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MCTD diagnosis, finally!
Hi everyone. If you've been following my posts, you probably know I've been very frustrated with the NHS. I decided to go to India and get all my tests done and see a doctor as well. I'm in the clear for Hashimoto's, Coeliac disease, RA and lupus. I have mixed connective tissue disease. The increasing
Hi everyone. If you've been following my posts, you probably know I've been very frustrated with the NHS. I decided to go to India and get all my tests done and see a doctor as well. I'm in the clear for Hashimoto's, Coeliac disease, RA and lupus. I have mixed connective tissue disease. The increasing
MauveMouse
in
Thyroid UK
19 days ago
JUNE NEWSLETTER
our June newsletter will be coming out soon. If you are not already a member then sign up to the Pernicious Anaemia Society https://pernicious-anaemia-society.org/member/ so you don't miss out! If you are a member and are not getting your newsletter make sure to check in Spam/Junk or check that we
our June newsletter will be coming out soon. If you are not already a member then sign up to the Pernicious Anaemia Society https://pernicious-anaemia-society.org/member/ so you don't miss out! If you are a member and are not getting your newsletter make sure to check in Spam/Junk or check that we
PAScomms
in
Pernicious Anaemia Society
19 days ago
Intermittent fasting
Does anyone have experience with intermittent fasting? It is supposed to help with autoimmune diseases.
Does anyone have experience with intermittent fasting? It is supposed to help with autoimmune diseases.
Swizzly
in
PMRGCAuk
20 days ago
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Is Low Dose Naltrexone (LDN) ever used in Sjogren's syndrome?
Is Low Dose Naltrexone (LDN) ever used in Sjogren's syndrome? Answered by Linda Elsegood, LDNRT Founder https://youtu.be/NQXRcsKpdOk
Is Low Dose Naltrexone (LDN) ever used in Sjogren's syndrome? Answered by Linda Elsegood, LDNRT Founder https://youtu.be/NQXRcsKpdOk
Shewulf
Administrator
in
LDN Research Trust
21 days ago
lupus or fibromyalgia
hi has anyone else in a similarly position my GP can’t tell whether I have fibromyalgia or lupus or a combination of the two
hi has anyone else in a similarly position my GP can’t tell whether I have fibromyalgia or lupus or a combination of the two
Pricey110
in
Fibromyalgia Action UK
21 days ago
fibromyalgia or lupus
hi has anyone else been diagnosed with fibromyalgia but you think it’s more likely to be Lupus. I am constantly tired and just don’t have any energy, hate direct sunlight and have constant pain in my joints. How do I get my GP to actually come to a conclusion it’s so frustrating not knowing.
hi has anyone else been diagnosed with fibromyalgia but you think it’s more likely to be Lupus. I am constantly tired and just don’t have any energy, hate direct sunlight and have constant pain in my joints. How do I get my GP to actually come to a conclusion it’s so frustrating not knowing.
Pricey110
in
LUPUS UK
21 days ago
Does fear play a role with pernicious anemia?
Hey guys, I hope this message finds you well. It's good to have a place to come that someone has some understanding of what you're going through! I messaged here before about having fear of a lot of things that I didn't have before this PA/B12 deficiency and sometimes I think of myself as a wimp because
Hey guys, I hope this message finds you well. It's good to have a place to come that someone has some understanding of what you're going through! I messaged here before about having fear of a lot of things that I didn't have before this PA/B12 deficiency and sometimes I think of myself as a wimp because
25092
in
Pernicious Anaemia Society
21 days ago
7 years plus
I was a junior high Science teacher... in 2015 my PKD became so profound that I had to quit teaching and have HD 3 times a week for 4 hours a session. The second time I had dialysis I was infiltrated severely... and wound up in hospital.. I have had a bilateral Nephrectomy and my kidneys were football
I was a junior high Science teacher... in 2015 my PKD became so profound that I had to quit teaching and have HD 3 times a week for 4 hours a session. The second time I had dialysis I was infiltrated severely... and wound up in hospital.. I have had a bilateral Nephrectomy and my kidneys were football
1EPXiii
in
Kidney Dialysis
6 months ago
Elevated Liver Enzymes
Hello everyone, hope you are doing well. I just recently had LFT, 3 enzymes came back a little elevated. Alt was 52, Alp was 121 and GGT at 72. Ast according to the lab was normal at 35. CBC was all good too, ANA was negative, kidney function test was normal as well. All the other protiens and enzymes
Hello everyone, hope you are doing well. I just recently had LFT, 3 enzymes came back a little elevated. Alt was 52, Alp was 121 and GGT at 72. Ast according to the lab was normal at 35. CBC was all good too, ANA was negative, kidney function test was normal as well. All the other protiens and enzymes
Mhalpha
in
British Liver Trust
6 months ago
SOC & PSA
Three months post RT, my RO ordered a non-ultrasensitive PSA test with a lower limit of "<.1". I see posts of folks considering an increase from .02 to .06 a PSA doubling - obviously which would not be observable with my PSA test. This makes me wonder why: 1) Is there any good reason why an ultrasensitive
Three months post RT, my RO ordered a non-ultrasensitive PSA test with a lower limit of "<.1". I see posts of folks considering an increase from .02 to .06 a PSA doubling - obviously which would not be observable with my PSA test. This makes me wonder why: 1) Is there any good reason why an ultrasensitive
SCreader
in
Advanced Prostate Cancer
6 months ago
Blood tests whilst pregnant
This is a question after reading posts+research. I understand there is a Def link between underactive thyroid/Hashimotos kicking off whilst pregnant+a link between Hashimotos+pre-eclampsia. Speaking from experience many years ago, for me this seems clear. So, just as mother's are checked re diabetes
This is a question after reading posts+research. I understand there is a Def link between underactive thyroid/Hashimotos kicking off whilst pregnant+a link between Hashimotos+pre-eclampsia. Speaking from experience many years ago, for me this seems clear. So, just as mother's are checked re diabetes
Lottyplum
in
Thyroid UK
23 days ago
Medical lecture and Q&A - Hosted by Dr. Arvind Kaul (with guest speakers) - 15th June 9.30am
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture. Our agenda for the morning as follows: 1. 09.30: Registration and Welcome 2. 10.00: Melanie Sloan:
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture. Our agenda for the morning as follows: 1. 09.30: Registration and Welcome 2. 10.00: Melanie Sloan:
michaellasmith
Administrator
in
LUPUS UK
23 days ago
What is folic acid used for?
