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Now been advised cancer has spread to both lungs 😔
Spoke to my consultant yesterday, it seems my nurse specialist had not given me the correct information. Cancer signs are now on both lungs, in my peritoneal area, and under my spleen (not the spleen itself). I am getting some pain in my lung area and it's really worrying me 😔 Surgery is still
Spoke to my consultant yesterday, it seems my nurse specialist had not given me the correct information. Cancer signs are now on both lungs, in my peritoneal area, and under my spleen (not the spleen itself). I am getting some pain in my lung area and it's really worrying me 😔 Surgery is still
Kazzh
in
My Ovacome
2 months ago
Zometa
Insurance denied my Xgeva shot . Was told I had to do Zometa. Looking at the potential side effects ( stomach) Im not inclined. Been dealing with ibs and gerd for years and not really wanting to go with anything that will increase that situation. I've read that Zometa does nothing to prevent SRE events
Insurance denied my Xgeva shot . Was told I had to do Zometa. Looking at the potential side effects ( stomach) Im not inclined. Been dealing with ibs and gerd for years and not really wanting to go with anything that will increase that situation. I've read that Zometa does nothing to prevent SRE events
APK3
in
Advanced Prostate Cancer
2 months ago
A List for Newly Diagnosed that My Wife did in 2022 please add to list if anything is missed or wrong or needs updating. TIA
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
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advice for docetaxel
I have read several posts of those who have done docetaxel and done a little research on the Internet and YouTube to try to offset side effects. I am 51 years old and was diagnosed five years ago with advanced prostate cancer Gleason score 9 and a few spots to the bones. pelvic area, spine and ribs.
I have read several posts of those who have done docetaxel and done a little research on the Internet and YouTube to try to offset side effects. I am 51 years old and was diagnosed five years ago with advanced prostate cancer Gleason score 9 and a few spots to the bones. pelvic area, spine and ribs.
Oct18
in
Advanced Prostate Cancer
6 months ago
PSA testing comparison question
I know that PSA results can vary, particularly if processed by different labs. Knowing this, I do have a question. Quick recap, I completed 20 rounds of radiation at UCLA with Kishan back in April of this year. At the same time, I began 6 months of ADT. Over the past few months, while getting my
I know that PSA results can vary, particularly if processed by different labs. Knowing this, I do have a question. Quick recap, I completed 20 rounds of radiation at UCLA with Kishan back in April of this year. At the same time, I began 6 months of ADT. Over the past few months, while getting my
LongevityAT
in
Advanced Prostate Cancer
6 months ago
The Results are in
Hello wonderful people. Just a quick update as I am so relieved I had to tell you. I have just put the phone down from my fabulous ENT Consultant. She had just received the results of the mass from the lab and wanted to tell me the good news. No cancer but an haemangioma. She confided that she had really
Hello wonderful people. Just a quick update as I am so relieved I had to tell you. I have just put the phone down from my fabulous ENT Consultant. She had just received the results of the mass from the lab and wanted to tell me the good news. No cancer but an haemangioma. She confided that she had really
CecilyParsley
in
LUPUS UK
2 months ago
PSMA scans and radiation of oligometastases
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
Horse12888
in
Advanced Prostate Cancer
6 months ago
Confused by Decipher Test
Hi all, new here. I signed up to finish reading an article and then saw these posts in an email to me. What a great resource for men with prostate cancer. My PSA went up to 4.4 and then had an MRI which showed a two suspicious lesions (PI-RADS 4 and a PI-RAD 3). Had a biopsy 3 weeks ago and it showed
Hi all, new here. I signed up to finish reading an article and then saw these posts in an email to me. What a great resource for men with prostate cancer. My PSA went up to 4.4 and then had an MRI which showed a two suspicious lesions (PI-RADS 4 and a PI-RAD 3). Had a biopsy 3 weeks ago and it showed
drzaius
in
Prostate Cancer Network
6 months ago
AUS revision surgery?
I'm seeking advice on having a second AUS surgery. My background: I had a prostatectomy in 2016 and radiation a year later because the cancerous tumor had penetrated the sack. I have since had undetected PSA but have suffered with severe stress incontinence. I had AUS surgery in 2018 but it failed because
I'm seeking advice on having a second AUS surgery. My background: I had a prostatectomy in 2016 and radiation a year later because the cancerous tumor had penetrated the sack. I have since had undetected PSA but have suffered with severe stress incontinence. I had AUS surgery in 2018 but it failed because
allnewstuff
in
Advanced Prostate Cancer
2 months ago
Biopsy results in 2 weeks - questions?
I've finally got an appointment to get the results of my prostate biopsy on Monday in 2 weeks time. It's taken quite a while. My PSA was 12 and an MRI scan showed a dodgy area on the front of the prostate. My PI-RADS score was 5. I was then booked for a biopsy which got deferred 3 times. I was told I
I've finally got an appointment to get the results of my prostate biopsy on Monday in 2 weeks time. It's taken quite a while. My PSA was 12 and an MRI scan showed a dodgy area on the front of the prostate. My PI-RADS score was 5. I was then booked for a biopsy which got deferred 3 times. I was told I
MarkS
in
Prostate Cancer Network
6 months ago
Feasibility of someone from out of USA joining a clinical trial in USA?
