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actemra, kevzara, tocillizumab, sarilumab
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of actemra, kevzara, tocillizumab and sarilumab as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too…. i am embarrassed to say that I did nt even
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of actemra, kevzara, tocillizumab and sarilumab as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too…. i am embarrassed to say that I did nt even
Kaaswinkel
in
PMRGCAuk
7 days ago
Eye Supplement Concern
Eye doctor highly recommended taking supplement Preservision. I cleared with hematology re peginterferon but after buying it, researching ingredients and checking interactions am concerned. Twice a day ingredients: C = 250 mg, E = 90 mg, zinc= 40 mg, copper = 1 mg, Lutein = 5 mg. Except Lutein,
Eye doctor highly recommended taking supplement Preservision. I cleared with hematology re peginterferon but after buying it, researching ingredients and checking interactions am concerned. Twice a day ingredients: C = 250 mg, E = 90 mg, zinc= 40 mg, copper = 1 mg, Lutein = 5 mg. Except Lutein,
Mishie14
in
MPN Voice
12 days ago
GCA-Diagnosis
So far on my journey after diagnosis of GCA was put on 60 mg Prednisone and went down slowly to none. Have been on Actemra shot weekly for 16 months now with no flare. Has anyone gotten of Actemra as well as Prednisone with no problems?
So far on my journey after diagnosis of GCA was put on 60 mg Prednisone and went down slowly to none. Have been on Actemra shot weekly for 16 months now with no flare. Has anyone gotten of Actemra as well as Prednisone with no problems?
LRevell
in
PMRGCAuk
18 days ago
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Prednisone and cataract surgery
Will Prednisone affect the success of my healing from
cataract
surgery
? I am currently taking 5 mg/day but just started the slow taper with a goal of 4 1/2. My surgery is scheduled for May 31. Thank you.
Will Prednisone affect the success of my healing from
cataract
surgery
? I am currently taking 5 mg/day but just started the slow taper with a goal of 4 1/2. My surgery is scheduled for May 31. Thank you.
christi48
in
PMRGCAuk
1 year ago
Improvement of Blood Plasmalogens and Clinical Symptoms in Parkinson's Disease by Oral Administration of Ether Phospholipids:
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
Despe
in
Cure Parkinson's
2 months ago
Taking Betmiga with Pred for Urine Control?
Just wondered if anyone takes Betmiga (Mirabegron) for better urine control and if it is advisable? Since having PMR from 2022 I have frequency and urgency bladder issues, particularly at night. I would love to sleep the night through or travel without angst! While I am on, glad to say I had the
Just wondered if anyone takes Betmiga (Mirabegron) for better urine control and if it is advisable? Since having PMR from 2022 I have frequency and urgency bladder issues, particularly at night. I would love to sleep the night through or travel without angst! While I am on, glad to say I had the
Motida
in
PMRGCAuk
2 months ago
Actemra and Extremely Fast Taper off of Prednisone
I didn't expect the following during my last appointment with my Rheumatologist: I told her that some symptoms were resurfacing after having reduced from 20mg for 2 weeks to 17.5mg, for 2 weeks (due to go down to 15mg. 2 days after appt), slight pressure in left temple and newly developed persistent
I didn't expect the following during my last appointment with my Rheumatologist: I told her that some symptoms were resurfacing after having reduced from 20mg for 2 weeks to 17.5mg, for 2 weeks (due to go down to 15mg. 2 days after appt), slight pressure in left temple and newly developed persistent
newsusy
in
PMRGCAuk
3 months ago
Is there a link with taking Forstair and cataracts?
I was diagnosed with late onset asthma just before the first Covid lockdown. My eyes were always fine until then, but within a year of taking Forstair I was diagnosed with cataracts in both eyes. My research suggests the steroid in the inhaler might be responsible, but it has been dismissed by my GP
I was diagnosed with late onset asthma just before the first Covid lockdown. My eyes were always fine until then, but within a year of taking Forstair I was diagnosed with cataracts in both eyes. My research suggests the steroid in the inhaler might be responsible, but it has been dismissed by my GP
AllotmentNanna
in
Asthma Community Forum
4 months ago
is elective surgery safe to have when you are having an Ra flare ?
