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Adavanced Prostate Cancer with widespread bone Metastases with pain.
The Home Care Hospice Nurse advised Buec 5 patches + Oramorph liquid to take if he has spike through pain and requested that off the GP. The Oramorph even 1 ml gave my husband nightmares and panic attacks, especially during the night We have asked for a CT Scan to see how the metastases progression
The Home Care Hospice Nurse advised Buec 5 patches + Oramorph liquid to take if he has spike through pain and requested that off the GP. The Oramorph even 1 ml gave my husband nightmares and panic attacks, especially during the night We have asked for a CT Scan to see how the metastases progression
Janhpr
in
Advanced Prostate Cancer
21 days ago
CRS4PC and Zytiga side effects ?
My hubby is 69 and recently started Zytiga three weeks ago and it seems that he has developed moderate fatigue and low appetite since one week ago. I’m wondering if this could be a side effect of the Zytiga or if anyone thinks it’s an immunity infection attack.
My hubby is 69 and recently started Zytiga three weeks ago and it seems that he has developed moderate fatigue and low appetite since one week ago. I’m wondering if this could be a side effect of the Zytiga or if anyone thinks it’s an immunity infection attack.
Corgi16
in
Advanced Prostate Cancer
6 months ago
I was diagnosed with Squamous Cell Carcinoma on my chin today.
Presumably this is a secondary tumor from my CLL. The problem that I am experiencing is that the tumor has been left to grow for quite some time. The last time I spoke with Dr Fakhri at Stanford was 5 months ago, and she was happy that my CLL has been so stable. I noticed something growing in my
Presumably this is a secondary tumor from my CLL. The problem that I am experiencing is that the tumor has been left to grow for quite some time. The last time I spoke with Dr Fakhri at Stanford was 5 months ago, and she was happy that my CLL has been so stable. I noticed something growing in my
Jonquiljo
in
CLL Support
22 days ago
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Radiation and CA125 increase
I had surgery last November to remove a large tumor along with my ovaries (already had a hysterectomy). In June, a CT scan showed the lymph nodes in my pelvis were growing and a biopsy confirmed that the cancer had spread (or was there all along). I started radiation therapy and had bloodwork done
I had surgery last November to remove a large tumor along with my ovaries (already had a hysterectomy). In June, a CT scan showed the lymph nodes in my pelvis were growing and a biopsy confirmed that the cancer had spread (or was there all along). I started radiation therapy and had bloodwork done
SpecialUnicorn
in
My Ovacome
22 days ago
Rising PSA
What are the most Accurate scans for detecting hot spots of cancer? Husband has had several PSMA scans and CT with contrast yet nothing shows up. He had one lymph show up in 2017 on an Auxium scan and it was radiated. 7 years later PSA rising… up to 14. Yet scans show nothing definitive. CT with
What are the most Accurate scans for detecting hot spots of cancer? Husband has had several PSMA scans and CT with contrast yet nothing shows up. He had one lymph show up in 2017 on an Auxium scan and it was radiated. 7 years later PSA rising… up to 14. Yet scans show nothing definitive. CT with
JolleySprings
in
Advanced Prostate Cancer
6 months ago
strange drop in PSA
My PSA dropped from 1.03 in July 2023 to 0.248 in February 2024. It's never been anywhere near this low, since I began getting tested in my 50s, even before I was diagnosed in 2008 (Gleason 7). I'm 77. I'm not on ADT, don't have metastatic disease. Since HIFU in 2015, which was a hemi-ablation but left
My PSA dropped from 1.03 in July 2023 to 0.248 in February 2024. It's never been anywhere near this low, since I began getting tested in my 50s, even before I was diagnosed in 2008 (Gleason 7). I'm 77. I'm not on ADT, don't have metastatic disease. Since HIFU in 2015, which was a hemi-ablation but left
kapakahi
in
Prostate Cancer Network
6 months ago
Next step
x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
Elbers123
in
Advanced Prostate Cancer
6 months ago
Testosterone
39 sessions of SBRT ended Jan 2020. HDT ended Feb 2021 Labs Feb 2024: PSA - undetectable Testosterone 283 Would like to supplement testosterone for better QOL. Urologist not helping but primary Dr will help/monitor. Would like to hear opinions or suggestions both pro & con
