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Brain arteriovenous malformation (AVM)
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Typical med progression?
My friend started taking l-dopa within the past year. She works fulltime and her workplace isn't aware of her diagnosis. Currently she's taking 8 Sinemet 100mg daily, plus 3 or 4 Rytary 145mg. She also takes sleeping medication, and botox for curled toes. She's reading articles on DBS. Any advice
My friend started taking l-dopa within the past year. She works fulltime and her workplace isn't aware of her diagnosis. Currently she's taking 8 Sinemet 100mg daily, plus 3 or 4 Rytary 145mg. She also takes sleeping medication, and botox for curled toes. She's reading articles on DBS. Any advice
genesurf
in
Cure Parkinson's
3 years ago
Agomelatine
Anyone has any experience of this helping with extreme anxiety and panic but not causing sleep problems? I’m desperate for information x
Anyone has any experience of this helping with extreme anxiety and panic but not causing sleep problems? I’m desperate for information x
Vicss
in
Anxiety Support
3 years ago
Headaches
Hope everyone is doing well, Iv had a headache for nearly a week now it’s behind my eyes and forehead and top of my head just basically all over also my neck and it’s not going I’m so scared it’s a bleed to the brain or brain tumour. Why isn’t it going!! It’s so bad 😢. Does anyone get this??
Hope everyone is doing well, Iv had a headache for nearly a week now it’s behind my eyes and forehead and top of my head just basically all over also my neck and it’s not going I’m so scared it’s a bleed to the brain or brain tumour. Why isn’t it going!! It’s so bad 😢. Does anyone get this??
Kaaayla
in
Anxiety Support
3 years ago
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Advice on recovery after cranioplasty
Hello everyone, I hope everyone is keeping as well as possible. I haven’t posted for a little while, it’s been a period of readjustment for us as we get used to my husband being home and all the changes. He is going into hospital today for his cranioplasty tomorrow, we are all extremely anxious about
Hello everyone, I hope everyone is keeping as well as possible. I haven’t posted for a little while, it’s been a period of readjustment for us as we get used to my husband being home and all the changes. He is going into hospital today for his cranioplasty tomorrow, we are all extremely anxious about
pozza40
in
Headway
3 years ago
Shingles jab
I have had text from doctors saying for me to go and have shingles jab as 70 now has anyone else had this and is it ok to have thanks
I have had text from doctors saying for me to go and have shingles jab as 70 now has anyone else had this and is it ok to have thanks
Chel1
in
MPN Voice
3 years ago
Post DBS experience by Benjamin stretcher
https://tmrwedition.com/2021/08/28/gratitude/amp/
https://tmrwedition.com/2021/08/28/gratitude/amp/
Farooqji
in
Cure Parkinson's
3 years ago
Hypothyroidism-Lyme disease connection?
Has anyone here with Hashimoto's/hypothyroidism discovered they also have Lyme disease? Or that they've had it for years? A couple of knowledgeable friends have insisted I get checked for it, but the last time I knowingly got a few ticks was back in 1995! And, yes, some of my problems might have started
Has anyone here with Hashimoto's/hypothyroidism discovered they also have Lyme disease? Or that they've had it for years? A couple of knowledgeable friends have insisted I get checked for it, but the last time I knowingly got a few ticks was back in 1995! And, yes, some of my problems might have started
DandyThyro
in
Thyroid UK
3 years ago
Lucy Dawson: the model who got a mystery headache, a misdiagnosis – and a new mission in life
We see repeated failure to take seriously, failure to diagnose properly and long term consequences. Although not thyroid, this is an interesting article which raises the profile of autoimmune encephalitis. [i]
Lucy Dawson: the model who got a mystery headache, a misdiagnosis – and a new mission in
We see repeated failure to take seriously, failure to diagnose properly and long term consequences. Although not thyroid, this is an interesting article which raises the profile of autoimmune encephalitis. [i]
Lucy Dawson: the model who got a mystery headache, a misdiagnosis – and a new mission in
helvella
Thyroid UK
in
Thyroid UK
3 years ago
AMANTADINE FOR DYSKINESIA. HAVE YOU AN EXPERIENCE WITH THIS DRUG? PLEASE HELP.
Hi, I might consider this drug for Dyskinesia, if it gets too severe. My MDS is a little reluctant to prescribe it, because he says it may cause insomnia. Nevertheless, is this drug working for your dyskinesia? How long before it started working for you? My doctor said it could take 4 to 8 weeks.
Hi, I might consider this drug for Dyskinesia, if it gets too severe. My MDS is a little reluctant to prescribe it, because he says it may cause insomnia. Nevertheless, is this drug working for your dyskinesia? How long before it started working for you? My doctor said it could take 4 to 8 weeks.
