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Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
2 months ago
Devastated. Mom has begun hospice.
Hi all,I guess I'm just here for support and to get my story out. My mom was diagnosed with stage 3c ovarian around May 2022. She had symptoms for about 3 months before which her primary care doctor thought was a bacterial infection. My mom kept going back to her and saying there is no way that a
Hi all,I guess I'm just here for support and to get my story out. My mom was diagnosed with stage 3c ovarian around May 2022. She had symptoms for about 3 months before which her primary care doctor thought was a bacterial infection. My mom kept going back to her and saying there is no way that a
Chatterbox76
in
My Ovacome
5 days ago
Does HBOT stimulate cancerous tissue?
I’m considering HBOT for cystitis and proctitis 11 months after HDR Brachyboost with pelvic SBRT. Just finished 1 year ADT. Here’s my concern. 11 months later, I know my cancerous cells are still in the process of dying and not being able to divide anymore. The idea of HBOT is to increase certain
I’m considering HBOT for cystitis and proctitis 11 months after HDR Brachyboost with pelvic SBRT. Just finished 1 year ADT. Here’s my concern. 11 months later, I know my cancerous cells are still in the process of dying and not being able to divide anymore. The idea of HBOT is to increase certain
SongofFred
in
Advanced Prostate Cancer
6 days ago
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Tumor Marker (CEA)
Hello, My CEA jumped from 86.9 in January to 359 now. Is this the tumor marker that isn’t necessarily specific to breast cancer and can have all sorts of things cause it to be elevated? For example, I have some neuropathy and swelling in my legs and I know TMs can be affected by inflammation. Doxil
Hello, My CEA jumped from 86.9 in January to 359 now. Is this the tumor marker that isn’t necessarily specific to breast cancer and can have all sorts of things cause it to be elevated? For example, I have some neuropathy and swelling in my legs and I know TMs can be affected by inflammation. Doxil
atoth17
in
SHARE Metastatic Breast Cancer
6 days ago
Study of AMG 509 in Participants With Metastatic Castration-Resistant Prostate Cancer
Hello, I am a participant in the clinical trial NCT04221542, in the Vall d'Hebron Hospital in Barcelona. Next week I begin the images exploration (TC, RM, Gammagrafia). I will recieve the first shot of cytokines soon. It is a very promising new drug AMG 509, but is the first phase of the essay, they
Hello, I am a participant in the clinical trial NCT04221542, in the Vall d'Hebron Hospital in Barcelona. Next week I begin the images exploration (TC, RM, Gammagrafia). I will recieve the first shot of cytokines soon. It is a very promising new drug AMG 509, but is the first phase of the essay, they
jrodrig
in
Advanced Prostate Cancer
6 days ago
New Approach to Resistance
A male neurobiologist, with metastatic breast cancer who studies genetics, developed a new idea to deal with treatment resistance based on the same way Farmers protect their fields from pests. Farmers rotate the pesticide chemicals they use on their fields so that they are never chronically spraying
A male neurobiologist, with metastatic breast cancer who studies genetics, developed a new idea to deal with treatment resistance based on the same way Farmers protect their fields from pests. Farmers rotate the pesticide chemicals they use on their fields so that they are never chronically spraying
Best521
in
SHARE Metastatic Breast Cancer
6 days ago
Continued Journey
Day +14: I am presently unhooked from my medication pole. It is a great feeling to be able to be more mobile around my “suite”. Accommodations here quite nice considering what most hospital rooms are like. it has been a rough go with a certain amount of nausea, lack of energy, and G.I. situations
Day +14: I am presently unhooked from my medication pole. It is a great feeling to be able to be more mobile around my “suite”. Accommodations here quite nice considering what most hospital rooms are like. it has been a rough go with a certain amount of nausea, lack of energy, and G.I. situations
FiArt12X
in
CLL Support
6 days ago
metastic Breast cancer in chest
Hi I’m pretty new to this site, but love reading the positive posts that give me so much confidence! I’ve had breast cancer three times, the first time I was 37 in 1998 the second 54 2016 and again this year diagnosed under my reconstruction and inoperable! March 2024! I’m on Ibrance and Letrozole since
Hi I’m pretty new to this site, but love reading the positive posts that give me so much confidence! I’ve had breast cancer three times, the first time I was 37 in 1998 the second 54 2016 and again this year diagnosed under my reconstruction and inoperable! March 2024! I’m on Ibrance and Letrozole since
Teddypeppalola
in
SHARE Metastatic Breast Cancer
6 days ago
Oestrogen 🤗
Hi I'm 38 in June.My oestrogen blood test results showed 209 pmol on day 9 of cycle does anyone know if this seems low or high. Thank you.
