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metastic Breast cancer in chest
Hi I’m pretty new to this site, but love reading the positive posts that give me so much confidence! I’ve had breast cancer three times, the first time I was 37 in 1998 the second 54 2016 and again this year diagnosed under my reconstruction and inoperable! March 2024! I’m on Ibrance and Letrozole since
Hi I’m pretty new to this site, but love reading the positive posts that give me so much confidence! I’ve had breast cancer three times, the first time I was 37 in 1998 the second 54 2016 and again this year diagnosed under my reconstruction and inoperable! March 2024! I’m on Ibrance and Letrozole since
Teddypeppalola
in
SHARE Metastatic Breast Cancer
7 days ago
Anyone had an increase in bone/joint pain after being on Ibrance and Letrozole for a few years?
I was diagnosed Metastatic BC with a lot of bone mets back in June 2022. The Letrozole and Ibrance eliminated the visible bone mets and pain was better. Last scans still show no progression and those were just a month ago or so. The last few weeks I've had terrible pain in my knees, left shin, and
I was diagnosed Metastatic BC with a lot of bone mets back in June 2022. The Letrozole and Ibrance eliminated the visible bone mets and pain was better. Last scans still show no progression and those were just a month ago or so. The last few weeks I've had terrible pain in my knees, left shin, and
lovnmycat
in
SHARE Metastatic Breast Cancer
7 days ago
Need more info on related symptoms
On the surface, I seem to be doing very well. Per earlier posts: Gleason 5+4, intraductal, possible perinueral spread, PET scan shows spread to lymph nodes only but as distant as the clavicle. Apparently these clavicle lymph nodes show up very pale on the scan and are too small to biopsy. But, treatment
On the surface, I seem to be doing very well. Per earlier posts: Gleason 5+4, intraductal, possible perinueral spread, PET scan shows spread to lymph nodes only but as distant as the clavicle. Apparently these clavicle lymph nodes show up very pale on the scan and are too small to biopsy. But, treatment
Willie51
in
Prostate Cancer And Gay Men
2 months ago
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CLL treatment
I have CLL. I be am 4 months into a 1 year targeted immunotherapy plan. I receive a monthly infusion of Obitinubinazab and 300mg venclexta daily. I am very tired everyday. Went from 400mg to 300mg to try and help. Still exhausted. Anyone have similar experience ?
I have CLL. I be am 4 months into a 1 year targeted immunotherapy plan. I receive a monthly infusion of Obitinubinazab and 300mg venclexta daily. I am very tired everyday. Went from 400mg to 300mg to try and help. Still exhausted. Anyone have similar experience ?
IhaveCLL1
in
CLL Support
7 days ago
Preclinical: IRX5010 tumor growth inhibiting anti-cancer immune responses inducer in multiple types of cancers
Tested on prostate cancer models as well https://www.globenewswire.com/news-release/2024/07/09/2910022/0/en/Io-Therapeutics-Inc-announces-presentation-of-data-on-induction-of-tumor-growth-inhibiting-anti-cancer-immune-responses-in-multiple-types-of-cancers-by-a-IRX5010-a-novel-retinoic-a.html#
Tested on prostate cancer models as well https://www.globenewswire.com/news-release/2024/07/09/2910022/0/en/Io-Therapeutics-Inc-announces-presentation-of-data-on-induction-of-tumor-growth-inhibiting-anti-cancer-immune-responses-in-multiple-types-of-cancers-by-a-IRX5010-a-novel-retinoic-a.html#
Maxone73
in
Advanced Prostate Cancer
8 days ago
diets ? Supplements?
hello, l have literally just been diagnosed with SLL Feeling shocked, anxious and not sure how l am going to tell my family…..all the usual My question is can diet help? Taking the normal advice on a healthy living and lifestyle as a given . Can supplements help? Is there any evidence? Having
hello, l have literally just been diagnosed with SLL Feeling shocked, anxious and not sure how l am going to tell my family…..all the usual My question is can diet help? Taking the normal advice on a healthy living and lifestyle as a given . Can supplements help? Is there any evidence? Having
Northseaswimmer
in
CLL Support
8 days ago
My Husband's Update
Ok, so we had the results for my husband's ct scan and bone scan.The ct scan shows nothing🙏🏻 but according to the oncologist he ordered a nuclear total bone scan and they "mistakenly" did a bone scan with trace only. Which it helped to find some decalcification on his left hip. However, not that test
Ok, so we had the results for my husband's ct scan and bone scan.The ct scan shows nothing🙏🏻 but according to the oncologist he ordered a nuclear total bone scan and they "mistakenly" did a bone scan with trace only. Which it helped to find some decalcification on his left hip. However, not that test
Chiquis
in
Advanced Prostate Cancer
8 days ago
Levothyroxine optimised?
Hi lovely people! My latest thyroid results were: TSH 1,27 (0,380-5,330μUI/mL) (18% through range) fT4 1,16 (0.38-1,40 ng/dL) (88% through range) fT3 3,79 (2,5-3,9pg/mL) (92% through range) Miraculously they finally tested fT3 for the first time, and I was so happy to see that I seem to be converting
Hi lovely people! My latest thyroid results were: TSH 1,27 (0,380-5,330μUI/mL) (18% through range) fT4 1,16 (0.38-1,40 ng/dL) (88% through range) fT3 3,79 (2,5-3,9pg/mL) (92% through range) Miraculously they finally tested fT3 for the first time, and I was so happy to see that I seem to be converting
catpotter44
in
Thyroid UK
2 months ago
Alendronic acid and raised Potassium levels
Hi I have been on Alendronic acid for 4 mths now. I have - 3 lumbar spinal osteoporosis but also have chronic kidney deficiency. My past two blood tests are showing raised 5.7 mmols/l and I’m wondering if it’s linked to my Alendronic acid?
