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blood test question
I just dug back through my blood tests, and found the ones that were negative, they were the cardiolipin IgG and IgM the lupus antio coagulant was not repeated at that time. what does it mean if you are positive lupus anticoagulant, but negative cardiolipin antibodies? I have a form to get bloods done
I just dug back through my blood tests, and found the ones that were negative, they were the cardiolipin IgG and IgM the lupus antio coagulant was not repeated at that time. what does it mean if you are positive lupus anticoagulant, but negative cardiolipin antibodies? I have a form to get bloods done
nuddle
in
Hughes Syndrome APS Forum
7 years ago
What is a severe case of APS?
So far going by the checklist from the symptoms sheet taken from here: http://www.aps-support.org.uk/about-aps/what-are-the-symptoms.php I had: 1. Multiple strokes, only the last one affected me, specifically, my vision, the rest I was unaware of, but an MRI was done at that time and it showed multiple
So far going by the checklist from the symptoms sheet taken from here: http://www.aps-support.org.uk/about-aps/what-are-the-symptoms.php I had: 1. Multiple strokes, only the last one affected me, specifically, my vision, the rest I was unaware of, but an MRI was done at that time and it showed multiple
ellochka99
in
Hughes Syndrome APS Forum
7 years ago
I just finished Cycle 6th on my Venetoclax plus Ibruvica trial. So far so good!!
Hello, As an update I just went to the doctors and my numbers are good. WBC was 1.9. ALC 0.9 WBC was 50 when i started in January. My Nodes were very large though. I just finished Cycle 6th on my Venetoclax plus Ibruvica trial. I was Nuetropenic so they gave me a shot to boost my ANC and
Hello, As an update I just went to the doctors and my numbers are good. WBC was 1.9. ALC 0.9 WBC was 50 when i started in January. My Nodes were very large though. I just finished Cycle 6th on my Venetoclax plus Ibruvica trial. I was Nuetropenic so they gave me a shot to boost my ANC and
Hoffy
in
CLL Support
7 years ago
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Just diagnosed with APS
Hello all, I was recently diagnosed with APS. I am 43 and live in Canada. I had a stroke and MRI actually showed multiple strokes. Feel very lucky that they didnt affect me much, other than some minor issues with my vision and headaches. The stroke made the doctors here look at my medical history, going
Hello all, I was recently diagnosed with APS. I am 43 and live in Canada. I had a stroke and MRI actually showed multiple strokes. Feel very lucky that they didnt affect me much, other than some minor issues with my vision and headaches. The stroke made the doctors here look at my medical history, going
ellochka99
in
Hughes Syndrome APS Forum
7 years ago
sorry, another APS question
Hi I wondered if anyone could help me understand these test results. I was told on the phone last week that my 3 APS antibody tests were negative. But I picked up a print-out of the results today, so that I can take them to the rheumatology appointment in a few weeks. And now Im confused. The results
Hi I wondered if anyone could help me understand these test results. I was told on the phone last week that my 3 APS antibody tests were negative. But I picked up a print-out of the results today, so that I can take them to the rheumatology appointment in a few weeks. And now Im confused. The results
charlieab
in
Hughes Syndrome APS Forum
7 years ago
Any feel strange dull pain in lymph nodes in treatment as they clear out?
I am on both Imbruvica and full Venetoclax now. I on my 6th cycle of the clinical trial. Over all I have been very good. My numbers have rapidly gone to normal. WBC 2.1 ALC 1.2, PLT a little low at 110. Others are good. IGA, IGG, IGM are improving as well. I have been on full Venetoclax for 2 months
I am on both Imbruvica and full Venetoclax now. I on my 6th cycle of the clinical trial. Over all I have been very good. My numbers have rapidly gone to normal. WBC 2.1 ALC 1.2, PLT a little low at 110. Others are good. IGA, IGG, IGM are improving as well. I have been on full Venetoclax for 2 months
Hoffy
in
CLL Support
7 years ago
Searching for a cure for APS
Last week I met with my hematologist. He said I had had the trifecta of antibodies with my last stroke. The blood test results were: Anti-Cardio IGG >=40 Anti-Cardio IGA <11 Antiphospholipid Antibodies IgM or IgG ACA>40 MPL/GPI, IgM or IgG anti-B2GPI antibodies, or a Lupus anticoagulant. I do not
Last week I met with my hematologist. He said I had had the trifecta of antibodies with my last stroke. The blood test results were: Anti-Cardio IGG >=40 Anti-Cardio IGA <11 Antiphospholipid Antibodies IgM or IgG ACA>40 MPL/GPI, IgM or IgG anti-B2GPI antibodies, or a Lupus anticoagulant. I do not
ken42
in
Hughes Syndrome APS Forum
7 years ago
Question: Has anyone have a bloating feeling on Venetoclax ?
