Search
Search
About
Log in
Join
Experiences with
Carer support
Posts
Communities
781 public posts
Filter results
My 57 Yr old Husband is terminal and I'm struggling and looking for someone who I can talk to please.
Hi, My 57 yr old husband has had 6 heart attacks on the last 4 years and had 2 cardiac arrests in Feb this year and now has an icd in situ since Feb 14th...Valentines day. He has been told he has heart block as he had been blacking out for years and they put in a loop recorder then found it was his
Hi, My 57 yr old husband has had 6 heart attacks on the last 4 years and had 2 cardiac arrests in Feb this year and now has an icd in situ since Feb 14th...Valentines day. He has been told he has heart block as he had been blacking out for years and they put in a loop recorder then found it was his
JanWales
in
British Heart Foundation
5 years ago
Come to end of treatment line after R223. Nothing else available.
Hi All Hope you can help out here. Feeling a bit down after today’s consultation. Diagnosed in Aug 2016. Gl 8/9 PSA 7. Spread to local lymph nodes and pelvis. Since spread to lower spine and having radiotherapy now because it’s pressing on nerve endings. I am on 3 mthly lupron and had early docetaxel
Hi All Hope you can help out here. Feeling a bit down after today’s consultation. Diagnosed in Aug 2016. Gl 8/9 PSA 7. Spread to local lymph nodes and pelvis. Since spread to lower spine and having radiotherapy now because it’s pressing on nerve endings. I am on 3 mthly lupron and had early docetaxel
JP63
in
Advanced Prostate Cancer
5 years ago
Toothache
Hi All, A new hurdle! Anyone come across ones love one with PSP with a toothache. Sam can’t open his mouth anymore & has been on a feeding tube for over a year. I’m not sure how to address this issue. I do have a call into his palliative care nurse but responses don’t come quick enough. Maybe just antibiotics
Hi All, A new hurdle! Anyone come across ones love one with PSP with a toothache. Sam can’t open his mouth anymore & has been on a feeding tube for over a year. I’m not sure how to address this issue. I do have a call into his palliative care nurse but responses don’t come quick enough. Maybe just antibiotics
Krmaier6896
in
PSP Association
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Palliative/Hospice Care
Larry is in the later stages of PSP. He’s in remarkable good health to date but he is declining. I have been asking the primary care doctor about hospice care for the last year. I have been told he really wasn’t at the stage for hospice. My understanding of hospice was one didn’t have to be dying to
Larry is in the later stages of PSP. He’s in remarkable good health to date but he is declining. I have been asking the primary care doctor about hospice care for the last year. I have been told he really wasn’t at the stage for hospice. My understanding of hospice was one didn’t have to be dying to
Hidden
in
PSP Association
5 years ago
The tricky subject of dying
I really recommend ‘With the End in Mind : Dying, Death and Wisdom in an Age of Denial’ by Kathryn Mannix. She is a former palliative care consultant and I think this book should be read by everyone. It really made me think and mentally prepare for dealing with death - of my elderly parent, my partner
I really recommend ‘With the End in Mind : Dying, Death and Wisdom in an Age of Denial’ by Kathryn Mannix. She is a former palliative care consultant and I think this book should be read by everyone. It really made me think and mentally prepare for dealing with death - of my elderly parent, my partner
Rafaina
in
Multiple System Atrophy Trust
5 years ago
I'm new, just saying hello
I'm Val, I'm 60yrs young and I have lymphoedema in both legs. My swelling is now travelling up into the trunk of my body. I've recently tried a pair of compression boots which made me look like 'Wallace & Gromit in The Wrong Trousers' I found them helpful but discovered that although they did their job
I'm Val, I'm 60yrs young and I have lymphoedema in both legs. My swelling is now travelling up into the trunk of my body. I've recently tried a pair of compression boots which made me look like 'Wallace & Gromit in The Wrong Trousers' I found them helpful but discovered that although they did their job
valkerry24
in
L-W-O Community
5 years ago
People of HealthUnlocked | Meet Lesley
[i] Happy Friday everyone! This week in the People of HealthUnlocked series, we're sharing Lesley's rollercoaster health journey, made better with the Quit Support community. Can you relate? Let us know in the comments below. [/i] "5th April 2012 it was my birthday, I was 63yrs old. The week before I
