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Brain arteriovenous malformation (AVM)
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Weird Physical Symptoms
Hi everyone, I’ve had some weird physical symptoms for a while. It all started with a nasty sinus infection about 2 months ago. Since then my symptoms have been persistent and changing and I know I’ve been really anxious so I try to tell myself that these are anxiety symptoms but I keep freaking myself
Hi everyone, I’ve had some weird physical symptoms for a while. It all started with a nasty sinus infection about 2 months ago. Since then my symptoms have been persistent and changing and I know I’ve been really anxious so I try to tell myself that these are anxiety symptoms but I keep freaking myself
Nervy57
in
Anxiety Support
6 years ago
Cranioplasty #2
Two year ago - Jan 2017- I received a PMMA 3D printed cranioplasty. The month before I had been hit by a motorbike while on a pedestrian crossing. I had an emergency craniotomy that day, my C5 was broken, I have left side hemianopia and had right side hemiparisis. 2017 was a year of recovery in which
Two year ago - Jan 2017- I received a PMMA 3D printed cranioplasty. The month before I had been hit by a motorbike while on a pedestrian crossing. I had an emergency craniotomy that day, my C5 was broken, I have left side hemianopia and had right side hemiparisis. 2017 was a year of recovery in which
Katewgibbs
in
Headway
6 years ago
DBS Neuropsychiatric evaluation pretest
Can anyone please shed some light on what is involved in the 4-Hour Neuropsychiatric pretest evaluation? I'm scheduled for DBS surgery on the 28th of February. I'm not a great test taker and I'm worried.
Can anyone please shed some light on what is involved in the 4-Hour Neuropsychiatric pretest evaluation? I'm scheduled for DBS surgery on the 28th of February. I'm not a great test taker and I'm worried.
Buddba58
in
Cure Parkinson's
6 years ago
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Shingles?
Meeting a friend for lunch,she is recovering from shingles ,should I keep my distance? Also been offered vaccine ,is it safe if you have G.CA.?
Meeting a friend for lunch,she is recovering from shingles ,should I keep my distance? Also been offered vaccine ,is it safe if you have G.CA.?
Seagu11
in
PMRGCAuk
6 years ago
Periodic paralysis and thyroxine
Hi I have serious issues taking my thyroxine medication. If I take too much or my TSH goes too low I go very weak and my legs either won’t work properly or I’m so bad I can’t get off the floor. I’m fully aware of what’s going on during these attacks and never faint this can also happen from any form
Hi I have serious issues taking my thyroxine medication. If I take too much or my TSH goes too low I go very weak and my legs either won’t work properly or I’m so bad I can’t get off the floor. I’m fully aware of what’s going on during these attacks and never faint this can also happen from any form
McPammy
in
Thyroid UK
6 years ago
Shingle shot!
Is the shot for shingles ok to get or is it a big no no!!
Is the shot for shingles ok to get or is it a big no no!!
Nanatoo4
in
CLL Support
6 years ago
Boston Scientific VS Medtronic DBS
I’m curious if there’s anyone that has had their Medtronic unit replaced with a Boston Scientific. If so, what are your impressions and experiences.
I’m curious if there’s anyone that has had their Medtronic unit replaced with a Boston Scientific. If so, what are your impressions and experiences.
etterus
in
Cure Parkinson's
6 years ago
Moved to new condo, he is falling everywhere
Hi, it’s been a while since I’ve been here. Tuesday Jan 22, my husband had his neuro appointment checkup. They upped his DBS devices to 3.7 & 3.9. Doctor said he seemed he was doing a bit better. I bought him the Parkinson’s walker, with the laser. Hand grips to release wheels. It’s been helping him
Hi, it’s been a while since I’ve been here. Tuesday Jan 22, my husband had his neuro appointment checkup. They upped his DBS devices to 3.7 & 3.9. Doctor said he seemed he was doing a bit better. I bought him the Parkinson’s walker, with the laser. Hand grips to release wheels. It’s been helping him
3Fishies
in
Cure Parkinson's
6 years ago
Having DBS done?
I was wondering if anyone out there has had DBS. My doctor says nows the time for me to get it, and I would like to talk to other people who have had it done, and have they had a bad side effects from it. I live in Chicago and am thinking about going to RUSH hospital. Any info would be helpful. Thanks
I was wondering if anyone out there has had DBS. My doctor says nows the time for me to get it, and I would like to talk to other people who have had it done, and have they had a bad side effects from it. I live in Chicago and am thinking about going to RUSH hospital. Any info would be helpful. Thanks
shakietwo
in
Cure Parkinson's
6 years ago
Why is totally suppressed TSH only for post thyroid cancer patients
If this question has been asked before...sorry, I missed it. I know that Drs often times want post thyroid cancer patients to have a suppressed TSH to keep cancer from returning. If suppressed TSH keeps it from returning, why wouldn't one want it suppressed to keep thyroid cancer from starting? I just
If this question has been asked before...sorry, I missed it. I know that Drs often times want post thyroid cancer patients to have a suppressed TSH to keep cancer from returning. If suppressed TSH keeps it from returning, why wouldn't one want it suppressed to keep thyroid cancer from starting? I just
jjf255
in
Thyroid UK
6 years ago
Anyone ever thought they had a brain tumor?