I am on both Imbruvica and full Venetoclax now. I on my 5th cycle of the clinical trial. Over all I have been pretty good. My numbers have rapidly gone to normal. WBC 4, ALC 1.7 , PLT a little low at 110. Others are good. IGA, IGG, IGM are improving as well. I have been on full Venetoclax for
I am on both Imbruvica and full Venetoclax now. I on my 5th cycle of the clinical trial. Over all I have been pretty good. My numbers have rapidly gone to normal. WBC 4, ALC 1.7 , PLT a little low at 110. Others are good. IGA, IGG, IGM are improving as well. I have been on full Venetoclax for
Hoffy
in
CLL Support
7 years ago
Is RA without joint pain possible?
I was wondering if RA without joint pain is possible. Symptoms: fatigue, memory and concentration issues, constipation, flatulence, numbness and tingling in hands and feet. Btw could RA cause these gut symptoms? Colonscopy and endoscopy was normal. No celiac disease or gastrointestinal diseases (other
I was wondering if RA without joint pain is possible. Symptoms: fatigue, memory and concentration issues, constipation, flatulence, numbness and tingling in hands and feet. Btw could RA cause these gut symptoms? Colonscopy and endoscopy was normal. No celiac disease or gastrointestinal diseases (other
WK1010
in
Cure Arthritis Community
7 years ago
Any advise or information please
Hi I'm new to this group. A lovely person from systemic sclerosis told me about it I have overlap connective tissue disease. I have really bad raynaulds with it. I have also been told I have IGM anticardiolipin antibody positive. I'm not sure what that means. My knees turn black and my legs goes
Hi I'm new to this group. A lovely person from systemic sclerosis told me about it I have overlap connective tissue disease. I have really bad raynaulds with it. I have also been told I have IGM anticardiolipin antibody positive. I'm not sure what that means. My knees turn black and my legs goes
Sami13
in
Hughes Syndrome APS Forum
7 years ago
Hashimotos IgA, IgM and IgG all come back normal
My antibodies all come back normal, cortisol normal, tsh T3, T4 all in range, on AIP diet all inflammation gone, all ladies hormones normal. Why can't I Lose weight?! Any ideas?!
My antibodies all come back normal, cortisol normal, tsh T3, T4 all in range, on AIP diet all inflammation gone, all ladies hormones normal. Why can't I Lose weight?! Any ideas?!
Joanneconnor
in
Thyroid UK
7 years ago
Low IgM
Hi all My battle continues. Rheumatology have examined me and written a letter to my Dr saying I have some signs of fibromyalgia but not enough to seek group treatment as it doesn't stop me being active. However blood tests have shown isolated low IgM at 0.3 (NR 0.5 - 1.9). They've asked for serum electrophoresis
Hi all My battle continues. Rheumatology have examined me and written a letter to my Dr saying I have some signs of fibromyalgia but not enough to seek group treatment as it doesn't stop me being active. However blood tests have shown isolated low IgM at 0.3 (NR 0.5 - 1.9). They've asked for serum electrophoresis
steviep43
in
Fibromyalgia Action UK
7 years ago
igm anticardiolipin antibodies
Hi guys, Finally got app to see GP I spoke to on Tues. Almost had a breakdown on the phone trying to see her as I'm sick of seeing a different one every time and going through all the symptoms...anyway, finally got a referral to see a rhuemy as the above was positive. At least it's a start so one step
Hi guys, Finally got app to see GP I spoke to on Tues. Almost had a breakdown on the phone trying to see her as I'm sick of seeing a different one every time and going through all the symptoms...anyway, finally got a referral to see a rhuemy as the above was positive. At least it's a start so one step
Charliebear68
in
LUPUS UK
7 years ago
Help with bloods and symptoms
My husband has been feeling unwell for several years. Severe fatigue has been the main symptom, along with bad headaches. 18 months ago he started to suffer from tingling in his hands, plus numbness. In time this progressed on to his feet and up his legs and he now has some pain in his heels when walking
My husband has been feeling unwell for several years. Severe fatigue has been the main symptom, along with bad headaches. 18 months ago he started to suffer from tingling in his hands, plus numbness. In time this progressed on to his feet and up his legs and he now has some pain in his heels when walking
Kruzgal
in
Pernicious Anaemia Society
7 years ago
What would you do?