39 sessions of SBRT ended Jan 2020. HDT ended Feb 2021 Labs Feb 2024: PSA - undetectable Testosterone 283 Would like to supplement testosterone for better QOL. Urologist not helping but primary Dr will help/monitor. Would like to hear opinions or suggestions both pro & con
BadNews4me
in
Prostate Cancer Network
6 months ago
PSA uptick
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
mediocra
in
Advanced Prostate Cancer
6 months ago
Brothers great news
My brother had bowel stage 4 cancer , stoma bag operation on the cards. , BUT after radiotherapy and chemo. He is Clear. What a relief. He can even go back to work. To see hospital every three months but so pleased for him. I'm doing ok as well, put on D3 and B12 tablets. Two of each each day. Can live
My brother had bowel stage 4 cancer , stoma bag operation on the cards. , BUT after radiotherapy and chemo. He is Clear. What a relief. He can even go back to work. To see hospital every three months but so pleased for him. I'm doing ok as well, put on D3 and B12 tablets. Two of each each day. Can live
mag123ben
in
MPN Voice
24 days ago
Autovaccination seems a hot topic lately: Mt. Sinai autovaccination technique to turn cold prostate cancer hot (Phase 1)
ok, I am exposing myself to j-o-h-n in more than one way with that title... This is for regional leagues (locally advanced PCa), while we are the NFL of prostate cancer here, but the fact that a cold cancer was turned hot is very promising as it has always been the main limit of immuno therapies applied
ok, I am exposing myself to j-o-h-n in more than one way with that title... This is for regional leagues (locally advanced PCa), while we are the NFL of prostate cancer here, but the fact that a cold cancer was turned hot is very promising as it has always been the main limit of immuno therapies applied
Maxone73
in
Advanced Prostate Cancer
5 months ago
3b MLA of ovary
hiya everyone I’m starting my 1st chemo tomorrow having carboplatin Paclitaxel and bevacizumab feeling very nervous. I had surgery and was told I had 3b MLA of the ovary can anyone give me advice what is is best to take with me and thing o help after chem thanks.
hiya everyone I’m starting my 1st chemo tomorrow having carboplatin Paclitaxel and bevacizumab feeling very nervous. I had surgery and was told I had 3b MLA of the ovary can anyone give me advice what is is best to take with me and thing o help after chem thanks.
LKII
in
My Ovacome
25 days ago
Starting treatments
Had a setback due to being hospitalized in the ICU for a month and a half. Went to the Oncologist last week and about to start some aggressive treatment as I have a very aggressive prostate cancer. The oncologist on duty at the hospital had an MRI done to show where the metastasized bone cancer is located
Had a setback due to being hospitalized in the ICU for a month and a half. Went to the Oncologist last week and about to start some aggressive treatment as I have a very aggressive prostate cancer. The oncologist on duty at the hospital had an MRI done to show where the metastasized bone cancer is located
PARKER3237
in
Advanced Prostate Cancer
26 days ago
Started hospice
My dad has had a significant decline over the past three weeks since seeing my dad’s oncologist. We had a petscan that showed an advancement into three new bones and the old cancer that was “sleeping” has woken up. Zytiga never worked. About two weeks ago my dad started sleeping 15-20 hours a day
My dad has had a significant decline over the past three weeks since seeing my dad’s oncologist. We had a petscan that showed an advancement into three new bones and the old cancer that was “sleeping” has woken up. Zytiga never worked. About two weeks ago my dad started sleeping 15-20 hours a day
lgutman
in
Advanced Prostate Cancer
26 days ago
apixaban and hematuria
Has anyone else had this issue? I have now had second serious episode of hematuria ( gross blood in my urine ) that was initially diagnosed as likely UTI, but later not confirmed by tests, and have been told it’s likely a result of my taking blood thinner. I am curious 🤨. My blood work showed small
Has anyone else had this issue? I have now had second serious episode of hematuria ( gross blood in my urine ) that was initially diagnosed as likely UTI, but later not confirmed by tests, and have been told it’s likely a result of my taking blood thinner. I am curious 🤨. My blood work showed small
37Polly
in
Atrial Fibrillation Support
26 days ago
HAS ANYONE EVER TRIED ELECTRICAL STIMULATION OF A TUMOR?