[i] Happy Friday everyone! This week in the People of HealthUnlocked series, we're sharing Lesley's rollercoaster health journey, made better with the Quit Support community. Can you relate? Let us know in the comments below. [/i] "5th April 2012 it was my birthday, I was 63yrs old. The week before I
MarketingHU
in
HealthUnlocked Blog
5 years ago
I don’t know how to help
Monday morning started out fairly typically. We had our cereal for breakfast, Karen did a few things around the house, I stayed out of the way as much as possible. And, I was decently lucid and communicative. The only blip in our otherwise normal routine was that I had an appointment later that morning
Monday morning started out fairly typically. We had our cereal for breakfast, Karen did a few things around the house, I stayed out of the way as much as possible. And, I was decently lucid and communicative. The only blip in our otherwise normal routine was that I had an appointment later that morning
Poppygail
Ambassador
in
Memory Health: Alzheimer's Support Group
5 years ago
Cabazitaxel,Cytoxan or Comfort Care after dismissal from Lu PSMA Vision Trial
It's been a long journey of mostly ups since my dearest husband was diagnosed with Adv. PC in 2008 at the age of 66. Although hormone therapy was the obvious way to go if PC was outside the capsule at that time, his innovative RO at UTSW Hospital,Dallas noted his great health,diet,supplementation and
It's been a long journey of mostly ups since my dearest husband was diagnosed with Adv. PC in 2008 at the age of 66. Although hormone therapy was the obvious way to go if PC was outside the capsule at that time, his innovative RO at UTSW Hospital,Dallas noted his great health,diet,supplementation and
Jrb70
in
Advanced Prostate Cancer
5 years ago
No lung mass!
Good Morning Warriors! So my dad had his follow up with his oncologist this past Tuesday. He was really sick a few months ago with sepsis, followed by fluid in his right lung, at which time, the doctors said they discovered a mass on his left lung. At his 3rd hospitalization for acute cellulitis, we
Good Morning Warriors! So my dad had his follow up with his oncologist this past Tuesday. He was really sick a few months ago with sepsis, followed by fluid in his right lung, at which time, the doctors said they discovered a mass on his left lung. At his 3rd hospitalization for acute cellulitis, we
elliefight4dad
in
Advanced Prostate Cancer
5 years ago
Palliative care
Met with the acute care facility where my aunt is for update. Small improvements very slow. Spoke with Attending Doctor after via phone. She said she was thinking of moving my aunt to palliative care but since she seems a little better she will wait. I feel that would be giving up. I don’t know. Anyone
Met with the acute care facility where my aunt is for update. Small improvements very slow. Spoke with Attending Doctor after via phone. She said she was thinking of moving my aunt to palliative care but since she seems a little better she will wait. I feel that would be giving up. I don’t know. Anyone
fallen_leaf
in
Care Community
5 years ago
Special Person Update
Hi lovelies, I was at the hospital today with my special person (she's still in...) a palliative care nurse came along and started saying what she was doing with my special person stronger laxatives etc she was just about to go then her oncologist came and the nurse decided to stay (I could have killed
Hi lovelies, I was at the hospital today with my special person (she's still in...) a palliative care nurse came along and started saying what she was doing with my special person stronger laxatives etc she was just about to go then her oncologist came and the nurse decided to stay (I could have killed
CallmeMum
in
My Ovacome
5 years ago
CLL Society Tribune!
Welcome to the Second 2019 Issue of The CLL Society Tribune. https://cllsociety.org/quarter-2-2019-volume-5-issue-2/?utm_source=CLL+Tribune+Q2+2019&utm_campaign=Quarter+2+2019%3A+Volume+5+Issue+2&utm_medium=email Dear Friends and Supporters of the CLL Society. Welcome to the growing and evolving
Welcome to the Second 2019 Issue of The CLL Society Tribune. https://cllsociety.org/quarter-2-2019-volume-5-issue-2/?utm_source=CLL+Tribune+Q2+2019&utm_campaign=Quarter+2+2019%3A+Volume+5+Issue+2&utm_medium=email Dear Friends and Supporters of the CLL Society. Welcome to the growing and evolving
lankisterguy
Volunteer
in
CLL Support
5 years ago
Holiday Insurance blues!
