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What's next after Xeloda?
Hi all, just got disappointing CT scan results showing strong progression after only 7 months on Xeloda. I've messaged my oncologist to find out what the next options may be so I can research them before our appointment. Would love to hear from anyone who has gone to the next step after Xeloda - what
Hi all, just got disappointing CT scan results showing strong progression after only 7 months on Xeloda. I've messaged my oncologist to find out what the next options may be so I can research them before our appointment. Would love to hear from anyone who has gone to the next step after Xeloda - what
LDR1
in
SHARE Metastatic Breast Cancer
1 year ago
Afinitor/Everolimus and Tamoxifen is next :(
Hi everyone - it's time for me to change treatment again. Well my time on the Hope trial was pretty short-lived (December to June with pretty much progression showing for 1/2 that time) and now officially over. I'm ok with ending the trial because the travel out of State, and insurance issues were becoming
Hi everyone - it's time for me to change treatment again. Well my time on the Hope trial was pretty short-lived (December to June with pretty much progression showing for 1/2 that time) and now officially over. I'm ok with ending the trial because the travel out of State, and insurance issues were becoming
13plus
in
SHARE Metastatic Breast Cancer
1 year ago
Insomnia with new brand of Tamoxifen
I am feeling very sorry for myself at the moment as I am dealing with persistent insomnia on a new generic brand of Tamoxifen. I had been prescribed Nolvadex D and was taking it successfully more or less for 3 and a half years. Unfortunately Nolvadex is no longer being manufactured so I am now taking
I am feeling very sorry for myself at the moment as I am dealing with persistent insomnia on a new generic brand of Tamoxifen. I had been prescribed Nolvadex D and was taking it successfully more or less for 3 and a half years. Unfortunately Nolvadex is no longer being manufactured so I am now taking
Traveller66
in
My Breast Cancer Community
1 year ago
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Progression to liver
I'd like to know what is standard practice. Progression to liver and.my oncologist wants me to do 6 rounds of IV chemo. Question : Did you contintue ex (Verzenio)or take oral Chemo such as Xeloda after iv chemo?I have a biopsy scheduled. Any with experience with progression to liver it be great to hear
I'd like to know what is standard practice. Progression to liver and.my oncologist wants me to do 6 rounds of IV chemo. Question : Did you contintue ex (Verzenio)or take oral Chemo such as Xeloda after iv chemo?I have a biopsy scheduled. Any with experience with progression to liver it be great to hear
JMMK
in
SHARE Metastatic Breast Cancer
1 year ago
Lynparza after Enhertu?
Question about PET scan results. This is my 2nd PET on Enhertu for metastatic breast cancer with great results after the 1st scan. I just received my results from this morning and all organs and liver look clean but there has been some low SUV level skeletal progression. I have a meeting with my oncologist
Question about PET scan results. This is my 2nd PET on Enhertu for metastatic breast cancer with great results after the 1st scan. I just received my results from this morning and all organs and liver look clean but there has been some low SUV level skeletal progression. I have a meeting with my oncologist
miconrad
in
SHARE Metastatic Breast Cancer
1 year ago
Hand Foot Syndrome - New Treatment
This might be old news for some but I did a search and couldn’t find any posts discussing it. A recent study was just completed that showed that a common OTC medication is extremely effective for hand foot syndrome caused by Capacetibine (Xeloda). Voltarin (active ingredient diclofenac) reduced the
This might be old news for some but I did a search and couldn’t find any posts discussing it. A recent study was just completed that showed that a common OTC medication is extremely effective for hand foot syndrome caused by Capacetibine (Xeloda). Voltarin (active ingredient diclofenac) reduced the
Half-Full
in
SHARE Metastatic Breast Cancer
1 year ago
Question about second line treatments
Diagnosed with MBC in ischium and sacrum in October of 2020. On Ibrance and Letrozole since November 2020 with good results, stable scans, good bloodwork. Tumor markers have fluctuated a few points each time but never been higher since 48 after starting treatment, original highest level at time of
Diagnosed with MBC in ischium and sacrum in October of 2020. On Ibrance and Letrozole since November 2020 with good results, stable scans, good bloodwork. Tumor markers have fluctuated a few points each time but never been higher since 48 after starting treatment, original highest level at time of
love2golfwell
in
SHARE Metastatic Breast Cancer
1 year ago
unhelpful insurance agencies
I was diagnosed with Her 2 : 3 positive for breast cancer in January 2023. Started chemotherapy with Paclitaxal weekly and injection Phesgo once in 3 weeks. My insurance company National Isiramve denies reimbursement for Phesgo calling it as a modern medicine. I was made to understand Phesgo with
I was diagnosed with Her 2 : 3 positive for breast cancer in January 2023. Started chemotherapy with Paclitaxal weekly and injection Phesgo once in 3 weeks. My insurance company National Isiramve denies reimbursement for Phesgo calling it as a modern medicine. I was made to understand Phesgo with
Griever
in
Breast Cancer India
1 year ago
HER2 and ER positive breast cancer
I tripped over in the garden and fractured 2 ribs; while in hospital scans showed lesions; was referred to breast clinic and the cancer was found. I was originally scheduled for a lumpectomy but they found the HER2 & ER positive, so now chemo and targeted therapy followed by surgery and radiotherapy.