Hi I'm 38 in June.My oestrogen blood test results showed 209 pmol on day 9 of cycle does anyone know if this seems low or high. Thank you.
Beeekind22
in
Menopause and Perimenopause Support
2 months ago
Oestrogen help 🤗
Not sure where to post this sorry if wrong bit 🙈🤗 My oestrogen blood test showed 209 pmol around day 9 of cycle does anyone know if this is low. I'm 38. Thank you.
Not sure where to post this sorry if wrong bit 🙈🤗 My oestrogen blood test showed 209 pmol around day 9 of cycle does anyone know if this is low. I'm 38. Thank you.
Beeekind22
in
Endometriosis UK
2 months ago
Anyone had an increase in bone/joint pain after being on Ibrance and Letrozole for a few years?
I was diagnosed Metastatic BC with a lot of bone mets back in June 2022. The Letrozole and Ibrance eliminated the visible bone mets and pain was better. Last scans still show no progression and those were just a month ago or so. The last few weeks I've had terrible pain in my knees, left shin, and
I was diagnosed Metastatic BC with a lot of bone mets back in June 2022. The Letrozole and Ibrance eliminated the visible bone mets and pain was better. Last scans still show no progression and those were just a month ago or so. The last few weeks I've had terrible pain in my knees, left shin, and
lovnmycat
in
SHARE Metastatic Breast Cancer
7 days ago
Follicle Sos.. why is it always so stressful….
Just reaching out for views/advice, appreciate no one here can give medical advice but my clinic in Cyprus is closed, they are in bed! the clinic have been quite lazy this time around on my last precious cycle, they have given me no plan, so I had no advance warning of when to scan get blood tests.
Just reaching out for views/advice, appreciate no one here can give medical advice but my clinic in Cyprus is closed, they are in bed! the clinic have been quite lazy this time around on my last precious cycle, they have given me no plan, so I had no advance warning of when to scan get blood tests.
Nes1005
in
Fertility Network UK
3 months ago
CLL treatment
I have CLL. I be am 4 months into a 1 year targeted immunotherapy plan. I receive a monthly infusion of Obitinubinazab and 300mg venclexta daily. I am very tired everyday. Went from 400mg to 300mg to try and help. Still exhausted. Anyone have similar experience ?
I have CLL. I be am 4 months into a 1 year targeted immunotherapy plan. I receive a monthly infusion of Obitinubinazab and 300mg venclexta daily. I am very tired everyday. Went from 400mg to 300mg to try and help. Still exhausted. Anyone have similar experience ?
IhaveCLL1
in
CLL Support
7 days ago
Preclinical: IRX5010 tumor growth inhibiting anti-cancer immune responses inducer in multiple types of cancers
Tested on prostate cancer models as well https://www.globenewswire.com/news-release/2024/07/09/2910022/0/en/Io-Therapeutics-Inc-announces-presentation-of-data-on-induction-of-tumor-growth-inhibiting-anti-cancer-immune-responses-in-multiple-types-of-cancers-by-a-IRX5010-a-novel-retinoic-a.html#
Tested on prostate cancer models as well https://www.globenewswire.com/news-release/2024/07/09/2910022/0/en/Io-Therapeutics-Inc-announces-presentation-of-data-on-induction-of-tumor-growth-inhibiting-anti-cancer-immune-responses-in-multiple-types-of-cancers-by-a-IRX5010-a-novel-retinoic-a.html#
Maxone73
in
Advanced Prostate Cancer
8 days ago
diets ? Supplements?
