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Diagnosed with Lower lobe bronchiectasis as an 18 year old. Currently infected with pseudomonas. Any tips?
I got bronchiectasis on both lower lobes by a serious pneumonia in childhood. I dont know anything about bronchiectasis and its management. The negative point is that i also got pseudomonas in my lungs and am on Ceftazidime Intravenous along with cipro 750 for 14 days. Will pseudomonas go away ever?
I got bronchiectasis on both lower lobes by a serious pneumonia in childhood. I dont know anything about bronchiectasis and its management. The negative point is that i also got pseudomonas in my lungs and am on Ceftazidime Intravenous along with cipro 750 for 14 days. Will pseudomonas go away ever?
Warrior4104
in
Lung Conditions Community Forum
2 years ago
Granocyte protocol- any experience?
Hi all. I'm about to start my 7th round of IVF, my 3rd with donor eggs. I have one frozen embryo left. 2 cycles I had nothing to transfer, I've had 4 failed to implant and also a mc from a natural conception. My clinic has tried prednisolone, tacrolimus, IVIG as well as clexane and aspirin. They now
Hi all. I'm about to start my 7th round of IVF, my 3rd with donor eggs. I have one frozen embryo left. 2 cycles I had nothing to transfer, I've had 4 failed to implant and also a mc from a natural conception. My clinic has tried prednisolone, tacrolimus, IVIG as well as clexane and aspirin. They now
river242
in
Fertility Network UK
2 years ago
Persistent pancytopenia/ "LGL"????
Hey I haven't been on in a long time. We've been pretty fortunate on the CLL front (knock wood). My husband is coming up on nine years since enduring six months of FCR treatment with little to no disease progression since. We figured that was a good thing although he has never been officially declared
Hey I haven't been on in a long time. We've been pretty fortunate on the CLL front (knock wood). My husband is coming up on nine years since enduring six months of FCR treatment with little to no disease progression since. We figured that was a good thing although he has never been officially declared
dwolden
in
CLL Support
2 years ago
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IVIG and Illness
On my latest six month visit to the hematologist on December 8, I mentioned I had been sick for three weeks at that point, and had continuing trouble despite having been given antibiotics in the first week with sore throat and ear ache. On December 4th it spread to both eyes after the ear infection
On my latest six month visit to the hematologist on December 8, I mentioned I had been sick for three weeks at that point, and had continuing trouble despite having been given antibiotics in the first week with sore throat and ear ache. On December 4th it spread to both eyes after the ear infection
wizzard166
in
CLL Support
2 years ago
Bronchiectasis and use Pulmicort with tooth issues.
Hello, I have Bronchiectasis and use Pulmicort. I cannot do this at the moment due to a temporary filling. Will be in until after Christmas. Worried the force may pop it out when nothing open. I have fragile teeth. Had to stop using my Acapella. Therefore switched to upping my breathing exercises
Hello, I have Bronchiectasis and use Pulmicort. I cannot do this at the moment due to a temporary filling. Will be in until after Christmas. Worried the force may pop it out when nothing open. I have fragile teeth. Had to stop using my Acapella. Therefore switched to upping my breathing exercises
Dottie11
in
Lung Conditions Community Forum
2 years ago
New Here - Diagnosed FND - but only one leg
I have had mobility issues with one leg for a couple of years and have confirmed nerve damage. I have been seeing a Neurologist for 18 months. Recently my other leg developed mobility issues but no nerve damage confirmed via EMG. Therefore I have been diagnosed as having FND in one leg. Does anyone
I have had mobility issues with one leg for a couple of years and have confirmed nerve damage. I have been seeing a Neurologist for 18 months. Recently my other leg developed mobility issues but no nerve damage confirmed via EMG. Therefore I have been diagnosed as having FND in one leg. Does anyone
Hidden
in
Functional Neurological Disorder - FND Hope
2 years ago
Upper back pain
Hi. I was seeing a PT for lower lumbar issues and she suggested I get a neck xray after noticing I had symptoms she attributed to cervical issues. The xray showed disc degeneration and bone spurs at c5/c6. My symptoms are little shock burn like feelings in my upper back and tingling prickly pain in my
Hi. I was seeing a PT for lower lumbar issues and she suggested I get a neck xray after noticing I had symptoms she attributed to cervical issues. The xray showed disc degeneration and bone spurs at c5/c6. My symptoms are little shock burn like feelings in my upper back and tingling prickly pain in my
Jeaniem130
in
Pain Concern
2 years ago
Is your Parkinson's diagnosis really idiopathic? Or is there an underlying cancer/autoimmune disorder?
