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Cetuximab
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First Rituximab Infusion
On Wednesday I was given the first of two Rituximab infusion after waiting over two years for the funding for this drug. I went into my local hospital Rheumatology Day Unit at 9am and after I was admitted and given a hot drink I was first given an infusion of Steroid to help combat any infections and
On Wednesday I was given the first of two Rituximab infusion after waiting over two years for the funding for this drug. I went into my local hospital Rheumatology Day Unit at 9am and after I was admitted and given a hot drink I was first given an infusion of Steroid to help combat any infections and
Maureenpearl
in
LUPUS UK
9 years ago
Biologic or Immune Therapies for CLL
Hi Friends, This week’s update on the CLL Society website http://cllsociety.org is my unscripted recordings on biologic or immunotherapies . I start by reviewing my take on the good and bad of the well known and novel antibodies directed against our B cells by targeting its surface marker CD20. These
Hi Friends, This week’s update on the CLL Society website http://cllsociety.org is my unscripted recordings on biologic or immunotherapies . I start by reviewing my take on the good and bad of the well known and novel antibodies directed against our B cells by targeting its surface marker CD20. These
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
Infusions
Hi all sorry not been on much been having a bad time. Sitting here having my third steriod infusion. Hopefully this will tie me over while I wait for an appointment to start rituximab. God I hope this one helps. I am so frustrated at the moment. On a good note I am starting pain clinic 10 week course
Hi all sorry not been on much been having a bad time. Sitting here having my third steriod infusion. Hopefully this will tie me over while I wait for an appointment to start rituximab. God I hope this one helps. I am so frustrated at the moment. On a good note I am starting pain clinic 10 week course
Crazyjo
in
NRAS
9 years ago
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Tocilizumab injections
Hi all I started tocilizumab injections in April. All was going well (actually felt best I have in two years) unfortunately I have been unable to have the last two injections due to a low white blood count. Blood test again tomorrow to see if it's improved and whether I can have my next injection on
Hi all I started tocilizumab injections in April. All was going well (actually felt best I have in two years) unfortunately I have been unable to have the last two injections due to a low white blood count. Blood test again tomorrow to see if it's improved and whether I can have my next injection on
Rachel43
in
NRAS
9 years ago
FLAIR Trial - ErnieUK Final Round 6 FCR Surprises
I write this Post four weeks now after completing my final Round 6 of the FCR treatment. That’s from taking the last chemotherapy pill. As always please correct me on any errors/omissions and share your own experiences. Round 6 has thrown me a couple of surprises I wasn’t expecting. Please excuse
I write this Post four weeks now after completing my final Round 6 of the FCR treatment. That’s from taking the last chemotherapy pill. As always please correct me on any errors/omissions and share your own experiences. Round 6 has thrown me a couple of surprises I wasn’t expecting. Please excuse
Ernest2
in
CLL Support
9 years ago
Continuing FCR
Hello. I know everyone is different - that seems to be the key phrase in being treated for CLL ☺️ - but can anyone say what their experiences of 2nd, 3rd rounds etc. of FCR were like, compared to their first,please? My husband had no reactions to the Rituximab infusion in hospital, was very nauseous
Hello. I know everyone is different - that seems to be the key phrase in being treated for CLL ☺️ - but can anyone say what their experiences of 2nd, 3rd rounds etc. of FCR were like, compared to their first,please? My husband had no reactions to the Rituximab infusion in hospital, was very nauseous
Fran57
in
CLL Support
9 years ago
Just curious.........