We have been trying to get insurance for a cruise, but its either thousands of pounds or they will not cover at all. We finally did no medical cover with Bupa worldwide but they could still come back and refuse the cover even though pre-existing conditions not covered. My husband is now having palliative
We have been trying to get insurance for a cruise, but its either thousands of pounds or they will not cover at all. We finally did no medical cover with Bupa worldwide but they could still come back and refuse the cover even though pre-existing conditions not covered. My husband is now having palliative
caz-stoke
in
Lung Conditions Community Forum
5 years ago
New Hope For Darvon / Co-proxamol Prescribing
Manufacture and sale of Dextropropoxyphene based products. (Darvon / Co-proxamol) was banned in India during 2013 by the Drugs Technical Advisory Board (DTAB). The UK 'Named Patient' facility relied on imports from India from 2008. In order for the 'Named Patient' scheme to continue the NHS had to
Manufacture and sale of Dextropropoxyphene based products. (Darvon / Co-proxamol) was banned in India during 2013 by the Drugs Technical Advisory Board (DTAB). The UK 'Named Patient' facility relied on imports from India from 2008. In order for the 'Named Patient' scheme to continue the NHS had to
Whowillgiveastuff
in
Pain Concern
5 years ago
Long Overdue Update
I’ve been hiding from this site because sometimes I feel like I’m already drowning in cancer. Yet, I find whenever I post I have received useful information, kind support, and I hope pieces of our experience may benefit others. We are nearing 2 years since my husband was diagnosed. At time of diagnosis
I’ve been hiding from this site because sometimes I feel like I’m already drowning in cancer. Yet, I find whenever I post I have received useful information, kind support, and I hope pieces of our experience may benefit others. We are nearing 2 years since my husband was diagnosed. At time of diagnosis
joekaty
in
Advanced Prostate Cancer
5 years ago
opioid induced hyperalgesia
Hey guys, So we've been in a weird lull, no new news yet, but scans upcoming which are causing us a lot of anxiety. Most recently my mom has been in constant pain and discomfort and I thought it might be the meds she has been on for so long. Turns out I was right. They have been making her feel worse
Hey guys, So we've been in a weird lull, no new news yet, but scans upcoming which are causing us a lot of anxiety. Most recently my mom has been in constant pain and discomfort and I thought it might be the meds she has been on for so long. Turns out I was right. They have been making her feel worse
H_Daughter
in
Melanoma Caregivers
5 years ago
Tickets Now Available for Prostate Cancer Patient Conference
New York's Prostate Cancer Conference, produced by patients for patients. Twelve great prostate cancer clinicians sharing the latest treatment and quality of life strategies. Lots of time for your questions, too. Enjoy a beautiful fall weekend in New York City Spend Saturday saving
New York's Prostate Cancer Conference, produced by patients for patients. Twelve great prostate cancer clinicians sharing the latest treatment and quality of life strategies. Lots of time for your questions, too. Enjoy a beautiful fall weekend in New York City Spend Saturday saving
Darryl
Partner
in
Prostate Cancer Network
5 years ago
Tickets Now Available for Prostate Cancer Patient Conference
New York's Prostate Cancer Conference, produced by patients for patients. Twelve great prostate cancer clinicians sharing the latest treatment and quality of life strategies. Lots of time for your questions, too. Enjoy a beautiful fall weekend in New York City Spend Saturday saving
New York's Prostate Cancer Conference, produced by patients for patients. Twelve great prostate cancer clinicians sharing the latest treatment and quality of life strategies. Lots of time for your questions, too. Enjoy a beautiful fall weekend in New York City Spend Saturday saving
Darryl
Partner
in
Prostate Cancer Caregivers
5 years ago
Tickets Now Available for Prostate Cancer Patient Conference
The Prostate Cancer Conference, produced by patients for patients. Twelve great prostate cancer clinicians sharing the latest treatment and quality of life strategies. Lots of time for your questions, too. Enjoy a beautiful fall weekend in New York City Spend Saturday saving your life and then
The Prostate Cancer Conference, produced by patients for patients. Twelve great prostate cancer clinicians sharing the latest treatment and quality of life strategies. Lots of time for your questions, too. Enjoy a beautiful fall weekend in New York City Spend Saturday saving your life and then
Darryl
Partner
in
Prostate Cancer And Gay Men
5 years ago
1
...
18
19
20
...
40
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
100 results
PSP Association
95 results
Lung Conditions Community Forum
77 results
View top 10 communities
Sort by
Most Relevant
Newest