Tocilizumab infusions

[Savannahseger]

Hi all,

I was wondering how people feel after a Tocilizumab infusion and how long they take? I'm due for my first one tomorrow and would like to go back to work afterwards.

I know after my Rituximab infusion (which was 5.5 hours) I was wiped out with a headache for a few days. But i'm not sure if Tocilizumab will feel the same, as it is a shorter infusion I'm told with less side affects.

[Pat9442]

I have been on the infusions for 9 months now. No real side effects but I do tend to rest for the rest of the day it is done. I feel tired for the next 48 hours but nothing to stop me carrying on with normal life!

My bloods have been fine. The small problem I DO have is that it does not last quite the four weeks so the last few days before the next is due I do feel a little more achy

But overall it has been brilliant

[Savannahseger in reply to Pat9442]

Thank you, I'm glad you've had a positive experience! Good to have an idea what to expect today too. fingers crossed

[Hidden]

I was on this for 4yrs without any problems at all, it was the only drug that gave me some respite from daily pain. I don't work, but mabey a good idea to have the rest of the day at home until you see how it affects you, good luck! 🤗x

[Savannahseger in reply to Hidden]

So glad it's worked for you. Thank you! x

[dwsurquhart]

I have been on the tocilizumab infusions for 2.5 years now.

I feel fine after the infusion.

The infusion takes around and hour and is for the most part painless, except the prick of the needle.

Take a book, help pass the hour, or just talk with the other people in your infusion clinic.

Cheers

[Savannahseger in reply to dwsurquhart]

That's great to know. I am looking forward to the rest-bite to be honest, I love nothing more than hour reading! I just hope this is the magic drug for me. Been on an off to many other treatments this past 12 months x

[fred42]

I had my first infusion a week ago, no problems at all, quite a restful experience but overall 2 hours this first time as more chat about it.

I have felt a little tired but no worse than usual, My 3rd biologic after 4 DMARDS and I'm cautiously optimistic, hope it is good for you too.

[Savannahseger in reply to fred42]

It sounds like we're in the same boat! i thought the infusion went fine. Just trying to stay hopeful (cautiously as you say) that this works in a few months time. Sending you good wishes too!

[Metal-legs]

Tocilizumab has been very effective for me for several years. It is available by weekly injection if you have side effects from the infusion. I find the injections really easy to do and much more convenient. Hope it goes well for you today.

[Savannahseger in reply to Metal-legs]

Yes I think that if this works, I will eventually move onto the injections for convenience. Are they a pen or syringe?

[Metal-legs in reply to Savannahseger]

Syringe, but really easy to inject, even with my badly damaged hands. Hoping it's a successful treatment for you, I noticed a big difference with pain levels within a month.

[Jadness]

Thank you I have not started yet but have had lots of good helpful advice