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I have been dealing with a skin condition for almost 3 years. I have seen other posts like mine. One person was even trying to get on a talk show. I too have been dismissed by health providers. I have had one person mention Reactive perforating collagenosis (RPC) Reactive perforating collagenosis (RPC
I have been dealing with a skin condition for almost 3 years. I have seen other posts like mine. One person was even trying to get on a talk show. I too have been dismissed by health providers. I have had one person mention Reactive perforating collagenosis (RPC) Reactive perforating collagenosis (RPC
Mystery20
in
MY SKIN
6 months ago
Anybody with good results on Xeloda?
I was on Ibrance and Letrozole, then Verzenio and Faslodex and then Orserdu. Since Orserdu now failed, the next plan is Xeloda. I read here some reports about some bad side effects. My oncologist at Dana Farber gave me some choices and indicated that in my situation, Xeloda might be best. The
I was on Ibrance and Letrozole, then Verzenio and Faslodex and then Orserdu. Since Orserdu now failed, the next plan is Xeloda. I read here some reports about some bad side effects. My oncologist at Dana Farber gave me some choices and indicated that in my situation, Xeloda might be best. The
SMPG
in
SHARE Metastatic Breast Cancer
5 months ago
Sob Story & Question For Pikray Users
My 2023 experiences make for dreadful stories but here goes. 1). 2/20- Had six cancerous lesions removed from liver. PET scan immediately following ablations showed one or two lesions left...............................................................................................................
My 2023 experiences make for dreadful stories but here goes. 1). 2/20- Had six cancerous lesions removed from liver. PET scan immediately following ablations showed one or two lesions left...............................................................................................................
jersey-jazz
in
SHARE Metastatic Breast Cancer
5 months ago
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Crack in cranioplasty
I had a TBI when I was 6 years old and had plastic fitted into the back of my head to close it (cranioplasty). Some time ago however, I started getting some sudden pain (once I felt an electric current running through the back of my head; at age 40). After an MRI and CT Scan, it was found that I somehow
I had a TBI when I was 6 years old and had plastic fitted into the back of my head to close it (cranioplasty). Some time ago however, I started getting some sudden pain (once I felt an electric current running through the back of my head; at age 40). After an MRI and CT Scan, it was found that I somehow
ghost_writer
in
Headway
6 months ago
Ibrance/Letrozole Fail
Been through the wringer and back over the past month. Scans showed progression. Had bone only mets and now showing inflammation in my lungs. Had more scans and genomic testing for mutations and it turns out I have no mutations that have been studied yet. My oncologist is putting me on Xeloda and says
Been through the wringer and back over the past month. Scans showed progression. Had bone only mets and now showing inflammation in my lungs. Had more scans and genomic testing for mutations and it turns out I have no mutations that have been studied yet. My oncologist is putting me on Xeloda and says
CTGirl1962
in
SHARE Metastatic Breast Cancer
5 months ago
Testing if Aromatise inhibitors work for you- you might be able to stop taking them
I recently had a test ordered that I found out was from a sample from my lumpectomy from 6 years ago. It was a test to see if Tamoxifen or any of the aromatase inhibitors work are helpful to take for my breast cancer. I would need to look up my exact diagnosis as I can’t remember exactly. I know it was
I recently had a test ordered that I found out was from a sample from my lumpectomy from 6 years ago. It was a test to see if Tamoxifen or any of the aromatase inhibitors work are helpful to take for my breast cancer. I would need to look up my exact diagnosis as I can’t remember exactly. I know it was
Cu4281
in
SHARE Breast Cancer Support
10 months ago
Masced Pro Training
‼ Over 25% of GP consultations are dermatology related, yet GPs only receive around 2 weeks training on dermatology AS A WHOLE - so unless a GP has what is referred to as 'a specialist interest in skin cancer', they have little-to-no training on the subject! That’s just one of the reasons why we developed
‼ Over 25% of GP consultations are dermatology related, yet GPs only receive around 2 weeks training on dermatology AS A WHOLE - so unless a GP has what is referred to as 'a specialist interest in skin cancer', they have little-to-no training on the subject! That’s just one of the reasons why we developed
SkcinHQ
Partner
in
Skin Cancer UK
6 months ago
Blood biopsy
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
sevoia
in
SHARE Metastatic Breast Cancer
5 months ago
Acalabrutinib and Skin Cancers
I began taking Acalabrutinib three years ago as a participant in a clinical trial. I have enjoyed excellent success. However, recently I began breaking out in skin cancer lesions on various parts of the body. Particularly on my legs, ankles and feet. I have been prone to sun damaged skin converting
I began taking Acalabrutinib three years ago as a participant in a clinical trial. I have enjoyed excellent success. However, recently I began breaking out in skin cancer lesions on various parts of the body. Particularly on my legs, ankles and feet. I have been prone to sun damaged skin converting
spanish36
in
CLL Support
6 months ago
TruQap progress-lower TM
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
Yikes123
in
SHARE Metastatic Breast Cancer
6 months ago
Cardiac open heart surgery
Hi to all Has anyone with metastatic breast cancer had open heart cardiac surgery and might you share your experience with me please? I only saw my surgeon yesterday and am now scheduled for Monday. How amazing is that but I'm just a bit scared. It's one of those 'be careful what you wish for' situations
Hi to all Has anyone with metastatic breast cancer had open heart cardiac surgery and might you share your experience with me please? I only saw my surgeon yesterday and am now scheduled for Monday. How amazing is that but I'm just a bit scared. It's one of those 'be careful what you wish for' situations
bikebabe
in
SHARE Metastatic Breast Cancer
6 months ago
cross road
At a crossroad! My liver biopsy last November came back that my cancer mutated from HER2 low to HER2+. I have started THP because of it. I saw my MO yesterday who told me that my molecular study is not showing the HER2. So I have 2 contradictory tests! She also said she presented my case to the
At a crossroad! My liver biopsy last November came back that my cancer mutated from HER2 low to HER2+. I have started THP because of it. I saw my MO yesterday who told me that my molecular study is not showing the HER2. So I have 2 contradictory tests! She also said she presented my case to the
Kcap430
in
SHARE Metastatic Breast Cancer
6 months ago
Fuervesant shots
Hi everyone! I’m new to this stream. I have stage 4 medistatic breast cancer in the bones. I’m on Ibrance and Letrozole but will be getting Fuervsant on Friday 2-2-24. So I won’t be taking the Letrozole. My oncologist is changing the medicine because my cancer markers are climbing. Has anyone done the
Hi everyone! I’m new to this stream. I have stage 4 medistatic breast cancer in the bones. I’m on Ibrance and Letrozole but will be getting Fuervsant on Friday 2-2-24. So I won’t be taking the Letrozole. My oncologist is changing the medicine because my cancer markers are climbing. Has anyone done the
Barreds
in
SHARE Metastatic Breast Cancer
6 months ago
Hip pain from faslodex?
