ Obviously don't know what tomorrow will bring but am optimistic xx
Just wanted to post that I received my first infusion today, went well and had no reaction at all. Just felt very tired and ready for a good sleep tonight........ Obviously don't know what tomorrow will bring but am optimistic xx
beckybooboo
in
NRAS
9 years ago
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1 year on after FCR
Hi guys, havent been around much lately so thought i would pop in and say hello. Just been for my 1year post chemo check-up. I have had some issues with low CD4 and as im allergic to Co-Trim i have to have a pentamadine inhaler which i hate. Well the fantastic news is that my bloods are all bang on the
Hi guys, havent been around much lately so thought i would pop in and say hello. Just been for my 1year post chemo check-up. I have had some issues with low CD4 and as im allergic to Co-Trim i have to have a pentamadine inhaler which i hate. Well the fantastic news is that my bloods are all bang on the
grizzlebear
in
CLL Support
9 years ago
BLOOD COUNTS
Starting FCR next week and wondering just how BAD my blood count is - I have just taken sight of this today so being a bit vague about things just want to know whereabouts I would fall - I was on watch and wait for about 8 years WITHOUT knowing it UNTIL I was officially diagnosed just over a month ago
Starting FCR next week and wondering just how BAD my blood count is - I have just taken sight of this today so being a bit vague about things just want to know whereabouts I would fall - I was on watch and wait for about 8 years WITHOUT knowing it UNTIL I was officially diagnosed just over a month ago
Strong-happy2
in
CLL Support
9 years ago
Pointers for starting FCR
Hi Guys n Gals Firstly, just going to be starting FCR next week and having read through this site have found it very informative. What for the actual treatment should I do? - I am going to be in a ward and overnight stay for the first cycle of "R" and then I get out the next day - I think for day one
Hi Guys n Gals Firstly, just going to be starting FCR next week and having read through this site have found it very informative. What for the actual treatment should I do? - I am going to be in a ward and overnight stay for the first cycle of "R" and then I get out the next day - I think for day one
Strong-happy2
in
CLL Support
9 years ago
Do FCR trials ever end early when the results are very favorable?
Hi I am new to this community but not new to CLL. Was diagnosed in 9/2009 with a WBC of 28.5k after a routine physical and was totally asymptomatic. Just turned 50 also at the time a few months before which was a little ironic. Anyway, other prognosticators like Del 13q, IGVH mutated, low Bm2, and 1
Hi I am new to this community but not new to CLL. Was diagnosed in 9/2009 with a WBC of 28.5k after a routine physical and was totally asymptomatic. Just turned 50 also at the time a few months before which was a little ironic. Anyway, other prognosticators like Del 13q, IGVH mutated, low Bm2, and 1
CClaver27
in
CLL Support
9 years ago
Rituximab Infusion to treat Scleroderma/IPF
Hi. Has anyone had Rituximab Infusions to treat Scleroderma/IPF? Did you feel OK after each infusion?
Hi. Has anyone had Rituximab Infusions to treat Scleroderma/IPF? Did you feel OK after each infusion?
SMS2006
in
Lung Conditions Community Forum
9 years ago
Rituximab
Finding that some patients with Hodgkins Disease and CFS improved their CFS symptoms after Rituximab immunomodulation by B cell depletion http://www.biomedcentral.com/1471-2377/9/28 further trials were carried out with larger numbers. The results of this trial in 2011 http://www.ncbi.nlm.nih.gov/pmc
Finding that some patients with Hodgkins Disease and CFS improved their CFS symptoms after Rituximab immunomodulation by B cell depletion http://www.biomedcentral.com/1471-2377/9/28 further trials were carried out with larger numbers. The results of this trial in 2011 http://www.ncbi.nlm.nih.gov/pmc
Ian123
in
Ramsays Disease
9 years ago
Reassurance please :( Rituximab, bloods and bence jones protein test????
Hello all, am hoping that one of you may be able to help? Im about to have my first infusion of Rituximab and have had lots of bloods taken to check that all is ok to commence...... anyway, I was told that I needed a second blood test for bence jones protein??? which showed up in my first lot of bloods
Hello all, am hoping that one of you may be able to help? Im about to have my first infusion of Rituximab and have had lots of bloods taken to check that all is ok to commence...... anyway, I was told that I needed a second blood test for bence jones protein??? which showed up in my first lot of bloods
beckybooboo
in
NRAS
9 years ago
Macular degeneration
I was told today that I have very early signs of macular degeneration in both eyes. I was diagnosed with WG over 15 years ago and receive 6 monthly infusions of Rituximab. Has anyone else been diagnosed with this please. All replies gratefully received.
I was told today that I have very early signs of macular degeneration in both eyes. I was diagnosed with WG over 15 years ago and receive 6 monthly infusions of Rituximab. Has anyone else been diagnosed with this please. All replies gratefully received.
Essex-jill
in
Vasculitis UK
9 years ago
Rituximab here I come!!!
