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Help For Pernicious Anaemia Injections Effect
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
So_Drained
in
Pernicious Anaemia Society
5 months ago
Afinitor +ESR1 mutation for the hive mind.
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on Orserdu. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective? I will
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on Orserdu. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective? I will
Pbsoup
in
SHARE Metastatic Breast Cancer
7 months ago
I have my GP appt to discuss getting a diagnosis..... But do I ask for ANA tedt or referral to specialist???
Hi all, you were all so helpful when i first posted at the beginning of Feb! Finally the day is so close to discuss my possible lupus diagnosis (weds). I have took advice from your chats ,and written my symptoms down since start of Feb,and I'm ready to hopefully try to find a way forwards! But I guess
Hi all, you were all so helpful when i first posted at the beginning of Feb! Finally the day is so close to discuss my possible lupus diagnosis (weds). I have took advice from your chats ,and written my symptoms down since start of Feb,and I'm ready to hopefully try to find a way forwards! But I guess
Gingernat20
in
LUPUS UK
4 months ago
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will it cause anything during this few months
I had a precancerous polyp removed in October 2023, will be doing another colonoscopy in October 2024. I’m just wondering whether from October till now is 4 months, will the polyp come back or cause any discomfort to the colon/ stomach during these 4 months? can someone able to say something. I’m just
I had a precancerous polyp removed in October 2023, will be doing another colonoscopy in October 2024. I’m just wondering whether from October till now is 4 months, will the polyp come back or cause any discomfort to the colon/ stomach during these 4 months? can someone able to say something. I’m just
Mondlee
in
Colon Cancer Connected
5 months ago
Post Rheumatology Appointment
Thank you to everyone who gave me advice for my Rheumatologist appointment yesterday......it was my first one and I thought I'd give an update on my experience at Benenden Hospital. I have posted this as a response in my original thread too but thought I'd start a new post to see if people found it useful
Thank you to everyone who gave me advice for my Rheumatologist appointment yesterday......it was my first one and I thought I'd give an update on my experience at Benenden Hospital. I have posted this as a response in my original thread too but thought I'd start a new post to see if people found it useful
Paulx222
in
PMRGCAuk
7 months ago
Buprenorphine finished. What alternative opiates are available?
After four weeks of insomnia and continued PLMs on 15 mgc patches, I shall abandon the treatment. I’d be grateful for advice on a.) potential withdrawal issues, and b.) alternative opiates.
After four weeks of insomnia and continued PLMs on 15 mgc patches, I shall abandon the treatment. I’d be grateful for advice on a.) potential withdrawal issues, and b.) alternative opiates.
dickJones
in
Restless Legs Syndrome
1 year ago
new MBC drug for PIK3CA mutation in Hr+HER- breast cancer survivors
On Nov 16, 2023, the FDA approved another drug for those who have developed the PIK3CA. Mutation after first line treatment for the HR+HER- type. It’s another drug in the same vein as PIQRAY which also has to be used with Fulvestrant. This one is from AstraZeneca but it seems to have all the same side
On Nov 16, 2023, the FDA approved another drug for those who have developed the PIK3CA. Mutation after first line treatment for the HR+HER- type. It’s another drug in the same vein as PIQRAY which also has to be used with Fulvestrant. This one is from AstraZeneca but it seems to have all the same side
Dragonfly2
in
SHARE Metastatic Breast Cancer
7 months ago
Does anyone have CtDna blood test added In their monitoring routine?
Hi! Kim 43 MBC since 3/2021. I do alot of reading of clinical trials and medical journals. I found this CtDna blood test that SUPPOSEDLY detects cancer cells in the blood up to 10 months sooner than a Petscan. My Oncologist didn't know about this testing so after fielding out all the companies that do
Hi! Kim 43 MBC since 3/2021. I do alot of reading of clinical trials and medical journals. I found this CtDna blood test that SUPPOSEDLY detects cancer cells in the blood up to 10 months sooner than a Petscan. My Oncologist didn't know about this testing so after fielding out all the companies that do
KimberlyB40
in
SHARE Metastatic Breast Cancer
7 months ago
Tumour marker
I have been in Ibrance, Letrozole and six monthly Denusomab shots for 3 years and 9 months with NEADs from the first Pet scan. C15.3 and CEA have fluctuated within the normal range since. PET scan in Sep 23 also showed NEADs. Recent bloods in Thursday showed c15.3 rise to above the normal range
I have been in Ibrance, Letrozole and six monthly Denusomab shots for 3 years and 9 months with NEADs from the first Pet scan. C15.3 and CEA have fluctuated within the normal range since. PET scan in Sep 23 also showed NEADs. Recent bloods in Thursday showed c15.3 rise to above the normal range
Gramat
in
SHARE Metastatic Breast Cancer
7 months ago
Bile Acid Diarrhoea
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
Whitesugar
in
IBS Network
5 months ago
Rosacea due to B12 deficiency?