My first post here, although I have been reading and learning for some time. My husband has been feeling unwell for several years. Severe fatigue has been the main symptom, along with bad headaches. 18 months ago he started to suffer from tingling in his hands, plus numbness. In time this progressed
My first post here, although I have been reading and learning for some time. My husband has been feeling unwell for several years. Severe fatigue has been the main symptom, along with bad headaches. 18 months ago he started to suffer from tingling in his hands, plus numbness. In time this progressed
Kruzgal
in
Thyroid UK
7 years ago
IgM levels please anyone?
Hi all I very much subscribe to the belief that our blood results don't matter as much as how we're feeling, but I'm curious about something... Most of my results normalised (or nearly) after starting Urso a few years ago, except my Igm. I know that this is quite a sensitive marker but not always included
Hi all I very much subscribe to the belief that our blood results don't matter as much as how we're feeling, but I'm curious about something... Most of my results normalised (or nearly) after starting Urso a few years ago, except my Igm. I know that this is quite a sensitive marker but not always included
Skypony
in
PBC Foundation
7 years ago
No diagnosis yet and feeling ill ☹️
Hi everyone, i would appreciate any advice as I'm new to all this and finding it a little scary. I've been unwell for past 2 years with chronic fatigue, weakness to hands and pins and needles to hands and feet, has gradually got worse over the last month with joint aches and severe head and jaw pain.
Hi everyone, i would appreciate any advice as I'm new to all this and finding it a little scary. I've been unwell for past 2 years with chronic fatigue, weakness to hands and pins and needles to hands and feet, has gradually got worse over the last month with joint aches and severe head and jaw pain.
Yvonne3louise82
in
Pernicious Anaemia Society
7 years ago
Please help!
Hello APS family. How is everyone doing? I am very happy to have found this forum, APS is so little recognize and so many people are not aware of it. I need some help and some advice from you guys! About two weeks ago I went to the ER, because of a scotoma on my left eye vision and some zig zag
Hello APS family. How is everyone doing? I am very happy to have found this forum, APS is so little recognize and so many people are not aware of it. I need some help and some advice from you guys! About two weeks ago I went to the ER, because of a scotoma on my left eye vision and some zig zag
Textra88
in
Hughes Syndrome APS Forum
7 years ago
Bronchiectasis And Things Your GP Won't Tell You
Having done quite a bit of suffering + research it's quite apparent doctors mainly GP's try to cut cost at expense of your health. For past year i have been banging on to my GP re referring me to immunologist given my uncontrolled infection rate. Also have not read in BLF paper work leaflets that if
Having done quite a bit of suffering + research it's quite apparent doctors mainly GP's try to cut cost at expense of your health. For past year i have been banging on to my GP re referring me to immunologist given my uncontrolled infection rate. Also have not read in BLF paper work leaflets that if
Hidden
in
Lung Conditions Community Forum
7 years ago
Help with 2 nd blood test results please.
Hi all I hope my post finds everyone as well as can be expected. I have received my 2nd blood test results (to confirm APS?) in the post today can any of you experienced and knowledgeable people help me with what they mean please. I will type exactly as on letter, I am not thick but would appreciate
Hi all I hope my post finds everyone as well as can be expected. I have received my 2nd blood test results (to confirm APS?) in the post today can any of you experienced and knowledgeable people help me with what they mean please. I will type exactly as on letter, I am not thick but would appreciate
DeanJ
in
Hughes Syndrome APS Forum
7 years ago
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