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Hi inspiring ladies!! After only 4 months into diagnosis of stage 4 MBC and 3 months on Verzenio and Fulvestrant, my medication has been completely suspended due to progression. More lesions on the bones - pelvis and vértebra. My oncologist has sent off 4 blood samples to a specialist hospital to
Hi inspiring ladies!! After only 4 months into diagnosis of stage 4 MBC and 3 months on Verzenio and Fulvestrant, my medication has been completely suspended due to progression. More lesions on the bones - pelvis and vértebra. My oncologist has sent off 4 blood samples to a specialist hospital to
Tanyateresa
in
SHARE Metastatic Breast Cancer
4 months ago
Testing if Aromatise inhibitors work for you- you might be able to stop taking them
I recently had a test ordered that I found out was from a sample from my lumpectomy from 6 years ago. It was a test to see if Tamoxifen or any of the aromatase inhibitors work are helpful to take for my breast cancer. I would need to look up my exact diagnosis as I can’t remember exactly. I know it was
I recently had a test ordered that I found out was from a sample from my lumpectomy from 6 years ago. It was a test to see if Tamoxifen or any of the aromatase inhibitors work are helpful to take for my breast cancer. I would need to look up my exact diagnosis as I can’t remember exactly. I know it was
Cu4281
in
SHARE Breast Cancer Support
9 months ago
Dry frizzy hair due to MBC medication,
I’ve been on Ibrance and Faslodex for 4-1/2 years. Although I’m thankful that the meds have helped me so far, I would like to know if anyone has found a good shampoo and conditioner to help with dry, straight and frizzy hair, My old shiny and wavy hair changed significantly since start of MBC drugs
I’ve been on Ibrance and Faslodex for 4-1/2 years. Although I’m thankful that the meds have helped me so far, I would like to know if anyone has found a good shampoo and conditioner to help with dry, straight and frizzy hair, My old shiny and wavy hair changed significantly since start of MBC drugs
mspti8383
in
SHARE Metastatic Breast Cancer
4 months ago
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‼ The lesion featured in this post may look like eczema or benign skin lesion, but it is in fact a melanoma! In rarer cases, all types of melanoma can lack pigmentation – these are known as amelanotic melanoma. Jane’s story below highlights just how important it is to get any abnormalities checked out
‼ The lesion featured in this post may look like eczema or benign skin lesion, but it is in fact a melanoma! In rarer cases, all types of melanoma can lack pigmentation – these are known as amelanotic melanoma. Jane’s story below highlights just how important it is to get any abnormalities checked out
SkcinHQ
Partner
in
Skin Cancer UK
5 months ago
Xeloda Anxiety
I was supposed to begin Xeloda today. For some reason, I am paranoid. First, I'm thinking my dose is too high. I weigh 168 pounds, 5’4” and my team has me scheduled to take 2000 mg twice a day. I think that’s a lot. Anyone else similar in size to me taking this high of a dose? Am I just paranoid. I
I was supposed to begin Xeloda today. For some reason, I am paranoid. First, I'm thinking my dose is too high. I weigh 168 pounds, 5’4” and my team has me scheduled to take 2000 mg twice a day. I think that’s a lot. Anyone else similar in size to me taking this high of a dose? Am I just paranoid. I
CTGirl1962
in
SHARE Metastatic Breast Cancer
4 months ago
Selegiline side effects
Hi All. Due to drug shortages we've been unable to get rasagiline and had to swap to selegiline. Since the swap mum has had lots of unusual bleeding and the GP thinks it may be a side effect of the selegiline. Just wondered if anyone else has had similar problems and if so how did you resolve things?
Hi All. Due to drug shortages we've been unable to get rasagiline and had to swap to selegiline. Since the swap mum has had lots of unusual bleeding and the GP thinks it may be a side effect of the selegiline. Just wondered if anyone else has had similar problems and if so how did you resolve things?
Joluu
in
PSP Association
5 months ago
unknown
I have been dealing with a skin condition for almost 3 years. I have seen other posts like mine. One person was even trying to get on a talk show. I too have been dismissed by health providers. I have had one person mention Reactive perforating collagenosis (RPC) Reactive perforating collagenosis (RPC
I have been dealing with a skin condition for almost 3 years. I have seen other posts like mine. One person was even trying to get on a talk show. I too have been dismissed by health providers. I have had one person mention Reactive perforating collagenosis (RPC) Reactive perforating collagenosis (RPC
Mystery20
in
MY SKIN
5 months ago
Arginine and Taurine
Has anyone here had success with Arginine/Taurine/Magnesium? My Naturopath is willing to have me try but I am wondering if anyone has any firsthand knowledge out there of how long it takes to see results or not? Thanks!
Has anyone here had success with Arginine/Taurine/Magnesium? My Naturopath is willing to have me try but I am wondering if anyone has any firsthand knowledge out there of how long it takes to see results or not? Thanks!
MeganMN
in
AF Association
9 months ago
What after Xeloda
Please suggest further therapies for my mother's mbc. Bone and liver metastases. Biopsy of metastases was not done. First diagnose, 2010. 5 years ago relapse: er+, pr 0, her2 2+ (sish negative), pik3ca no mutation, BRCA1/2 test - we are waiting for the result. Therapies until now: letrozole, tamoxifen
Please suggest further therapies for my mother's mbc. Bone and liver metastases. Biopsy of metastases was not done. First diagnose, 2010. 5 years ago relapse: er+, pr 0, her2 2+ (sish negative), pik3ca no mutation, BRCA1/2 test - we are waiting for the result. Therapies until now: letrozole, tamoxifen
Goga156
in
SHARE Metastatic Breast Cancer
5 months ago
Anybody with good results on Xeloda?