I did post this on a reply to another post but I’m not sure if anyone will see it……..does anyone have hip pain after faslodex. . I have been on this for a handful of years and the hip pain just started within the last 4 months. No problems at the injection site. This is specially my hip. Initially it
I did post this on a reply to another post but I’m not sure if anyone will see it……..does anyone have hip pain after faslodex. . I have been on this for a handful of years and the hip pain just started within the last 4 months. No problems at the injection site. This is specially my hip. Initially it
Fight2016
in
SHARE Metastatic Breast Cancer
6 months ago
Men and Melanoma
Since 1973, death rates from melanoma (the most serious type of skin cancer) have risen by 219% in men, compared to an increase of 76% in women and statistics reveal that men are 69% more likely to die from the disease! Despite the fact that 1 in 4 men in the UK will develop a form of skin cancer
Since 1973, death rates from melanoma (the most serious type of skin cancer) have risen by 219% in men, compared to an increase of 76% in women and statistics reveal that men are 69% more likely to die from the disease! Despite the fact that 1 in 4 men in the UK will develop a form of skin cancer
SkcinHQ
Partner
in
Skin Cancer UK
6 months ago
Arginine and Taurine
Has anyone here had success with Arginine/Taurine/Magnesium? My Naturopath is willing to have me try but I am wondering if anyone has any firsthand knowledge out there of how long it takes to see results or not? Thanks!
Has anyone here had success with Arginine/Taurine/Magnesium? My Naturopath is willing to have me try but I am wondering if anyone has any firsthand knowledge out there of how long it takes to see results or not? Thanks!
MeganMN
in
AF Association
10 months ago
Staying on Ibrance & Anastrozole after 2 recurrences
I’ve been on Ibrance and Anastrozole for the last 6 years for metastatic endometrial cancer. I started out on the Ibrance125 mg and after a couple of years, had a problem recovering on the week off, so my dose was reduced to 100 mg. By spring this year, the counts could not recover on the week off,
I’ve been on Ibrance and Anastrozole for the last 6 years for metastatic endometrial cancer. I started out on the Ibrance125 mg and after a couple of years, had a problem recovering on the week off, so my dose was reduced to 100 mg. By spring this year, the counts could not recover on the week off,
Merma
in
SHARE Metastatic Breast Cancer
6 months ago
AS is over:-(
On second biopsy GG 2 lesion found. :-( Thoughts welcome on next steps. ----------Biopsy results----------------------------------------- A. Right Apex Prostate: Needle Core Biopsy: Benign prostatic tissue B. Right Mid Prostate: Needle Core Biopsy: Benign prostatic tissue C. Right Base
On second biopsy GG 2 lesion found. :-( Thoughts welcome on next steps. ----------Biopsy results----------------------------------------- A. Right Apex Prostate: Needle Core Biopsy: Benign prostatic tissue B. Right Mid Prostate: Needle Core Biopsy: Benign prostatic tissue C. Right Base
witantric
in
Fight Prostate Cancer
6 hours ago
plural effusion
I nave plural effusion in my left lung metastasis from ovarian cancer. I had a surgery last September 23 with WATS. Now I’m on strong chemo but this plural effusion is the same. I had five line of carboplatin, Bevacizumab, zentabun. Noting helps. I will try 3-4 more and if it’s not change I will stop
I nave plural effusion in my left lung metastasis from ovarian cancer. I had a surgery last September 23 with WATS. Now I’m on strong chemo but this plural effusion is the same. I had five line of carboplatin, Bevacizumab, zentabun. Noting helps. I will try 3-4 more and if it’s not change I will stop
Green999
in
My Ovacome
15 hours ago
Mays Cancer Center seeks HCC survivors/caregivers in South Texas
The
Mays Cancer Center
would like to speak with survivors and caregivers of cervical cancer,
liver cancer
, and pediatric leukemia
[i]
living in South Texas
[/i]
to identify, describe, and reflect on experiences around the delivery of care, care needs, and participating
The
Mays Cancer Center
would like to speak with survivors and caregivers of cervical cancer,
liver cancer
, and pediatric leukemia
[i]
living in South Texas
[/i]
to identify, describe, and reflect on experiences around the delivery of care, care needs, and participating
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
1 day ago
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