Experiences with

Campto

Hi to everyone who reads this, Just thought I’d let you know that am finally in Addenbrookes hospital having chemo as we speak. Had a Hickman line fitted last week. Am on Day 6, had dose of fludara and campath. Been just on fludara until today and was coping well, no side effects. Campath is slightly

Hello everyone, I have been a reader of the forum for a while now and it is nice to know so many other people are struggling with un-resolved thyroid problems. This forum was the first place where I thought wow, these guys get it. I have hypermobile ehlers danlos syndrome, I was diagnosed with MS

Hello new here. Is anyone receiving treatment for TPLL? My partner was diagnosed in March this year and has started a course of Campath treatment. As it’s a rare form of Leukaemia I was wondering if there are any other partners out there who may be further down the line than us that would be happy to

Methylprednisolone and campath??? Has anyone been on this treatment as I would really appreciate if anyone could let me know how they felt / side effects??

I want to thank you all again for welcoming me into your community. Mike's cancer diagnosis has been very unique. As has his treatment. I don't recall what I have already shared, but his actual diagnosis ended up being TPLL (Tcell Prolymphocytic Leukemia). His WBC count went from 432,000 on 9/30 to 530,000

Hi there, I am new here but looking for treatment advice. My mother is diagnosed with either T-PLL or AITL, FISH showing p17 in 2/3 of cells. She has undergone 3 x Campath treatment with good results but now struggling with higher wbc and very swollen lymphs, mostly in legs/feet. It s causing pain and

Hello. I hope it is okay to post here as it is very difficult to find dedicated TPLL forums for discussion. My Dad was diagnosed with TPLL in 2013 after further investigation into a growing wbc trend he picked up early as part of his overall health checks that he closely monitored. His first line of

This time I’m on Cpt 11 / lrinotecan / campto for liver and spleen tumors . I only started 2 days ago for a 3 week cycle ( 2 weeks on , 1 week off ) lasting 4-6 months . I’m feeling nauseous and steroids are driving me crazy in the evening time with restless feet and wild thoughts.

Hi Realise this is very specific but know from here and was also told on G2 (Infusion bay at Addenbrookes - formally PSSU) that there are a couple of other teachers out there whose Behcet's has been tackled with campath. I would love to link up. I've just finished my fourth course of campath yesterday

Hi I'm on the Campath clinical trial for my BD I need to get holiday insurance does anyone have any advice my current insurer won't insure me while on the trial! Ive got a holiday booked and I'm worried I won't find anyone to insure me. Has anyone been insured while on this trial or another? Please

Hi, I'm trialling Campath at the moment to try to put me in remission with my Bechets. At the moment I feel so poorly and I'm worried about going in for my second round as my first didn't work due to an infection. I'm scared but trying to be positive that this time round will be the right treatment and

Any information from you good ladies would be appreciated .After several lots of chemo and very little remission I now start on a drug called Campto or CPT 11 so would really appreciate any feedback on same .

My husband was released from the hospital Friday after 2 weeks of IV treatment for fungal pneumonia, contracted (we think) during the 6 weeks of Campath injections to treat both the CLL and the rare anemia (PRCA). It appears that the Campath is working, he's been transfusion-free for almost 2 weeks

Hi Maybe there is a better route out of this? I am a man in the UK and was diagnosed with CLL aged 38 in 2007. I had six rounds of FCR and achieved MRD. In January 2011 ill with EBV for a year. June 2012 started FCR again. Five times. January 2013 0.0 neutrophils for eight days. May 2013 dexamethasone

In January 1998 the late Dr. Martin Lockwood treated me with a drug then called Campath, (Alemtuzumab) at Addenbrooke’s Hospital Cambridge. I was suffering with Wegener’s Granulomatosis. Since then the Vasculitis Clinic at Addenbrooke’s now headed by Dr. David Jayne has been monitoring my condition

Hi there, Its been a while since I was on this site. Had a break whilst I moved and sorted a few bits out in my life. Just a little bit of info so you might be able to help me better. I was diagnosed 2010 been on all sorts of meds and have finally been given Campath. This has been my saving grace

Here's a fascinating article about off-label use of Campath (from Cambridge Pathology), a monoclonal antibody developed for CLL which was repackaged as Lemtrada, (also known as Campath-1H or alemtuzumab) for the treatment of Multiple Sclerosis. It was approved for that purpose by European regulators

Hi guys im new to this ive recently been diagnosed with bechets and chrons disease im about to start campath as all other meds havent worked was wondering has anyones els had this drug and what side effects they had ?

Hi i am new to this and never realised that i can talk to all these lovely people out there and all share this awful disease. I am 39 and had behcets from around 9. Starting with lesions on my face mouthfuls of ulcers. I suffered with severe joint pain and was told they were growing pains.I got constant