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Our mum was recently diagnosed with CBD
to
support
her in this next phase of her life.
to
support
her in this next phase of her life.
joshwr
in
PSP Association
5 months ago
Latest appt with new doctor
When I saw my onc two weeks ago, she had great news for me! I am stable, on Xeloda since cancer cells changed from E+ to TN. But she thought I should see a gastroenterologist as there appears to be some thickening in the lini ng of my stomach. i didn't like or trust the gastro dr who was part of my
When I saw my onc two weeks ago, she had great news for me! I am stable, on Xeloda since cancer cells changed from E+ to TN. But she thought I should see a gastroenterologist as there appears to be some thickening in the lini ng of my stomach. i didn't like or trust the gastro dr who was part of my
PJBinMI
in
SHARE Metastatic Breast Cancer
1 year ago
Pluvicto works but at what cost
70 yo with Stage 4, multiple bone mets, on Orgovyx daily and Xgeva every 3 months. DaVinci in past. Previously on Firmagon, Xtandi worked for awhile, nothing with Xofigo and a few rounds of Jevtana didn’t help and caused problems, also had localized XRT - but had to have chemo to qualify for Pluvicto
70 yo with Stage 4, multiple bone mets, on Orgovyx daily and Xgeva every 3 months. DaVinci in past. Previously on Firmagon, Xtandi worked for awhile, nothing with Xofigo and a few rounds of Jevtana didn’t help and caused problems, also had localized XRT - but had to have chemo to qualify for Pluvicto
Beach18
in
Advanced Prostate Cancer
1 year ago
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after radium 223
hi, husband diagnosed 2017, lots of different treatments, none lasted very long. Including 2 different chemos, xtandi, casodex, etc radium 223 last year. We are in the UK, have now been told we have exhausted treatments under NICE guidelines and he’ll be offered pain relief under palliative care. He
hi, husband diagnosed 2017, lots of different treatments, none lasted very long. Including 2 different chemos, xtandi, casodex, etc radium 223 last year. We are in the UK, have now been told we have exhausted treatments under NICE guidelines and he’ll be offered pain relief under palliative care. He
Jojoberries
in
Advanced Prostate Cancer
1 year ago
caelyx in platinumResistance
hello My 80 year old mum was told after three excellent responses in chemo the last two she became platinum resistant and progression in the lungs. Some thickening of the lining the consultant said the only option was caelyx but due to her age and possible brutal side effects and probability of not
hello My 80 year old mum was told after three excellent responses in chemo the last two she became platinum resistant and progression in the lungs. Some thickening of the lining the consultant said the only option was caelyx but due to her age and possible brutal side effects and probability of not
Lolathestaffie
in
My Ovacome
1 year ago
Liquid biopsy
Hello, my dear dad had CT scan in May, took 4 weeks for the results! T4 N3 M0. We ( dad, me and brother) left a little numb after first appt with respiratory consultant, our ‘ lay person’ research meant we thought it was stage3b with regional spread but uncertain about treatment options. The consultant
Hello, my dear dad had CT scan in May, took 4 weeks for the results! T4 N3 M0. We ( dad, me and brother) left a little numb after first appt with respiratory consultant, our ‘ lay person’ research meant we thought it was stage3b with regional spread but uncertain about treatment options. The consultant
Adaughter
in
The Roy Castle Lung Cancer Foundation
1 year ago
Advise for a new diagnosis
Lastly, what can I do to best
support
my mum? Asking as a concerned
carer
. Thank you!
Lastly, what can I do to best
support
my mum? Asking as a concerned
carer
. Thank you!
Blossom751
in
SHARE Metastatic Breast Cancer
3 months ago
Seeking advice re: end-of-life planning with family
Hello everyone – I am a 70-yr-old retired health care professional and writer; my EGFR has been in the low teens since 2019, and I have most of the challenges you would expect. As time goes by my renal status continues to deteriorate, and I’m not functioning as well as I used to in any area of my life
Hello everyone – I am a 70-yr-old retired health care professional and writer; my EGFR has been in the low teens since 2019, and I have most of the challenges you would expect. As time goes by my renal status continues to deteriorate, and I’m not functioning as well as I used to in any area of my life
Havik
in
Kidney Dialysis
1 year ago
Great neurology appt
The oncology palliative care NP that I see occasionally suggested I be evaluated by a neurologist as I expressed concern about my neuropathy, balance and memory. She's prescribed extremely helpful meds for side effects, spends alot of time talking with and listening to me and I trust her alot. My
The oncology palliative care NP that I see occasionally suggested I be evaluated by a neurologist as I expressed concern about my neuropathy, balance and memory. She's prescribed extremely helpful meds for side effects, spends alot of time talking with and listening to me and I trust her alot. My
PJBinMI
in
SHARE Metastatic Breast Cancer
1 year ago
Which Treatment
Hi,,I'm 67 and have been diagnosed with Chronic Pancreatitis since 2011,but had symptoms since a child. It's chronic inflammation of the pancreas causing calcium deposits, fibrosing of the pancreas tissue which damages the tissue &nerve networks which causes constant pain for 75% of people with CP. It's
Hi,,I'm 67 and have been diagnosed with Chronic Pancreatitis since 2011,but had symptoms since a child. It's chronic inflammation of the pancreas causing calcium deposits, fibrosing of the pancreas tissue which damages the tissue &nerve networks which causes constant pain for 75% of people with CP. It's
MyCheesecake
in
Osteoporosis Support
1 year ago
Palliative care
Hi all. Mum's GP has recently suggested involving the palliative care team for her heart failure. She was very upset and declined. It would be really useful to learn about other people's experiences of palliative care so we can understand the potential benefits.
