Dental abscess under tooth

Hi Joanne, sorry you're in the horrors, but I'm right there with you. This has basically been the story of my life this year, and I'm afraid for me there was no way around it - the tooth had to be extracted. I say'had to be' - but really, we have to make that decision, no one else can. I'm on Ritux every four months and pred 7mg so basically the same treatment as you - I also have prophylactic antibiotics and IVIg every three weeks, but according to the immunologist, having an infected tooth/dental problems is an area that can remain largely untouched by medical aid. Plenty more to say and I'm totally here to metaphorically hold your hand through this - message me privately if you like - or we can chat via email xx Shaista

Hello Joanne...am so glad Shaista replied....i have ultra mega empathy for anyone going through this ...I'll never forget my nightmare 9 months of this when upper jaw molar root canal failed after 20 years of grumbling symptoms in the roof of my mouth ignored by my dentist. Abscess occurred with sinusitis...then we discovered the bad root had caused osteomyletis in the jaw. That was 2011 during the same period when my hero rheumatologist had just recognised my lupus & started my treatment plan with hydroxy ...so, unlike you both, I had no doses of steroids & myco to adjust...

After multiple courses of antibiotics failed to curb the infection & abscess, I did indeed have the molar extracted by a private oral surgeon...he showed me the b****y mess as he removed it 😱. He proceeded to go through months of all the various stages of placing an implant while my rheumatologist was figuring my immune dysfunction & connective tissue disorder out + starting me on hydroxy. I was very lucky: despite the osteomyelitis, the implant survived & established well. Meanwhile hydroxy & I got along fine...even during the 5 months I spent on daily oral high dose flucloxacillin for the osteomyelitis & sinusitis

So, do be cautious: I'd definitely go for another extraction pronto....& implant if necessary.

Thanks to your discussion with Shaista, I more of a sense re whether I'd need to stop myco & pred were something like this to start up again...at least now that immunology has me on coamoxiclav daily indefinitely, I'll have this protection re further infection during any necessary extractions & implantations 😏

Please let us know how you get on

🍀🍀🍀🍀 coco

Simply yes.

Had 2 back teeth pulled due to abcesses,not a lot to see before but the mess underneath was scary, plus all wisdom teeth (explains alot😉)as dentist told nothing would clear the infection which could damage jaw.

I didn't realise just how awful they were making me feel at the time such as eye discomfort,bad taste,cheek and nose ache,other than the pain, but a couple of weeks later I was so much better.

Hope you get it resolved soon and with as few meds probs as poss.

Hi Joanne sorry to hear about your teeth pain, like littleeffie I have been battling to hang on to my teeth, first my back right was pulled quite loose, I was sad about that, then I had a filling on the otherside and this triggered lots of mouths pain, they pulled my lower back tooth next and still i suffered and they wanted to pull another one above and I asked for antibiotics which I never take & went for a second opinion (which cost me)... I am already paying yearly. They too wanted to pull my teeth for more money. Fortunately, the antibiotics kicked in and I was able to stop the pulling of any more teeth. I went to the dental hygienist spent a hour with her getting more lectures on teeth cleaning & a good clean, no rush job and teeth and gums are better ...see her every three month to keep it in check... It is so sad to lose teeth. I was feeling quite poorly this last time glad it's under control.... Both pulled teeth areas healed OK and OK to eat and no pain. Electric toothbrush a good one, regular visits to the dentist and hopefully you won't have a repeat experience... Nor I. Seeing hygienist in December she will let me know if she approves and i pass cleansing teeth inspection, just like school but worse....good luck for tomorrow. ML

Thank you so much everyone, made me feel so much better.

Pain has been dreadful and kept me up all night so I hope they can pull it out today!

Will let you know what happens.

Jo xx

Just had the tooth out, part of the root snapped which he said normally they would just leave but because of my problems with it he's referred me to hospital to have it removed.

Jo

I had this, too, with all my root canals and crowns - all out now, thank goodness, and I am recovering from the last two extractions in September. I wish I never went there in the first place and just had them out because decay and infection in the roots can really cause problems.

Good luck and go with what your gut tells you.

It may be hard to go through having teeth out and recovering, but better in the end.

Just look after yourself after the extraction.

I had 2 out last time and only ever had one, which was bad enough, but having 2 I had bad swelling and pain.

I used natural means for the pain - prayer and meditation, breathing, etc., although I did resort to holding a packet of Panadol in my hand all night after the last 2. I am very sensitive and can get the energies of substances by holding them even homeopathic.

I am still glad I did it, though.

The thought of having to go through it later made me get on with it.

All the best.X

Thinking of you Jo xx It was really grisly, wasn't it? I'm so sorry. I didn't know whether to tell you how awful it was or not - I definitely had tears too. And felt very fragile. Really hope you have someone lovely to take care of you or just be lovely to yourself. I didn't realise you were going to have it out immediately - or I would have mentioned that I had it done in hospital too because my dentist was worried she wouldn't have the strength to extract it without something breaking. But I'm glad you've been referred there anyway so all will be well. Take care xx

I have Lupus and Von Willebrand Disease. My teeth started to rot as a child and my teens were horrific with teeth abscessing all the time. I have an inherited Ehlers-Danlos problem from my father who had RA and Crohn's. I am negative to ra but I have psoriasis PsA and colitis from my mother who had colitis. Our first baby was a cot death in 1974. We have 3 sons and sadly I was lied to about an Amniocentesis as he too will have Lupus. I have told him I have Lupus. In my case my new Consultant sadly doesn't understand how complex I am. So I now have a referral back to the Eastman who deal with Ehlers Danlos. I have had Raynaulds for years hyperhydrosis for decades and my mouth is full of dead root canal as my Dentist has left them as with all types of Ehlers Danlos I have pEDS now type 13! Teeth migrate very quickly. In my case as I don't have heart problems our baby Robin who was a classic cot death almost certainly had bradycardia. I hope this helps to understand why teeth disintegrate in Lupus. I am negative to Sjögren's, APS,ME, MS, MG.