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😪😡😪 Need to vent.
So palliative care and the transplant team have asked the gp to provide particular care and meds, have they NO!!! Can I make an appointment to speak to a gp? NO!!! The only thing to reduce me to tears is trying to deal with the incompetence of my gp surgery.
So palliative care and the transplant team have asked the gp to provide particular care and meds, have they NO!!! Can I make an appointment to speak to a gp? NO!!! The only thing to reduce me to tears is trying to deal with the incompetence of my gp surgery.
Karenanne61
in
Lung Conditions Community Forum
2 years ago
Decided to opt out of at home hospice after six weeks
I feel good. I do not even feel sick. I still am on strong pain meds, but I no longer need the walker (the enhertu infusion from hell). The nurse comes twice a week at first and I said No, not necessary. So they cut it down to once a week. It is ridiculous. The nurse writes to her boss (the doctor
I feel good. I do not even feel sick. I still am on strong pain meds, but I no longer need the walker (the enhertu infusion from hell). The nurse comes twice a week at first and I said No, not necessary. So they cut it down to once a week. It is ridiculous. The nurse writes to her boss (the doctor
kearnan
in
SHARE Metastatic Breast Cancer
2 years ago
Update
He cannot have dialysis because he is on palliative care
He cannot have dialysis because he is on palliative care
Carolsos
in
NRAS
2 years ago
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Advice please - CBD
Hi all Just wondering if anyone can offer any words of advice. My dad has CBD and has recently been in hospital for 6 weeks. He has now been released home for palliative care. He is non-verbal, he has no mobility, he is doubley incontinent and is bedbound. My mum now has carers that come in 4 times
Hi all Just wondering if anyone can offer any words of advice. My dad has CBD and has recently been in hospital for 6 weeks. He has now been released home for palliative care. He is non-verbal, he has no mobility, he is doubley incontinent and is bedbound. My mum now has carers that come in 4 times
Stormtrooper4
in
PSP Association
2 years ago
ICU/Covid/PEA Arrest/Coma
My mom who has neuropathy was admitted on 12/30 with covid. She was septic due to c. diff/colitis...They started to treat her accordingly. Her heart stopped 4 days later, which required compressions to bring her back. During intubation she was bleeding through tube, to assure there was no bleeding internally
My mom who has neuropathy was admitted on 12/30 with covid. She was septic due to c. diff/colitis...They started to treat her accordingly. Her heart stopped 4 days later, which required compressions to bring her back. During intubation she was bleeding through tube, to assure there was no bleeding internally
Myfancyfanny
in
ICUsteps
2 years ago
What next?
You know it's bad if a doctor comes to find you on a ward. Hubby's kidneys now working at about 15%, liver in bad way, hospital have started regular albumin and saline as he's badly dehydrated. They're telling him he shouldn't come home as treatment can only be given IV in hospital, will monitor things
You know it's bad if a doctor comes to find you on a ward. Hubby's kidneys now working at about 15%, liver in bad way, hospital have started regular albumin and saline as he's badly dehydrated. They're telling him he shouldn't come home as treatment can only be given IV in hospital, will monitor things
MrsWorried
in
British Liver Trust
2 years ago
Proxy information
Happy New year everyone.My husband's mobility is now extremely bad, taking diazepam for pain. He is sleeping mostly and not eating. I have spoken to our gp this morning about my concerns of him taking this as he continues to drink over 20 bottles of strong beer daily. He has a physio appointment next
Happy New year everyone.My husband's mobility is now extremely bad, taking diazepam for pain. He is sleeping mostly and not eating. I have spoken to our gp this morning about my concerns of him taking this as he continues to drink over 20 bottles of strong beer daily. He has a physio appointment next
Diamondbabe
in
British Liver Trust
2 years ago
Just tired?
Mum has been bed bound since Christmas Day but has managed to eat a little better than earlier in Dec when her swallowing just stopped... then it returned. However today she is just tired and for the first time ever she did not want to get up for a wash and has not even wanted the TV on. Palliative
Mum has been bed bound since Christmas Day but has managed to eat a little better than earlier in Dec when her swallowing just stopped... then it returned. However today she is just tired and for the first time ever she did not want to get up for a wash and has not even wanted the TV on. Palliative
T-val
in
PSP Association
2 years ago
2022 Top Story in Metastatic Breast Cancer: Improving Discussions of Palliative Care
Published in Oncology and Expert Opinion / Commentary · December 19, 2022
Written by
Lillie D. Shockney RN, BS, MAS, HON-ONN-CG "Palliative care intervention provides meaningful benefit in end-of-life care planning for patients with metastatic breast cancer. We are long overdue in involving
Published in Oncology and Expert Opinion / Commentary · December 19, 2022
Written by
Lillie D. Shockney RN, BS, MAS, HON-ONN-CG "Palliative care intervention provides meaningful benefit in end-of-life care planning for patients with metastatic breast cancer. We are long overdue in involving
Hazelgreen
in
SHARE Metastatic Breast Cancer
2 years ago
Enhertu (Do your research first ALWAYS)
I am HER2- and was given this "infusion" on 11/18 after being told I was out of any more options and had about 3 months left. It has been hell since then. I do not believe it was the medication as I did in the beginning. I believe it was the errors of the cancer center I have been going to. I am
I am HER2- and was given this "infusion" on 11/18 after being told I was out of any more options and had about 3 months left. It has been hell since then. I do not believe it was the medication as I did in the beginning. I believe it was the errors of the cancer center I have been going to. I am
kearnan
in
SHARE Metastatic Breast Cancer
2 years ago
Acute Hepatic Encephalopathy episode.
