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📢 Saturday October 14th Free Live HCC Workshop📢
Dive deep into critical healthcare topics with leading experts in the field! 🌟 Spotlight on Dr. Daneng Li: Spearheading the Liver Cancer Collaborative Program within the Department of Medical Oncology & Therapeutics Research at the City of Hope Comprehensive Cancer Center, Dr. Li's tireless efforts
Dive deep into critical healthcare topics with leading experts in the field! 🌟 Spotlight on Dr. Daneng Li: Spearheading the Liver Cancer Collaborative Program within the Department of Medical Oncology & Therapeutics Research at the City of Hope Comprehensive Cancer Center, Dr. Li's tireless efforts
MichelleL_BlueFaery
Editor
in
Blue Faery Liver Cancer
1 year ago
📢 Don't Miss Out on Our Workshop This Saturday! 📢
Join us as distinguished experts gather to shed light on pivotal healthcare topics that touch the lives of many! 🌟 Spotlight on Dr. Sarah C. Bauer: A leading developmental and behavioral pediatrician with a personal connection to our cause. Her father's journey with type 2 diabetes and a brief battle
Join us as distinguished experts gather to shed light on pivotal healthcare topics that touch the lives of many! 🌟 Spotlight on Dr. Sarah C. Bauer: A leading developmental and behavioral pediatrician with a personal connection to our cause. Her father's journey with type 2 diabetes and a brief battle
MichelleL_BlueFaery
Editor
in
Blue Faery Liver Cancer
1 year ago
Asking for best guess info
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
Shamrock46
in
Advanced Prostate Cancer
1 year ago
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📢 Exciting Workshop Alert! 📢
Join us for a transformative session on October 14th as top healthcare experts explore pivotal medical topics that every patient and caregiver needs to know! 🌟 Spotlight on Dr. Arpan Patel: A renowned hepatologist from the UCLA and VA Greater Los Angeles Healthcare Systems. Not only does Dr. Patel
Join us for a transformative session on October 14th as top healthcare experts explore pivotal medical topics that every patient and caregiver needs to know! 🌟 Spotlight on Dr. Arpan Patel: A renowned hepatologist from the UCLA and VA Greater Los Angeles Healthcare Systems. Not only does Dr. Patel
MichelleL_BlueFaery
Editor
in
Blue Faery Liver Cancer
1 year ago
recommendations needed for a pressure relief cushion
I need advice / recommendation for a pressure relief cushion. The combination of my Interstital lung disease worsening,weight loss,and a current flare of my Rheumatoid Athritis means that I am more sedentary than ever before. This means that my bottom is getting sore. I’ve searched online,prices appear
I need advice / recommendation for a pressure relief cushion. The combination of my Interstital lung disease worsening,weight loss,and a current flare of my Rheumatoid Athritis means that I am more sedentary than ever before. This means that my bottom is getting sore. I’ve searched online,prices appear
Oshgosh
in
Lung Conditions Community Forum
1 year ago
options after Caelyx
Hello! My mum (58) has inoperable stage IV ovarian cancer. This has been the case since she was diagnosed (they thought a hysterectomy was possible but it had spread). She is now platinum resistant has recurring ascites. Currently she is on Caelyx and having a terrible time. She nearly faints, sots
Hello! My mum (58) has inoperable stage IV ovarian cancer. This has been the case since she was diagnosed (they thought a hysterectomy was possible but it had spread). She is now platinum resistant has recurring ascites. Currently she is on Caelyx and having a terrible time. She nearly faints, sots
Lookingout
in
My Ovacome
1 year ago
Secretions & Weak Throat Muscles
Hi Everyone, me again! I have posted a few times on here now about my mum and her ICU stay. She seems to be improving, got her tracky out on Wednesday and no longer requires any additional oxygen help. She is sitting up in a chair for a few hours a day and has sat at the edge of the bed. One problem
Hi Everyone, me again! I have posted a few times on here now about my mum and her ICU stay. She seems to be improving, got her tracky out on Wednesday and no longer requires any additional oxygen help. She is sitting up in a chair for a few hours a day and has sat at the edge of the bed. One problem
Westbeginners1
in
ICUsteps
1 year ago
October 14th Workshop The Truth About Liver Cancer: Tough Conversations
Join us for a free live workshop as Dr. Daneng Li, Dr. Arpan Patel, Oncology Nurse Ryne Wilson, and Caregiver Dr. Sarah Bauer come together to explore crucial healthcare conversations. This session will focus on empowering patients and their families through Shared Decision Making, navigating the realm
Join us for a free live workshop as Dr. Daneng Li, Dr. Arpan Patel, Oncology Nurse Ryne Wilson, and Caregiver Dr. Sarah Bauer come together to explore crucial healthcare conversations. This session will focus on empowering patients and their families through Shared Decision Making, navigating the realm
MichelleL_BlueFaery
Editor
in
Blue Faery Liver Cancer
1 year ago
Palliative care only
Dear All My appointment with my oncologist today went as expected but unhoped for. To put it bluntly, she has told me that she has done all that she can do for me. All anti-cancer treatment is being withdrawn, leaving me with palliative care only. She thinks I might see some of 2024, but less of it
Dear All My appointment with my oncologist today went as expected but unhoped for. To put it bluntly, she has told me that she has done all that she can do for me. All anti-cancer treatment is being withdrawn, leaving me with palliative care only. She thinks I might see some of 2024, but less of it
