So my dad had his follow up with his oncologist this past Tuesday. He was really sick a few months ago with sepsis, followed by fluid in his right lung, at which time, the doctors said they discovered a mass on his left lung. At his 3rd hospitalization for acute cellulitis, we were referred to palliative care and had THE worst experience. I went with my gut instinct and did not let them come and evaluate him. In my earlier post, I mentioned that the doctor there mentioned to my father that his cancer treatment was failing, because his PSA had gone from 7 to 13. Anyway.. fast forward to just a few days ago and he is at a 6 now! So no, lady, take that! His treatment is NOT failing. All these black lesions that appeared on his first scan when he started his journey (PSA level at 336) are now almost clear! They are now a fading gray. AND... his oncologist reviewed the scans, and there is NO lung mass! My sister let her know all that we went through and how the palliative care doctor told our family that she had consulted with his oncologist and she also agreed his treatment was failing and he can go on with the palliative team and/or hospice is he chose to. Let me tell you, his oncologist was APPALLED!! Long story short, his MO said that he is responding VERY well to treatment, and as long as he continues with his treatment, etc., he's not going anywhere anytime soon! She suggested we file a complaint, otherwise, nothing can be done. She acknowledged that sadly this happens but she was glad we went with our gut instinct!
Happy day, everyone! God willing my dad will be dancing with my baby girl, his granddaughter, at her coming of age party in September! God bless each and every one of you. HUGS!!
Love & Light,
Ellie
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elliefight4dad
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Happy Saturday, Juan! He started with casodex and lupron. About 60 to maybe 90 days into it, his MO changed it to lupron and zytiga. She just recently added xgeva.
Ellie- I am very happy to hear about the good news. But, I am concerned about what I THINK you said about the palliative care doctor. Are you saying he LIED about what your father's oncologist told him? Are you saying the palliative care doctor claimed he spoke with your father's oncologist and that the oncologist told him your father's treatment was failing. IF SO- that is truly shocking!!! And- IF SO- PLEASE report him.
Yes, that is exactly what I said. Also, when his PCP called to "check on him" she noticed that there was no palliative care treatment active so she referred us again and the harassing phone calls once again started. I'm talking about calling every couple of minutes! I have call logs. His own PCP said she had spoken to the specialist and they both agreed. We will be filing a complaint this coming week and will be removing my father from that PCP's "care". One thing I learned when I first joined this amazing group of supporting and loving family is that my father is not a gallon of milk and I swore to never let anyone put an expiration date on him! I finally told my dad what happened that day the palliative care doctor came into his hospital room. The bedside manner was despicable and I hid nothing; he was appalled!
I agree. My 2 older sisters were crying and crying at that appointment and my big sister asked me "why didn't you cry? I wish I could be as resilient as you." I said because I am not buying into their bs. I sat there and observed and listened to everything said. My big sister even tried to get me to agree to have the palliative team assess him at home. I said you go right ahead. Do not expect me to be there. You can call, you can schedule and you can meet them, just leave me out of it. I had to give her a good shaking to get her to see it from my point of view. I know we are all going to go some time. I was not in denial that day. I know that when that time comes, I will not refuse that treatment for my father. As hard as it will be, I will not let him suffer. But for now, we move forward and continue to live as best and as happy as we can, making every day count!! My dad went from being bedridden for a month and a half to walking and eating again. 😊💖😊
Good job.... Great Daughter... Nice Dad.... Crying Sisters.....A-hole of a Palliative Care Doctor... Good Oncologist....No Lung Mass.... Dad eating and walking again... No more Acute Cellulitis.....PSA is a 6 down from 7.... No expiration date on milk bottle.... Write complaint letter........
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