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belimumab
hello, I have my first belimumab injection next week. Does anyone have any tips? I’m a bit nervous because I had a different biologic years ago for cancer treatment and found it pretty hard going.
hello, I have my first belimumab injection next week. Does anyone have any tips? I’m a bit nervous because I had a different biologic years ago for cancer treatment and found it pretty hard going.
Fernlife
in
LUPUS UK
1 year ago
home hemodialysis
I need tips on finding a caregiver to administer at home dialysis for my mother in law.
I need tips on finding a caregiver to administer at home dialysis for my mother in law.
Lil609
in
Kidney Dialysis
1 year ago
teenage bedwetting
I would encourage any teens that are still bedwetting to have a complete urodynamic test run. I didn’t have this done until age 30 but discovered I had a neurogenic bladder and from my history probably since birth. That completely explained my incontinence issues. Would have loved to know this earlier
I would encourage any teens that are still bedwetting to have a complete urodynamic test run. I didn’t have this done until age 30 but discovered I had a neurogenic bladder and from my history probably since birth. That completely explained my incontinence issues. Would have loved to know this earlier
Donny444
in
ERIC
1 year ago
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Zoning out!!
Hello everyoneI do hope you are all as well as can be expected. I'm sorry I haven't been on here for a while Does anyone else have this? I can be stood up one minute then I'm on the floor the next with no recollection of it happening!! I've split my head open, broken a rib and bruised my back and bum
Hello everyoneI do hope you are all as well as can be expected. I'm sorry I haven't been on here for a while Does anyone else have this? I can be stood up one minute then I'm on the floor the next with no recollection of it happening!! I've split my head open, broken a rib and bruised my back and bum
Latics1989-90
in
Fibromyalgia Action UK
1 year ago
Hypoxic brain injury update
Hi all My brother was admitted to hospital having been found unconscious (potentially for several hours) with 54% bloody oxygen which I understand is extremely low. He has now been in hospital 12 days. He has been in a coma, and they have started reducing the medication to try and bring him round,
Hi all My brother was admitted to hospital having been found unconscious (potentially for several hours) with 54% bloody oxygen which I understand is extremely low. He has now been in hospital 12 days. He has been in a coma, and they have started reducing the medication to try and bring him round,
Chrisd88
in
Headway
1 year ago
"A bomb" delivery success!
hey guys..im pleased to report an(almost)flawless delivery at y/days c.h.c meeting.the almost is because unit manager wasnt present,she had gone home with a "tummy bug"?mmmm...I had with me client welfare/support from legal team she came to my house first we had coffee and i showed her msgs from incident
hey guys..im pleased to report an(almost)flawless delivery at y/days c.h.c meeting.the almost is because unit manager wasnt present,she had gone home with a "tummy bug"?mmmm...I had with me client welfare/support from legal team she came to my house first we had coffee and i showed her msgs from incident
Dogsabighelp
in
Headway
1 year ago
Latest update on son
Hi all, some good news & some bad. First bad news - since my last post son has had further problems following catheter insertion error. He had quite a lot of bleeding & discharge which resulted in a 14 hour stint in A & E & urgent follow up referral with urology. Falsepassage way error had resulted
Hi all, some good news & some bad. First bad news - since my last post son has had further problems following catheter insertion error. He had quite a lot of bleeding & discharge which resulted in a 14 hour stint in A & E & urgent follow up referral with urology. Falsepassage way error had resulted
Nanapal
in
Headway
1 year ago
Link between ibs and bladder problems
Hi. Just wondering whether anyone else has noticed a link between their ibs and urinary urgency/incontinence. I struggle with a lot of bloating/wind and also have issues with needing to rush for a wee urgently sometimes, and sometimes not making it in time. Also my ibs, which I have had for years was
Hi. Just wondering whether anyone else has noticed a link between their ibs and urinary urgency/incontinence. I struggle with a lot of bloating/wind and also have issues with needing to rush for a wee urgently sometimes, and sometimes not making it in time. Also my ibs, which I have had for years was
Deniseki
in
IBS Network
1 year ago
DHIVY
Hello all, wondering if anyone has any kind of feedback on DHIVY? I’m taking two carbidopa levodopa at 25/100 and the tremors are much much worse and stiffness is worse as well. I can’t take any more than two a day because my gut will not take it and the pain in my stomach becomes much much worse as
Hello all, wondering if anyone has any kind of feedback on DHIVY? I’m taking two carbidopa levodopa at 25/100 and the tremors are much much worse and stiffness is worse as well. I can’t take any more than two a day because my gut will not take it and the pain in my stomach becomes much much worse as
MissRita
in
Cure Parkinson's
1 year ago
is it common to be conscious at time you get head injury?
I was in a car accident in 2012 leading to me having serious head injury. I have never been able to remember the accident so I guessed I was unconscious through it. I remember driving along the motorway which is where the accident happened so I guessed I remembered most of the time I was conscious.
