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Blood-coagulation factor XIII
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B12 injections stopped by gp after 5 years treatment on nhs
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
LaraPA
in
Pernicious Anaemia Society
2 months ago
Thoughts on blood results and next steps please
Blood test resultsI have had most of my results in today and would appreciate some thoughts on the following results please Serum CRP - 6.5 mg/L (<5.0) marked as satisfactory Rheumatoid factor 12 IU/mL (<14.0) Serum folate 3.0 ug/L (2.0-18.7) marked borderline- retest needed Serum B12 1540 ng/L (197
Blood test resultsI have had most of my results in today and would appreciate some thoughts on the following results please Serum CRP - 6.5 mg/L (<5.0) marked as satisfactory Rheumatoid factor 12 IU/mL (<14.0) Serum folate 3.0 ug/L (2.0-18.7) marked borderline- retest needed Serum B12 1540 ng/L (197
Wispymisty
in
LUPUS UK
2 months ago
Intrinsic Factor blood test
How long does it take for NHS to run this test? I had the test done last Tuesday, but the results are still not showing on my records.
How long does it take for NHS to run this test? I had the test done last Tuesday, but the results are still not showing on my records.
Chickens44
in
Pernicious Anaemia Society
2 months ago
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Bit old fashioned...
I discovered that a castor oil pack really helps with knee pain. It's horrible sticky oil, but it works topically (for me at least). I have bad memories of this stuff from my childhood. Any hint of sickness and out came the bottle. I would not recommend injesting it! 🤮 it's better than the deep heat
I discovered that a castor oil pack really helps with knee pain. It's horrible sticky oil, but it works topically (for me at least). I have bad memories of this stuff from my childhood. Any hint of sickness and out came the bottle. I would not recommend injesting it! 🤮 it's better than the deep heat
Blackberrywine
in
NRAS
3 months ago
GP visit!
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
Chickens44
in
Pernicious Anaemia Society
2 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
2 months ago
Blood Work
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Canadian77
in
Pernicious Anaemia Society
2 months ago
HRT and B12
So I went to see an actual Doctor, having been diagnosed with PA by the nurses last summer, with a B12 level of 143.His opening gambit, having looked at the September blood results, serum vitamin B12 = 496, was "You do not have Pernicious Anemia!" Stupid me hadn't SId for 4 days, because I wanted the
So I went to see an actual Doctor, having been diagnosed with PA by the nurses last summer, with a B12 level of 143.His opening gambit, having looked at the September blood results, serum vitamin B12 = 496, was "You do not have Pernicious Anemia!" Stupid me hadn't SId for 4 days, because I wanted the
Oneash
in
Pernicious Anaemia Society
2 months ago
Subclinical hypothyroidism advice for next appointment
Hi, I was told I was I had Subclinical hypothyroidism in 2017 but was not significant so no further input. Unsure of exact results but TSH was raised, but <10 with normal T4 (but do not have a copy of the results). Past few years have noticed hair loss, muscle aches & pains, tiredness, some weight gain
Hi, I was told I was I had Subclinical hypothyroidism in 2017 but was not significant so no further input. Unsure of exact results but TSH was raised, but <10 with normal T4 (but do not have a copy of the results). Past few years have noticed hair loss, muscle aches & pains, tiredness, some weight gain
bluepenguin
in
Thyroid UK
2 months ago
Dry eye syndrome - and castor oil!
Some weeks ago someone posted they were using castor oil for dry eyes. I was rather sceptical that that was a good idea - it sounded as if they were putting it IN their eyes. Anyway - today I got a notification of this study of castor oil as a potential natural remedy for dry eyes: https://www.medicalnewstoday.com
Some weeks ago someone posted they were using castor oil for dry eyes. I was rather sceptical that that was a good idea - it sounded as if they were putting it IN their eyes. Anyway - today I got a notification of this study of castor oil as a potential natural remedy for dry eyes: https://www.medicalnewstoday.com
PMRpro
Ambassador
in
PMRGCAuk
4 months ago
Newbie and confused. Functional B12 deficiency?
