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Events for people affected by lung cancer
Hello all, We are starting a series of Information Days in a few weeks. These events which run from 9.45 - 3.30 are designed to offer information about managing diagnosis, treatment and services that can offer practical and emotional support. There is time for talking to other people and asking questions
Hello all, We are starting a series of Information Days in a few weeks. These events which run from 9.45 - 3.30 are designed to offer information about managing diagnosis, treatment and services that can offer practical and emotional support. There is time for talking to other people and asking questions
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
3 months ago
Diagnosed almost 3 years ago
I am a 70 year old diagnosed in 8/21 with G9 on biopsy with initial imaging negative for metastatic disease. Underwent RP in 10/21 with seminal vesicle involvement. A few sampled nodes were negative. 5 months after surgery PSA climbed to 0.39 from 0.016 in first post op test. PSMA PET revealed a solitary
I am a 70 year old diagnosed in 8/21 with G9 on biopsy with initial imaging negative for metastatic disease. Underwent RP in 10/21 with seminal vesicle involvement. A few sampled nodes were negative. 5 months after surgery PSA climbed to 0.39 from 0.016 in first post op test. PSMA PET revealed a solitary
Retireddoc
in
Advanced Prostate Cancer
3 months ago
How long does SBRT to two lymph nodes continue to lower PSA?
Just wondering…does SBRT continue to drop PSA for any length of time? Or is it five sessions and it is what it is then? Curious if I can see further PSA reduction after 5 sessions to one node, then 5 to a second node. No prostate. See the treating RO in a couple of days, but thought I would ask
Just wondering…does SBRT continue to drop PSA for any length of time? Or is it five sessions and it is what it is then? Curious if I can see further PSA reduction after 5 sessions to one node, then 5 to a second node. No prostate. See the treating RO in a couple of days, but thought I would ask
Cancer2x
in
Advanced Prostate Cancer
3 months ago
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Please join us tomorrow, Tuesday February 20th, for our Living Room Discussion on Women and Lung Cancer
Hello, Please join us in our San Carlos office tomorrow, Tuesday February 20th in person or if you don’t live in the area, you can always join us virtually on GO2's YouTube Live channel. Our program topic will be Women and Lung Cancer. Our guest speaker is Narjust Florez, MD, Associate Director of
Hello, Please join us in our San Carlos office tomorrow, Tuesday February 20th in person or if you don’t live in the area, you can always join us virtually on GO2's YouTube Live channel. Our program topic will be Women and Lung Cancer. Our guest speaker is Narjust Florez, MD, Associate Director of
Michelezeh
Partner
in
Lung Cancer Support
3 months ago
Prostate cancer made to my brain, skull and muscles in my head
Well, that’s something isn’t it? Have you ever seen that much cancer in someone’s head? Both my radiation oncologist and my and my regular oncologist at City of Hope said that this is something very unusual for prostate cancer to do. So there getting all of it for research to investigate what the
Well, that’s something isn’t it? Have you ever seen that much cancer in someone’s head? Both my radiation oncologist and my and my regular oncologist at City of Hope said that this is something very unusual for prostate cancer to do. So there getting all of it for research to investigate what the
Gl448
in
Advanced Prostate Cancer
3 months ago
New Mets, PSA 0.4
Hi everyone, I’m so worry for my dad, he has been dealing with this disease since 2019, he was put on vacation 2 years ago and for the last 2 years off medication his PSA was around 0.01, life was good and we were happy for him until his last two psa tests which jumped to 0.4 ! He had a scan and one
Hi everyone, I’m so worry for my dad, he has been dealing with this disease since 2019, he was put on vacation 2 years ago and for the last 2 years off medication his PSA was around 0.01, life was good and we were happy for him until his last two psa tests which jumped to 0.4 ! He had a scan and one
godhelpus
in
Advanced Prostate Cancer
3 months ago
CRS4PC and Zytiga side effects ?
My hubby is 69 and recently started Zytiga three weeks ago and it seems that he has developed moderate fatigue and low appetite since one week ago. I’m wondering if this could be a side effect of the Zytiga or if anyone thinks it’s an immunity infection attack.
