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SCT Journey update No.5
Hi to everyone who reads this, Just thought I’d let you know that am finally in Addenbrookes hospital having chemo as we speak. Had a Hickman line fitted last week. Am on Day 6, had dose of fludara and campath. Been just on fludara until today and was coping well, no side effects. Campath is slightly
Hi to everyone who reads this, Just thought I’d let you know that am finally in Addenbrookes hospital having chemo as we speak. Had a Hickman line fitted last week. Am on Day 6, had dose of fludara and campath. Been just on fludara until today and was coping well, no side effects. Campath is slightly
LFCLove
in
MPN Voice
1 month ago
t3 Monotherapy
Hello everyone, I have been a reader of the forum for a while now and it is nice to know so many other people are struggling with un-resolved thyroid problems. This forum was the first place where I thought wow, these guys get it. I have hypermobile ehlers danlos syndrome, I was diagnosed with MS
Hello everyone, I have been a reader of the forum for a while now and it is nice to know so many other people are struggling with un-resolved thyroid problems. This forum was the first place where I thought wow, these guys get it. I have hypermobile ehlers danlos syndrome, I was diagnosed with MS
Jimjamio
in
Thyroid UK
6 months ago
Partner newly diagnosed with TPLL.
Hello new here. Is anyone receiving treatment for TPLL? My partner was diagnosed in March this year and has started a course of Campath treatment. As it’s a rare form of Leukaemia I was wondering if there are any other partners out there who may be further down the line than us that would be happy to
Hello new here. Is anyone receiving treatment for TPLL? My partner was diagnosed in March this year and has started a course of Campath treatment. As it’s a rare form of Leukaemia I was wondering if there are any other partners out there who may be further down the line than us that would be happy to
Hiker_chick
in
Leukaemia Support
3 years ago
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Methylprednisolone and campath?
Methylprednisolone and campath??? Has anyone been on this treatment as I would really appreciate if anyone could let me know how they felt / side effects??
Methylprednisolone and campath??? Has anyone been on this treatment as I would really appreciate if anyone could let me know how they felt / side effects??
Josieg29
in
CLL Support
4 years ago
TPLL
I want to thank you all again for welcoming me into your community. Mike's cancer diagnosis has been very unique. As has his treatment. I don't recall what I have already shared, but his actual diagnosis ended up being TPLL (Tcell Prolymphocytic Leukemia). His WBC count went from 432,000 on 9/30 to 530,000
I want to thank you all again for welcoming me into your community. Mike's cancer diagnosis has been very unique. As has his treatment. I don't recall what I have already shared, but his actual diagnosis ended up being TPLL (Tcell Prolymphocytic Leukemia). His WBC count went from 432,000 on 9/30 to 530,000
Whatadayitwas
in
CLL Support
4 years ago
T-PLL or AITL - looking for treatment advice please
Hi there, I am new here but looking for treatment advice. My mother is diagnosed with either T-PLL or AITL, FISH showing p17 in 2/3 of cells. She has undergone 3 x Campath treatment with good results but now struggling with higher wbc and very swollen lymphs, mostly in legs/feet. It s causing pain and
Hi there, I am new here but looking for treatment advice. My mother is diagnosed with either T-PLL or AITL, FISH showing p17 in 2/3 of cells. She has undergone 3 x Campath treatment with good results but now struggling with higher wbc and very swollen lymphs, mostly in legs/feet. It s causing pain and
ingeanette
in
CLL Support
6 years ago
TPLL - Experience with venetoclax/similar treatment
Hello. I hope it is okay to post here as it is very difficult to find dedicated TPLL forums for discussion. My Dad was diagnosed with TPLL in 2013 after further investigation into a growing wbc trend he picked up early as part of his overall health checks that he closely monitored. His first line of
Hello. I hope it is okay to post here as it is very difficult to find dedicated TPLL forums for discussion. My Dad was diagnosed with TPLL in 2013 after further investigation into a growing wbc trend he picked up early as part of his overall health checks that he closely monitored. His first line of
jaye0
in
CLL Support
6 years ago
Back on chemo round 3 !
This time I’m on Cpt 11 / lrinotecan /
campto
for liver and spleen tumors . I only started 2 days ago for a 3 week cycle ( 2 weeks on , 1 week off ) lasting 4-6 months . I’m feeling nauseous and steroids are driving me crazy in the evening time with restless feet and wild thoughts.
This time I’m on Cpt 11 / lrinotecan /
campto
for liver and spleen tumors . I only started 2 days ago for a 3 week cycle ( 2 weeks on , 1 week off ) lasting 4-6 months . I’m feeling nauseous and steroids are driving me crazy in the evening time with restless feet and wild thoughts.
Hidden
in
OvaCare
6 years ago
Looking for other teachers (particularly a couple who have also had campath/Alemtuzumab)
Hi Realise this is very specific but know from here and was also told on G2 (Infusion bay at Addenbrookes - formally PSSU) that there are a couple of other teachers out there whose Behcet's has been tackled with campath. I would love to link up. I've just finished my fourth course of campath yesterday
Hi Realise this is very specific but know from here and was also told on G2 (Infusion bay at Addenbrookes - formally PSSU) that there are a couple of other teachers out there whose Behcet's has been tackled with campath. I would love to link up. I've just finished my fourth course of campath yesterday
Zebra
in
Behçet's UK
7 years ago
Holiday insurance - while on clinical trial - help please!
