Well just got home from hospital! Went in yesterday morning for my second infusion for Rituximab! Had a reaction 20miniutes towards the end, nurses jumped in before it put my body into shock, went into 3 hours recovery and seemed fine so went home. Only to get home and a couple hours into being home I started having another reaction but this one was bad! I lost all speech my faced dropped on the left side, my face swelled up couldn't breath and to it worse the ambulance took 15mibs to get to me! Iv never been so scared! My heart stopped In The ambulance and then I woke up in A and E! we can't work out what happened because it was my second session and my first was fine! The only thing that changed is that they tryed to rush the infusion! Anyone having an infusion make sure you tell them to go slow!!! Your body will tell you how it is coping! Has anyone else had a reaction like this?! Squeezing my 3 children tight tonight lol!!! My mum saved my life last night because of how long the ambulance took! If she wasn't here God knows what would of happened!! After all that I hope this infusion has work lol now to wait till Jan to se what it does to my SLE and discoid and AT x
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.