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Any tips for recovery please
Had 2/3 of my right lung removed beginning of January for yet unknown lung cancer (Will see consultant for pathology this week) I coped alone with recovery but was do able. 2 Weeks ago after visiting A&E and a CT scan, I was found to have Pulmonary Embolisms in both lungs and Pneumonia in surgery lung
Had 2/3 of my right lung removed beginning of January for yet unknown lung cancer (Will see consultant for pathology this week) I coped alone with recovery but was do able. 2 Weeks ago after visiting A&E and a CT scan, I was found to have Pulmonary Embolisms in both lungs and Pneumonia in surgery lung
xinte60
in
The Roy Castle Lung Cancer Foundation
3 months ago
Unexpected early end to ADT
I have been on Orgovyx for 14 months. Intended to complete 18 months and then stop. When I re-applied to the Orgovyx Patient Assistance Program for the 2024 year, I provided my 2022 tax return. The reviewer would not accept it and asked for my 2023 tax return, which, being self employed, will not be
I have been on Orgovyx for 14 months. Intended to complete 18 months and then stop. When I re-applied to the Orgovyx Patient Assistance Program for the 2024 year, I provided my 2022 tax return. The reviewer would not accept it and asked for my 2023 tax return, which, being self employed, will not be
Prostateless2020
in
Prostate Cancer Network
3 months ago
Can we trust AI analysis?
Like many of you I was faced with two major decisions when I was diagnosed with Intermediate high risk prostate cancer. Surgery vs Radiation and ADT short term vs long term. In short I chose radiation and short term ADT - 2 months prior to radiation and 4 months post. In addition I chose to have my
Like many of you I was faced with two major decisions when I was diagnosed with Intermediate high risk prostate cancer. Surgery vs Radiation and ADT short term vs long term. In short I chose radiation and short term ADT - 2 months prior to radiation and 4 months post. In addition I chose to have my
Mgtd
in
Prostate Cancer Network
3 months ago
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Info about docetaxel
I have been at Stage 4 for 7 1/2 years. and a succession of Xtandi, Nubequa, and Zytega along with Lupron has kept my PSA under two although each has eventually failed (PSA quickly rising above 1.0). My recent blood draw resulted in a jump from 0.78 to 1.29 while I was on the Aberaterone/prednisone protocol
I have been at Stage 4 for 7 1/2 years. and a succession of Xtandi, Nubequa, and Zytega along with Lupron has kept my PSA under two although each has eventually failed (PSA quickly rising above 1.0). My recent blood draw resulted in a jump from 0.78 to 1.29 while I was on the Aberaterone/prednisone protocol
33947
in
Advanced Prostate Cancer
3 months ago
Intersitial Lung Disease and Lung Cancer
Dear All, My father has stage 3B Lung Cancer which he was diagnosed just over 18 months ago now. He also has intersitial lung disease (which he didnt realise before treatment) so is limited to treatments. He did have 4 rounds of chemotherapy August to October 2022, and did have a fair amount of
Dear All, My father has stage 3B Lung Cancer which he was diagnosed just over 18 months ago now. He also has intersitial lung disease (which he didnt realise before treatment) so is limited to treatments. He did have 4 rounds of chemotherapy August to October 2022, and did have a fair amount of
Clairebrocks
in
The Roy Castle Lung Cancer Foundation
3 months ago
Which treatment option best for recurrent oligo?
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
Purple-Bike
in
Advanced Prostate Cancer
3 months ago
Fenbendazole
My uncle, a very fit 88-year old, was diagnosed with prostate cancer 3 1/2 years ago and while the hormonal treatment kept it in check for a couple of years, his PSA has now risen to 1600 and the scans show has spread to his bones. He has been tinkering with different hormonal regimes, abiraterone
My uncle, a very fit 88-year old, was diagnosed with prostate cancer 3 1/2 years ago and while the hormonal treatment kept it in check for a couple of years, his PSA has now risen to 1600 and the scans show has spread to his bones. He has been tinkering with different hormonal regimes, abiraterone
Granolaloaf
in
Advanced Prostate Cancer
3 months ago
Breathing problem.
Even though 6 months ago I was told I was stage 4 and Gleason 9 the use of Orgovyx and Zytiga have brought my PSA from 72 to 0.4, and my numerous cancer hot spots appear under control. My PSA continues to go down and I'm without pain. However, I find myself breathing very hard just climbing a flight
Even though 6 months ago I was told I was stage 4 and Gleason 9 the use of Orgovyx and Zytiga have brought my PSA from 72 to 0.4, and my numerous cancer hot spots appear under control. My PSA continues to go down and I'm without pain. However, I find myself breathing very hard just climbing a flight
Poollover
in
Advanced Prostate Cancer
3 months ago
first timer
just received diagnosis mets to bone 3wks ago. i am on xtandi and orgovyx the psa droped from 70 to 4.6 after 2wks. any thoughts?
just received diagnosis mets to bone 3wks ago. i am on xtandi and orgovyx the psa droped from 70 to 4.6 after 2wks. any thoughts?