My hubby is 69 and recently started Zytiga three weeks ago and it seems that he has developed moderate fatigue and low appetite since one week ago. I’m wondering if this could be a side effect of the Zytiga or if anyone thinks it’s an immunity infection attack.
Corgi16
in
Advanced Prostate Cancer
3 months ago
Rising PSA
What are the most Accurate scans for detecting hot spots of cancer? Husband has had several PSMA scans and CT with contrast yet nothing shows up. He had one lymph show up in 2017 on an Auxium scan and it was radiated. 7 years later PSA rising… up to 14. Yet scans show nothing definitive. CT with
What are the most Accurate scans for detecting hot spots of cancer? Husband has had several PSMA scans and CT with contrast yet nothing shows up. He had one lymph show up in 2017 on an Auxium scan and it was radiated. 7 years later PSA rising… up to 14. Yet scans show nothing definitive. CT with
JolleySprings
in
Advanced Prostate Cancer
3 months ago
strange drop in PSA
My PSA dropped from 1.03 in July 2023 to 0.248 in February 2024. It's never been anywhere near this low, since I began getting tested in my 50s, even before I was diagnosed in 2008 (Gleason 7). I'm 77. I'm not on ADT, don't have metastatic disease. Since HIFU in 2015, which was a hemi-ablation but left
My PSA dropped from 1.03 in July 2023 to 0.248 in February 2024. It's never been anywhere near this low, since I began getting tested in my 50s, even before I was diagnosed in 2008 (Gleason 7). I'm 77. I'm not on ADT, don't have metastatic disease. Since HIFU in 2015, which was a hemi-ablation but left
kapakahi
in
Prostate Cancer Network
3 months ago
Next step
x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
Elbers123
in
Advanced Prostate Cancer
3 months ago
Testosterone
39 sessions of SBRT ended Jan 2020. HDT ended Feb 2021 Labs Feb 2024: PSA - undetectable Testosterone 283 Would like to supplement testosterone for better QOL. Urologist not helping but primary Dr will help/monitor. Would like to hear opinions or suggestions both pro & con
39 sessions of SBRT ended Jan 2020. HDT ended Feb 2021 Labs Feb 2024: PSA - undetectable Testosterone 283 Would like to supplement testosterone for better QOL. Urologist not helping but primary Dr will help/monitor. Would like to hear opinions or suggestions both pro & con
BadNews4me
in
Prostate Cancer Network
3 months ago
PSA uptick
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
mediocra
in
Advanced Prostate Cancer
3 months ago
PSMA results
Here is the summary impression: IMPRESSION: * Prostate: PSMA (+) disease in the anterior mid- zone and apex of the prostate, consistent with primary malignancy. * Nodes: No tracer- avid pelvic, retroperitoneal, or mesenteric adenopathy * Distant metastases: No visceral or osseous metastatic
Here is the summary impression: IMPRESSION: * Prostate: PSMA (+) disease in the anterior mid- zone and apex of the prostate, consistent with primary malignancy. * Nodes: No tracer- avid pelvic, retroperitoneal, or mesenteric adenopathy * Distant metastases: No visceral or osseous metastatic
hwrjr
in
Prostate Cancer Network
3 months ago
6 months after MRI Guided SBRT at MSK
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
rosenjpj
in
Advanced Prostate Cancer
3 months ago
Radiation PSA, Orgovyx, Bone density Update 2/18/24
Rouge clone radiation on 10/31/23 has PSA from 4.83 on 11/20/23 to 0.85 on 12/18. HOWEVER, PSA up to 1.48 on 1/29/24 then 2.48 on 2/15/24. Waiting MO response but anticipate PET scan, radiation and/or switch to Xtandi. Was hoping to ride the Zytiga therapy as long as possible but I may be there now.