My father has Prostate cancer (stage IV) and High Grade Neuro-endocrine cancer / Small Cell Carcinoma in liver. His six doses of Chemotherapy (carboplatin + etoposide) that ended seven weeks earlier. My understanding is that chemotherapy is the established regimen for High Grade NE Cancer/SCC. Are
My father has Prostate cancer (stage IV) and High Grade Neuro-endocrine cancer / Small Cell Carcinoma in liver. His six doses of Chemotherapy (carboplatin + etoposide) that ended seven weeks earlier. My understanding is that chemotherapy is the established regimen for High Grade NE Cancer/SCC. Are
RindaMan
in
Advanced Prostate Cancer
2 months ago
Nano Knife Surgery
I recently underwent a brand new surgical procedure called nano knife. Dr. Mayank Patel in Encino California, a da Vinci robotic and TULSA pro expert surgeon recommended this procedure after a panel of doctors examined my MRI and CT scans. The procedure was successful and five months post surgery
I recently underwent a brand new surgical procedure called nano knife. Dr. Mayank Patel in Encino California, a da Vinci robotic and TULSA pro expert surgeon recommended this procedure after a panel of doctors examined my MRI and CT scans. The procedure was successful and five months post surgery
HangIn66
in
Prostate Cancer Network
2 months ago
Medichecks blood test results
I also take Edoxaban 60mg and 2.5 bisoprolol fumerate as I had an episode of AF in 2017, I have an Eylea injection each month for a BRVO, Letrozole anti-hormone tab to help prevent very early
breast
cancer
recurrence,(since 2021) as well as 20mg Lisinopril, Simvastatin and potassium sparing diruretic
I also take Edoxaban 60mg and 2.5 bisoprolol fumerate as I had an episode of AF in 2017, I have an Eylea injection each month for a BRVO, Letrozole anti-hormone tab to help prevent very early
breast
cancer
recurrence,(since 2021) as well as 20mg Lisinopril, Simvastatin and potassium sparing diruretic
Hidden
in
Thyroid UK
1 year ago
Moving on to hospice care
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
StayingSTRNG
in
Advanced Prostate Cancer
2 months ago
Next Steps
My brother was dDiagnosed in March 2023 with widespread prostate cancer metastasized to the spine, pelvic bones, ribs both left and right, and skull and lymph nodes. No progression to any organs. He had a orchiectomy, is on ABIRATERONE 500MG and has just completed six treatments of Doxetaxel .
My brother was dDiagnosed in March 2023 with widespread prostate cancer metastasized to the spine, pelvic bones, ribs both left and right, and skull and lymph nodes. No progression to any organs. He had a orchiectomy, is on ABIRATERONE 500MG and has just completed six treatments of Doxetaxel .
Sparlingo
in
Advanced Prostate Cancer
2 months ago
Prostate Biopsy / Ibrutinib
I am on Ibrutinib for my CLL. Do I stop taking my Ibrutinib for a few days prior and after the biopsy? Thank you.
I am on Ibrutinib for my CLL. Do I stop taking my Ibrutinib for a few days prior and after the biopsy? Thank you.
Dyba
in
CLL Support
2 months ago
First Post for husband and need advice please
This is our basic history. We have appt. with RO tomorrow to talk about next steps. Any advice and questions to ask is much appreciated. PSA- 12/2020 3.3 - 11/2021 4.83 - 04/2022 5.3 Biopsy-06/22- Gleason 3+4, RARP-09/26/2022, Pathology, JH -pT3apN1pM Gleason 3+4 grade 2, 20% pattern 4 of dominant
This is our basic history. We have appt. with RO tomorrow to talk about next steps. Any advice and questions to ask is much appreciated. PSA- 12/2020 3.3 - 11/2021 4.83 - 04/2022 5.3 Biopsy-06/22- Gleason 3+4, RARP-09/26/2022, Pathology, JH -pT3apN1pM Gleason 3+4 grade 2, 20% pattern 4 of dominant
MikeLa08
in
Prostate Cancer Network
2 months ago
radiation or no radiation
I Just updated my profile and am G-9 with PNI, IDC and lymphovascular invasion. Check 2 mutation as well but Decipher at .41. RP Dr V Patel march 2020 (T3b, negative margins and negative lymph nodes) and PSA undetectable until Sept 2023. Started at 0.021 and now Feb 22nd 2024 at 0.052. Seeing Dr
I Just updated my profile and am G-9 with PNI, IDC and lymphovascular invasion. Check 2 mutation as well but Decipher at .41. RP Dr V Patel march 2020 (T3b, negative margins and negative lymph nodes) and PSA undetectable until Sept 2023. Started at 0.021 and now Feb 22nd 2024 at 0.052. Seeing Dr
Peppertree602
in
Advanced Prostate Cancer
2 months ago
Feeling scared
Hi everyone. I’m feeling kinda crappy today. I was on ibrance and fulvestrant for almost a year and a half. I had to switch after progression to Everolimus and Exemestane. It’s been almost 2 months and my tumor markers have continued to rise. I saw the oncologist today who was in agreement that
Hi everyone. I’m feeling kinda crappy today. I was on ibrance and fulvestrant for almost a year and a half. I had to switch after progression to Everolimus and Exemestane. It’s been almost 2 months and my tumor markers have continued to rise. I saw the oncologist today who was in agreement that
Ticket123
in
SHARE Metastatic Breast Cancer
11 months ago
PSA moving way too fast .
My prostate was removed 2002 at which time my PSA went to -0 . Five years later it came back and since than it kept on going up very slow till 2020 when I had COVID-19 which almost killed me . As soo as I started feeling better my PSA went from 12 to 25 in a very short time . I do check it every six
My prostate was removed 2002 at which time my PSA went to -0 . Five years later it came back and since than it kept on going up very slow till 2020 when I had COVID-19 which almost killed me . As soo as I started feeling better my PSA went from 12 to 25 in a very short time . I do check it every six
Bowmaster
in
Advanced Prostate Cancer
7 months ago
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