Went to have first of two rituximab infusions only to find my red blood cells are very low low (7.5). I still had the infusion but my consultant phoned my two days later to explain low cell count and has called me in for a further blood test and says we will take it from there. Just wondering what this might mean and whether it will affect me getting the next infusion. Alongside this I am extremely exhausted and seem to have developed tinnitus in my left ear. It sounds like I can hear the blood pumping around my body. What does it all mean? Why has my red blood cells dropped so dramatically? It was 11.3 in the previous test. To add to all these worries I don't feel as if I can take any more time off work and don't want to. Have booked the time off for second infusion but can't really take more time off for blood tests and yet another chat with consultant. Also have appointment with my renal consultant which is different to my lupus consultant.
I love my job although it is very demanding.
I just don't want to play anymore the lupus game is affecting my lifestyle!
What should I do??? Ignore it all, get on with my life and hope it all sorts itself out?