I was on Ibrance and Letrozole, then Verzenio and Faslodex and then Orserdu. Since Orserdu now failed, the next plan is Xeloda. I read here some reports about some bad side effects. My oncologist at Dana Farber gave me some choices and indicated that in my situation, Xeloda might be best. The
I was on Ibrance and Letrozole, then Verzenio and Faslodex and then Orserdu. Since Orserdu now failed, the next plan is Xeloda. I read here some reports about some bad side effects. My oncologist at Dana Farber gave me some choices and indicated that in my situation, Xeloda might be best. The
SMPG
in
SHARE Metastatic Breast Cancer
5 months ago
Sob Story & Question For Pikray Users
My 2023 experiences make for dreadful stories but here goes. 1). 2/20- Had six cancerous lesions removed from liver. PET scan immediately following ablations showed one or two lesions left...............................................................................................................
My 2023 experiences make for dreadful stories but here goes. 1). 2/20- Had six cancerous lesions removed from liver. PET scan immediately following ablations showed one or two lesions left...............................................................................................................
jersey-jazz
in
SHARE Metastatic Breast Cancer
5 months ago
Capecitabine (Xeloda)
I have for the past 2 and a half years been taking Ibrance and letrozole. Unfortunately my last two scans have shown that they are no longer working and the cancer cells have started to grow. Tomorrow I start taking Capecitabine ( Xeloda) a chemo drug. 3 x 150 twice a day. 2 weeks on 1 week off. I
I have for the past 2 and a half years been taking Ibrance and letrozole. Unfortunately my last two scans have shown that they are no longer working and the cancer cells have started to grow. Tomorrow I start taking Capecitabine ( Xeloda) a chemo drug. 3 x 150 twice a day. 2 weeks on 1 week off. I
LorryLou
in
SHARE Metastatic Breast Cancer
9 months ago
Crack in cranioplasty
I had a TBI when I was 6 years old and had plastic fitted into the back of my head to close it (cranioplasty). Some time ago however, I started getting some sudden pain (once I felt an electric current running through the back of my head; at age 40). After an MRI and CT Scan, it was found that I somehow
I had a TBI when I was 6 years old and had plastic fitted into the back of my head to close it (cranioplasty). Some time ago however, I started getting some sudden pain (once I felt an electric current running through the back of my head; at age 40). After an MRI and CT Scan, it was found that I somehow
ghost_writer
in
Headway
5 months ago
Ibrance/Letrozole Fail
Been through the wringer and back over the past month. Scans showed progression. Had bone only mets and now showing inflammation in my lungs. Had more scans and genomic testing for mutations and it turns out I have no mutations that have been studied yet. My oncologist is putting me on Xeloda and says
Been through the wringer and back over the past month. Scans showed progression. Had bone only mets and now showing inflammation in my lungs. Had more scans and genomic testing for mutations and it turns out I have no mutations that have been studied yet. My oncologist is putting me on Xeloda and says
CTGirl1962
in
SHARE Metastatic Breast Cancer
5 months ago
Masced Pro Training
‼ Over 25% of GP consultations are dermatology related, yet GPs only receive around 2 weeks training on dermatology AS A WHOLE - so unless a GP has what is referred to as 'a specialist interest in skin cancer', they have little-to-no training on the subject! That’s just one of the reasons why we developed
‼ Over 25% of GP consultations are dermatology related, yet GPs only receive around 2 weeks training on dermatology AS A WHOLE - so unless a GP has what is referred to as 'a specialist interest in skin cancer', they have little-to-no training on the subject! That’s just one of the reasons why we developed
SkcinHQ
Partner
in
Skin Cancer UK
5 months ago
Blood biopsy
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
sevoia
in
SHARE Metastatic Breast Cancer
5 months ago
Acalabrutinib and Skin Cancers
I began taking Acalabrutinib three years ago as a participant in a clinical trial. I have enjoyed excellent success. However, recently I began breaking out in skin cancer lesions on various parts of the body. Particularly on my legs, ankles and feet. I have been prone to sun damaged skin converting
I began taking Acalabrutinib three years ago as a participant in a clinical trial. I have enjoyed excellent success. However, recently I began breaking out in skin cancer lesions on various parts of the body. Particularly on my legs, ankles and feet. I have been prone to sun damaged skin converting
spanish36
in
CLL Support
5 months ago
TruQap progress-lower TM
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
Yikes123
in
SHARE Metastatic Breast Cancer
5 months ago
Cardiac open heart surgery
Hi to all Has anyone with metastatic breast cancer had open heart cardiac surgery and might you share your experience with me please? I only saw my surgeon yesterday and am now scheduled for Monday. How amazing is that but I'm just a bit scared. It's one of those 'be careful what you wish for' situations
Hi to all Has anyone with metastatic breast cancer had open heart cardiac surgery and might you share your experience with me please? I only saw my surgeon yesterday and am now scheduled for Monday. How amazing is that but I'm just a bit scared. It's one of those 'be careful what you wish for' situations
bikebabe
in
SHARE Metastatic Breast Cancer
5 months ago
cross road
At a crossroad! My liver biopsy last November came back that my cancer mutated from HER2 low to HER2+. I have started THP because of it. I saw my MO yesterday who told me that my molecular study is not showing the HER2. So I have 2 contradictory tests! She also said she presented my case to the
At a crossroad! My liver biopsy last November came back that my cancer mutated from HER2 low to HER2+. I have started THP because of it. I saw my MO yesterday who told me that my molecular study is not showing the HER2. So I have 2 contradictory tests! She also said she presented my case to the
Kcap430
in
SHARE Metastatic Breast Cancer
5 months ago
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