Hi all. Mum's GP has recently suggested involving the palliative care team for her heart failure. She was very upset and declined. It would be really useful to learn about other people's experiences of palliative care so we can understand the potential benefits.
Joluu
in
British Heart Foundation
1 year ago
Join our Carers Support Meeting!
📢 Are you a
carer
for someone with ataxia? Come along to our Carers
Support
Group Meeting on Thursday, the 31st of August, from 7:00 pm-8:00 pm. Sign up now: https://bit.ly/3OKPXOX #AtaxiaUk #Ataxia #CarersSupportMeeting #Join #Carers #Caregiving
📢 Are you a
carer
for someone with ataxia? Come along to our Carers
Support
Group Meeting on Thursday, the 31st of August, from 7:00 pm-8:00 pm. Sign up now: https://bit.ly/3OKPXOX #AtaxiaUk #Ataxia #CarersSupportMeeting #Join #Carers #Caregiving
Irmmy
in
Ataxia UK
1 year ago
Urgent - running out of T3 in 4 weeks
I'm a single mum with a 5 and 7 year old, one of whom is disabled and I'm his full-time
carer
, I don't have any
support
and I just can't afford to get cripplingly ill again like I was on levo. I can cope just fine but not without my medicine.
I'm a single mum with a 5 and 7 year old, one of whom is disabled and I'm his full-time
carer
, I don't have any
support
and I just can't afford to get cripplingly ill again like I was on levo. I can cope just fine but not without my medicine.
lolapops1978
in
Thyroid UK
1 year ago
Has anyone experienced this...
So partner needs transplant, had assessment app last week but got cancelled due to being an in patient in hospital with sepsis. Infection cleared but today doc said kidneys not doing so well today. He has bleeding from lips and nose due to low platelets but they have said they are not giving him platelets
So partner needs transplant, had assessment app last week but got cancelled due to being an in patient in hospital with sepsis. Infection cleared but today doc said kidneys not doing so well today. He has bleeding from lips and nose due to low platelets but they have said they are not giving him platelets
Fauncey
in
British Liver Trust
1 year ago
Final stages of CBD
Hi all My dad is in the final stages of CBD and in fact the Palliative Care Consultant seems to think we have less than 3 months left with him. I am really really struggling with this and can't bear the thought of not having my dad but this illness is the cruellest illness I have ever encountered.
Hi all My dad is in the final stages of CBD and in fact the Palliative Care Consultant seems to think we have less than 3 months left with him. I am really really struggling with this and can't bear the thought of not having my dad but this illness is the cruellest illness I have ever encountered.
Stormtrooper4
in
PSP Association
2 years ago
Failed tumour surgery, what are my options now?
Hello all, I wondered if there is anyone in our community who has/is having a similar experience to mine and has any ideas or guidance on next steps. To summarise, I was diagnosed with a stage 2/3 poorly differentiated Mullerian tumour arising in endometriosis with concurrent Stage 1A LGSOC in the
Hello all, I wondered if there is anyone in our community who has/is having a similar experience to mine and has any ideas or guidance on next steps. To summarise, I was diagnosed with a stage 2/3 poorly differentiated Mullerian tumour arising in endometriosis with concurrent Stage 1A LGSOC in the
Peony13
in
My Ovacome
2 years ago
Well, so much for feeling normal....
Some of you may have read my long story on the Enhertu infusion. I have it in my lungs, spine and then it spread to my liver and the next treatment (Xeloda, I think) and after three months still progression. If you have the time, grab a cup of coffee and read. OR, if you are having trouble sleeping
Some of you may have read my long story on the Enhertu infusion. I have it in my lungs, spine and then it spread to my liver and the next treatment (Xeloda, I think) and after three months still progression. If you have the time, grab a cup of coffee and read. OR, if you are having trouble sleeping
kearnan
in
SHARE Metastatic Breast Cancer
2 years ago
Change from Ropinerole to Rigotine patches
I saw a new Neurologist at my local hospital last week as my RLS has been made worse by the chemo I am on. I am stage 4 and Palliative care for Sarcoma with mets in liver, chest wall and spine. I told him I can’t wean off Ropinerole so he suggested changing to Rigotine patches which, as I also have IBS
I saw a new Neurologist at my local hospital last week as my RLS has been made worse by the chemo I am on. I am stage 4 and Palliative care for Sarcoma with mets in liver, chest wall and spine. I told him I can’t wean off Ropinerole so he suggested changing to Rigotine patches which, as I also have IBS
Ruffabug
in
Restless Legs Syndrome
2 years ago
with the news about former president Jimmy Carter, maybe a video about palliative care would be appropriate
Palliative care and panel discusssion about active surveillance for prostate cancer https://youtu.be/DmFYLTPYwt0
Palliative care and panel discusssion about active surveillance for prostate cancer https://youtu.be/DmFYLTPYwt0
Bethishere
Administrator
in
Advanced Prostate Cancer
2 years ago
Question to my NJ sisters
I got to the point that I can’t stay with my oncologist any more for many reasons. One of them is that she doesn’t see me as a patient, but just as cancer. No symptoms that could be seen as a sign of cancer or side effect of the therapy are of interest. After I was hospitalized for urosepsis and anemia
I got to the point that I can’t stay with my oncologist any more for many reasons. One of them is that she doesn’t see me as a patient, but just as cancer. No symptoms that could be seen as a sign of cancer or side effect of the therapy are of interest. After I was hospitalized for urosepsis and anemia
Tolife_18
in
SHARE Metastatic Breast Cancer
2 years ago
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