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atypical parkinson’s diagnosis and no treatment relief
my neurologist has put me on
carbidopa
/
levodopa
, the dosage is 4 every four hours, four times a day. I have tremors I am unbalanced, my speech is affected, I cannot write anymore, and I am extremely emotional.
my neurologist has put me on
carbidopa
/
levodopa
, the dosage is 4 every four hours, four times a day. I have tremors I am unbalanced, my speech is affected, I cannot write anymore, and I am extremely emotional.
Doneanddone
in
Neuro Support
1 year ago
Is propofol safe for a colonoscopy with Parkinson’s?
is it safe, or is there a preferred drug for a colonoscopy? I’m on rasagiline and sometimes mucuna and carbidopa….and should they be discontinued before? If so, how long before? Thanks!
is it safe, or is there a preferred drug for a colonoscopy? I’m on rasagiline and sometimes mucuna and carbidopa….and should they be discontinued before? If so, how long before? Thanks!
Ob6842
in
Cure Parkinson's
2 months ago
Adding Sinemet to Mucuna
We're trying to go in the opposite direction of many here by adding Sinemet to Mucuna and are having a heck of a time... it's been exhausting and a little scary. Hoping anyone here can help a bit. For about 6 years now, my partner Jay (diagnosed 2009) has been taking only Mucuna at rather high doses
We're trying to go in the opposite direction of many here by adding Sinemet to Mucuna and are having a heck of a time... it's been exhausting and a little scary. Hoping anyone here can help a bit. For about 6 years now, my partner Jay (diagnosed 2009) has been taking only Mucuna at rather high doses
KuriousKaty
in
Cure Parkinson's
2 months ago
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What kind of "unusual body movements" does stopping Levodopa cause?
"If you suddenly stop taking
levodopa
and
carbidopa
, you could develop a serious syndrome that causes fever, rigid muscles,
unusual body movements
, and confusion." https://medlineplus.gov/druginfo/meds/a601068.html#:~:text=Do%20not%20stop%20taking%20levodopa,probably%20decrease%20your%20dose%20gradually
"If you suddenly stop taking
levodopa
and
carbidopa
, you could develop a serious syndrome that causes fever, rigid muscles,
unusual body movements
, and confusion." https://medlineplus.gov/druginfo/meds/a601068.html#:~:text=Do%20not%20stop%20taking%20levodopa,probably%20decrease%20your%20dose%20gradually
Gcf51
in
Cure Parkinson's
10 months ago
Rasagiline and Mucuna together?
My MDS is a huge fan of rasagiline and I’ve taken it for almost 3 years, and want to continue to take Mucuna and carbidopa as needed along with it. I've read that Mucuna should not be taken with rasagiline. Is there any truth to this? I’m not going to stop taking rasagiline, and I’d rather not start
My MDS is a huge fan of rasagiline and I’ve taken it for almost 3 years, and want to continue to take Mucuna and carbidopa as needed along with it. I've read that Mucuna should not be taken with rasagiline. Is there any truth to this? I’m not going to stop taking rasagiline, and I’d rather not start
Ob6842
in
Cure Parkinson's
3 months ago
Progression
I am taking
carbidopa
/
levodopa
which helps with the tremors, and I take muscle relaxant for pain and cramps in my legs.
I am taking
carbidopa
/
levodopa
which helps with the tremors, and I take muscle relaxant for pain and cramps in my legs.
horseandwolf
in
PSP Association
1 year ago
Weaning off high dose Pramipexole
My neurologist addressed it by a pramipexole vacation and prescribed
carbidopa
levodopa
for 3 months. Seemed odd as it is a dopamine drug but it worked to knock back the symptoms to the evening. . Then over time I started adapting and required higher and higher doses.
My neurologist addressed it by a pramipexole vacation and prescribed
carbidopa
levodopa
for 3 months. Seemed odd as it is a dopamine drug but it worked to knock back the symptoms to the evening. . Then over time I started adapting and required higher and higher doses.
lessergoldfinch
in
Restless Legs Syndrome
1 year ago
skin test biopsy used with Parkinson’s diagnosis
In February 2023 I was diagnosed with Parkinson’s, because I did not receive bond continually to the
levodopa
carbidopa
, we are now exploring the diagnosis of Atypical. Parkinson’s with MSA. I have had a dat scan, blood test to determine if I have a substance that attacks muscles??
In February 2023 I was diagnosed with Parkinson’s, because I did not receive bond continually to the
levodopa
carbidopa
, we are now exploring the diagnosis of Atypical. Parkinson’s with MSA. I have had a dat scan, blood test to determine if I have a substance that attacks muscles??
Doneanddone
in
Neuro Support
1 year ago
Has anyone done an h.pylori test, if so, was it useful, and how was it treated?
i am considering taking an h.pylori test. Is there a definitive impact to how h.pyloi affects levodopa absorbtion?
i am considering taking an h.pylori test. Is there a definitive impact to how h.pyloi affects levodopa absorbtion?
Jmellano
in
Cure Parkinson's
4 days ago
Next NoSilverBullet webinar on 14th October: “Mucuna Pruriens and the future of Parkinsons care in low income countries” by Dr Roberto Cilia
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.00pm London time on Monday, the 14th of October. Dr. Roberto Cilia will be talking to us about “Mucuna Pruriens and the future of Parkinson's care in low income countries”. Dr. Roberto Cilia is a leading
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.00pm London time on Monday, the 14th of October. Dr. Roberto Cilia will be talking to us about “Mucuna Pruriens and the future of Parkinson's care in low income countries”. Dr. Roberto Cilia is a leading
Michel0220
in
Cure Parkinson's
5 days ago
St John's Wort - other alternatives?
