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Swelling and weight gain

Does anyone have problems with their breasts swelling? Weight gaining? It seems using the flexitouch machine just moves the fluid around. After it used on my...

Does anyone have problems with their breasts swelling? Weight gaining? It seems ...

•2 years ago

RLS compression boots

Ik ben nieuw en ik heb RLS (rusteloze benen). Ik ben erg benieuwd of iemand ervaring heeft met compression boots.

Ik ben nieuw en ik heb RLS (rusteloze benen). Ik ben erg benieuwd of iemand erva...

•4 years ago

Liposuction for arm lymphoedema

I am new on here. Has anyone had liposuction for breast cancer related lymphoedema and would like to share some of their experience?

I am new on here. Has anyone had liposuction for breast cancer related lymphoede...

•4 years ago

New Families Website

To compliment our Families support group we have launched our new Families website you will find us at: https://www.lwocommunity4families.com/

To compliment our Families support group we have launched our new Families websi...

•4 years ago

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Families Group

Did you know we have a Families Support Group? This is for families who live with Paediatric, Primary or Lymphatic Malformations if you are family whose child...

Did you know we have a Families Support Group? This is for families who live wi...

•4 years ago

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Lotion for incontinence underwear

Does anyone know if a lotion that can be used with incontinence underwear to prevent chaffing. Thanks

Does anyone know if a lotion that can be used with incontinence underwear to pre...

•4 years ago

Information from LSN

In response to enquiries from patients about coronavirus the Lymphoedema Support Network has issued information on the link below. You may find this helpful...

In response to enquiries from patients about coronavirus the Lymphoedema Support...

•5 years ago

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Hand Hygiene when wearing compression

This was a question L-W-O support group members asked we asked our Nurse Advisor for her suggestions.

This was a question L-W-O support group members asked we asked our Nurse Advisor...

•5 years ago

Coronavirus

NHS Advice - Wash your hands - frequently for at least 20 seconds...

NHS Advice - Wash your hands - frequently for at least 20 seconds...

•5 years ago

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Hydrochlorothiazide and lymphedema

Has anyone had any experience with hydrochlorothiazide and lymphedema. The medicine seems to make any oozing worse. I also have a blood pressure problem.

Has anyone had any experience with hydrochlorothiazide and lymphedema. The medi...

•5 years ago

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(lymphaticovenular anastomosis)

has anyone here had any experience of restoration of the flow of fluid around the affected section of the lymphatic system – for example, by connecting the...

has anyone here had any experience of restoration of the flow of fluid around th...

Bermondsey_bill

•5 years ago

Your tips & advice on Self-Care

The 18th - 24th of November is Self-Care Week, please share with us your lymphoedema self-care tips.

The 18th - 24th of November is Self-Care Week, please share with us your lymphoe...

•5 years ago

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Do you change your skin care routine in Winter?

With the clocks going back and the central heating going on, do you change your skin care routine in winter?

With the clocks going back and the central heating going on, do you change your ...

•5 years ago

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What Healthy Living Tip?

What healthy living tip would you give to some who has just been diagnosed with Lymphoedema/Lymphedema?

What healthy living tip would you give to some who has just been diagnosed with ...

•5 years ago

How does Lymphoedema affect your Mental Health?

August was not a good health month for me, I slept a lot due to heavy painkillers and my swelling increased.

August was not a good health month for me, I slept a lot due to heavy painkiller...

•5 years ago

Out in the Community

If you are in the Nuneaton area, pop in any say hello, L-W-O will be there with our information stand 29th August 2019, 10 - 2pm

If you are in the Nuneaton area, pop in any say hello, L-W-O will be there with ...

•5 years ago

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Breaking the itch scratch cycle

Some days it is very hard not to scratch here are a few tips that may help. Please take part in our Poll...

Some days it is very hard not to scratch here are a few tips that may help. Plea...

•5 years ago

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New Pinterest

Today my granddaughter has set up a new Pinterest Page, sadly the old one is past its sell by date. you will find the new one at...

Today my granddaughter has set up a new Pinterest Page, sadly the old one is pas...

•5 years ago

Accessibility

None of us living with lymphoedema like to think of ourselves as being disabled but many of us have accessibility or mobility problem. Do you have...

None of us living with lymphoedema like to think of ourselves as being disabled ...

•5 years ago

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Lymphoedema Summers

Although this weekend hasn't been much to shout about weather wise we are still officially in Summer. What effect does the hot weather have on your...

Although this weekend hasn't been much to shout about weather wise we are still ...

•5 years ago

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The Catch 22 situation

A few years ago the rules changed and we could pick and choose where we wanted to be treated, however in the last 5 or so years certain Area Health authorities...

A few years ago the rules changed and we could pick and choose where we wanted t...

Bermondsey_bill

•5 years ago

Community Guidelines

Welcome to the L-W-O Community - Community for support of lymphoedema! We’re very glad you have chosen to be a part of our community. The L-W-O Community...

Welcome to the L-W-O Community - Community for support of lymphoedema! We’re v...

•5 years ago

Why you should drink water

For those of us living with lymphoedema it is so important to drink plenty of fluids preferably water this simple poster explains what to look for when you are...

For those of us living with lymphoedema it is so important to drink plenty of fl...

•5 years ago

Hayfever

This year I have found Hayfever particularly difficult and the pollen count certainly seems to be higher that previous years. While it doesn't directly affect...

This year I have found Hayfever particularly difficult and the pollen count cert...

•5 years ago

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Hidden Disabilities

Many of my disabilities can't be seen including my lymphoedema. The Sunflower Hidden Disability Lanyard is being recognised by companies to assist you when you...

Many of my disabilities can't be seen including my lymphoedema. The Sunflower Hi...

•5 years ago

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Keep cool at night

I love my cotton sheets at night. I also keep a spare top in the fridge in a plastic bag for a cool change. Don't forget to drink lots of water...

I love my cotton sheets at night. I also keep a spare top in the fridge in a pl...

•5 years ago

Supporting families

We have a Children's Group at www.facebook/groups/LWOChildrens and our website has a Children's page at https://www.lymph-what-oedema.com/children

We have a Children's Group at www.facebook/groups/LWOChildrens and our website h...

•5 years ago

Welcome

Hi I am the Founder of L-W-O, welcome to the L-W-O Community supporting those living with Lymphoedema and Lymphatic Malformations. L-W-O provides non-medical...

Hi I am the Founder of L-W-O, welcome to the L-W-O Community supporting those li...

•5 years ago

I'm new, just saying hello

I'm Val, I'm 60yrs young and I have lymphoedema in both legs. My swelling is now travelling up into the trunk of my body. I've recently tried a pair of...

I'm Val, I'm 60yrs young and I have lymphoedema in both legs. My swelling is now...

•5 years ago

Welcome to HealthUnlocked

We are the world’s largest online support network, connecting you to others with the same health needs and long-term conditions. Our network is made up of over...

We are the world’s largest online support network, connecting you to others with...

HealthUnlocked•5 years ago

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Welcome to the L-W-O Community. We are a non-profit group set up in September 2013 for anyone who lives with ...

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We are a non-profit, that receives no funding. We rely on the generosity of our members to operate both online and in the community where we attend health and well-being events.