BrentW
in
Care Community
1 year ago
Palliative care only
My appointment with my oncologist today was not what one might hope, but what I knew was coming. She has done all she can for me (please don't try telling me of alternatives; we discussed them at length and came up blank with each one). So, with all anti-cancer medication removed, I have nothing but
My appointment with my oncologist today was not what one might hope, but what I knew was coming. She has done all she can for me (please don't try telling me of alternatives; we discussed them at length and came up blank with each one). So, with all anti-cancer medication removed, I have nothing but
BrentW
in
Advanced Prostate Cancer
1 year ago
Palliative care
My health has taken a nose dive over this last year. My consultant has put me on palliative care. He says no more lung function tests or CT scans, a triple function inhaler instead of three inhalers and full time oxygen instead of ambulatory. What else can I expect from palliative care? What can
My health has taken a nose dive over this last year. My consultant has put me on palliative care. He says no more lung function tests or CT scans, a triple function inhaler instead of three inhalers and full time oxygen instead of ambulatory. What else can I expect from palliative care? What can
wheezyof
in
Lung Conditions Community Forum
1 year ago
I don’t understand
hi My husband was diagnosed with Parkinson’s in 2021 after a few years of dizziness and balance problems , over the 2 years since diagnosis things have changed dramatically, he went from balance issues and stooping to using a stick, he was seen by a urologist for wee retention and was given catheters
hi My husband was diagnosed with Parkinson’s in 2021 after a few years of dizziness and balance problems , over the 2 years since diagnosis things have changed dramatically, he went from balance issues and stooping to using a stick, he was seen by a urologist for wee retention and was given catheters
DeeMilo25
in
Multiple System Atrophy Trust
1 year ago
bowel obstruction
hello, my Mum is now in palliative care (12 days) for a total bowel obstruction because of a 6 sigmoid volvulus. At 92 an operation is not possible. Almost two weeks now and so far she is coping remarkably - her tummy is huge but otherwise only moderate pain now and then and a need to pee quite often
hello, my Mum is now in palliative care (12 days) for a total bowel obstruction because of a 6 sigmoid volvulus. At 92 an operation is not possible. Almost two weeks now and so far she is coping remarkably - her tummy is huge but otherwise only moderate pain now and then and a need to pee quite often
Anjidav
in
Bowel Disease Support
1 year ago
Mum with CBD
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Bobbiejo21
in
PSP Association
1 year ago
Palliative care survey for less survivable cancer patients & loved ones (UK)
📣 The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
📣 The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
pluvicto?
any feed back about the befits of Pluvicto? Is it a miracle drug? Andy Taylor from Duran Duran cured after being palliative care? Many people sending me articles about it. Right now approved for castrate resistant pCA?
any feed back about the befits of Pluvicto? Is it a miracle drug? Andy Taylor from Duran Duran cured after being palliative care? Many people sending me articles about it. Right now approved for castrate resistant pCA?
Nowhereman9
in
Advanced Prostate Cancer
1 year ago
Lost in France
I'm new to this blog thing and am making my way around the site. Hopefully someone will get to see this.I'm Leosta and I'm caring for my husband aged 83 who has PSP-P. Well, we think so because the doctors say as he's not responding to Parkinson's medication it must be PSP. Certainly he has all
I'm new to this blog thing and am making my way around the site. Hopefully someone will get to see this.I'm Leosta and I'm caring for my husband aged 83 who has PSP-P. Well, we think so because the doctors say as he's not responding to Parkinson's medication it must be PSP. Certainly he has all
Leosta
in
PSP Association
1 year ago
CHC Funding - Upcoming assessment hits and tips please
Hi all I have managed ti finally get an assessment booked for my dad for CHC funding. I know from reading your posts that this is going to be a super challenge so I am keen to get advice, tips and how I can best be prepared for the assessment. I am UK based and the assessment is going to take place
Hi all I have managed ti finally get an assessment booked for my dad for CHC funding. I know from reading your posts that this is going to be a super challenge so I am keen to get advice, tips and how I can best be prepared for the assessment. I am UK based and the assessment is going to take place
Khalissi
in
PSP Association
1 year ago
It's time....
Yes you need
support
as a
carer
and how other carers are or what they have gone through but to me the most I need to let you know is how much I appreciate everything you have done and still do for me. You deserve a medal for what you have put with. Thank you, from the bottom of my heart. 🥰
Yes you need
support
as a
carer
and how other carers are or what they have gone through but to me the most I need to let you know is how much I appreciate everything you have done and still do for me. You deserve a medal for what you have put with. Thank you, from the bottom of my heart. 🥰
Hidden
in
Headway
6 months ago
Our mum was recently diagnosed with CBD
to
support
her in this next phase of her life.
to
support
her in this next phase of her life.
joshwr
in
PSP Association
5 months ago
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