I'm experimenting with an EMS (muscle exercise machine that uses electrodes and electrical stimulation for muscle growth and healing) on a collection of swollen lymph glands on my left pelvis (probably cancerous - feels like a mass more than a collection of lymph nodes...waiting for CT results and oncologist
I'm experimenting with an EMS (muscle exercise machine that uses electrodes and electrical stimulation for muscle growth and healing) on a collection of swollen lymph glands on my left pelvis (probably cancerous - feels like a mass more than a collection of lymph nodes...waiting for CT results and oncologist
Jsbach1953
in
Advanced Prostate Cancer
27 days ago
BNT324/DB-1311 Receives Fast Track Designation From FDA for mCRPC
Fast track designation has been granted by the FDA to the antibody-drug conjugate (ADC) BNT324/DB-1311 to potentially treat patients with unresectable advanced or metastatic castration-resistant prostate cancer (mCRPC) whose disease had progressed on or after standard systemic regimens.1 The next-generation
Fast track designation has been granted by the FDA to the antibody-drug conjugate (ADC) BNT324/DB-1311 to potentially treat patients with unresectable advanced or metastatic castration-resistant prostate cancer (mCRPC) whose disease had progressed on or after standard systemic regimens.1 The next-generation
God_Loves_Me
in
Advanced Prostate Cancer
27 days ago
Advice on my Situation
Just finished my first year on AS. My initial biopsy and the most recent one were both downgraded by Johns Hopkins.
Most recent biopsy findings from JH:
Gleason 3+3: Two cores (30%,40%) Gleason 3+3: Two cores (5%,60%) My intitial MRI last year was graded as a Pirad 5. My second MRI
Just finished my first year on AS. My initial biopsy and the most recent one were both downgraded by Johns Hopkins.
Most recent biopsy findings from JH:
Gleason 3+3: Two cores (30%,40%) Gleason 3+3: Two cores (5%,60%) My intitial MRI last year was graded as a Pirad 5. My second MRI
tcott54
in
Prostate Cancer Network
28 days ago
First recurrence, which coctail to choose?
Dear Ladies, My worst nightmare came true. I had some indications on CT scan already in January, that something is cooking. In June CA125 was increased to 100 and another scan was done that confirmed more activity incl some new ascites in abdomen and 1,5 cm hyperdensity in liver. We were then a
Dear Ladies, My worst nightmare came true. I had some indications on CT scan already in January, that something is cooking. In June CA125 was increased to 100 and another scan was done that confirmed more activity incl some new ascites in abdomen and 1,5 cm hyperdensity in liver. We were then a
Beatyourself
in
My Ovacome
28 days ago
5FU/CAL, any experience? (5 fluorouracil/calcipotriene)
Just wondering if anyone has had treatment for actinic keratosis on the nose or face? I just started treatment for multiple AK's on the nose with FU/CAL cream (5FU-Calcipotriene compound) I have read that it activates lymphocytes and wondering if anyone using this compound has experienced any changes
Just wondering if anyone has had treatment for actinic keratosis on the nose or face? I just started treatment for multiple AK's on the nose with FU/CAL cream (5FU-Calcipotriene compound) I have read that it activates lymphocytes and wondering if anyone using this compound has experienced any changes
Meatloaf9
in
MPN Voice
28 days ago
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