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Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain barrier into my CNS. There are many restrictions for me and I wondered who else was in the same boat? Thank you.
Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain barrier into my CNS. There are many restrictions for me and I wondered who else was in the same boat? Thank you.
Jennchap1
in
Non Hodgkin's Lymphoma Friends
8 years ago
New here...
Diagnosed in July 2014- RCHOP treated in Pittsburgh at the Mario Lemieux Center for Blood Cancers. Relapsed in November of 2015, received RICE then BEAM before April 2016 auto stem cell transplant.
Diagnosed in July 2014- RCHOP treated in Pittsburgh at the Mario Lemieux Center for Blood Cancers. Relapsed in November of 2015, received RICE then BEAM before April 2016 auto stem cell transplant.
Mrjackwagon
in
Non Hodgkin's Lymphoma Friends
8 years ago
I'm new to this, please be gentle
So starting at the beginning I was diagnosed with Leukemia in 2014 at 23, then I had a stem cell transplant which is where it all went wrong; Being on all sorts of medication including steroids made me gain weight, then loose it, then gain it again; this wasn't helped by the fact I wasn't able to do
So starting at the beginning I was diagnosed with Leukemia in 2014 at 23, then I had a stem cell transplant which is where it all went wrong; Being on all sorts of medication including steroids made me gain weight, then loose it, then gain it again; this wasn't helped by the fact I wasn't able to do
lynn_dee_lou
in
Weight Loss Support
8 years ago
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HCST
Has anyone looked into doing stem cell transplant? My neurologist told me that they wouldn't accept me because of my age 48 and because I have had MS for 9 years, think I want to try, this disease is so frustrating.
Has anyone looked into doing stem cell transplant? My neurologist told me that they wouldn't accept me because of my age 48 and because I have had MS for 9 years, think I want to try, this disease is so frustrating.
cnichols
in
My MSAA Community
8 years ago
Key questions to ask your consultant
Hi everyone, sorry if you thought from the title of this message that I am providing the answers - instead, I would like your views. If you want the main point of this post skip to end, but it might help give better answers if you read through] [
aside:
For anyone with the stamina, here is my
Hi everyone, sorry if you thought from the title of this message that I am providing the answers - instead, I would like your views. If you want the main point of this post skip to end, but it might help give better answers if you read through] [
aside:
For anyone with the stamina, here is my
Davdow
in
CLL Support
8 years ago
Daughter update
I lost my daughter on the 11th Jan. Th funeral is Friday , i believe its the first of the day, 9-00 . I am suffering with a bit of stress. Though at this time I'm trying to be positive and look to the future. I have another daughter who is fighting fit, two sons of whom are both in good health. Tracey
I lost my daughter on the 11th Jan. Th funeral is Friday , i believe its the first of the day, 9-00 . I am suffering with a bit of stress. Though at this time I'm trying to be positive and look to the future. I have another daughter who is fighting fit, two sons of whom are both in good health. Tracey
fastball
in
Lung Conditions Community Forum
8 years ago
Relapsed Mantle Cell Lymphoma--I'm new here!
My name is Gail and I am 66 years old. I was diagnosed with MCL in February, 2008 when I was 58 years old and living in Cleveland, Ohio. The only side effect I had were weight loss and swollen lymph nodes under my arms. I had HYPER C-VAD chemo with Rituxin and then had a stem cell transplant in October
My name is Gail and I am 66 years old. I was diagnosed with MCL in February, 2008 when I was 58 years old and living in Cleveland, Ohio. The only side effect I had were weight loss and swollen lymph nodes under my arms. I had HYPER C-VAD chemo with Rituxin and then had a stem cell transplant in October
Gail2050
in
Non Hodgkin's Lymphoma Friends
8 years ago
CD8 T Cell Lymphoma in skin tissue and muscle
Diagnosed Nov 15 with above without suffering from any of the normal symptons, had 6 courses of CHOP treatment, finished Mar 16. Scan revealed I was in complete remission. Had to undergo stem cell transplant in May/Jun 16. Didn't suffer some of the side effects but wouldn't wish on my worst enemy. Further
Diagnosed Nov 15 with above without suffering from any of the normal symptons, had 6 courses of CHOP treatment, finished Mar 16. Scan revealed I was in complete remission. Had to undergo stem cell transplant in May/Jun 16. Didn't suffer some of the side effects but wouldn't wish on my worst enemy. Further
squashman
in
Non Hodgkin's Lymphoma Friends
8 years ago
MDS UK Patient and Family Forum Birmingham, UK Saturday, 4th February 2017 10.00 am – 16.30 pm
This FREE event will be held at The National Motorcycle Museum Coventry Road, Hampton in Arden Solihull, B92 0EJ This meeting is free of charge and open to MDS patients and their guests. Patients and their families will have the opportunity to participate in an informal discussion regarding their quality-of-life
This FREE event will be held at The National Motorcycle Museum Coventry Road, Hampton in Arden Solihull, B92 0EJ This meeting is free of charge and open to MDS patients and their guests. Patients and their families will have the opportunity to participate in an informal discussion regarding their quality-of-life
LCNurse
in
Leukaemia Support
8 years ago
SS carrier
Morning all glad I found this forum. My daughter is 8 and has hbss. He crisisis are frequent and intense. Often at least 14 days in hospital. She is on all the usual daily medicine such as folic acid, penicillin, hydroxrea and we have morphine and such at home for pain relief. She was on weekly transfusions
Morning all glad I found this forum. My daughter is 8 and has hbss. He crisisis are frequent and intense. Often at least 14 days in hospital. She is on all the usual daily medicine such as folic acid, penicillin, hydroxrea and we have morphine and such at home for pain relief. She was on weekly transfusions
Nadineb1
in
Sickle Cell Society
8 years ago
Hi everyone
Diagnosed 2 years ago, stem cell transplant 1 year ago, currently on lenalidomide maintenance as part of the Myeloma XI trial. I'm doing OK at the moment, long may it continue!