Hi guys, So my health anxiety tends to come in rounds. Recently, I've thought I had a brain tumor. For a while, I was able to narrow my infrequent headaches and what not down to the fact that I lift and have a straight spine in my neck region; however, I found that having a straight spine in my neck
Hi guys, So my health anxiety tends to come in rounds. Recently, I've thought I had a brain tumor. For a while, I was able to narrow my infrequent headaches and what not down to the fact that I lift and have a straight spine in my neck region; however, I found that having a straight spine in my neck
Hgolden
in
Anxiety Support
6 years ago
Tapentadol and Headaches. Do they go away? Has anyone experienced this?
Headaches on Tapentadol? I’ve just started Tapentadol ER 100mg x2 3 weeks ago from spine problems, chronic migraines, and CRPS. I had been on fentanyl patches 37.5mcg for several years, doing wonderfully with a healthy quality of life, but my insurance company kicked me off of them - I’m in USA and apparently
Headaches on Tapentadol? I’ve just started Tapentadol ER 100mg x2 3 weeks ago from spine problems, chronic migraines, and CRPS. I had been on fentanyl patches 37.5mcg for several years, doing wonderfully with a healthy quality of life, but my insurance company kicked me off of them - I’m in USA and apparently
bonniemp
in
Pain Concern
6 years ago
Bacterial Meningitis surviver , so far
I was diagnosed with bacterial meningitis 1/4/19, following a lumbar discectomy with CSF leak ( spinal fluid ) . 2 hospitals, 5 days in ICU.Discharged home 1/11/19 on continuous IV antibiotics. I am blessed to still be alive, from what I understand.
I was diagnosed with bacterial meningitis 1/4/19, following a lumbar discectomy with CSF leak ( spinal fluid ) . 2 hospitals, 5 days in ICU.Discharged home 1/11/19 on continuous IV antibiotics. I am blessed to still be alive, from what I understand.
Quiltergirl
in
Meningitis Now
6 years ago
Shingles vaccination advice please
Can anyone tell me if it is safe for me to be around friends and family who have had the live shingles vaccination?Ann
Can anyone tell me if it is safe for me to be around friends and family who have had the live shingles vaccination?Ann
annmcgowan
in
CLL Support
6 years ago
Deep Brain Stimulation
Thought about DBS? Please view my daughter's 7 minute video on my experience with Deep Brain Stimulation. (Spoiler: it worked!) https://youtu.be/QjuoZhSv-XI Thanks, folks.
Thought about DBS? Please view my daughter's 7 minute video on my experience with Deep Brain Stimulation. (Spoiler: it worked!) https://youtu.be/QjuoZhSv-XI Thanks, folks.
Richter
in
Cure Parkinson's
6 years ago
Low battery Medtronic DBS increasing off time
I’m currently waiting for approval for the replacement of my DBS battery. Im having more off time issues despite a voltage reading of 2.54. Anyone else experience this? Thanks
I’m currently waiting for approval for the replacement of my DBS battery. Im having more off time issues despite a voltage reading of 2.54. Anyone else experience this? Thanks
etterus
in
Cure Parkinson's
6 years ago
Blood results! Please help!
Can someone have a look at these please? I would really appreciate it xxx I’ve been so unwell for a long time now. I’m 41 and struggling everyday w drops in sugar levels, POTs, shaky, pale skin, recurring infections, chronic pain, thin hair, no energy, feeling of passing out, Lyme disease. Anyways recent
Can someone have a look at these please? I would really appreciate it xxx I’ve been so unwell for a long time now. I’m 41 and struggling everyday w drops in sugar levels, POTs, shaky, pale skin, recurring infections, chronic pain, thin hair, no energy, feeling of passing out, Lyme disease. Anyways recent
Emmafrank41
in
Thyroid UK
6 years ago
Shingles through December
Happy New year to every one. Well my remission that l was so thrilled about has collapsed. Look what happened to me at beginning of December. Right soded shingles. Has kicked off pmr like beginning. Rheumatologist on Friday. Now they want to keep me off steroids due to cataract and shingles. So watch
Happy New year to every one. Well my remission that l was so thrilled about has collapsed. Look what happened to me at beginning of December. Right soded shingles. Has kicked off pmr like beginning. Rheumatologist on Friday. Now they want to keep me off steroids due to cataract and shingles. So watch
cmj33g
in
PMRGCAuk
6 years ago
HDT for people who have had DBS
Just wondering if high dose thiamine is helpful for people who have had DBS? I contacted dr. Constantini regarding this issue, but I did not get a response from him. Tyia
Just wondering if high dose thiamine is helpful for people who have had DBS? I contacted dr. Constantini regarding this issue, but I did not get a response from him. Tyia
MarciAC4
in
Cure Parkinson's
6 years ago
Meningitis
My mum is at risk of meningitis and I’m afraid that if she doesn’t recover I will have to look after her and my severely autistic brother by myself. On Saturdays I have to go to my part time job and am still in school. Does ANYONE have ANY reassurance??
My mum is at risk of meningitis and I’m afraid that if she doesn’t recover I will have to look after her and my severely autistic brother by myself. On Saturdays I have to go to my part time job and am still in school. Does ANYONE have ANY reassurance??
Violet012
in
Meningitis Now
6 years ago
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