I tripped over in the garden and fractured 2 ribs; while in hospital scans showed lesions; was referred to breast clinic and the cancer was found. I was originally scheduled for a lumpectomy but they found the HER2 & ER positive, so now chemo and targeted therapy followed by surgery and radiotherapy.
lyndab52
in
My Breast Cancer Community
1 year ago
Enhertu next treatment??
I have been posting a lot lately. Thank you everyone for all your help. Some history…..I have lobular MBC. I have Mets in stomach lining, liver, and hip bone. got almost a year and a half from ibrance. After that I was on Exemestane and Everolimus for 2 months and all my liver mets grew. My
I have been posting a lot lately. Thank you everyone for all your help. Some history…..I have lobular MBC. I have Mets in stomach lining, liver, and hip bone. got almost a year and a half from ibrance. After that I was on Exemestane and Everolimus for 2 months and all my liver mets grew. My
Ticket123
in
SHARE Metastatic Breast Cancer
1 year ago
UK Visa for Medical Care of hypothyroidism and breast cancer.
I'm a US expat living in France for the past two years. My medical history incudesI hypothyroidism and recurrent breast cancer. Frances BIG Pharma" rules the medical industry, including prohibiting all NDT meds. I am allergic to synthetic thyroid medications, I was for two decades a Nature Thyroid
I'm a US expat living in France for the past two years. My medical history incudesI hypothyroidism and recurrent breast cancer. Frances BIG Pharma" rules the medical industry, including prohibiting all NDT meds. I am allergic to synthetic thyroid medications, I was for two decades a Nature Thyroid
morganrose
in
Thyroid UK
1 year ago
Med change
Hi everyone, so it looks like I’m up for another med change. ( second one in 2 months 😳). My question is will I have to wait to get first med out of my system before starting the next one? I’m concerned that the cancer will grow if I’m not on anything. Just wondering what everyone’s experience
Hi everyone, so it looks like I’m up for another med change. ( second one in 2 months 😳). My question is will I have to wait to get first med out of my system before starting the next one? I’m concerned that the cancer will grow if I’m not on anything. Just wondering what everyone’s experience
Ticket123
in
SHARE Metastatic Breast Cancer
1 year ago
Red Yeast Rice Supplement
does anybody take this supplement for cholesterol, if so does it interfere with your RLS. It is free of Monacolin, think that might be important. Thanks
does anybody take this supplement for cholesterol, if so does it interfere with your RLS. It is free of Monacolin, think that might be important. Thanks
Catbennie
in
Restless Legs Syndrome
8 months ago
Mammograms
diagnosed HGSOC December 2019. BRCA 2 somatic only. Have had standard chemo, debulking + 2 years of Olaparib and doing well to date. My question is around mammograms: what is the usual checks for ladies with OC history? I would imagine it varies widely however my GP stated it would be as normal, i.e
diagnosed HGSOC December 2019. BRCA 2 somatic only. Have had standard chemo, debulking + 2 years of Olaparib and doing well to date. My question is around mammograms: what is the usual checks for ladies with OC history? I would imagine it varies widely however my GP stated it would be as normal, i.e
RoseMS
in
My Ovacome
1 year ago
Rare great news
My daughter, a teacher, called earlier this week to talk about having to decide between being at school for the final day of the kids being there or accompanying a good friend to an onc appt to find out for sure if she has breast cancer. She called me yesterday to tell me that she went to that appt
My daughter, a teacher, called earlier this week to talk about having to decide between being at school for the final day of the kids being there or accompanying a good friend to an onc appt to find out for sure if she has breast cancer. She called me yesterday to tell me that she went to that appt
PJBinMI
in
SHARE Metastatic Breast Cancer
1 year ago
Mammogram
I am having a routine mammogram next week and wondered if there could be an issue with taking my anticoagulants or from the pressure plates. Should I tell the person that I have Afib? Thank-you.
