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New therapy (I hope I am not repeating myself)
https://www.urologytimes.com/view/antibody-drug-conjugate-plus-docetaxel-shows-promise-in-metastatic-prostate-cancer The novel antibody-drug conjugate PDS0301 (M9241) in combination with docetaxel demonstrated promising safety and immune response signals in patients with metastatic castration-sensitive
https://www.urologytimes.com/view/antibody-drug-conjugate-plus-docetaxel-shows-promise-in-metastatic-prostate-cancer The novel antibody-drug conjugate PDS0301 (M9241) in combination with docetaxel demonstrated promising safety and immune response signals in patients with metastatic castration-sensitive
Maxone73
in
Advanced Prostate Cancer
7 months ago
Risk vs reward in clinical trials
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Pmann
in
Advanced Prostate Cancer
3 months ago
Go-forward Treatment Plan
First of all, I've been an avid reader of this forum over the past 2 years, and wanted to express my gratitude towards the amount of knowledge everyone has been sharing on this site. My father (62 y.o., very healthy) was diagnosed with aggressive PCa (Gleason 9, PSA 58) in Sep 2021, and underwent RALP
First of all, I've been an avid reader of this forum over the past 2 years, and wanted to express my gratitude towards the amount of knowledge everyone has been sharing on this site. My father (62 y.o., very healthy) was diagnosed with aggressive PCa (Gleason 9, PSA 58) in Sep 2021, and underwent RALP
sixmongoos
in
Advanced Prostate Cancer
7 months ago
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What should I do - follow-ups not feeling thorough
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
OrdinarySoul
in
My Ovacome
3 months ago
any tips for Caelyx side effects (pdrh
I’m stage 3c High grade serous I had debunking surgery an started my first attempt at chemo in September I’m allergic to paclitaxel so they are going to try Caelyx (pegylated liposomal dioxyrubicin). Alongside the carboplatin I’ve read a lot about side effects has anyone gif any tips for managing
I’m stage 3c High grade serous I had debunking surgery an started my first attempt at chemo in September I’m allergic to paclitaxel so they are going to try Caelyx (pegylated liposomal dioxyrubicin). Alongside the carboplatin I’ve read a lot about side effects has anyone gif any tips for managing
Beatbigc
in
My Ovacome
7 months ago
treatment side effects vs cancer side effects
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
alysona828
in
Advanced Prostate Cancer
3 months ago
Delayed Lynparza (Olaparib)Reaction
I started Lynparza (Olaparib) on 5/19 (PSA 172). By 7/5 (+7 weeks ) my PSA was 222 and it was decided to discontinue the drug, get a port, and prepare for chemo. At the first chemo appt on 8/10 (+12 weeks), the blood test showed that my PSA had fallen to 194. The general literature says you evaluate
I started Lynparza (Olaparib) on 5/19 (PSA 172). By 7/5 (+7 weeks ) my PSA was 222 and it was decided to discontinue the drug, get a port, and prepare for chemo. At the first chemo appt on 8/10 (+12 weeks), the blood test showed that my PSA had fallen to 194. The general literature says you evaluate
OhioGuy2
in
Advanced Prostate Cancer
7 months ago
Use hormone therapy or not with Proton therapy
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
jbsnv
in
Prostate Cancer Network
3 months ago
Chronic pain after prostatectomy
My friend had robotic prostatectomy in May 2019. In the almost 5 years since he has experienced daily abdominal pain. He has seen numerous doctors but none of them have been able to diagnose the source of the pain. He is an invalid due to this problem. Does anyone else know of a similar case? Any
My friend had robotic prostatectomy in May 2019. In the almost 5 years since he has experienced daily abdominal pain. He has seen numerous doctors but none of them have been able to diagnose the source of the pain. He is an invalid due to this problem. Does anyone else know of a similar case? Any
Sineah
in
Advanced Prostate Cancer
3 months ago
Changing the name of cancer...would speed up research
For example, we could have a "BRCA positive
cancer
," regardless of whether it originated in the prostate or the
breast
. But what are the advantages? This is where I found myself thinking, "what the heck..." when I gave it some thought.
For example, we could have a "BRCA positive
cancer
," regardless of whether it originated in the prostate or the
breast
. But what are the advantages? This is where I found myself thinking, "what the heck..." when I gave it some thought.
Maxone73
in
Advanced Prostate Cancer
3 months ago
How can one person be so Lucky?