Following my visit to Rheumo last week to discuss my enbrel immunity, it was as I thought, suggested that I try Rituximab. I had my bloods taken yesterday & they are testing for everything, then have another appointement on the 9th April to see if I am ok for it & understand the literature etc... so
Following my visit to Rheumo last week to discuss my enbrel immunity, it was as I thought, suggested that I try Rituximab. I had my bloods taken yesterday & they are testing for everything, then have another appointement on the 9th April to see if I am ok for it & understand the literature etc... so
141960
in
NRAS
9 years ago
FLAIR Trial - ErnieUK Dehydration in Round 4 FCR (and home made soup)
Well I’m glad to report I’m finally into the R&R stage now of round 4, and Spring seems to have finally arrived just in time for Easter. As always please correct me on any errors/omissions and please share your own experiences. So how did round 4 go? Well, similar problems to round three to start with
Well I’m glad to report I’m finally into the R&R stage now of round 4, and Spring seems to have finally arrived just in time for Easter. As always please correct me on any errors/omissions and please share your own experiences. So how did round 4 go? Well, similar problems to round three to start with
Ernest2
in
CLL Support
9 years ago
COPING STRATEGIES for living better with CLL - Part 3 - some extra tips for making good use of "Watch and "Wait"
Here are some
extra practical points
for things to do during "Watch and wait". Thanks again to everyone who contributed. 1) Have all the
HEALTH SCREENING TESTS
that are offered e.g. stool sample tests, mammograms, cervical smears, and blood tests for prostate (and possibly ovarian
Here are some
extra practical points
for things to do during "Watch and wait". Thanks again to everyone who contributed. 1) Have all the
HEALTH SCREENING TESTS
that are offered e.g. stool sample tests, mammograms, cervical smears, and blood tests for prostate (and possibly ovarian
PaulaS
Volunteer
in
CLL Support
9 years ago
Can Rituximab be used if you are ANCA negative?
Does anyone have any knowledge about whether Rituximab can be used if you are ANCA negative? I have CSS for nearly 2 years, but luckily a mild severity. My consultant has suggested I should perhaps change from Azathioprine since it does not appear to be controlling the CSS based on CRP levels (never
Does anyone have any knowledge about whether Rituximab can be used if you are ANCA negative? I have CSS for nearly 2 years, but luckily a mild severity. My consultant has suggested I should perhaps change from Azathioprine since it does not appear to be controlling the CSS based on CRP levels (never
JontyW
in
Vasculitis UK
9 years ago
Assessing Response With Novel Agents in CLL - OncLive Peer Exchange
While this peer review may be over technical for many, it does provide an insight into how the new CLL drugs are challenging the established methods of assessing treatment effectiveness. Panelists:- Myron S. Czuczman, MD, Roswell Park; John C. Byrd, MD, Ohio State; Richard Furman, MD, Weill Cornell;
While this peer review may be over technical for many, it does provide an insight into how the new CLL drugs are challenging the established methods of assessing treatment effectiveness. Panelists:- Myron S. Czuczman, MD, Roswell Park; John C. Byrd, MD, Ohio State; Richard Furman, MD, Weill Cornell;
AussieNeil
Partner
in
CLL Support
9 years ago
Stopping FCR early
Hi Everyone, My doctor has cancelled the FC in my 6th and final dose of FCR. ( I am in US so I get all IV meds and have 11q deletion/CD38+) My preliminary bloodwork done last Friday (WBC 1.5 platelets 97,000) so the CBC was repeated this Monday to check WBC ( WBC of 2.2 platelets 78,000) I received
Hi Everyone, My doctor has cancelled the FC in my 6th and final dose of FCR. ( I am in US so I get all IV meds and have 11q deletion/CD38+) My preliminary bloodwork done last Friday (WBC 1.5 platelets 97,000) so the CBC was repeated this Monday to check WBC ( WBC of 2.2 platelets 78,000) I received
Jomary8505
in
CLL Support
9 years ago
Transformation...
Wanted to let you all know how I was getting on, unfortunately its been confirmed that my CLL has transformed into Richter's syndrome, to say I was devastated was an understatement, biopsy result confirmed my worst fears, I started on an intensive chemo DHAP and Rituximab on the 11th March had to stay
Wanted to let you all know how I was getting on, unfortunately its been confirmed that my CLL has transformed into Richter's syndrome, to say I was devastated was an understatement, biopsy result confirmed my worst fears, I started on an intensive chemo DHAP and Rituximab on the 11th March had to stay
JanetG
in
CLL Support
9 years ago
As Expected!!!
Just as I suspected, after 3 years or so of feeling reasonably comfortable my Enbrel has stopped working to control my sero positive erosive RA. I had a call from Rheumo yesterday to say that there are significant changes in my hands & feet from the last x rays last year, (which I sort of knew there
Just as I suspected, after 3 years or so of feeling reasonably comfortable my Enbrel has stopped working to control my sero positive erosive RA. I had a call from Rheumo yesterday to say that there are significant changes in my hands & feet from the last x rays last year, (which I sort of knew there
141960
in
NRAS
9 years ago
The future for CLL?
In the last few years, we've seen some great advances in the efficacy of new treatments for CLL, with very encouraging progress towards a cure. There has even been talk that we may have achieved the breakthrough that Imatinib (perhaps better know as Gleevec) was for a sister leukaemia to CLL - CML or
In the last few years, we've seen some great advances in the efficacy of new treatments for CLL, with very encouraging progress towards a cure. There has even been talk that we may have achieved the breakthrough that Imatinib (perhaps better know as Gleevec) was for a sister leukaemia to CLL - CML or
AussieNeil
Partner
in
CLL Support
9 years ago
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