I am having a routine mammogram next week and wondered if there could be an issue with taking my anticoagulants or from the pressure plates. Should I tell the person that I have Afib? Thank-you.
Anniewee6
in
AF Association
1 year ago
Breast cancer - mastectomy or not
Hi allI was diagnosed with Stage 4a high grade serous OC in September 2022 and I've just had my last post-surgery chemo (for the time being at least)😊. I'm BRCA2 and aged 60 and the hospital genetics team have been telling me about the risk of getting breast cancer (as if ovarian cancer wasn't enough
Hi allI was diagnosed with Stage 4a high grade serous OC in September 2022 and I've just had my last post-surgery chemo (for the time being at least)😊. I'm BRCA2 and aged 60 and the hospital genetics team have been telling me about the risk of getting breast cancer (as if ovarian cancer wasn't enough
Demelzatheseagull
in
My Ovacome
1 year ago
Phase 3 SONIA Trial Challenges the Routine Practice of Using a 1st Line CDK4/6 Inhibitor in HR+, HER2- MBC
Apologies for the length, but I thought you might find this interesting! from: https://dailynews.ascopubs.org/do/sonia-challenges-need-first-line-use-cdk4-6-inhibitor-hr-positive-her2-negative?utm_source=newsletter&utm_medium=email&utm_campaign=The+OncoAlert+Newsletter+DAY+4+ASCO+2023&cmid=14f595bb-abce
Apologies for the length, but I thought you might find this interesting! from: https://dailynews.ascopubs.org/do/sonia-challenges-need-first-line-use-cdk4-6-inhibitor-hr-positive-her2-negative?utm_source=newsletter&utm_medium=email&utm_campaign=The+OncoAlert+Newsletter+DAY+4+ASCO+2023&cmid=14f595bb-abce
Bestbird
in
SHARE Metastatic Breast Cancer
1 year ago
D3 lowers estrogen in blood!
I bought a kiddie pool so I could lay out and get some sunshine. I grew up on an island and I love the water ... ANY water! So I bought it solely for my enjoyment. Then I come across this article from Fred Hutchinson Cancer Center on how D3 lowers estrogen and this interests me because I recently
I bought a kiddie pool so I could lay out and get some sunshine. I grew up on an island and I love the water ... ANY water! So I bought it solely for my enjoyment. Then I come across this article from Fred Hutchinson Cancer Center on how D3 lowers estrogen and this interests me because I recently
Godbeforme
in
SHARE Metastatic Breast Cancer
1 year ago
Long Story then Question: Ibrance or Pikray?
BACKGROUND. On 20 Feb, I had five or six cancerous lesions ablated from the liver. The PET done right afterward indicated one lesion left. On 6 April, that lesion was ablated but a very bad thing happened. The ablation instrument slipped and made a hole in my colon. I have been down and out, ever
BACKGROUND. On 20 Feb, I had five or six cancerous lesions ablated from the liver. The PET done right afterward indicated one lesion left. On 6 April, that lesion was ablated but a very bad thing happened. The ablation instrument slipped and made a hole in my colon. I have been down and out, ever
jersey-jazz
in
SHARE Metastatic Breast Cancer
1 year ago
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