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Brain arteriovenous malformation (AVM)
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Do you continue taking B1 Thiamin HCL, High Dose Therapy (HDT)?
I’m wondering if HDT benefits after having had DBS surgery. What are you thoughts?
I’m wondering if HDT benefits after having had DBS surgery. What are you thoughts?
Kingdomcome
in
Cure Parkinson's
3 years ago
WHERE WILL I FIND DBS POSTINGS
I am assuming there are a lot of postings
I am assuming there are a lot of postings
powerfemale
in
Cure Parkinson's
3 years ago
I have both Vm and bm and I’m so confused
I’m in hospital currently with viral meningitis I came in Monday morning (4days ago) with a severe headache that sold had for two days and knew want right, day two after a lumber puncture I was told I had viral meningitis. Today I was told I also was showing in my results signs of bacterial meningitis
I’m in hospital currently with viral meningitis I came in Monday morning (4days ago) with a severe headache that sold had for two days and knew want right, day two after a lumber puncture I was told I had viral meningitis. Today I was told I also was showing in my results signs of bacterial meningitis
Mrsmoran2be
in
Meningitis Now
3 years ago
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meningitis vaccine ca125
Good Afternoon Ladies - I just wanted to check in if anyone has had the meningitis vaccine and then had an increase in their CA125.
Good Afternoon Ladies - I just wanted to check in if anyone has had the meningitis vaccine and then had an increase in their CA125.
Lind58
in
My Ovacome
3 years ago
Abdomen, Severe distension and bloatingAbdomen
Abdomen, Severe distension and bloating I am not constipated, but abdomen is as tight as a drum with pain (6-7), Seems nothing helps, Have tried Bisacodyl, Miralax laxatives with no effect. Also have violent shake of L-Hand. Global neuropathy, Neuro has suggested DBS for shaking. GI doctor has
Abdomen, Severe distension and bloating I am not constipated, but abdomen is as tight as a drum with pain (6-7), Seems nothing helps, Have tried Bisacodyl, Miralax laxatives with no effect. Also have violent shake of L-Hand. Global neuropathy, Neuro has suggested DBS for shaking. GI doctor has
gl2238
in
Cure Parkinson's
3 years ago
Am I losing my mind?
Hello, I had DBS surgery about 6 weeks ago. And I have so much anxiety and panic attacks throughout the day it’s unbearable. Is this psychosis? If so, how is it manageable?? My thyroid panel doesn’t show a hyperthyroid so I’m good there but I can’t seem to be able to control my anxiety. Everything sets
Hello, I had DBS surgery about 6 weeks ago. And I have so much anxiety and panic attacks throughout the day it’s unbearable. Is this psychosis? If so, how is it manageable?? My thyroid panel doesn’t show a hyperthyroid so I’m good there but I can’t seem to be able to control my anxiety. Everything sets
fossygma
in
Cure Parkinson's
3 years ago
What improvements can we anticipate within 10-15 years?
I am not seeking false hope nor do I want to perpetuate it but I do think there will be more treatments within the next 10-15 years. A off the top of my head list: There may be stem cells for PWP. Perhaps intravenous like the UT trial. There may be personalized cell therapy (pluripotent neurons
I am not seeking false hope nor do I want to perpetuate it but I do think there will be more treatments within the next 10-15 years. A off the top of my head list: There may be stem cells for PWP. Perhaps intravenous like the UT trial. There may be personalized cell therapy (pluripotent neurons
Hidden
in
Cure Parkinson's
3 years ago
Is it safe to have Shingles jab?
Hi everyone, have now been off Pred for six months after having Pmr for nearly seven years. I have been offered a shingles jab, but am reluctant to have it in case my immune system is still low, or it causes pmr to rear it's ugly head again Could I have advice please. Thank you, Jenny x
Hi everyone, have now been off Pred for six months after having Pmr for nearly seven years. I have been offered a shingles jab, but am reluctant to have it in case my immune system is still low, or it causes pmr to rear it's ugly head again Could I have advice please. Thank you, Jenny x
Attic
in
PMRGCAuk
3 years ago
Finally meet my MDS after my FUS surgery
I went to see my MDS two days ago, 4 months after my PTT FUS surgery and he was really happy with the results. He opposed initially and tried to convence me to go through DBS, but he was very pleased with my evolution. He advised me i should up l-dopa a bit, what i'm trying adding mucuna, and i feel
I went to see my MDS two days ago, 4 months after my PTT FUS surgery and he was really happy with the results. He opposed initially and tried to convence me to go through DBS, but he was very pleased with my evolution. He advised me i should up l-dopa a bit, what i'm trying adding mucuna, and i feel
Markbit
in
Cure Parkinson's
3 years ago
Benjamin Stecher About To Undergo DBS
I'm not posting this to start a debate about the merits of Deep Brain Stimulation (DBS), but I do hope we all keep Benjamin Stecher in our thoughts as he is about to undergo DBS. Benjamin was diagnosed with Parkinson’s Disease approximately eight years ago, at the age of 29. Since then, he has been
I'm not posting this to start a debate about the merits of Deep Brain Stimulation (DBS), but I do hope we all keep Benjamin Stecher in our thoughts as he is about to undergo DBS. Benjamin was diagnosed with Parkinson’s Disease approximately eight years ago, at the age of 29. Since then, he has been
jimcaster
in
Cure Parkinson's
3 years ago
Problems immediately after DBS surgery , pls help
Me omg , i am having a horrible reaction to dbs surgery, what in the world is going on??? symptom's i never had before are present, what in the hell is going on here? frozen with anxiety, other horrible weird symptom's i just pray to go home to my savior. anyone have a bad outcome from the surgery
Me omg , i am having a horrible reaction to dbs surgery, what in the world is going on??? symptom's i never had before are present, what in the hell is going on here? frozen with anxiety, other horrible weird symptom's i just pray to go home to my savior. anyone have a bad outcome from the surgery
fossygma
in
Cure Parkinson's
3 years ago
Chi machine?