hello I am due to have surgery soon, my flare is still ongoing, waiting for new drugs to work, added hydroxy 200mg daily to my ongoing mtx 15mg weekly because stopping the hydroxy caused the flare. been 7 weeks since restarting hydroxy and no sign of hydroxy working yet. my elective surgery is due
hello I am due to have surgery soon, my flare is still ongoing, waiting for new drugs to work, added hydroxy 200mg daily to my ongoing mtx 15mg weekly because stopping the hydroxy caused the flare. been 7 weeks since restarting hydroxy and no sign of hydroxy working yet. my elective surgery is due
lindyloo2018
in
NRAS
5 months ago
Heart meds and sunlight sensitivity
I am currently taking these post cardioversion (procedure successful early November 2022) meds: morning: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol Fumarate 5 mg Spironolactone 25mg Dapagliflozin 10mg evening: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol
I am currently taking these post cardioversion (procedure successful early November 2022) meds: morning: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol Fumarate 5 mg Spironolactone 25mg Dapagliflozin 10mg evening: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol
thurstonloveseva
in
AF Association
5 months ago
Finger misbehaving (!) ...Ulnar Deviation
Hello, I recently noticed my middle finger has gone bent towards the pinky finger. I couldn't believe my eyes and did internet search. It happens to people with RA and Lupus. A bit shocking. I have been doing mild squeezing exercise daily to help increase my hand strength. I think it may be due to
Hello, I recently noticed my middle finger has gone bent towards the pinky finger. I couldn't believe my eyes and did internet search. It happens to people with RA and Lupus. A bit shocking. I have been doing mild squeezing exercise daily to help increase my hand strength. I think it may be due to
Paprika60
in
LUPUS UK
6 months ago
GCA Concerns, Cold and Eyes
I hope everyone had as wonderful a Christmas as I did, despite our health battles. I flew to Arkansas where 2 of my adult kids and 4 of my grandkids live. 2 other adult kids and their spouse and fiancé came, and it’s been a wonderful time. A cold was going around, and I caught it. Just the sniffles,
I hope everyone had as wonderful a Christmas as I did, despite our health battles. I flew to Arkansas where 2 of my adult kids and 4 of my grandkids live. 2 other adult kids and their spouse and fiancé came, and it’s been a wonderful time. A cold was going around, and I caught it. Just the sniffles,
Lenore58
in
PMRGCAuk
6 months ago
problems with cataract surgery
I went for my cataract op today. I thought I was in the theatre for a long time and discovered that part of the cataract had gone into the back of my eye and they could not retrieve it or put the new lens in. I was told that there is a 2% risk of this which could be worse if short sighted and receiving
I went for my cataract op today. I thought I was in the theatre for a long time and discovered that part of the cataract had gone into the back of my eye and they could not retrieve it or put the new lens in. I was told that there is a 2% risk of this which could be worse if short sighted and receiving
Koalajane
in
Macular Society
1 year ago
cataract plus micro shunt
Has anybody had
cataract
surgery
with micro surgery at same time My consultant says it only takes 2 mins longer and did it work ?
Has anybody had
cataract
surgery
with micro surgery at same time My consultant says it only takes 2 mins longer and did it work ?
Eye2see
in
Glaucoma UK
1 year ago
Right Atrial Hypertrophy
Good morning. Has anyone ever been diagnosed with right atrial enlargement (RAH)? If yes, what was/is the experience? What were the options as it relates to medication?
Good morning. Has anyone ever been diagnosed with right atrial enlargement (RAH)? If yes, what was/is the experience? What were the options as it relates to medication?
Ocean3
in
AF Association
6 months ago
Vitamin B6 Toxicity: Available Testing of B6 Plasma Level Does NOT Tell You What You Need to Know
[u]
Background
[/u]: Vitamin B6 participates as a coenzyme in over 100 different biochemical reactions. When it does so it is converted to the inactive form, pyridoxine. The body contains a recycling loop that restores the pyridoxine to the active form, P5P. Vitamin B2 is required for this process
[u]
Background
[/u]: Vitamin B6 participates as a coenzyme in over 100 different biochemical reactions. When it does so it is converted to the inactive form, pyridoxine. The body contains a recycling loop that restores the pyridoxine to the active form, P5P. Vitamin B2 is required for this process
park_bear
in
Cure Parkinson's
6 months ago
New treatment plan GCA
Hi! I met with my rheumy yesterday and now seven months into my treatment for GCA. Initially I was told that I would be on Actemra for one year with Prednisone and then Methotrexate. Yesterday, I was informed that there will be no Methotrexate and from month ten, I move to fortnightly Actemra injections
Hi! I met with my rheumy yesterday and now seven months into my treatment for GCA. Initially I was told that I would be on Actemra for one year with Prednisone and then Methotrexate. Yesterday, I was informed that there will be no Methotrexate and from month ten, I move to fortnightly Actemra injections
Bessyg
in
PMRGCAuk
6 months ago
Methotrexate or Prednisone which is more damaging?(also update on eyes)
Hi, it's me again. During an eye exam, I was told my optic nerve was narrow, and that I needed to be seen asap due to the risk of blindness with GCA. I got in to see a neuro ophthalmologist who told me that my optic nerve isn't narrow, it's just turned on an angle. Probably from my connective disease
Hi, it's me again. During an eye exam, I was told my optic nerve was narrow, and that I needed to be seen asap due to the risk of blindness with GCA. I got in to see a neuro ophthalmologist who told me that my optic nerve isn't narrow, it's just turned on an angle. Probably from my connective disease
potterylady
in
PMRGCAuk
6 months ago
Cataract Surgery: NHS referral for fast treatment
I’m aware that cataracts are a common side effect of steroids. I’ve developed cataracts in both eyes, rapid growing and last week had surgery for replacement lens in one eye. The waiting time for NHS treatment at the hospital eye clinic is over three years. I was referred for urgent surgery under
I’m aware that cataracts are a common side effect of steroids. I’ve developed cataracts in both eyes, rapid growing and last week had surgery for replacement lens in one eye. The waiting time for NHS treatment at the hospital eye clinic is over three years. I was referred for urgent surgery under
Hulotsholiday
in
PMRGCAuk
1 year ago
Rate of Decrease in RBC Count
Recent diagnosis of MPN, all three counts elevated. RBC count was 1.2 million, but lowered by phlebotomy to 922,000. I have started on Hydroxyurea. Are there any resources that provide information on the rate I could expect my RBC count to go down? 100K/month, 50K/month, etc. Thanks! hsdale3
Recent diagnosis of MPN, all three counts elevated. RBC count was 1.2 million, but lowered by phlebotomy to 922,000. I have started on Hydroxyurea. Are there any resources that provide information on the rate I could expect my RBC count to go down? 100K/month, 50K/month, etc. Thanks! hsdale3
hsdale3
in
MPN Voice
6 months ago
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