Autoimmune and Paraneoplastic Movement Disorders https://pubmed.ncbi.nlm.nih.gov/29406902/ [i]Movement[/i] disorders are common in patients with autoimmune disorders - affecting the central (brain) and peripheral (body) nervous system. They may be seen in autoimmune disorders triggered by an infectious
Autoimmune and Paraneoplastic Movement Disorders https://pubmed.ncbi.nlm.nih.gov/29406902/ [i]Movement[/i] disorders are common in patients with autoimmune disorders - affecting the central (brain) and peripheral (body) nervous system. They may be seen in autoimmune disorders triggered by an infectious
SilentEchoes
in
Cure Parkinson's
2 years ago
Rising Lymphocytes
About 6 months back I asked that a steroid be administered prior to IVIG that I receive every 4 weeks. Coincidentally, my lymphocytes began to rise and are now in the 90%+ range. Wondering whether others may have experienced a similar result? thanks, Dennis, Venetoclax
About 6 months back I asked that a steroid be administered prior to IVIG that I receive every 4 weeks. Coincidentally, my lymphocytes began to rise and are now in the 90%+ range. Wondering whether others may have experienced a similar result? thanks, Dennis, Venetoclax
Fant1924
in
CLL Support
2 years ago
Covid-Induced ITP Recovery Questions
At the end of August 2022, I was diagnosed with covid-induced ITP. I only caught it because all my extremities were covered in little red dots (petechiae). I made a freaking-out visit to the ER, and they diagnosed me after they did labs and my platelet count came back 0. All these weeks later (October
At the end of August 2022, I was diagnosed with covid-induced ITP. I only caught it because all my extremities were covered in little red dots (petechiae). I made a freaking-out visit to the ER, and they diagnosed me after they did labs and my platelet count came back 0. All these weeks later (October
thestrugglebus
in
ITP Support Association
2 years ago
17 days post quad bypass surgery
i use medical marijuana for chronic pain from 5 spinal fusion surgeries. been using this alone for 3 years. i am suffering from a combination of chronic and acute pain with my heart surgery . i have found using opioids and MMJ is making the present pain much easier to deal with. yesterday i went to the
i use medical marijuana for chronic pain from 5 spinal fusion surgeries. been using this alone for 3 years. i am suffering from a combination of chronic and acute pain with my heart surgery . i have found using opioids and MMJ is making the present pain much easier to deal with. yesterday i went to the
coral2222
in
British Heart Foundation
2 years ago
your kidding me
i am 10 days out from quad bypass surgery. i have had 5 spinal fusion surgeries and none of them compare to this. mornings are brutal . i have a friend that helps but i am one of those who find it hard to half to depend on others. just asking for a little ; what to realistically expect the next 4 weeks
i am 10 days out from quad bypass surgery. i have had 5 spinal fusion surgeries and none of them compare to this. mornings are brutal . i have a friend that helps but i am one of those who find it hard to half to depend on others. just asking for a little ; what to realistically expect the next 4 weeks
coral2222
in
British Heart Foundation
2 years ago
IVIG recommended
I’m currently in remission after my one year Obinutuzumab and Venetoclax treatment. It’s been one year since finishing the Obinutuzumab infusions and my IGG counts remain quite low. My oncologist is recommending IVIG infusions. Has anyone had these? How were the infusions tolerated? Thank you!
I’m currently in remission after my one year Obinutuzumab and Venetoclax treatment. It’s been one year since finishing the Obinutuzumab infusions and my IGG counts remain quite low. My oncologist is recommending IVIG infusions. Has anyone had these? How were the infusions tolerated? Thank you!
Cllinmaryland
in
CLL Support
2 years ago
VACCINATIONS FOR PEOPLE WITH CHRONIC LYMPHOCYTIC LEUKEMIA (CLL/SLL)
This pinned post replaces our earlier reference post about vaccinations for those with CLL/SLL. It has been divided into four sections, presented as a pinned post plus three replies.