Hi, I have been diagnosed with vitamin b12 deficiency and starting the loading doses after firstly being prescribed oral. I had felt unwell for at least a year and had lots of the usual symptoms but I developed a rare form of rosacea (rosacea fulminans) at the end of last year which the GPs had not ever
Hi, I have been diagnosed with vitamin b12 deficiency and starting the loading doses after firstly being prescribed oral. I had felt unwell for at least a year and had lots of the usual symptoms but I developed a rare form of rosacea (rosacea fulminans) at the end of last year which the GPs had not ever
Bebe74
in
Pernicious Anaemia Society
5 months ago
Gazyva and Ventalox
I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. Now some lymph nodes are appearing on my neck. My Doc stopped the treatment and called for a Pet scan and a biopsy of lymphnode. Anybody been in my situation and what was the plan, diagnosis, options etc.?? Very Nervous, Rob
I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. Now some lymph nodes are appearing on my neck. My Doc stopped the treatment and called for a Pet scan and a biopsy of lymphnode. Anybody been in my situation and what was the plan, diagnosis, options etc.?? Very Nervous, Rob
CityL
in
CLL Support
7 months ago
solaraze for actinic keratosis
I’ve been suffering from what’s known as solar keratosis which is sun damaged skin on my scalp. The effects include scabs on the scalp as well as slightly inflamed spots. Anyway doctor has given me solaraze to clear it. I’ve been on it for around four weeks of a twelve week course and have found that
I’ve been suffering from what’s known as solar keratosis which is sun damaged skin on my scalp. The effects include scabs on the scalp as well as slightly inflamed spots. Anyway doctor has given me solaraze to clear it. I’ve been on it for around four weeks of a twelve week course and have found that
Profound15
in
Atrial Fibrillation Support
7 months ago
double up
I have now seen a Gp re the bleeding piles and she’s confirmed they look sore I can confirm they feel sore I was incredibly anxious waiting to go into see her but calmed down a bit now I’am home so my question is doctor has now doubled up my fybogel to 2 a day that would help on days when I’am constipated
I have now seen a Gp re the bleeding piles and she’s confirmed they look sore I can confirm they feel sore I was incredibly anxious waiting to go into see her but calmed down a bit now I’am home so my question is doctor has now doubled up my fybogel to 2 a day that would help on days when I’am constipated
Poppyseed8
in
IBS Network
5 months ago
Latest vitamin and iron test results following last post.
Vitamin D 80.3 nmol/L (50-150) Folic Acid 12.3 ug/L (>2.7) Iron 21 umol/L (9-30) Transferrin 2.1 g/L 1 (1.7-3.4g/L) Transferrin Saturation 38% (16-55%) Ferretin 143 ug/L (20-300) Vitamin B12 873 ng/L (160-800) Advice as always appreciated. Thank you.
Vitamin D 80.3 nmol/L (50-150) Folic Acid 12.3 ug/L (>2.7) Iron 21 umol/L (9-30) Transferrin 2.1 g/L 1 (1.7-3.4g/L) Transferrin Saturation 38% (16-55%) Ferretin 143 ug/L (20-300) Vitamin B12 873 ng/L (160-800) Advice as always appreciated. Thank you.
Pawsedagain
in
Thyroid UK
5 months ago
nhs complaint
My husband was diagnosed with T3 N3 M1b/c left lung adenocarcinoma in October 2 1 . He had chemo and immunotherapy as well as radiotherapy. In January 2 2 he started getting pain in his neck which he reported to the oncology team at the hospital and it was added to the ct scan in May 2 2. He was told
My husband was diagnosed with T3 N3 M1b/c left lung adenocarcinoma in October 2 1 . He had chemo and immunotherapy as well as radiotherapy. In January 2 2 he started getting pain in his neck which he reported to the oncology team at the hospital and it was added to the ct scan in May 2 2. He was told
Sharkypuss
in
The Roy Castle Lung Cancer Foundation
7 months ago
Second opinion required
Had a lot of dental work done last year and kind of still going through recovery. I had two extracts, three temp bridges one perm bridge that was fitted in July, four composite fillings, cap then ended up with a root filling through the cap. My bridge is so uncomfortable still unable to eat properly
Had a lot of dental work done last year and kind of still going through recovery. I had two extracts, three temp bridges one perm bridge that was fitted in July, four composite fillings, cap then ended up with a root filling through the cap. My bridge is so uncomfortable still unable to eat properly
janetmtt
in
Dentistry Health Support
5 months ago
Struggling with abdominal cramps and bloating in the evenings and mornings
I'm recently diagnosed in September. I'm taking 200mg twice daily of mebeverine which helps with going to the toilet daily but I'm finding that I'm getting bad abdominal cramping and bloating in the evenings and the morning which then settles during the day, only to flare up again later on. Does anyone
I'm recently diagnosed in September. I'm taking 200mg twice daily of mebeverine which helps with going to the toilet daily but I'm finding that I'm getting bad abdominal cramping and bloating in the evenings and the morning which then settles during the day, only to flare up again later on. Does anyone
Jackrussellmum35
in
IBS Network
5 months ago
Subsequent to previous posts
Went back to GP again today after previous visit about clubbed fingers and breathing trouble. Booked an urgent blood test and need to provide samples then I will get a scan to check for cancer. I don't know how I feel about this tbh, wanted him to tell me it was all in my head and for that to be true
Went back to GP again today after previous visit about clubbed fingers and breathing trouble. Booked an urgent blood test and need to provide samples then I will get a scan to check for cancer. I don't know how I feel about this tbh, wanted him to tell me it was all in my head and for that to be true
JHutton1994
in
Lung Conditions Community Forum
7 months ago
Oesophagus/Stomach issues - where to start?
My complaint has been going on for at least 10 years now and the symptoms get worse every year but I am unsure of how to proceed. My symptoms. Every intake of breath seems to increase the pressure in my oesophagus and every few seconds I have to either break the seal by flexing my throat to intake
My complaint has been going on for at least 10 years now and the symptoms get worse every year but I am unsure of how to proceed. My symptoms. Every intake of breath seems to increase the pressure in my oesophagus and every few seconds I have to either break the seal by flexing my throat to intake
hankpym
in
IBS Network
5 months ago
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