My husband has GPA (Wegener's) and it's coming under control with Rituximab, but he's had to have loads of operations to deal with symptoms that have arrived. He's had his Ulnar nerve moved (Cubital Tunnel), a Nerve on toe cut back, Squamous Carcenoma on his head, Triple Heart Bypass, Varicose Veins,
My husband has GPA (Wegener's) and it's coming under control with Rituximab, but he's had to have loads of operations to deal with symptoms that have arrived. He's had his Ulnar nerve moved (Cubital Tunnel), a Nerve on toe cut back, Squamous Carcenoma on his head, Triple Heart Bypass, Varicose Veins,
Nadine99
in
Vasculitis UK
9 years ago
Dr Jeff Sharman - How I Treat My Patients With CLL Who Are Fit or Otherwise Healthy
In this one page overview from Clinical Care Options Oncology March 2015 (free membership), Dr Sharman explains how he categorises fit and otherwise healthy patients into low, intermediate and high treatment risk categories and chooses what he considers is the appropriate treatment for each category:
In this one page overview from Clinical Care Options Oncology March 2015 (free membership), Dr Sharman explains how he categorises fit and otherwise healthy patients into low, intermediate and high treatment risk categories and chooses what he considers is the appropriate treatment for each category:
AussieNeil
Partner
in
CLL Support
9 years ago
Chest infections
Following six rounds of fcr ending in february this year i have been plagued with one chest infection after another and a constant bad cough. I now have tinnitus. Has anyone else had anything similar and is this a normal symptom on cll. I would appreciate your comments.
Following six rounds of fcr ending in february this year i have been plagued with one chest infection after another and a constant bad cough. I now have tinnitus. Has anyone else had anything similar and is this a normal symptom on cll. I would appreciate your comments.
d011y
in
CLL Support
9 years ago
Which biological this time?
Today I was offered the choice of Rituximab infusions or Tocilizumab injections to replace the Cimzia that has stopped being effective after 6 years. Has anyone been on either of these drugs and if so how were they for you? I am leaning towards injections as I wouldn't have to take the Methotrexate anymore
Today I was offered the choice of Rituximab infusions or Tocilizumab injections to replace the Cimzia that has stopped being effective after 6 years. Has anyone been on either of these drugs and if so how were they for you? I am leaning towards injections as I wouldn't have to take the Methotrexate anymore
Alderess
in
NRAS
9 years ago
Confused
Totally lost Seen my rumatoligist today Says maybe i don't have RA as I am not responding to treatment Also there is little inflamation even though I have excruciating pain everywhere and my fingers are now turning in :-( Struggle to walk sit anything He has me going in next month for infusion
Totally lost Seen my rumatoligist today Says maybe i don't have RA as I am not responding to treatment Also there is little inflamation even though I have excruciating pain everywhere and my fingers are now turning in :-( Struggle to walk sit anything He has me going in next month for infusion
dobsey
in
NRAS
9 years ago
Suppressed bone marrow after FCR
Hello, I would appreciate Community opinions on the following case. Diagnosed with CLL in May 2010, I had 6 cycles of FCR between September 2012 and February 2013. Since then my Hgb has required supplementing with blood transfusions every 3 weeks (so I have had 40+ transfusions of 2 or 3 units). Iron
Hello, I would appreciate Community opinions on the following case. Diagnosed with CLL in May 2010, I had 6 cycles of FCR between September 2012 and February 2013. Since then my Hgb has required supplementing with blood transfusions every 3 weeks (so I have had 40+ transfusions of 2 or 3 units). Iron
Maldenite
in
CLL Support
9 years ago
Ulcerated left eye
Just an update about the ulcer that was in my left eye nearly two weeks ago. The pain started on Saturday the 16th Of May and I went to the A&E early Sunday morning to be told I had a ulcer in my left eye and was sent to see a consultant at the eye department on the Monday. He confirmed that I did have
Just an update about the ulcer that was in my left eye nearly two weeks ago. The pain started on Saturday the 16th Of May and I went to the A&E early Sunday morning to be told I had a ulcer in my left eye and was sent to see a consultant at the eye department on the Monday. He confirmed that I did have
Maureenpearl
in
LUPUS UK
9 years ago
How Long To Wait For Trials and Treatments ?
A question I’ve wanted to ask you all for a long time: How long should we wait for trials and new treatments, and how to decide that the time is right to sign up, or not to wait any longer for what isn’t quite yet available? As I’m at the end of round 6 FCR (more of that later) the penny drops that
A question I’ve wanted to ask you all for a long time: How long should we wait for trials and new treatments, and how to decide that the time is right to sign up, or not to wait any longer for what isn’t quite yet available? As I’m at the end of round 6 FCR (more of that later) the penny drops that
Ernest2
in
CLL Support
9 years ago
Methotrexate and depression?