I was in a car accident in 2012 leading to me having serious head injury. I have never been able to remember the accident so I guessed I was unconscious through it. I remember driving along the motorway which is where the accident happened so I guessed I remembered most of the time I was conscious.
keeley24
in
Headway
1 year ago
involuntary movement after brain injury
hi everyone hope you all are doing good I have a question did anyone on this forum had chorea involuntary movement disorder after a brain injury ? my husband had a hypoxic brain injury 2yrs ago I'm not going to lie things have improved so much from where he was to where he is but his chorea is slightly
hi everyone hope you all are doing good I have a question did anyone on this forum had chorea involuntary movement disorder after a brain injury ? my husband had a hypoxic brain injury 2yrs ago I'm not going to lie things have improved so much from where he was to where he is but his chorea is slightly
fity123r
in
Headway
1 year ago
Pulsed Field Ablation
Hi, I am a fit 57 male and was diagnosed with paroxysmal AF while going for my weekly jog back in Nov 2022. I get weekly episodes so have booked a pulsed field ablation for 4 May 23 under general anaesthetic. Has anyone had pulse field ablation as I am nervous about having it done. Just wanting to know
Hi, I am a fit 57 male and was diagnosed with paroxysmal AF while going for my weekly jog back in Nov 2022. I get weekly episodes so have booked a pulsed field ablation for 4 May 23 under general anaesthetic. Has anyone had pulse field ablation as I am nervous about having it done. Just wanting to know
Karykowj1
in
AF Association
1 year ago
Tapering Adrenals and Shock
I’m trying to get from 6 mg to 5.5mg. It has taken over a month and this is the first week of entirely 5.5mgs. I have had a bit of difficulty - fatigue slight stiffness but I have been working in the garden so…..? Yesterday I took time out to watch films, read books and just be lazy. Suddenly I was
I’m trying to get from 6 mg to 5.5mg. It has taken over a month and this is the first week of entirely 5.5mgs. I have had a bit of difficulty - fatigue slight stiffness but I have been working in the garden so…..? Yesterday I took time out to watch films, read books and just be lazy. Suddenly I was
Ridge
in
PMRGCAuk
1 year ago
3 years later
I know it's 3 years later but I wanted to write this in case someone needed to see. This thread helped me so much when my dad was in the ICU on a ventilator. When they took my dad off of sedation he didn't wake up right away. He is a peritoneal dialysis patient and drugs leave his system much slower.
I know it's 3 years later but I wanted to write this in case someone needed to see. This thread helped me so much when my dad was in the ICU on a ventilator. When they took my dad off of sedation he didn't wake up right away. He is a peritoneal dialysis patient and drugs leave his system much slower.
Sandwichesandchips
in
ICUsteps
1 year ago
Final stages of CBD
Hi all My dad is in the final stages of CBD and in fact the Palliative Care Consultant seems to think we have less than 3 months left with him. I am really really struggling with this and can't bear the thought of not having my dad but this illness is the cruellest illness I have ever encountered.
Hi all My dad is in the final stages of CBD and in fact the Palliative Care Consultant seems to think we have less than 3 months left with him. I am really really struggling with this and can't bear the thought of not having my dad but this illness is the cruellest illness I have ever encountered.
Stormtrooper4
in
PSP Association
1 year ago
Brain injury befriend service SW11 London
Hi I'm looking for a befriend agency that has specifics with staff understanding head injury and mental health for my beloved best friend. This is even just 30/40 minutes per week. He is an animal lover, into art and craft, music, films, animation, Mr. bean, Faulty tower etc.. Any suggestions are
Hi I'm looking for a befriend agency that has specifics with staff understanding head injury and mental health for my beloved best friend. This is even just 30/40 minutes per week. He is an animal lover, into art and craft, music, films, animation, Mr. bean, Faulty tower etc.. Any suggestions are
headstrong60
in
Headway
1 year ago
Polyhydramnios
I am pregnant with my 3rd child and have Polyhydramnios. A diabetes test come back clear and in a couple of weeks I have my 28 week scan looking into it under the fetal medicine department, I am not to sure what a scan under this department means and also what else it means to have this fluid when diabetes
I am pregnant with my 3rd child and have Polyhydramnios. A diabetes test come back clear and in a couple of weeks I have my 28 week scan looking into it under the fetal medicine department, I am not to sure what a scan under this department means and also what else it means to have this fluid when diabetes
Hidden
in
Pregnancy and Parenting Support
1 year ago
Continuing Healthcare Farce
We have just been declined for CHC funding for my dad who has advanced stage CBD. Apparently he does not meet the health criteria!! He is on lots of medication which my mum administers. He is at home with carers coming in 4 times a day to do all the personal care and has a visit from the District Nurses
We have just been declined for CHC funding for my dad who has advanced stage CBD. Apparently he does not meet the health criteria!! He is on lots of medication which my mum administers. He is at home with carers coming in 4 times a day to do all the personal care and has a visit from the District Nurses
Stormtrooper4
in
PSP Association
1 year ago
Reassessment head injury
Bit worried as gp and physio say need re assement as not getting better after head injury to get reassessment but worried about seeing neurologist and what assemsent might look especially over zoom what that look like and my memory quite bad if he ask about that?
Bit worried as gp and physio say need re assement as not getting better after head injury to get reassessment but worried about seeing neurologist and what assemsent might look especially over zoom what that look like and my memory quite bad if he ask about that?
Panad
in
Headway
1 year ago
Speech and Language team in the UK
Just an update on my wife (Jackie, diagnosed since 29th Jan 23) and her PSP path, she had a visit from the Speech and Language therapy team yesterday and it's not good. She's struggling with food, she'd said that food wasn't going down. So they tried her with a sandwich and she couldn't clear it after
Just an update on my wife (Jackie, diagnosed since 29th Jan 23) and her PSP path, she had a visit from the Speech and Language therapy team yesterday and it's not good. She's struggling with food, she'd said that food wasn't going down. So they tried her with a sandwich and she couldn't clear it after
Derek1uk
in
PSP Association
2 years ago
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