FLAIR trial Ibrutinib Rituximab arm. So....after first round I felt OK if tired, massive bruising, but am usually easily bruised so can cope with that, so long as no one sees my legs. By day 15 or so I had horrid mouth ulcers. And some muscle pain. Round 2 was 2 weeks ago, since when I have had severe muscle pain, in arms and knees. Really quite bad, not responding well to paracetamol, or even codeine. However each pain goes after 3 or 4 days (and a new one pops up, as if my entire body is being challenged.) I have talked to the medics on the phone, and established that this is a side effect for about 37% and most can tolerate it. So I am gritting my teeth for now. Of course main concern is HOW LONG OH lord how long. Will these effects continue while taking IB. I think energy levels are improving a bit, though so far bloods still dropping. But hard to say since I am so bushwhacked by pain and being irritable. (Sorry family)
Bloods as of dec 1st - note taken over phone - no Dr letter yet.)
Hb 10.7 (Previous 111)
White Count 287 (271)
lymphocytes 287 (265)
Platelets 96 (76)
Must ask if I can take Ibuprofen with IB. Dr was dubious of Ibuprofen gel so I am not sure. Anyone know?
Greetings and Merry Xmas to all!