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
grumpyold
in
Pernicious Anaemia Society
3 months ago
one last question ( hopefully)
I have finally managed to get an appointment with my GP where I hope to convince him to give me B12 injections more often that once every 8 weeks and I never had a loading doses so am hoping for that too. I hope I can get him to do some tests, like size shape and number of red blood cells, intrinsic
I have finally managed to get an appointment with my GP where I hope to convince him to give me B12 injections more often that once every 8 weeks and I never had a loading doses so am hoping for that too. I hope I can get him to do some tests, like size shape and number of red blood cells, intrinsic
totallyFrustrated
in
Pernicious Anaemia Society
8 months ago
My Tumour is shrinking
I am at the end of chemo cycle. In August my tumour was 1cm after I had the MRI. So 80% removed from right side of my brain. I have gone to 1cm to 1.5cm. In the three MRI's. My latest one has shunk so much I think it is now a 1/4 in size, comparing August mri to this mri. I am so pleased. I have
I am at the end of chemo cycle. In August my tumour was 1cm after I had the MRI. So 80% removed from right side of my brain. I have gone to 1cm to 1.5cm. In the three MRI's. My latest one has shunk so much I think it is now a 1/4 in size, comparing August mri to this mri. I am so pleased. I have
Denni60
in
Glioblastoma Support
4 months ago
antibodies
Is it possible to have antibodies to parietal cells but not to intrinsic factor? I have no intrinsic factor.
Is it possible to have antibodies to parietal cells but not to intrinsic factor? I have no intrinsic factor.
Sissiotto
in
Pernicious Anaemia Society
8 months ago
Help! Have I messed up
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
SpringerMom
in
Pernicious Anaemia Society
3 months ago
help please
Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’s in the family ,and low folate , I’d had the basic B12 bloods done they said I was ok ? Bloods for B12 showed 2,000 high I only got diagnosed because I asked for an intrinsic factor antibodies gastric parietal cell blood
Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’s in the family ,and low folate , I’d had the basic B12 bloods done they said I was ok ? Bloods for B12 showed 2,000 high I only got diagnosed because I asked for an intrinsic factor antibodies gastric parietal cell blood
Windyway
in
Pernicious Anaemia Society
3 months ago
Au/ml help
The range for intrinsic factor test result is any result below 1.21u/ml (negative )and above 1.53u/ml (positive). I was informed my result was 1.63. Yes, no measurements of u/ml. When I asked for B12 injections (local GP Wales) as I believed I'd proved I was deficient by these tests coming back high
The range for intrinsic factor test result is any result below 1.21u/ml (negative )and above 1.53u/ml (positive). I was informed my result was 1.63. Yes, no measurements of u/ml. When I asked for B12 injections (local GP Wales) as I believed I'd proved I was deficient by these tests coming back high
AlmWales
in
Pernicious Anaemia Society
8 months ago
Intrinsic factor antibodys
Hi I recently had bloods done at GP which one of them was b12. It came back as no action required but I told GP that I think it still to low at 211.. range (180-800) she said about doing another test that might effect the absorbtion of b12 intrinsic factor antibody. My result was 3.66. was prescribed
Hi I recently had bloods done at GP which one of them was b12. It came back as no action required but I told GP that I think it still to low at 211.. range (180-800) she said about doing another test that might effect the absorbtion of b12 intrinsic factor antibody. My result was 3.66. was prescribed
suzybear
in
Thyroid UK
8 months ago
Examining the Pathology of the Parietal cells
Just read from a post by Rexz , that in the U.S.A. a diagnosis of Pernicious Anaemia can be confirmed by examining the pathology of the parietal cells .( by endoscopic ultra-sound ) This seems an excellent method for confirming such a serious condition as P.A.Which can lead to serious health problems
Just read from a post by Rexz , that in the U.S.A. a diagnosis of Pernicious Anaemia can be confirmed by examining the pathology of the parietal cells .( by endoscopic ultra-sound ) This seems an excellent method for confirming such a serious condition as P.A.Which can lead to serious health problems
wedgewood
in
Pernicious Anaemia Society
8 months ago
Advice
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Kma123
in
Pernicious Anaemia Society
4 months ago
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