I started tocilizumab injections in April. All was going well (actually felt best I have in two years) unfortunately I have been unable to have the last two injections due to a low white blood count. Blood test again tomorrow to see if it's improved and whether I can have my next injection on Tuesday.
Any one else had this problem? The hospital is saying if it's not improved then possibly it's not the injection causing the issue & it could be due to something else!
All ready tried rituximab infusion so worried my options are running out. I've been off work since November & money's becoming an issue now. As a single parent with a mortgage to pay I need to get back to work. Feeling disheartened today & try hard not to google what the something else could be!
Rachel x
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Rachel43
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O Rachel sorry you are feeling so down. Cant they give you something to boost your levels? I know mine are a little low but i think thats down to salfsalazine i had to come off it before. I really hope you get sorted. Im always hear if you want to talk xxx Alison
Hi Rachel, sorry to hear that. Were you ok on infusions? Doctors rang me Friday to say they were low & i had to ring monday morning. I rang & the doctor told me to do it. Ive got to be honest im not enjoying them, headaches , feeling tired all the while & my joints are starting to hurt a little. Im going to give it another month & if no change i shall ask to go back on infusions. Xx Alison
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