Hello wise people, Diagnosed with PD 3 and a half years ago. Going through difficult time. My mum is at end of life with inoperable brain tumour - maybe a week or two to go (this has been very sudden). My dad is also receiving Immunotherapy treatment for lung cancer. Had been looking at St John's Wort
Hello wise people, Diagnosed with PD 3 and a half years ago. Going through difficult time. My mum is at end of life with inoperable brain tumour - maybe a week or two to go (this has been very sudden). My dad is also receiving Immunotherapy treatment for lung cancer. Had been looking at St John's Wort
AndyMu72
in
Cure Parkinson's
9 days ago
Suggestion for new members
I don't have PD and can't answer a lot of the questions posed here, but feel bad when new members don't get their questions addressed. I think sometimes this happens because a subject has been discussed ad nauseum, and members assume a search of this forum will turn up more info for a poster than they
I don't have PD and can't answer a lot of the questions posed here, but feel bad when new members don't get their questions addressed. I think sometimes this happens because a subject has been discussed ad nauseum, and members assume a search of this forum will turn up more info for a poster than they
Rufous2
in
Cure Parkinson's
13 days ago
Amantadine induced muscle spasm/dytonia
it won't go away with increased madopar dose. I am not sure my muscle spasm/ dystonia is caused by levodopa itself or amandatine. anyone has experience?
it won't go away with increased madopar dose. I am not sure my muscle spasm/ dystonia is caused by levodopa itself or amandatine. anyone has experience?
limcheeese22
in
Cure Parkinson's
13 days ago
Levocarb side effects
I have had Parkinsons for about 12 years. Extreme gait issues which have been treated with higher dosages of Levodopa. I am experiencing body pain when I get close to my next dose, which is down to a 3 hour interval. Could the pain be withdrawal as my dosage is usually worn off by then?
I have had Parkinsons for about 12 years. Extreme gait issues which have been treated with higher dosages of Levodopa. I am experiencing body pain when I get close to my next dose, which is down to a 3 hour interval. Could the pain be withdrawal as my dosage is usually worn off by then?
bullet65
in
Cure Parkinson's
14 days ago
Study review highlights limits of levodopa effectiveness
This seems very promising https://parkinsonsnewstoday.com/news/study-review-highlights-limits-levodopa-effectiveness/
This seems very promising https://parkinsonsnewstoday.com/news/study-review-highlights-limits-levodopa-effectiveness/
Farooqji
in
Cure Parkinson's
16 days ago
Asking for your stories and help
Hi, I'm new here. Yesterday, after 2 years of searching, my 75-year-old mother was finally diagnosed. We are from Poland, where there is no other treatment apart from amantadine and levodopa. There are also no websites or support groups like yours. That's why I would like to ask if, apart from a physiotherapist
Hi, I'm new here. Yesterday, after 2 years of searching, my 75-year-old mother was finally diagnosed. We are from Poland, where there is no other treatment apart from amantadine and levodopa. There are also no websites or support groups like yours. That's why I would like to ask if, apart from a physiotherapist
garucha
in
PSP Association
25 days ago
Improving Treatment for Parkinson's Disease: Delivery of Levodopa Nanocarriers Across the Blood-Brain Barrier
https://www.sciencedirect.com/science/article/pii/S1818087624000801
https://www.sciencedirect.com/science/article/pii/S1818087624000801
Farooqji
in
Cure Parkinson's
26 days ago
Case report: Levodopa challenge test is important in identifying dopamine-induced freezing of gait in patient with Parkinson’s disease
female PD patient complicated with dopamine-induced FOG, which was identified during levodopa challenge test. Her symptoms were alleviated after adjusting the medication. https://www.frontiersin.org/journals/human-neuroscience/articles/10.3389/fnhum.2024.1464152/full#SM1
female PD patient complicated with dopamine-induced FOG, which was identified during levodopa challenge test. Her symptoms were alleviated after adjusting the medication. https://www.frontiersin.org/journals/human-neuroscience/articles/10.3389/fnhum.2024.1464152/full#SM1
Farooqji
in
Cure Parkinson's
28 days ago
A New Smart Sensor to Adjust and Manage Parkinson's Drug Dosage
Indian scientists at Institute of Advanced Study in Science and Technology (IASST) have achieved a major breakthrough in managing Parkinson’s disease with the development of an affordable, smartphone-based sensor system capable of detecting L-dopa levels in the body. This cutting-edge technology is set
Indian scientists at Institute of Advanced Study in Science and Technology (IASST) have achieved a major breakthrough in managing Parkinson’s disease with the development of an affordable, smartphone-based sensor system capable of detecting L-dopa levels in the body. This cutting-edge technology is set
Farooqji
in
Cure Parkinson's
1 month ago
Case report: Levodopa challenge test is important in identifying dopamine-induced freezing of gait in patient with Parkinson's disease
https://www.frontiersin.org/journals/human-neuroscience/articles/10.3389/fnhum.2024.1464152/abstract
https://www.frontiersin.org/journals/human-neuroscience/articles/10.3389/fnhum.2024.1464152/abstract
Farooqji
in
Cure Parkinson's
1 month ago
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