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Can I introduce myself - part 1
I'm Jenny Mary, 58 yrs young, born with glaucoma, diagnosed when I was a teenager, 4th generation in the family, line is great grandmother, grandmother, mum, myself. Mum lived all her 88yrs with one eye. I've had more problems since December 2015 when I had successful cataract surgery than the previous
I'm Jenny Mary, 58 yrs young, born with glaucoma, diagnosed when I was a teenager, 4th generation in the family, line is great grandmother, grandmother, mum, myself. Mum lived all her 88yrs with one eye. I've had more problems since December 2015 when I had successful cataract surgery than the previous
Jennymary
in
Glaucoma UK
4 years ago
Dimming of vision
Has anyone found that the eylea injection for cnv helps or increases the perception of light. What I have found is a slight improvement in how distorted objects appear but there seems to be a dimming of vision. I notice the presence of more floaters in my good eye and although my sight seems to remain
Has anyone found that the eylea injection for cnv helps or increases the perception of light. What I have found is a slight improvement in how distorted objects appear but there seems to be a dimming of vision. I notice the presence of more floaters in my good eye and although my sight seems to remain
PHILhr
in
Macular Society
4 years ago
World Kindness Day
Nov 13 is world kindness day. It’s important to be kind to others but if you have PA remember to also be kind to yourself. I’m a few days off getting my injection. I know I need it because I have brain fog, pins and needles and I am clumsy, I am breathing like Darth Vader, and have already called
Nov 13 is world kindness day. It’s important to be kind to others but if you have PA remember to also be kind to yourself. I’m a few days off getting my injection. I know I need it because I have brain fog, pins and needles and I am clumsy, I am breathing like Darth Vader, and have already called
LadyBothwell
in
Pernicious Anaemia Society
4 years ago
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Has anyone had a cataract op while in PAF?
A month or so ago I had a pre op appointment for my cataracts (been waiting a year 😢). I was very excited until I was told that yes, sight very poor, both eyes needed to be done but long wait. How long? 18 months 😱 I was so stunned I forgot to ask when the countdown started....anyway a few days ago
A month or so ago I had a pre op appointment for my cataracts (been waiting a year 😢). I was very excited until I was told that yes, sight very poor, both eyes needed to be done but long wait. How long? 18 months 😱 I was so stunned I forgot to ask when the countdown started....anyway a few days ago
Buffafly
in
AF Association
4 years ago
Living with CSR
Hi I’ve now had this condition for about 16 years. I’m now 64. First noted sight problem when night driving. Left eye normal but right eye not as sharp. After diagnosis I soon lost central vision in right eye and then had symptoms in left eye. Had regular checks at QMC Nottingham. Got funding for PDT
Hi I’ve now had this condition for about 16 years. I’m now 64. First noted sight problem when night driving. Left eye normal but right eye not as sharp. After diagnosis I soon lost central vision in right eye and then had symptoms in left eye. Had regular checks at QMC Nottingham. Got funding for PDT
Lagrene
in
Macular Society
4 years ago
Minor Eye Conditions Service (MECS)
This is a service paid for by the NHS and operated through local opticians. You can apply directly to a participating optician as well as via your GP. As far as I know, it's available throughout the UK. I had a MECS appointment on Friday. About a year ago I went to my GP about problems with my left eye
This is a service paid for by the NHS and operated through local opticians. You can apply directly to a participating optician as well as via your GP. As far as I know, it's available throughout the UK. I had a MECS appointment on Friday. About a year ago I went to my GP about problems with my left eye
Marijo1951
in
PMRGCAuk
4 years ago
Post sinus op - 4wks
Its now 4wks since I had my sinus op and septoplasty . Up until last week I was doing ok but I’ve been having headaches every single day and now I’ve got the same green rubbish back up my nose , nasty smell , my cough is back , and I feel naff - luckily I have my follow up appointment in 2 days and
Its now 4wks since I had my sinus op and septoplasty . Up until last week I was doing ok but I’ve been having headaches every single day and now I’ve got the same green rubbish back up my nose , nasty smell , my cough is back , and I feel naff - luckily I have my follow up appointment in 2 days and
lesley53
in
Lung Conditions Community Forum
4 years ago
Dry Mouth, Gum Disease, Chapped Lips, Dry Eyes, Dry Skin, Eye Floaters And Some Possible Help From A Single Spray!
