Ramsays Disease
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Finding that some patients with Hodgkins Disease and CFS improved their CFS symptoms after Rituximab

immunomodulation by B cell depletion biomedcentral.com/1471-2377... further trials were carried out with larger numbers.

The results of this trial in 2011 ncbi.nlm.nih.gov/pmc/articl... had two positive outcomes, first it improved symptoms for 67% of those involved in the phase two trial, the second positive outcome was an apology from Norways Directorate of Health


Bjørn Guldvog, Deputy Director General of theNorwegian Directorate of Health made the following statement;

"I think that we have not cared for people with ME to a great enough extent. I think it is correct to say that we have not established proper health care services for these people, and I regret that."

The best may yet be ahead of us as stage three trials are underway simmaronresearch.com/2015/0... with the biggest trial that is actually four trials in one.

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Cannot imagine apology from NHS


Some of the politics that has been played with lives with the financial reasons for negligence and abuse investinme.org/Article-704%...


Only works for some a short time like months you can be okay then sick again


General thinking seems that no one cause so no magic bullet that will cure everyone, many sub groups (phenotypes) within the same illness.

Helping some with biomedical research is better than treating as "all in the mind" for everyone.

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Ampligen FDA response fda.gov/Drugs/NewsEvents/uc...

We want to emphasize that the CR letter issued for Ampligen is entirely separate and distinct from FDA’s support of drug development pathways for CFS – these initiatives remain unaffected and fully supported. ME/CFS is a serious disease and treatments for it represent an important area of unmet need. We will continue to encourage the pharmaceutical industry to develop new treatments in this area. To assist companies with their development, FDA is sponsoring a workshop in spring 2013 focused specifically on ME/CFS drug development.

Unmet with no FDA approved drugs for SEID / CFS


Big Pharma have a very strong political lobby they will take some moving or rather have taken some moving, as that battle with the FDA has gone on for decades as I hear it.


I was at a conference in March when the story was been told of powerful groups stopping science. Tell me how my blood is not fit for donation when all I need is a talking to and some exercise.



The anti viral approach for treatment is getting some results