Heebie Jeebies

[beehive23]

Two lives , one daytime , an entirely different one at night. The darkness comes, your body is doing strange uncontrollable things and you start down Alices rabbit hole.........its nighttime..........you know when you fall asleep if you can call it sleep, that you will descend into the world of PD.......vivid dreams more real than not, bathed in sweat, pain from lack of movement, unable to roll over , alone even if you arent, the exhaustive 3 am search for a carb levo to chew on while the flood of semi sensical, mostly scarey, dreams flood every sleeping moment, forcing you to reintroduce you to yourself every morning to confirm that you are still who you are............that you aren't what your unpredictable whack a mole set of symptoms too long to recite tell you you are.........the battle of another day ends only to go into the rabbit hole at night.........2 lives, both plagued.........Heebie Jeebies.............alone.........dark...............PD your most despised of all friends........

[Nitro53]

This is your life?

[beehive23 in reply to Nitro53]

it is now............later stage pd.............yeehaw.........

[Nitro53 in reply to beehive23]

When were you diagnosed?

[beehive23 in reply to Nitro53]

around........about 20 yr ago.............started dragging my r foot in high school...........

[pdpatient]

Geez, beehive. Your post reads like a poem😇

[ddmagee1]

Exactly!! You put into words, exactly what happens to me, most nights!! “Down the Rabbit Hole” is a good analogy!

[beehive23]

i hope it helps someone not feel alone.........

[PalmSprings]

I am so thankful for this forum. It really has helped to find other people who understand what this disease feels like. Maybe, only people who have the disease get the feeling of being alone in their own symptoms.

[beehive23]

your not alone.........

[Astra7]

Life sucks when you can’t get a good nights sleep, and going to bed is just the start of a second shift.

(I remember the horror when I had a baby that woke up every hour for 10 months!).

Have you tried mannitol? I expect you’ve tried it all!!

[beehive23]

Yes i have tried mannitol but thank you for the help! ive graduated to the max on off label use for sleep no vivid dreams.... am currently taking a bloood pressure med , two barbiturates, and low dose off label thingy.......i dont like to promote brands.....its brutal but im known to fire up a doobie when i wake up in a flop sweat after .......vivid crazy dreams............sit and shake for awhile stare out into the dark ...............cry..........repeat as needed i guess..............

[beehive23]

just hoping others dont feel alone with this crap.......