Does anyone suffer from depression after taking methotrexate? I take mine on a Mon and for 3 days feel very low, I was taken off of it but have had my first infusion of rituximab and had to start it again but only 5mg because of my intolerance. Ra makes me feel bad enough yet alone adding to it......
Does anyone suffer from depression after taking methotrexate? I take mine on a Mon and for 3 days feel very low, I was taken off of it but have had my first infusion of rituximab and had to start it again but only 5mg because of my intolerance. Ra makes me feel bad enough yet alone adding to it......
beckybooboo
in
NRAS
9 years ago
2 Nd loading Rituximab done .. And good !
So again early start and three birds asked me to say how it went! So overall good! Easy cannula yes, methotrexate check bloods obtained then premed of paracetamol and Piriton prior to methypred infusion. Then a half hour wait or do and Rituximab started. They put it in an hour quicker this time so as
So again early start and three birds asked me to say how it went! So overall good! Easy cannula yes, methotrexate check bloods obtained then premed of paracetamol and Piriton prior to methypred infusion. Then a half hour wait or do and Rituximab started. They put it in an hour quicker this time so as
allanah
in
NRAS
9 years ago
How Monoclonal Antibodies produce lasting antitumour effects
This Hematology times article examines research into how CD 20 Monoclonal Antibodies such as Mabthera®/Rituximab/Rituxan (the R in FCR) and obinutuzumab/GAZYVA®, trigger macrophages to engulf and destroy our B-CLL cells when we are treated with immunochemotherapy. What's exciting about this (mouse model
This Hematology times article examines research into how CD 20 Monoclonal Antibodies such as Mabthera®/Rituximab/Rituxan (the R in FCR) and obinutuzumab/GAZYVA®, trigger macrophages to engulf and destroy our B-CLL cells when we are treated with immunochemotherapy. What's exciting about this (mouse model
AussieNeil
Partner
in
CLL Support
9 years ago
Myelodysplasia (MDS)
Hi I haven't been on our community site for 2yrs since then I have had 4 cycles of FCR , unfortunately they stopped the last 2 cycles due to nutropenia now I have been dignosed with MDS ( Myelodysplasia ) is there anyone else that has this sorry about my spelling I have a bad bout of the flu. God bless
Hi I haven't been on our community site for 2yrs since then I have had 4 cycles of FCR , unfortunately they stopped the last 2 cycles due to nutropenia now I have been dignosed with MDS ( Myelodysplasia ) is there anyone else that has this sorry about my spelling I have a bad bout of the flu. God bless
chevy
in
CLL Support
9 years ago
Acute shortness of breath
I have had WG for 15 yrs and am currently having my 2nd flare up. I was admitted to hospital in Leeds in January before this flare up was diagnosed with ? right lower lung pain/ Kidney pain. It was never treated or fully investigated as I was 300 miles from home and they wanted me seen locally. I have
I have had WG for 15 yrs and am currently having my 2nd flare up. I was admitted to hospital in Leeds in January before this flare up was diagnosed with ? right lower lung pain/ Kidney pain. It was never treated or fully investigated as I was 300 miles from home and they wanted me seen locally. I have
Llinos
in
Vasculitis UK
9 years ago
HOLY WHITE COUNT!!
HI all, Well W&W is finally over (that wasnt very long) I started my clinical trial of iFCR and so far so good. Not noticing and side effects of the ibrutinib. FCR starts tuesday so we will see the shit hit the fan then :) He is the crazy part for all of you concerned about how high your white count
HI all, Well W&W is finally over (that wasnt very long) I started my clinical trial of iFCR and so far so good. Not noticing and side effects of the ibrutinib. FCR starts tuesday so we will see the shit hit the fan then :) He is the crazy part for all of you concerned about how high your white count
enelson3
in
CLL Support
9 years ago
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