billsfan
in
Advanced Prostate Cancer
3 months ago
Bicalutamide (Casodex) then Eligard - Question
OK, Another quick question. I've been on Bical for 11 days and in 3 days I get my first 1 month injection of Eligard. I have had almost zero side effects with Bical, maybe a little extra fatigue but hardly noticeable. Does this mean that perhaps I will tolerate Eligard better than what some people experience
OK, Another quick question. I've been on Bical for 11 days and in 3 days I get my first 1 month injection of Eligard. I have had almost zero side effects with Bical, maybe a little extra fatigue but hardly noticeable. Does this mean that perhaps I will tolerate Eligard better than what some people experience
Mike58
in
Advanced Prostate Cancer
3 months ago
enzalutamide
Hi I lost my dad a year ago but enzalutamide slowed the progression and shrunk the met also alleviating pain. This is taken in tablet form and offered as an alternative to chemotherapy. Hope this might help.
Hi I lost my dad a year ago but enzalutamide slowed the progression and shrunk the met also alleviating pain. This is taken in tablet form and offered as an alternative to chemotherapy. Hope this might help.
Pinkpeanuts07
in
Advanced Prostate Cancer
3 months ago
PSA update
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
wolverine11
in
Advanced Prostate Cancer
3 months ago
Feeling fed up
Hi, just been told I'm to start chemo again in coupleoif weeks so gutted and fed up. Caelyx this time as carbo taxol didnt last 6 months. How was it? I've always had carboplatin/ packlitaxol up till now Coming up to 4years since I joined the OC club. Had chemo / radical op/ chemo/ olaparib/ more chemo
Hi, just been told I'm to start chemo again in coupleoif weeks so gutted and fed up. Caelyx this time as carbo taxol didnt last 6 months. How was it? I've always had carboplatin/ packlitaxol up till now Coming up to 4years since I joined the OC club. Had chemo / radical op/ chemo/ olaparib/ more chemo
Casamimosa
in
My Ovacome
3 months ago
What's different between Xtandi vs NUBEQA® (darolutamide) vs ERLEADA® (apalutamide)
Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi did not work, and PSA started going up; I suggested to the doctor to prescribe other medicine ( NUBEQA® (darolutamide) or ERLEADA® (apalutamide) based on this group's recommendations. Dr keeps telling me NO and tells
Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi did not work, and PSA started going up; I suggested to the doctor to prescribe other medicine ( NUBEQA® (darolutamide) or ERLEADA® (apalutamide) based on this group's recommendations. Dr keeps telling me NO and tells
God_Loves_Me
in
Advanced Prostate Cancer
3 months ago
NEPC RESEARCH
Any research done on NEPC (neuroendocrine prostate cancer) ie ademo that morphs into a neuroendocrine carcinoma?
Any research done on NEPC (neuroendocrine prostate cancer) ie ademo that morphs into a neuroendocrine carcinoma?
safari123
in
Advanced Prostate Cancer
3 months ago
stage 4 prostrate cancer
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
bubbacora
in
Advanced Prostate Cancer
3 months ago
Update for kestrel5
Diagnosed in Spring 2010 (Stage IIB - pT2c, N0, M0). Lung mets confirmed in September 2015. I am, as they say, heavily pre-treated. Recent scans and bloodwork: no evidence of cancer, three years of undetectable PSA. Never say 'cured,' but I am enjoying a period of durable treatment effects.
Diagnosed in Spring 2010 (Stage IIB - pT2c, N0, M0). Lung mets confirmed in September 2015. I am, as they say, heavily pre-treated. Recent scans and bloodwork: no evidence of cancer, three years of undetectable PSA. Never say 'cured,' but I am enjoying a period of durable treatment effects.
Kestrel5
in
Advanced Prostate Cancer
3 months ago
Pluvicto still working well
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Miccoman
in
Advanced Prostate Cancer
3 months ago
Humorous/informative videos on prostate cancer
…at least I hope so. I’ve been documenting “My Journey With Prostate Cancer” in hopes of amusing myself and others. Please don’t watch if you think humor is verboten in regards to cancer. https://youtube.com/playlist?list=PLnTvlPIMC_V3Otqe-SUGyufm4STqY3wYa&si=bLnPUuDrOrWXPkAN
…at least I hope so. I’ve been documenting “My Journey With Prostate Cancer” in hopes of amusing myself and others. Please don’t watch if you think humor is verboten in regards to cancer. https://youtube.com/playlist?list=PLnTvlPIMC_V3Otqe-SUGyufm4STqY3wYa&si=bLnPUuDrOrWXPkAN
Caldonia
in
Advanced Prostate Cancer
3 months ago
terrified of oc
during a routine gynae appt I was found to have a fallopian tube complex mass with septations and solid components inside. I am 36 and we were trying to conceive. Now they think I have cancer and need surgery to remove everything. I am terrified
during a routine gynae appt I was found to have a fallopian tube complex mass with septations and solid components inside. I am 36 and we were trying to conceive. Now they think I have cancer and need surgery to remove everything. I am terrified
Vivibeatris
in
My Ovacome
3 months ago
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