hello, l have literally just been diagnosed with SLL Feeling shocked, anxious and not sure how l am going to tell my family…..all the usual My question is can diet help? Taking the normal advice on a healthy living and lifestyle as a given . Can supplements help? Is there any evidence? Having
hello, l have literally just been diagnosed with SLL Feeling shocked, anxious and not sure how l am going to tell my family…..all the usual My question is can diet help? Taking the normal advice on a healthy living and lifestyle as a given . Can supplements help? Is there any evidence? Having
Northseaswimmer
in
CLL Support
8 days ago
My Husband's Update
Ok, so we had the results for my husband's ct scan and bone scan.The ct scan shows nothing🙏🏻 but according to the oncologist he ordered a nuclear total bone scan and they "mistakenly" did a bone scan with trace only. Which it helped to find some decalcification on his left hip. However, not that test
Ok, so we had the results for my husband's ct scan and bone scan.The ct scan shows nothing🙏🏻 but according to the oncologist he ordered a nuclear total bone scan and they "mistakenly" did a bone scan with trace only. Which it helped to find some decalcification on his left hip. However, not that test
Chiquis
in
Advanced Prostate Cancer
8 days ago
some advice
just has the private blood test done after having borderline results with gp this year. Both antibodies are really high 255 but my thyroid hormones are relatively normal. I’ve been told previously to have repeat bloods yearly as I’m at higher risk of developing hypothyroidism. I’ve also insisted on
just has the private blood test done after having borderline results with gp this year. Both antibodies are really high 255 but my thyroid hormones are relatively normal. I’ve been told previously to have repeat bloods yearly as I’m at higher risk of developing hypothyroidism. I’ve also insisted on
Historically_valid
in
Thyroid UK
3 months ago
CA markers went down progression after 6 mo
I was on Ibrance and fluvesant for 6 mo. After exemestane stable bone Mets for 3 years. CA went up to 300 came down to 89 on this treatment. Scan just showed 6 new spots progression. Does this mean I’m resistant and need to switch? I’d like to try it again for 3 mo and rescan? Is that possible or
I was on Ibrance and fluvesant for 6 mo. After exemestane stable bone Mets for 3 years. CA went up to 300 came down to 89 on this treatment. Scan just showed 6 new spots progression. Does this mean I’m resistant and need to switch? I’d like to try it again for 3 mo and rescan? Is that possible or
Praising
in
SHARE Metastatic Breast Cancer
8 days ago
Piqray/Alpelisib (plus Fulvestrant injections) Trial so far
Hello everyone. From Stevie and me. Just popping in to let you all know that I am nearly 2 months into my Piqray journey. (The trial is called CAPTURE here in Melbourne) After having a terrible, terrible slump when I came off 5 1/2 years of Ibrance and Anastrozole, due to new mets in my liver, after
Hello everyone. From Stevie and me. Just popping in to let you all know that I am nearly 2 months into my Piqray journey. (The trial is called CAPTURE here in Melbourne) After having a terrible, terrible slump when I came off 5 1/2 years of Ibrance and Anastrozole, due to new mets in my liver, after
Timtam56
in
SHARE Metastatic Breast Cancer
6 months ago
How to deal with GP who is not keen on tests
I am having issues where my GP would rather no give advise or tests. I have to remember and follow up on test to be done and even then he can deny the tests requested. I had blurry vision , cold hand when i stay still and body aches but doctor claims these felt by all the people though when check with
I am having issues where my GP would rather no give advise or tests. I have to remember and follow up on test to be done and even then he can deny the tests requested. I had blurry vision , cold hand when i stay still and body aches but doctor claims these felt by all the people though when check with
thyroidsymtoms
in
Thyroid UK
3 months ago
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