Hello everyoneI do hope you are all as well as can be expected. I'm sorry I haven't been on here for a while
Does anyone else have this? I can be stood up one minute then I'm on the floor the next with no recollection of it happening!! I've split my head open, broken a rib and bruised my back and bum very badly. I'm waiting to see the falls team which hopefully shouldn't be long. I've also been referred to neurology, the waiting list is 80 weeks, yes 80 weeks!! Do I need to end up in hospital before they take me seriously!! My Dr is pushing it for me. I can't be in my own, if I am I have an alert watch so that if I fall and haven't moved for 5 minutes someone will be alerted!! I get standard pip, was wondering if anyone thinks I should get enhanced because my circumstances have changed. I can't even cook on my own in case I zone out!! I try to keep smiling because moping around won't change anything!!
Thank you for listening
Lots of love and hugs Lynne xxxx 💜🫂💟🫂
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Sending hugs right back too you, gosh you have a lot going on and 80 weeks wait🙁,sorry too hear of your fall and the injuries that came from that, hopefully someone will come on the forum that can give you some advice about benefits and their experiences xxx
Hi Lynne, the falls sound horrible. Why not get intouch with Janet our benifits advisor. I am sure she will be able to help you about your PIP benifit. Check out the link below.healthunlocked.com/fibromya...
Hi. I know it’s not possible for everyone but in your position I would be trying to find the money to pay to see someone. When I was waiting for my initial fibromyalgia diagnosis I was told the wait to see the consultant would be a minimum of 7 months. But if I paid to see the same doctor privately the wait was 3 DAYS! Good luck x
Thank youOur friends & family are in the same position as us financially at the moment because of the high cost of living. I'm getting in touch with my GP tomorrow because she referred me for an urgent colonoscopy but when I phoned I was told I would have to wait until I see my consultant in July even though my poo is very dark and I'm very constipated!! I was taken into hospital a few weeks ago because of this but they didn't do anything 🤷 I do try to keep smiling because moping around won't change anything but I do get fed up sometimes!! I have a good support network of family and friends and if course everyone on here too
Hi. Something I haven’t experienced yet, thankfully, so can’t really comment. However going to hospital might be something you should consider. I was going through a particularly bad episode of regular attacks consisting of numbness up the side of my head. They initially found fluid on my brain which required them doing an MRI. The hospitals advice was that I stay in, so that the MRI could be done the following day. If I went home, they said I would be classed as an outpatient and the MRI would, to my astonishment, take months to organise. I stayed in and the whole thing was done and dusted in a matter of days. Thankfully the fluid had gone and I haven’t had the problem since, but being an inpatient certainly gets things done a lot quicker. Something I’ve learnt from many visits over the past year. I hope whatever is causing you this zoning out isn’t too serious and strongly recommend going to A&E next time. Don’t suffer needlessly. You never know what symptoms are waiting for you just around the corner. If you’re suffering to the same extent as me, there will be lots of weird and wonderful moments in store. The only good thing about fibromyalgia for me is I’ve had an extensive medical overhaul. Take good care of yourself xx❤️
HiThank you. I'm pleased you were ok in the end. I have been to A&E. Haven't been kept in for that even though I had cracked a rib and split my head open!! I haven't been with my many other falls!! I was taken in with something else . I think it depends who you see!!
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DLA
Pip
ATOS on wednesday!!!!
Just feel like I need to get it off my chest!!
Is there anybody out there?