Diagnosed 2 years ago, stem cell transplant 1 year ago, currently on lenalidomide maintenance as part of the Myeloma XI trial. I'm doing OK at the moment, long may it continue!
Louis-Henry
in
Myeloma UK
8 years ago
Hello
Hello, I am new here and from Japan, wish my country had site like this. I started to have lung problem as part of complication called GVHD which is from my stem cell transplant from blood cancer, i have other several complications but this is the hardest one. I was in the hospital for three weeks in
Hello, I am new here and from Japan, wish my country had site like this. I started to have lung problem as part of complication called GVHD which is from my stem cell transplant from blood cancer, i have other several complications but this is the hardest one. I was in the hospital for three weeks in
nonchan
in
Lung Conditions Community Forum
8 years ago
Frightening news - White CBC of 22,000 and liver panels elevated - RA, PMR and GCA with an ALL leukemia history
The title pretty much sums it up and I'd be lying if I said I wasn't scared. I'm a pretty cool customer and when I hear hoofbeats I look for horses not zebras. I went for my Actemra infusion yesterday and had the normal blood draw which is full metabolic, CBC and ESR with liver panels. My liver numbers
The title pretty much sums it up and I'd be lying if I said I wasn't scared. I'm a pretty cool customer and when I hear hoofbeats I look for horses not zebras. I went for my Actemra infusion yesterday and had the normal blood draw which is full metabolic, CBC and ESR with liver panels. My liver numbers
Nitrobunny
in
NRAS
8 years ago
Having serious symtoms
Then a
bone
spur
on my chest(sternum) in middle appeared thats causing pain like my chest will collapse. Now my neck crunches more and hurts also my back (spine) pain i can feel when i press on it. It also sometimes feels like an itchy sweater with burning sensations.
Then a
bone
spur
on my chest(sternum) in middle appeared thats causing pain like my chest will collapse. Now my neck crunches more and hurts also my back (spine) pain i can feel when i press on it. It also sometimes feels like an itchy sweater with burning sensations.
Lilynette
in
Cure Arthritis Community
8 years ago
A thankful run
It's not been a great week. My lovely hairdresser's husband has died after a long struggle with liver cancer, and I have just heard that my cousin has to have another stem cell transplant after Christmas and that a friend has just been diagnosed with breast cancer. I was talking myself out of a run today
It's not been a great week. My lovely hairdresser's husband has died after a long struggle with liver cancer, and I have just heard that my cousin has to have another stem cell transplant after Christmas and that a friend has just been diagnosed with breast cancer. I was talking myself out of a run today
Ullyrunner
Graduate
in
Couch to 5K
8 years ago
Terrible Doctor Experiences
I mean i already have spine pain and a
bone
spur
on my chest. But its NORMAL...
I mean i already have spine pain and a
bone
spur
on my chest. But its NORMAL...
Lilynette
in
NRAS
8 years ago
I didn't have pernicious anemia I have cancer
This is just a heads up for anyone who has read some of my earlier posts. Several months ago I had been trying to find answers to my recently diagnosed pernicious anemia, but unfortunately after more blood tests I was found to have AML leukemia. I spent nearly four hours in the Mayo Clinic last week
This is just a heads up for anyone who has read some of my earlier posts. Several months ago I had been trying to find answers to my recently diagnosed pernicious anemia, but unfortunately after more blood tests I was found to have AML leukemia. I spent nearly four hours in the Mayo Clinic last week
oldtimeradioguy
in
Pernicious Anaemia Society
8 years ago
New Member
I'm new to the forum and have myleo fibrosis. I am waiting on a stem cell transplant at City of Hope
I'm new to the forum and have myleo fibrosis. I am waiting on a stem cell transplant at City of Hope
linbatten
in
Fight MPN
8 years ago
Intro
Hi I'm Christiana. I was diagnosed with T cell lymphoblastic lymphoma, stage 4b in 2013. My treatment protocol has been ukall12. After 6 months inpatient treatment then and a donor stem cell transplant I'm doing well, being monitored frequently but all's good. I've been writing a blog this year diarying
Hi I'm Christiana. I was diagnosed with T cell lymphoblastic lymphoma, stage 4b in 2013. My treatment protocol has been ukall12. After 6 months inpatient treatment then and a donor stem cell transplant I'm doing well, being monitored frequently but all's good. I've been writing a blog this year diarying
Christiana_
in
Leukaemia Support
8 years ago
NCT02478125 - for prostate cancer metatstses
This was at Johns Hopkins just last week. I went down for a screening interview, which was wonderful, and the whole experience was fantastic. Unfortunately, I was too healthy for the trial, so I have to at least wait. I characterize it as an "off label" use of a pretty standard procedure: essentially
This was at Johns Hopkins just last week. I went down for a screening interview, which was wonderful, and the whole experience was fantastic. Unfortunately, I was too healthy for the trial, so I have to at least wait. I characterize it as an "off label" use of a pretty standard procedure: essentially
Hidden
in
Understanding Clinical Trials
8 years ago
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