Also muscles very weak, unable to stand without
Carer
Support
. Mind not thinking straight, difficult to say what I'm thinking! Is this typical of HE?
Also muscles very weak, unable to stand without
Carer
Support
. Mind not thinking straight, difficult to say what I'm thinking! Is this typical of HE?
Starprincess
in
British Liver Trust
2 years ago
Yes, Malecare helped write the ‘‘Comprehensive Cancer Survivorship Act’
I received several nice phone calls this morning, so I thought to share some good news and also highlight more of Malecare's brilliant work. Working with the congressional office of U.S. Rep. Debbie Wasserman Schultz (FL-23) and several of my counterparts, I, representing Malecare and the prostate cancer
I received several nice phone calls this morning, so I thought to share some good news and also highlight more of Malecare's brilliant work. Working with the congressional office of U.S. Rep. Debbie Wasserman Schultz (FL-23) and several of my counterparts, I, representing Malecare and the prostate cancer
Darryl
Partner
in
Advanced Prostate Cancer
2 years ago
Caring to avoid errors
Note that for a nurse,
carer
,
support
worker, physician to efficiently work depends on your Assessment knowledge. Some patients may not be able to give you all their complains or symptoms. Your level of knowledge in Head to Toe assessment may help you to identify hidden problems.
Note that for a nurse,
carer
,
support
worker, physician to efficiently work depends on your Assessment knowledge. Some patients may not be able to give you all their complains or symptoms. Your level of knowledge in Head to Toe assessment may help you to identify hidden problems.
OBIBAH
in
Mencap
2 years ago
PSP WhatsApp group
My mother is living in Essex, UK with PSP and my father is her full time
carer
with
support
from my sister and myself.
My mother is living in Essex, UK with PSP and my father is her full time
carer
with
support
from my sister and myself.
MartinHLondon
in
PSP Association
2 years ago
GP support ?!!?
A few days ago I had a text from my GP surgery outlining everything you would wish to know about their service including a profile of all the eight GPs in the practice with their qualifications and special interests. Interestingly their interests ranged from cardiovascular, mental health, to gynaecology
A few days ago I had a text from my GP surgery outlining everything you would wish to know about their service including a profile of all the eight GPs in the practice with their qualifications and special interests. Interestingly their interests ranged from cardiovascular, mental health, to gynaecology
Libra7
in
Ataxia UK
2 years ago
Obstructed bowel.
Thank you everyone who responded to my post, sadly the outcome is not good ,after discussion with surgeon and the team my husband and I have decided on palliative care at home ,the cancer has now spread to my bowel and is causing the obstruction, my chances of getting through surgery are slim and the
Thank you everyone who responded to my post, sadly the outcome is not good ,after discussion with surgeon and the team my husband and I have decided on palliative care at home ,the cancer has now spread to my bowel and is causing the obstruction, my chances of getting through surgery are slim and the
fendweller
in
My Ovacome
2 years ago
Anticipatory medication
Have you spoken with palliative care team, and district nurses? They may be able to advise on anticipatory medication if you are concerned about him going through pain
Have you spoken with palliative care team, and district nurses? They may be able to advise on anticipatory medication if you are concerned about him going through pain
charlieford
in
PSP Association
2 years ago
Update on hubby Nov 2022
Hubby saw Hepatology Registrar yesterday. We have some great news to share. Hubbys liver is no longer Decompensated, it is now compensated 🎉 so he has gone from stage 4 ARLD to stage 3 ARLD 🎉. The hepatic encephalopathy systems have gone, so he is no longer on that medication. The Ascites & Odeoma
Hubby saw Hepatology Registrar yesterday. We have some great news to share. Hubbys liver is no longer Decompensated, it is now compensated 🎉 so he has gone from stage 4 ARLD to stage 3 ARLD 🎉. The hepatic encephalopathy systems have gone, so he is no longer on that medication. The Ascites & Odeoma
mumof3girls
in
British Liver Trust
2 years ago
Is weight loss always ominous?
Sorry I just worry as it was a sign my mother was rapidly declining with cancer.... Basically my brother is paralysed. He has severe heart failure with an efr of about 20-25% though believed to be at the lower end. The medication he was on for his heart has been stopped and he has been put onto palliative
Sorry I just worry as it was a sign my mother was rapidly declining with cancer.... Basically my brother is paralysed. He has severe heart failure with an efr of about 20-25% though believed to be at the lower end. The medication he was on for his heart has been stopped and he has been put onto palliative
FrazzleRock
in
British Heart Foundation
2 years ago
Dr recommends Brothers heart failure medicine be withdrawn and he be put on palliative care. Brother refusing.
Brother is paralysed and also has underlying conditions.He was recently diagnosed with severe heart failure. His left ventricle is damaged and he has an EFR of between 20 and 25 percent, though likely at the lower end of that. He has been discharged into his nursing home with a Referral to the heart
Brother is paralysed and also has underlying conditions.He was recently diagnosed with severe heart failure. His left ventricle is damaged and he has an EFR of between 20 and 25 percent, though likely at the lower end of that. He has been discharged into his nursing home with a Referral to the heart
FrazzleRock
in
British Heart Foundation
2 years ago
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