Hi I'm on the Campath clinical trial for my BD I need to get holiday insurance does anyone have any advice my current insurer won't insure me while on the trial! Ive got a holiday booked and I'm worried I won't find anyone to insure me. Has anyone been insured while on this trial or another? Please
Hi I'm on the Campath clinical trial for my BD I need to get holiday insurance does anyone have any advice my current insurer won't insure me while on the trial! Ive got a holiday booked and I'm worried I won't find anyone to insure me. Has anyone been insured while on this trial or another? Please
kezzle
in
Behçet's UK
7 years ago
Has anyone tried Campath?
Hi, I'm trialling Campath at the moment to try to put me in remission with my Bechets. At the moment I feel so poorly and I'm worried about going in for my second round as my first didn't work due to an infection. I'm scared but trying to be positive that this time round will be the right treatment and
Hi, I'm trialling Campath at the moment to try to put me in remission with my Bechets. At the moment I feel so poorly and I'm worried about going in for my second round as my first didn't work due to an infection. I'm scared but trying to be positive that this time round will be the right treatment and
kezzle
in
Behçet's UK
7 years ago
New chemo so help please
Any information from you good ladies would be appreciated .After several lots of chemo and very little remission I now start on a drug called
Campto
or CPT 11 so would really appreciate any feedback on same .
Any information from you good ladies would be appreciated .After several lots of chemo and very little remission I now start on a drug called
Campto
or CPT 11 so would really appreciate any feedback on same .
Connie8
in
My Ovacome
8 years ago
Post-hospital questions
My husband was released from the hospital Friday after 2 weeks of IV treatment for fungal pneumonia, contracted (we think) during the 6 weeks of Campath injections to treat both the CLL and the rare anemia (PRCA). It appears that the Campath is working, he's been transfusion-free for almost 2 weeks
My husband was released from the hospital Friday after 2 weeks of IV treatment for fungal pneumonia, contracted (we think) during the 6 weeks of Campath injections to treat both the CLL and the rare anemia (PRCA). It appears that the Campath is working, he's been transfusion-free for almost 2 weeks
LAinNYC
in
CLL Support
9 years ago
experience CLL Ibrutinib Colitis
Hi Maybe there is a better route out of this? I am a man in the UK and was diagnosed with CLL aged 38 in 2007. I had six rounds of FCR and achieved MRD. In January 2011 ill with EBV for a year. June 2012 started FCR again. Five times. January 2013 0.0 neutrophils for eight days. May 2013 dexamethasone
Hi Maybe there is a better route out of this? I am a man in the UK and was diagnosed with CLL aged 38 in 2007. I had six rounds of FCR and achieved MRD. In January 2011 ill with EBV for a year. June 2012 started FCR again. Five times. January 2013 0.0 neutrophils for eight days. May 2013 dexamethasone
Corin850
in
CLL Support
9 years ago
Merely an Accounting Problem
In January 1998 the late Dr. Martin Lockwood treated me with a drug then called Campath, (Alemtuzumab) at Addenbrooke’s Hospital Cambridge. I was suffering with Wegener’s Granulomatosis. Since then the Vasculitis Clinic at Addenbrooke’s now headed by Dr. David Jayne has been monitoring my condition
In January 1998 the late Dr. Martin Lockwood treated me with a drug then called Campath, (Alemtuzumab) at Addenbrooke’s Hospital Cambridge. I was suffering with Wegener’s Granulomatosis. Since then the Vasculitis Clinic at Addenbrooke’s now headed by Dr. David Jayne has been monitoring my condition
Howget
in
Vasculitis UK
10 years ago
Pain Relief
Hi there, Its been a while since I was on this site. Had a break whilst I moved and sorted a few bits out in my life. Just a little bit of info so you might be able to help me better. I was diagnosed 2010 been on all sorts of meds and have finally been given Campath. This has been my saving grace
Hi there, Its been a while since I was on this site. Had a break whilst I moved and sorted a few bits out in my life. Just a little bit of info so you might be able to help me better. I was diagnosed 2010 been on all sorts of meds and have finally been given Campath. This has been my saving grace
FluffFluff
in
Behçet's UK
10 years ago
The convoluted history of Campath and when side effects can be useful
Here's a fascinating article about off-label use of Campath (from Cambridge Pathology), a monoclonal antibody developed for CLL which was repackaged as Lemtrada, (also known as Campath-1H or alemtuzumab) for the treatment of Multiple Sclerosis. It was approved for that purpose by European regulators
Here's a fascinating article about off-label use of Campath (from Cambridge Pathology), a monoclonal antibody developed for CLL which was repackaged as Lemtrada, (also known as Campath-1H or alemtuzumab) for the treatment of Multiple Sclerosis. It was approved for that purpose by European regulators
AussieNeil
Partner
in
CLL Support
11 years ago
New to all this but was loking on internet and found this site im about to start campath did anyone get any side effectsand has it worked?
earl1990
in
Behçet's UK
11 years ago
Bechets
Hi guys im new to this ive recently been diagnosed with bechets and chrons disease im about to start campath as all other meds havent worked was wondering has anyones els had this drug and what side effects they had ?
Hi guys im new to this ive recently been diagnosed with bechets and chrons disease im about to start campath as all other meds havent worked was wondering has anyones els had this drug and what side effects they had ?
earl1990
in
Behçet's UK
11 years ago
Behcets and I
Hi i am new to this and never realised that i can talk to all these lovely people out there and all share this awful disease. I am 39 and had behcets from around 9. Starting with lesions on my face mouthfuls of ulcers. I suffered with severe joint pain and was told they were growing pains.I got constant
Hi i am new to this and never realised that i can talk to all these lovely people out there and all share this awful disease. I am 39 and had behcets from around 9. Starting with lesions on my face mouthfuls of ulcers. I suffered with severe joint pain and was told they were growing pains.I got constant
infliximab74
in
Behçet's UK
11 years ago
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