OREOLU
in
Cure Parkinson's
3 years ago
What I have learned from 1 year with Early Onset PD - "Glass Half Full"
I decided to keep a journal of my journey - it has been quite a year but I have learned a lot. some of which maybe relevant for new and older PD people. I am not a doctor and this is not a medical opinion but there is lots available to make a stand against PD https://fightparkinsonsdisease.files.wordpress.com
I decided to keep a journal of my journey - it has been quite a year but I have learned a lot. some of which maybe relevant for new and older PD people. I am not a doctor and this is not a medical opinion but there is lots available to make a stand against PD https://fightparkinsonsdisease.files.wordpress.com
blazyb
in
Cure Parkinson's
3 years ago
Titanium mesh so weak
I had got a titanium mesh for a cranioplasty screwed on me and it doesn’t make sense as to why is it so thin and it bends so easy as to I accidentally slept on side if it and now theres been a big dent on it are these things even long lasting will they break easy for a slightly bump on it.If you can
I had got a titanium mesh for a cranioplasty screwed on me and it doesn’t make sense as to why is it so thin and it bends so easy as to I accidentally slept on side if it and now theres been a big dent on it are these things even long lasting will they break easy for a slightly bump on it.If you can
Itsliifee
in
Headway
3 years ago
Past VM and the COVID Vaccine
Has anyone with a past history of VM taken the COVID-19 Vaccine? And If so how did you feel afterwards? And what brand did you take? My son had viral meningitis four years ago and is concerned that the vaccine will trigger a a viral meningitis attack. With this new Delta variant I am much more concerned
Has anyone with a past history of VM taken the COVID-19 Vaccine? And If so how did you feel afterwards? And what brand did you take? My son had viral meningitis four years ago and is concerned that the vaccine will trigger a a viral meningitis attack. With this new Delta variant I am much more concerned
Dutch22
in
Meningitis Now
3 years ago
Is Carbidopa/Levodopa 8x’s a day to much when you have the DBS?
My setting is on 3.30 left side, 1.00 right side. My doctor seems to give me more medicine instead of turning it up and I feel like it is causing a lot more symptoms.
My setting is on 3.30 left side, 1.00 right side. My doctor seems to give me more medicine instead of turning it up and I feel like it is causing a lot more symptoms.
Squarles2
in
Cure Parkinson's
3 years ago
Sharing DBS Journey
Hi, Just wanted to share my dad's process in case it will help anyone... He was diagnosed at 54 years old and will be 70 next month. He is rigidity dominant, experiences freezing of gait (mainly in initiating) and has dyskinesias from his meds (among many other PD symptoms!). Up until almost two years
Hi, Just wanted to share my dad's process in case it will help anyone... He was diagnosed at 54 years old and will be 70 next month. He is rigidity dominant, experiences freezing of gait (mainly in initiating) and has dyskinesias from his meds (among many other PD symptoms!). Up until almost two years
pdkid
in
Cure Parkinson's
3 years ago
Cranioplasty
Hi all. in September 2019 I suffered a catastrophic ABI during surgery to coil an anuerysm resulting in craniotomy I have been waiting since then for my cranioplasty I have now got a proposed date for my cranioplasty Obviously petrified of having further surgery due to my last one not going to plan.
Hi all. in September 2019 I suffered a catastrophic ABI during surgery to coil an anuerysm resulting in craniotomy I have been waiting since then for my cranioplasty I have now got a proposed date for my cranioplasty Obviously petrified of having further surgery due to my last one not going to plan.
Charlie90
in
Headway
3 years ago
Head sensations constantly
Head pressure and brain jerks, jolts, tremors and zaps and feeling like I could have a seizure or aneurism any second. I had a CT scan a couple months ago and it came back normal. I cannot have an MRI because I have a magnetic implant in my ear. I’ve tried to explain these symptoms to my doctor and neurologist
Head pressure and brain jerks, jolts, tremors and zaps and feeling like I could have a seizure or aneurism any second. I had a CT scan a couple months ago and it came back normal. I cannot have an MRI because I have a magnetic implant in my ear. I’ve tried to explain these symptoms to my doctor and neurologist
Hidden
in
Anxiety Support
3 years ago
Update to "Feeling Terrible Lately".
Hello all, Well the reason I felt so terrible was because I ended up having Lyme disease.. I ended up seeing my family Dr. as I was starting to feel bad again. I was on antibiotics for 15 days and am doing well now. It got me behind my knee, so I didn't notice it at first. They are areal problem in our
Hello all, Well the reason I felt so terrible was because I ended up having Lyme disease.. I ended up seeing my family Dr. as I was starting to feel bad again. I was on antibiotics for 15 days and am doing well now. It got me behind my knee, so I didn't notice it at first. They are areal problem in our
fxdx1
in
CLL Support
3 years ago
Shingrix OK For Immunocompromised Adults
This article was posted today on CLLSLL groups.io and is reposted here with permission from Dr. Furman https://groups.io/g/CLLSLL/message/31608?reply=1 [i] Re: Shingrix OK For Immunocompromised Adults [/i] [i]From: Rick Furman Date: Fri, 30 Jul 2021 08:43:32 EDT[/i] [i]-[/i] [i]Shingles is the result
This article was posted today on CLLSLL groups.io and is reposted here with permission from Dr. Furman https://groups.io/g/CLLSLL/message/31608?reply=1 [i] Re: Shingrix OK For Immunocompromised Adults [/i] [i]From: Rick Furman Date: Fri, 30 Jul 2021 08:43:32 EDT[/i] [i]-[/i] [i]Shingles is the result
lankisterguy
Volunteer
in
CLL Support
3 years ago
I think l have shingles & l have GPA & can’t get to a doctor..
Anyone know what’s needed?
Anyone know what’s needed?
Chamad
in
Vasculitis UK
3 years ago
Gigi's 2nd Birthday
Gigi celebrated her 2nd Birthday on Saturday! She is working to open one of her presents which by the way was a pink football that she loves. When we first rescued her she had lyme disease and was treated, but at her appoinment last week, she tested positive again with a higher titer. They think she
Gigi celebrated her 2nd Birthday on Saturday! She is working to open one of her presents which by the way was a pink football that she loves. When we first rescued her she had lyme disease and was treated, but at her appoinment last week, she tested positive again with a higher titer. They think she
Pumpkin2009
in
LUPUS UK
3 years ago
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