Has anyone used a Chi Machine? A man at my church who has Parkinson's said he used to use the machine to help him sleep. (He had Deep Brain Stimulation and is now doing really well. No more tremors and his sleep is much better so it sounds like he doesn't use the Chi Machine any more.)
Has anyone used a Chi Machine? A man at my church who has Parkinson's said he used to use the machine to help him sleep. (He had Deep Brain Stimulation and is now doing really well. No more tremors and his sleep is much better so it sounds like he doesn't use the Chi Machine any more.)
kicker2
in
Restless Legs Syndrome
3 years ago
PTT FUS 4 months later
I had today my 3 months phone consultation with Prof. J. (one month later). He saw my videos, with and without levodopa e said that i was "very close to normal". Indeed, sometimes i feel close to normal, not everyday, not every hour, but especially in the morning i feel like that. I am able to run again
I had today my 3 months phone consultation with Prof. J. (one month later). He saw my videos, with and without levodopa e said that i was "very close to normal". Indeed, sometimes i feel close to normal, not everyday, not every hour, but especially in the morning i feel like that. I am able to run again
Markbit
in
Cure Parkinson's
3 years ago
Shingles vaccine
I'm booked to have a Shingles jab shortly. Has anyone had this while on Prednisolone? Were you okay? Any side effects.
I'm booked to have a Shingles jab shortly. Has anyone had this while on Prednisolone? Were you okay? Any side effects.
guineapigharriet
in
PMRGCAuk
3 years ago
PAINFUL NEUROMAS IN STUMP
My sister DEBWEB has APS RA SOJERNS AND POLYSYTHMUA VERA. She lost her leg in 2015 due to a blood clot in her foot. This was caused by APS She los just below the knee. She did well fitted with artificial leg and was great. About 1 Year ago she developed neuromas in the stump. It was caused by an ill
My sister DEBWEB has APS RA SOJERNS AND POLYSYTHMUA VERA. She lost her leg in 2015 due to a blood clot in her foot. This was caused by APS She los just below the knee. She did well fitted with artificial leg and was great. About 1 Year ago she developed neuromas in the stump. It was caused by an ill
Nanny23
in
Pain Concern
3 years ago
Do brain implants (like DBS) change your personality?
From the New Yorker Magazine For the great majority of patients, deep-brain stimulation was beneficial and life-changing, but there were occasional reports of strange behavioral reactions, such as hypomania and hypersexuality. Then, in 2006, a French team published a study about the unexpected consequences
From the New Yorker Magazine For the great majority of patients, deep-brain stimulation was beneficial and life-changing, but there were occasional reports of strange behavioral reactions, such as hypomania and hypersexuality. Then, in 2006, a French team published a study about the unexpected consequences
jackedmonston
in
Cure Parkinson's
3 years ago
More Encouraging Focused Ultrasound News
I readily admit that I don't understand much of this article, but I do understand that it's another encouraging bit of information regarding focused ultrasound with specific potential for treatment of Parkinson's Disease and may other ailments. "Parkinson’s Disease, epilepsy and insomnia are just a few
I readily admit that I don't understand much of this article, but I do understand that it's another encouraging bit of information regarding focused ultrasound with specific potential for treatment of Parkinson's Disease and may other ailments. "Parkinson’s Disease, epilepsy and insomnia are just a few
jimcaster
in
Cure Parkinson's
3 years ago
Pioneering neural recordings lay the groundwork for personalized Parkinson's treatments
In a study published May 3rd in Nature Biotechnology, UCSF Weill Institute for Neurosciences researchers implanted novel neurostimulation devices that monitor brain activity for many months, with and without deep brain stimulation (DBS) therapy. Pairing the brain recordings with wearable monitors of
In a study published May 3rd in Nature Biotechnology, UCSF Weill Institute for Neurosciences researchers implanted novel neurostimulation devices that monitor brain activity for many months, with and without deep brain stimulation (DBS) therapy. Pairing the brain recordings with wearable monitors of
Farooqji
in
Cure Parkinson's
3 years ago
Advances in deep brain stimulation
A friend who is an electronics engineer sent me this article about an experiment to monitor brain activity remotely using WiFi and Bluetooth, and to use the results to improve the tuning of DBS in 5 patients with parkinson's disease https://gizmodo.com/in-a-first-people-had-their-brain-activity-tracked-rem
A friend who is an electronics engineer sent me this article about an experiment to monitor brain activity remotely using WiFi and Bluetooth, and to use the results to improve the tuning of DBS in 5 patients with parkinson's disease https://gizmodo.com/in-a-first-people-had-their-brain-activity-tracked-rem
WinnieThePoo
in
Cure Parkinson's
3 years ago
To studied benefits of DBS
The study below says that the benefits last at least 10 years. https://www.michaeljfox.org/news/news-context-deep-brain-stimulation-offers-long-term-benefits-parkinsons
The study below says that the benefits last at least 10 years. https://www.michaeljfox.org/news/news-context-deep-brain-stimulation-offers-long-term-benefits-parkinsons
pdpatient
in
Cure Parkinson's
3 years ago
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