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nephrectomy
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
higham23
in
MPN Voice
6 months ago
underactive thyroid
getting numb feeling in my face arm and leg. Headache itchy skin and tired out light headed. My gp sent me for mri. Everything is fine. I have had an underactive thyroid for 25 years My blood pressure is also low I take 100 levothyroxine. Does it need increasing ???? Blood tests 3 rd June ! Any
getting numb feeling in my face arm and leg. Headache itchy skin and tired out light headed. My gp sent me for mri. Everything is fine. I have had an underactive thyroid for 25 years My blood pressure is also low I take 100 levothyroxine. Does it need increasing ???? Blood tests 3 rd June ! Any
Carlphilip1958
in
Thyroid UK
1 month ago
hyperthyroidism
hi I have hyperthyroidism and have Graves’ disease. I have my consultant appointment next week. I got very ill a few weeks back don’t know if it was the case as I was told to come off my meds 5 months ago. Any tips or advice what diet I should follow ? I have lost so much weight due to my thyroid
hi I have hyperthyroidism and have Graves’ disease. I have my consultant appointment next week. I got very ill a few weeks back don’t know if it was the case as I was told to come off my meds 5 months ago. Any tips or advice what diet I should follow ? I have lost so much weight due to my thyroid
Gee14
in
Thyroid UK
6 months ago
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Interesting article on why women get higher levels of autoimmune disease
Two versions: [i][/i] [i]
Stanford Medicine-led study shows why women are at greater risk of autoimmune disease
[/i] [i][/i] [i][/i] [i]Research throws light on the mystery of why women are much more prone to autoimmune disorders: A molecule made by one X chromosome in every female cell can
Two versions: [i][/i] [i]
Stanford Medicine-led study shows why women are at greater risk of autoimmune disease
[/i] [i][/i] [i][/i] [i]Research throws light on the mystery of why women are much more prone to autoimmune disorders: A molecule made by one X chromosome in every female cell can
TSH110
in
Thyroid UK
1 month ago
Father has had PBC for 16 years - Odd complications since COVID?
Hello all, I wonder if anyone here who has PBC (or has a family member with PBC) has had similar experiences post covid? My father was diagnosed 16 years ago. Recently he contracted COVID and was hospitalised (he's also been a type 1 diabetic since birth, so 60 years). Within a day of getting COVID
Hello all, I wonder if anyone here who has PBC (or has a family member with PBC) has had similar experiences post covid? My father was diagnosed 16 years ago. Recently he contracted COVID and was hospitalised (he's also been a type 1 diabetic since birth, so 60 years). Within a day of getting COVID
Kylewillmott
in
PBC Foundation
6 months ago
blood test to identify neuroendocrine cancer asap
ok I repost this mainly because the University of Trento is one hour from here and I got good friends there (working on CRISPR)…together with Dana-Farber they have developed a blood test to identify if there is an endocrine prostate cancer and the subtype https://medriva.com/cancer/a-breakthrough-in-prostate-cancer-treatment-new-blood-test-identifies-neuroendocrine-subtype
ok I repost this mainly because the University of Trento is one hour from here and I got good friends there (working on CRISPR)…together with Dana-Farber they have developed a blood test to identify if there is an endocrine prostate cancer and the subtype https://medriva.com/cancer/a-breakthrough-in-prostate-cancer-treatment-new-blood-test-identifies-neuroendocrine-subtype
Maxone73
in
Advanced Prostate Cancer
6 months ago
Teesside Lupus Group
Hello everyone Just to let you know that our Lupus group has started having morning and afternoon meetings in the area. Anyone interested in joining our meetings please contact me. We are based in the North East. Lets meet for a chat and coffee. Keep on keeping on xxx
Hello everyone Just to let you know that our Lupus group has started having morning and afternoon meetings in the area. Anyone interested in joining our meetings please contact me. We are based in the North East. Lets meet for a chat and coffee. Keep on keeping on xxx
Pipido36
in
LUPUS UK
1 month ago
elevated Liver Enzymes
Hello, I am in need of advice. I have had mildly elevated liver enzymes and can’t figure out the cause of it. I have been tested for everything and anything related to the liver (autoimmune, hepatitis, liver diseases) I have had a normal ultra sound and fibroscan. All lab work is normal except AST and
Hello, I am in need of advice. I have had mildly elevated liver enzymes and can’t figure out the cause of it. I have been tested for everything and anything related to the liver (autoimmune, hepatitis, liver diseases) I have had a normal ultra sound and fibroscan. All lab work is normal except AST and
Lresinger
in
British Liver Trust
6 months ago
Researchers Develop "Two-Headed" Drug to treat Parkinson's Disease
Although the following research is in its infancy, it has merit and looks promising. In particular that they want to try and make it a oral bio-active medicine. Researchers have created a ‘two-headed’ drug that prevents the production of the toxic protein linked to Parkinson’s disease before destroying
Although the following research is in its infancy, it has merit and looks promising. In particular that they want to try and make it a oral bio-active medicine. Researchers have created a ‘two-headed’ drug that prevents the production of the toxic protein linked to Parkinson’s disease before destroying
Baron1
in
Cure Parkinson's
6 months ago
Thoughts?