Part 1 - GENERAL ADVICE & INFORMATION
is contained in this main post
Part 2 - VACCINES RECOMMENDED ANNUALLY
This pinned post replaces our earlier reference post about vaccinations for those with CLL/SLL. It has been divided into four sections, presented as a pinned post plus three replies.
Part 1 - GENERAL ADVICE & INFORMATION
is contained in this main post
Part 2 - VACCINES RECOMMENDED ANNUALLY
CLLerinOz
Administrator
in
CLL Support
2 years ago
Please help! RLS is very bad, also have leukemia, hemochromatosis and severely low immune globulins. Never heard of augmentation till read
Hi RLS community, I just joined. I have had RLS for 23 years but it has been fairly successfully treated with Mirapex although I have been on the max dose for a couple of years. I have been focusing on my other problems and not the RLS because as long as I took the pills by 7pm I could go to bed.
Hi RLS community, I just joined. I have had RLS for 23 years but it has been fairly successfully treated with Mirapex although I have been on the max dose for a couple of years. I have been focusing on my other problems and not the RLS because as long as I took the pills by 7pm I could go to bed.
maggiesgrandmom
in
Restless Legs Syndrome
2 years ago
Unexpected remission - Maybe it will help (even one person)
Hi all, I was diagnosed with ITP in March 2021 with a count of 3, however it began October 2020. Until then I was just normal and quite fit and active, around that time I caught a virus and just never seemed to get better I was exhausted and developed digestive issues (trapped gas) it was soo very
Hi all, I was diagnosed with ITP in March 2021 with a count of 3, however it began October 2020. Until then I was just normal and quite fit and active, around that time I caught a virus and just never seemed to get better I was exhausted and developed digestive issues (trapped gas) it was soo very
Loftyc
in
ITP Support Association
2 years ago
complex question like your views please.
Hey everyone hope you’re all having a good day. So here’s my question. I’m currently taking 7.5 injections of methotrexate and yesterday I had a routine appointment with immunology. I’m clinically immune suppressed due to retuximab infusions in 2013 which knocked out my immunoglobulins and they’ve never
Hey everyone hope you’re all having a good day. So here’s my question. I’m currently taking 7.5 injections of methotrexate and yesterday I had a routine appointment with immunology. I’m clinically immune suppressed due to retuximab infusions in 2013 which knocked out my immunoglobulins and they’ve never
Leics
in
NRAS
2 years ago
Working with Fibromyalgia
Hi i was wondering how do everyone.cope with working i had a spinal fusion and decompression 2 half years ago and now dignosed with Fibromyalgia in alot of pain lots of medication .i would love to go back to work but impossible feel so lost my life has really changed.x
Hi i was wondering how do everyone.cope with working i had a spinal fusion and decompression 2 half years ago and now dignosed with Fibromyalgia in alot of pain lots of medication .i would love to go back to work but impossible feel so lost my life has really changed.x
Shartaylor0264
in
Fibromyalgia Action UK
2 years ago
Grateful survivor of Bacterial Spinal Meningitis, Spinal fusion, Stage IV kidney failure and COVID with natural immunity.
Greetings to any and all persons who may read my bio and be encouraged by the continuous love that God provides in a time of medical crisis. In no way do I intend to disparage the talented and dedicated members of the medical profession. I am into predictive and preventive medicine. As a patient
Greetings to any and all persons who may read my bio and be encouraged by the continuous love that God provides in a time of medical crisis. In no way do I intend to disparage the talented and dedicated members of the medical profession. I am into predictive and preventive medicine. As a patient
STA2017
in
Meningitis Now
2 years ago
Good news and Bad news?
( IGHV mutated, No 17P or TP53 deletion and borderline for 13Q 6.5% and W&W for 18 years) I recently had bloods drawn and to my surprise WBC went down from 29K to 24K and Hgb is holding steady at between 10.5 - 11.0. However, platelets have fallen to 62 from 72 in just about four months. Otherwise
( IGHV mutated, No 17P or TP53 deletion and borderline for 13Q 6.5% and W&W for 18 years) I recently had bloods drawn and to my surprise WBC went down from 29K to 24K and Hgb is holding steady at between 10.5 - 11.0. However, platelets have fallen to 62 from 72 in just about four months. Otherwise
bertie260
in
CLL Support
2 years ago
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