With winter just around the corner, this information may be most useful and timely! With winter weather comes heater use which can have very drying effects on skin, eyes and your mouth and the information below may be a useful way to deal with these issues! I put the following post up about 2 to 3 years
With winter just around the corner, this information may be most useful and timely! With winter weather comes heater use which can have very drying effects on skin, eyes and your mouth and the information below may be a useful way to deal with these issues! I put the following post up about 2 to 3 years
chartist
in
Cure Parkinson's
4 years ago
Heebie Jeebies
Two lives , one daytime , an entirely different one at night. The darkness comes, your body is doing strange uncontrollable things and you start down Alices rabbit hole.........its nighttime..........you know when you fall asleep if you can call it sleep, that you will descend into the world of PD..
Two lives , one daytime , an entirely different one at night. The darkness comes, your body is doing strange uncontrollable things and you start down Alices rabbit hole.........its nighttime..........you know when you fall asleep if you can call it sleep, that you will descend into the world of PD..
beehive23
in
Cure Parkinson's
4 years ago
Hyco San Extra for dry eyes
I have been advised to use Hyco San Extra for dry eyes, has anyone else used this and did it work? Does anyone know if dry eyes, blepharitis, or aura without migraine could be the result of RD or side effects of prednisolone? Thanks.
I have been advised to use Hyco San Extra for dry eyes, has anyone else used this and did it work? Does anyone know if dry eyes, blepharitis, or aura without migraine could be the result of RD or side effects of prednisolone? Thanks.
Rachmaninov2
in
NRAS
4 years ago
Blepharitis
For many months my eyes tended to be a little itchy especially the right side but not tearing. I’ve had dry eyes for years and use cyclosporine eye drops. During a time of stress: my husband’s surgery and his car accident I developed a stye inside the lower lid. Optician prescribed drops and hot packs
For many months my eyes tended to be a little itchy especially the right side but not tearing. I’ve had dry eyes for years and use cyclosporine eye drops. During a time of stress: my husband’s surgery and his car accident I developed a stye inside the lower lid. Optician prescribed drops and hot packs
Karenjaninaz
in
PMRGCAuk
4 years ago
Scared
Hi everyone just returned from my rheumatologist routine appointment I have PMR and was doing well down to 6 mg prednisone started at 20 in April I was telling him I developed a floater in one eye in sept It’s so annoying because it goes back n forth and blurs out my vision I immediately went to my
Hi everyone just returned from my rheumatologist routine appointment I have PMR and was doing well down to 6 mg prednisone started at 20 in April I was telling him I developed a floater in one eye in sept It’s so annoying because it goes back n forth and blurs out my vision I immediately went to my
Mychis
in
PMRGCAuk
4 years ago
Watering eyes
I use Cosopt and Monopost eye drops both preservative free. I am still having trouble with my eyes watering - a problem especially when driving. A pharmacist suggested I might have ‘dry eyes’ and recommended drops. Made no difference. Any ideas anyone?
I use Cosopt and Monopost eye drops both preservative free. I am still having trouble with my eyes watering - a problem especially when driving. A pharmacist suggested I might have ‘dry eyes’ and recommended drops. Made no difference. Any ideas anyone?
Windflower
in
Glaucoma UK
4 years ago
Ablation and surgery ?