Hello, Decided to ring the liver trust nurses today . I spoke to a lovely lady who went through stuff with me but as she said didn’t know my medical details but encouraged or questioned should I be asking my consultant about my prognosis. Am I alone with now being scared to death that if I should ask
Hello, Decided to ring the liver trust nurses today . I spoke to a lovely lady who went through stuff with me but as she said didn’t know my medical details but encouraged or questioned should I be asking my consultant about my prognosis. Am I alone with now being scared to death that if I should ask
Etymolog
in
British Liver Trust
6 months ago
Update on my father
Dad was diagnosed in 2016 stage 4, bones and lymphnodes. We dont have a gleason score because his diagnoses was found through a hip xray after a fall and they biopsied his hip. He has had lupron, xgeva, bicalutamide and now he is on Xtandi. Dads last bone scan psa were July 8th. His bone scan showed
Dad was diagnosed in 2016 stage 4, bones and lymphnodes. We dont have a gleason score because his diagnoses was found through a hip xray after a fall and they biopsied his hip. He has had lupron, xgeva, bicalutamide and now he is on Xtandi. Dads last bone scan psa were July 8th. His bone scan showed
Radtech40
in
Advanced Prostate Cancer
6 months ago
91% of lupus patients report using steroids to manage symptoms
Global survey highlights urgent need for treatments with fewer side effects About 91% of lupus patients report they are currently taking or had been using oral steroids to manage their symptoms, according to a global survey of more than 7,700 patients. The World Lupus Federation (WLF) released findings
Global survey highlights urgent need for treatments with fewer side effects About 91% of lupus patients report they are currently taking or had been using oral steroids to manage their symptoms, according to a global survey of more than 7,700 patients. The World Lupus Federation (WLF) released findings
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 months ago
Do I Poke The Bear?
I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests and B12 jabs back in the day. I changed surgeries in the early 90's due to moving and have been with this practice ever since. So I'm not sure
I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests and B12 jabs back in the day. I changed surgeries in the early 90's due to moving and have been with this practice ever since. So I'm not sure
Sparklingsunshine
in
Pernicious Anaemia Society
2 months ago
Lupus Diagnosis Experience: Webinar Q&A with Beth, Khiry & Maryann - Tuesday 21st May
On World Lupus Day, we launched a brand new diagnosis awareness video featuring Beth, Khiry and Maryann who kindly shared their experiences receiving a diagnosis for lupus. We are holding a free webinar on Tuesday 21st May at 6:00pm - 7:30pm (BST) featuring Beth, Khiry and Maryann as they discuss their
On World Lupus Day, we launched a brand new diagnosis awareness video featuring Beth, Khiry and Maryann who kindly shared their experiences receiving a diagnosis for lupus. We are holding a free webinar on Tuesday 21st May at 6:00pm - 7:30pm (BST) featuring Beth, Khiry and Maryann as they discuss their
nakita_cambow
Moderator
in
LUPUS UK
2 months ago
Gastro Appointment
hi everyone, I promised I would update you after my gastro appointment, there is not a lot to say really, he told me the past ct scan showed diffuse fatty liver and the ultrasound showed severe liver impairment, he then told me that the fibroscan done by them showed significant scarring, then showed
hi everyone, I promised I would update you after my gastro appointment, there is not a lot to say really, he told me the past ct scan showed diffuse fatty liver and the ultrasound showed severe liver impairment, he then told me that the fibroscan done by them showed significant scarring, then showed
Sophia1968
in
British Liver Trust
6 months ago
Flare or Adrenal Crisis
During the Christmas period I had a series of very stressful situations , including transatlantic travel. Upon returning I experienced extreme burning pain in my neck, arms, shoulders and groin. I could barely get out of bed. It was the same pain I experienced when I was first diagnosed with PMR 2 1
During the Christmas period I had a series of very stressful situations , including transatlantic travel. Upon returning I experienced extreme burning pain in my neck, arms, shoulders and groin. I could barely get out of bed. It was the same pain I experienced when I was first diagnosed with PMR 2 1
Belfastman
in
PMRGCAuk
6 months ago
How UV affects us
Looking west Isle of Wight, Taken on a local walk a few weeks ago. I found this an internet explanation. Thanks to Striated Cacara. UV rays damage the cells of the skin. When the cells of the skin become damaged from UV light, it causes them to die, in a process known as apoptosis. In a person without
Looking west Isle of Wight, Taken on a local walk a few weeks ago. I found this an internet explanation. Thanks to Striated Cacara. UV rays damage the cells of the skin. When the cells of the skin become damaged from UV light, it causes them to die, in a process known as apoptosis. In a person without
IsleofWight1
in
LUPUS UK
2 months ago
GP wants to put me on statins but reluctant to take due to underactive thyroid and liver issues
hi - I have an underactive thyroid / hashimotos. I’m on 100mg of Levothyroxine my latest results are TSH 0.034 FREE T3 4.6 FREE THYROXINE 17.7 My GP wanted to reduce my thyroxine but I actually feel good at the moment so he’s agreed to keep it at 100mg only after a bit of arguing and having
hi - I have an underactive thyroid / hashimotos. I’m on 100mg of Levothyroxine my latest results are TSH 0.034 FREE T3 4.6 FREE THYROXINE 17.7 My GP wanted to reduce my thyroxine but I actually feel good at the moment so he’s agreed to keep it at 100mg only after a bit of arguing and having
Fergus883782
in
Thyroid UK
2 months ago
Discoid lupus help please!
Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my eyebrow, which isn't typical looking of discoid lupus and only came up following biopsy. Well now I have a rather bigger "thing" come up on my
Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my eyebrow, which isn't typical looking of discoid lupus and only came up following biopsy. Well now I have a rather bigger "thing" come up on my
Nome11
in
LUPUS UK
2 months ago
Full circle with this disease
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Islandboy2021
in
Advanced Prostate Cancer
6 months ago
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