For other reasons, nothing to do with Pernicious Anaemia, I was checking the Patient Information Leaflet for a UK folic acid product. And I noticed this bit: [i]Ennogen Pharma Limited[/i] [i]
Folic Acid Tablets 5mg
[/i] [i]1. WHAT FOLIC ACID TABLETS ARE AND[/i] [i]WHAT THEY ARE USED FOR[/i]
For other reasons, nothing to do with Pernicious Anaemia, I was checking the Patient Information Leaflet for a UK folic acid product. And I noticed this bit: [i]Ennogen Pharma Limited[/i] [i]
Folic Acid Tablets 5mg
[/i] [i]1. WHAT FOLIC ACID TABLETS ARE AND[/i] [i]WHAT THEY ARE USED FOR[/i]
helvella
in
Pernicious Anaemia Society
24 days ago
Autoimmune disease?
hello, Looking for advice/reassurance just need somewhere to unload really. It all started off with upper right sided abdominal pain which took me to the doctors back in February. Dull ache burning sensation not unbearable but I’m aware of the pain. Ultrasound scan on upper abdo normal. Bloods showed
hello, Looking for advice/reassurance just need somewhere to unload really. It all started off with upper right sided abdominal pain which took me to the doctors back in February. Dull ache burning sensation not unbearable but I’m aware of the pain. Ultrasound scan on upper abdo normal. Bloods showed
Farfield
in
British Liver Trust
24 days ago
Anyone know about Dr's or consultants prescribing metformin for endometriosis?
I recently got access to ALL my medical records from the consultants I had been referred to over the years and saw that in the past I had been prescribed metformin, altavita and amitryptaline at the same time by an endocrinologist. I presumed at the time it was for my underactive Thyroid and wasn't on
I recently got access to ALL my medical records from the consultants I had been referred to over the years and saw that in the past I had been prescribed metformin, altavita and amitryptaline at the same time by an endocrinologist. I presumed at the time it was for my underactive Thyroid and wasn't on
Escapologygirl
in
Endometriosis UK
24 days ago
Worried
I am a 41 year old male. I have always drank but only ever lager. Maybe 2 cans a night after work each night in the week and 7 or 8 cans on a Friday and a Saturday. Was getting little twinges under my right ribs and in my side so haven't drank for 2 months but the twinges are still there. Not painful
I am a 41 year old male. I have always drank but only ever lager. Maybe 2 cans a night after work each night in the week and 7 or 8 cans on a Friday and a Saturday. Was getting little twinges under my right ribs and in my side so haven't drank for 2 months but the twinges are still there. Not painful
urzz1871
in
British Liver Trust
6 months ago
New Post, community only please
HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment from hospital, which was minutes from losing both my daughter and her baby (at 39 weeks) I'm now waiting to have a genetic test for APs as I
HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment from hospital, which was minutes from losing both my daughter and her baby (at 39 weeks) I'm now waiting to have a genetic test for APs as I
Dawnm10
in
Hughes Syndrome APS Forum
24 days ago
Shingles Jab
I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However, after requesting one from the Surgery the receptionist said no. I did recently get the over 75s Covid booster without asking, courtesy of my immune system, , which I thought over the top. However, as rashes
I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However, after requesting one from the Surgery the receptionist said no. I did recently get the over 75s Covid booster without asking, courtesy of my immune system, , which I thought over the top. However, as rashes
Stewart64
in
LUPUS UK
24 days ago
Anyone used Dr Dani Gordon @The London Resilience Clinic
hi I have a diagnosis of Fibromyalgia, along with underactive thyroid, arthritis, chronic fatigue (long covid) and diverticula desiease (from pain relief meds). Although I have managed to cope and work full time for a number of years, I was hit with COVID and flu together at Christmas and it has
hi I have a diagnosis of Fibromyalgia, along with underactive thyroid, arthritis, chronic fatigue (long covid) and diverticula desiease (from pain relief meds). Although I have managed to cope and work full time for a number of years, I was hit with COVID and flu together at Christmas and it has
Field007
in
Fibromyalgia Action UK
25 days ago
Becoming mCRPC despite falling PSA
Hey guys, I got a question regarding my dad. He was diagnosed in summer 2022 with stage 4, Gleason 4+4, PSA of 122 and many osteoblastic bone metastases throughout the whole skeleton (very high volume) He did the triplet therapy, which lowered his PSA to 0.4 (January 2023). Scans afterwards stated
Hey guys, I got a question regarding my dad. He was diagnosed in summer 2022 with stage 4, Gleason 4+4, PSA of 122 and many osteoblastic bone metastases throughout the whole skeleton (very high volume) He did the triplet therapy, which lowered his PSA to 0.4 (January 2023). Scans afterwards stated
kennycool
in
Advanced Prostate Cancer
6 months ago
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