Hi. Sorry to bother you. As some of you know I am having my ablation on Thursday. I have just been called to say my hip injection is going to be in 2 weeks time. It’s a local anaesthetic injected into my hip in theatre for diagnostic purposes. I’ve been on the list for over a year. My question is shall
Hi. Sorry to bother you. As some of you know I am having my ablation on Thursday. I have just been called to say my hip injection is going to be in 2 weeks time. It’s a local anaesthetic injected into my hip in theatre for diagnostic purposes. I’ve been on the list for over a year. My question is shall
Equish
in
AF Association
4 years ago
brown discharge on Progynova
Hello, I'm new on this forum. I have a FET scheduled for Saturday. I'm currently on Progynova 3x2mg. Today, I've had a light brown discharge and the clinic wants me to do another scan tomorrow. I had an ultrasound last Thursday and my endometrium was at 10.3mm. My progesterone levels were really good
Hello, I'm new on this forum. I have a FET scheduled for Saturday. I'm currently on Progynova 3x2mg. Today, I've had a light brown discharge and the clinic wants me to do another scan tomorrow. I had an ultrasound last Thursday and my endometrium was at 10.3mm. My progesterone levels were really good
elmabertho
in
Fertility Network UK
4 years ago
Low frequency vibration in one ear after TBI - Anyone else had similar?
So I'm nearly 3 months post TBI and thought I'd provide a little update: Really struggling with a low frequency vibration in my left ear (this was the side of my head that seemed to have taken most of impact) which I can only describe as hearing a car engine running outside my house. It started about
So I'm nearly 3 months post TBI and thought I'd provide a little update: Really struggling with a low frequency vibration in my left ear (this was the side of my head that seemed to have taken most of impact) which I can only describe as hearing a car engine running outside my house. It started about
OasisDreams
in
Headway
4 years ago
Eye pain 3 days after Lucentis
So had my injection on Thursday pm and felt pain on leaving hospital but used to some discomfort. Felt sore and gritty so have been using hypromellose eye drops. Gritty feeling has gone but still feeling sore today, no redness though. Just called on call ophthalmologist who said I may have been scratched
So had my injection on Thursday pm and felt pain on leaving hospital but used to some discomfort. Felt sore and gritty so have been using hypromellose eye drops. Gritty feeling has gone but still feeling sore today, no redness though. Just called on call ophthalmologist who said I may have been scratched
MillieT
in
Macular Society
4 years ago
Skin darkening query
Hello, I have CREST syndrome, and recently some of the skin around my groin and at the top of my thighs has darkened, slightly. I look like I have a mild suntan there. Has any one else noticed this? My GP has just done a raft of blood tests to check whether it could be caused by hormones or anything
Hello, I have CREST syndrome, and recently some of the skin around my groin and at the top of my thighs has darkened, slightly. I look like I have a mild suntan there. Has any one else noticed this? My GP has just done a raft of blood tests to check whether it could be caused by hormones or anything
Duck33
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
VEXAS, a new adult-onset autoinflammatory syndrome .
Image by @MithuRheum, Twitter. Somatic Mutations in UBA1 and Severe Adult-Onset Autoinflammatory Disease (VEXAS SYNDROME). "Most of these 25 patients (male) met clinical criteria for an inflammatory syndrome (relapsing polychondritis, SWEET'S SYNDROME, polyarteritis nodosa, or giant-cell arteritis) or
Image by @MithuRheum, Twitter. Somatic Mutations in UBA1 and Severe Adult-Onset Autoinflammatory Disease (VEXAS SYNDROME). "Most of these 25 patients (male) met clinical criteria for an inflammatory syndrome (relapsing polychondritis, SWEET'S SYNDROME, polyarteritis nodosa, or giant-cell arteritis) or
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
4 years ago
C4&5✅ First time with Coach Bennett; Giovanni 🤔😲😃 and Halloween
I’m a bit late with posting Wednesday’s Consolidation Run 4, no idea what I’ve been doing 🤷♀️ but anyway ... here goes 👍Please bear with me; we’ve just had a Zoom with a group of friends back home in England to celebrate the retirement of a good friend after 35 years working in the NHS... the trouble
I’m a bit late with posting Wednesday’s Consolidation Run 4, no idea what I’ve been doing 🤷♀️ but anyway ... here goes 👍Please bear with me; we’ve just had a Zoom with a group of friends back home in England to celebrate the retirement of a good friend after 35 years working in the NHS... the trouble
CazzaW
Graduate
in
Couch to 5K
4 years ago
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