Rouge clone radiation on 10/31/23 has PSA from 4.83 on 11/20/23 to 0.85 on 12/18. HOWEVER, PSA up to 1.48 on 1/29/24 then 2.48 on 2/15/24. Waiting MO response but anticipate PET scan, radiation and/or switch to Xtandi. Was hoping to ride the Zytiga therapy as long as possible but I may be there now.
alperk
in
Advanced Prostate Cancer
3 months ago
Father’s CRPCa Failed chemo (Cabazitaxel,Docetaxel) and Failed LU177
Father’s current Age: 78 At age 70, Diagnosed with Pca in 2015 after seeing initial PSA as ~ 270. 2015 - 2019 - BICALUTAMIDE - Failed 2019 - 2020 - Radiation- Ineffective 2020 Oct - 2021 October - Zytiga (Aberiterone) - Failed - PSA 98 2021 Dec - 2022 Apr - Docetaxel- Ineffective - PSA 120 2022
Father’s current Age: 78 At age 70, Diagnosed with Pca in 2015 after seeing initial PSA as ~ 270. 2015 - 2019 - BICALUTAMIDE - Failed 2019 - 2020 - Radiation- Ineffective 2020 Oct - 2021 October - Zytiga (Aberiterone) - Failed - PSA 98 2021 Dec - 2022 Apr - Docetaxel- Ineffective - PSA 120 2022
Vishwa1890
in
Advanced Prostate Cancer
3 months ago
Good news. Hope it can help others.
Hello fellow warriors. I’m 52 , was diagnosed in July 23 with stage 4 PC , mets to bones and lymph nodes. Psa 258 , Gleason 9. Just met with my MO for latest scan results. PSA has steadily gone down, currently 0.17 . Lymph nodes are clear. Still have mets to several areas to bones but holding steady
Hello fellow warriors. I’m 52 , was diagnosed in July 23 with stage 4 PC , mets to bones and lymph nodes. Psa 258 , Gleason 9. Just met with my MO for latest scan results. PSA has steadily gone down, currently 0.17 . Lymph nodes are clear. Still have mets to several areas to bones but holding steady
BillyVolt
in
Advanced Prostate Cancer
3 months ago
Rapidly Rising PSA
without going into too much detail I was treated with SBRT for mets on my spine that showed up on a ga68 PSMA Pet scan in july 2021 I have been on Zoladex for 4 years and Xtandi for 20 months My PSA in Nov 2022 was 0.27 by Nov 2023 it was up to 2.40 and now Feb 2024 it is 5.70 Time for a PSMA
without going into too much detail I was treated with SBRT for mets on my spine that showed up on a ga68 PSMA Pet scan in july 2021 I have been on Zoladex for 4 years and Xtandi for 20 months My PSA in Nov 2022 was 0.27 by Nov 2023 it was up to 2.40 and now Feb 2024 it is 5.70 Time for a PSMA
Ian996
in
Advanced Prostate Cancer
3 months ago
Metastatic prostate cancer in the lungs
Radical prostatectomy in 2003 with PSA of 3.9. PSA slowly rose to .07 in 2023. PET scan in May, 2023 found nodules in my lungs with the largest being 1.4 cm. Needle biopsy identified it as metastatic adenocarcinoma from prostatic origin. 5 sessions of 50Gy cyberknife treatments on the 1.4 cm nodule
Radical prostatectomy in 2003 with PSA of 3.9. PSA slowly rose to .07 in 2023. PET scan in May, 2023 found nodules in my lungs with the largest being 1.4 cm. Needle biopsy identified it as metastatic adenocarcinoma from prostatic origin. 5 sessions of 50Gy cyberknife treatments on the 1.4 cm nodule
S4survivor
in
Advanced Prostate Cancer
3 months ago
prostate met to esophagus
on the road for 9 years. Short story.. biopsy 4+3. Surg. Found in margins, pelvic lymphs. PSA 3 after. C11 found in lymph in chest. Chemo, then zytiga, Lupron, then 37 radiation, and meds then meds a year. Non detectable NED 7 years no meds tx 6 years. PSA started going up, slowly, bout 18 mo
on the road for 9 years. Short story.. biopsy 4+3. Surg. Found in margins, pelvic lymphs. PSA 3 after. C11 found in lymph in chest. Chemo, then zytiga, Lupron, then 37 radiation, and meds then meds a year. Non detectable NED 7 years no meds tx 6 years. PSA started going up, slowly, bout 18 mo
Kittenlover50
in
Advanced Prostate Cancer
3 months ago
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