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Condor77
in
Advanced Prostate Cancer
3 months ago
And again news about clinical trials
Clinical trial tests creatine monohydrate and exercise to preserve muscle mass in prostate cancer
https://www.news-medical.net/news/20231011/Clinical-trial-tests-creatine-monohydrate-and-exercise-to-preserve-muscle-mass-in-prostate-cancer-patients.aspx (hint: been a natural bodybuilder from
Clinical trial tests creatine monohydrate and exercise to preserve muscle mass in prostate cancer
https://www.news-medical.net/news/20231011/Clinical-trial-tests-creatine-monohydrate-and-exercise-to-preserve-muscle-mass-in-prostate-cancer-patients.aspx (hint: been a natural bodybuilder from
Maxone73
in
Advanced Prostate Cancer
7 months ago
Patricia
Hi I'm a 3rd timer with BC. This time diagnosed June with stage 3 HER2+. Had surgery and chemo now on 3 weekly injections of Herceptin & 6monthly bone infusions and letrozole daily. Side effects fluctuate from day to day, fatigue, achey fluey, fuzzy head, indigestion, dizziness. In between I'm fine,
Hi I'm a 3rd timer with BC. This time diagnosed June with stage 3 HER2+. Had surgery and chemo now on 3 weekly injections of Herceptin & 6monthly bone infusions and letrozole daily. Side effects fluctuate from day to day, fatigue, achey fluey, fuzzy head, indigestion, dizziness. In between I'm fine,
ruskin10
in
My Breast Cancer Community
3 months ago
ED & zero libido
Three years on from diagnosis and nearly three year of no sexual function. A big loss between my wife and I thought we don’t really talk about it. My GP prescribes viagra but without the desire, little effect. Also given a pump but something makes me resistant to try it. Having said all this I have
Three years on from diagnosis and nearly three year of no sexual function. A big loss between my wife and I thought we don’t really talk about it. My GP prescribes viagra but without the desire, little effect. Also given a pump but something makes me resistant to try it. Having said all this I have
FortyWinks
in
Advanced Prostate Cancer
7 months ago
update on sore Nipple!
so did go to see the Dr who agreed my breasts were quite tricky to diagnose due to the amount of scar tissue from previous mammoplasty - initially felt the tenderness was maybe due to simple fibroadinoma but wasn’t certain - so I was fast tracked to Derriford and my appointment is this afternoon. Interestingly
so did go to see the Dr who agreed my breasts were quite tricky to diagnose due to the amount of scar tissue from previous mammoplasty - initially felt the tenderness was maybe due to simple fibroadinoma but wasn’t certain - so I was fast tracked to Derriford and my appointment is this afternoon. Interestingly
Sungolfer
in
PMRGCAuk
3 months ago
Heavy news today
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
SoulJourney
in
SHARE Metastatic Breast Cancer
3 months ago
I wonder if anyone knows why or has experienced a rise on PSA level (from 70 to 274), 6 months after radiation therapy (VMAT x 26 sessions)?
Before and after radiation therapy, dad was taking Bicalutamide 50 mg and Alfuzosin50 mg together with a quarterly Leuprorelin injection. This month (October), after receiving his Leuprorelin injection, Urologist advised to stop taking Bicalutamide as it is no longer effective due to hormone resistance
Before and after radiation therapy, dad was taking Bicalutamide 50 mg and Alfuzosin50 mg together with a quarterly Leuprorelin injection. This month (October), after receiving his Leuprorelin injection, Urologist advised to stop taking Bicalutamide as it is no longer effective due to hormone resistance
Iloveyoudad
in
Advanced Prostate Cancer
7 months ago
Advice please
Due to my dads low red blood cell count his treament has been stopped his been off all meds except pain killler, now since september 2023. He was due to start radium 223 january 24 but its been postponed until his better, but how can he get better when his PSA is increasing weekly and his red bloods
Due to my dads low red blood cell count his treament has been stopped his been off all meds except pain killler, now since september 2023. He was due to start radium 223 january 24 but its been postponed until his better, but how can he get better when his PSA is increasing weekly and his red bloods
Hidden
in
Advanced Prostate Cancer
3 months ago
Hip pain - related to radiotherapy?
I had chemo/radiotherapy for anal cancer in 2015 and was given the all-clear in 2021. There have been a number of side effects since but 12 weeks ago I developed pain in my right hip at the end of a walk (keen walker). GP doesn't know what the cause is (no surprise there!), but arranged an X-ray, which
I had chemo/radiotherapy for anal cancer in 2015 and was given the all-clear in 2021. There have been a number of side effects since but 12 weeks ago I developed pain in my right hip at the end of a walk (keen walker). GP doesn't know what the cause is (no surprise there!), but arranged an X-ray, which
BlueDun
in
Pelvic Pain Support Network
3 months ago
Just joined the club no one wants to be a member of in April 2023 - can Gleason 9 be cured ?
Doc says that our goal is a cure despite the fact that I am a Gleason 9 with Decipher score of 1 , the highest for metatastic spread. (PSMA PET was negative.) The highest my PSA has ever been was 5.48 in December 2022 and it dropped to .09 with Testosterone of 14 in August two months after a shot of
Doc says that our goal is a cure despite the fact that I am a Gleason 9 with Decipher score of 1 , the highest for metatastic spread. (PSMA PET was negative.) The highest my PSA has ever been was 5.48 in December 2022 and it dropped to .09 with Testosterone of 14 in August two months after a shot of
68Guitar
in
Advanced Prostate Cancer
7 months ago
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