Hi I have been on Alendronic acid for 4 mths now. I have - 3 lumbar spinal osteoporosis but also have chronic kidney deficiency. My past two blood tests are showing raised 5.7 mmols/l and I’m wondering if it’s linked to my Alendronic acid?
Ukalady
in
Bone Health and Osteoporosis UK
2 months ago
CA markers went down progression after 6 mo
I was on Ibrance and fluvesant for 6 mo. After exemestane stable bone Mets for 3 years. CA went up to 300 came down to 89 on this treatment. Scan just showed 6 new spots progression. Does this mean I’m resistant and need to switch? I’d like to try it again for 3 mo and rescan? Is that possible or
I was on Ibrance and fluvesant for 6 mo. After exemestane stable bone Mets for 3 years. CA went up to 300 came down to 89 on this treatment. Scan just showed 6 new spots progression. Does this mean I’m resistant and need to switch? I’d like to try it again for 3 mo and rescan? Is that possible or
Praising
in
SHARE Metastatic Breast Cancer
8 days ago
Piqray/Alpelisib (plus Fulvestrant injections) Trial so far
Hello everyone. From Stevie and me. Just popping in to let you all know that I am nearly 2 months into my Piqray journey. (The trial is called CAPTURE here in Melbourne) After having a terrible, terrible slump when I came off 5 1/2 years of Ibrance and Anastrozole, due to new mets in my liver, after
Hello everyone. From Stevie and me. Just popping in to let you all know that I am nearly 2 months into my Piqray journey. (The trial is called CAPTURE here in Melbourne) After having a terrible, terrible slump when I came off 5 1/2 years of Ibrance and Anastrozole, due to new mets in my liver, after
Timtam56
in
SHARE Metastatic Breast Cancer
6 months ago
low neutrophils
Hello everyone, it’s been a while since I posted anything. My PET scan in September of 2023 showed the cancer had progressed to a lymph node, I had never had surgery for my cancer and I have been on Ibrance 100 and letrozole for 7 years. My oncologist and I decided it was time for surgery, I had a double
Hello everyone, it’s been a while since I posted anything. My PET scan in September of 2023 showed the cancer had progressed to a lymph node, I had never had surgery for my cancer and I have been on Ibrance 100 and letrozole for 7 years. My oncologist and I decided it was time for surgery, I had a double
Gmaoftriplets
in
SHARE Metastatic Breast Cancer
9 days ago
FDA Clears IND of Intravenous JCXH-211 in Advanced Solid Tumors
The FDA has granted clearance to an investigational new drug (IND) application of intravenous (IV) JCXH-211 in patients with advanced solid tumors. JCXH-211 is a first-in-class, self-replicating mRNA (srRNA) encoding the engineered human interleukin (IL)-12 protein. With this IND, a phase 1/2 study
The FDA has granted clearance to an investigational new drug (IND) application of intravenous (IV) JCXH-211 in patients with advanced solid tumors. JCXH-211 is a first-in-class, self-replicating mRNA (srRNA) encoding the engineered human interleukin (IL)-12 protein. With this IND, a phase 1/2 study
God_Loves_Me
in
Advanced Prostate Cancer
9 days ago
palbociclib and letrozole
hi, taking palbo and letrozole for last 6 months and few days back gone for pet scan and scan response was good , many places were reduced and not much metabolic activity. So same medicines prescribed, but now suddenly in both legs nerves are paining like shooting pain heavily, will palbociclib or
hi, taking palbo and letrozole for last 6 months and few days back gone for pet scan and scan response was good , many places were reduced and not much metabolic activity. So same medicines prescribed, but now suddenly in both legs nerves are paining like shooting pain heavily, will palbociclib or
Wickey20
in
SHARE Metastatic Breast Cancer
9 days ago
Covid jabs
I'm curious to know if anyone in the group has noticed dramatic changes in there condition since taking the jabs ? I never wanted one and had two plus a booster and a couple of years later I was falling apart with many complications. I have had chiroses for 37 years plus gallstones and went through a
I'm curious to know if anyone in the group has noticed dramatic changes in there condition since taking the jabs ? I never wanted one and had two plus a booster and a couple of years later I was falling apart with many complications. I have had chiroses for 37 years plus gallstones and went through a
Trust78
in
British Liver Trust
2 months ago
Would be grateful for your thoughts on my blood results before endo apt please, still feeling exhausted and weak. Thank you
Hello, I’ve had an underactive thyroid for 8 years after having my first child, looks like Hashimotos. Currently taking 100mcg levothyroxine and 15mcg liothyronine (10mcg on waking and 5 around 3pm). Also on HRT patches as am mid 40s and perimenopausal. I’m gluten free, have had SIBO in the past.
Hello, I’ve had an underactive thyroid for 8 years after having my first child, looks like Hashimotos. Currently taking 100mcg levothyroxine and 15mcg liothyronine (10mcg on waking and 5 around 3pm). Also on HRT patches as am mid 40s and perimenopausal. I’m gluten free, have had SIBO in the past.
Hopetoheal22
in
Thyroid UK
2 months ago
Good news
I haven't written for a while , just getting on with life! But last week's news is worth reporting.The mammary lymph node they had been monitoring is now too small to report measurements. It was 9 mm last time and has further reduced. My cancer markers are better than two and a half years ago. 15-3 is
I haven't written for a while , just getting on with life! But last week's news is worth reporting.The mammary lymph node they had been monitoring is now too small to report measurements. It was 9 mm last time and has further reduced. My cancer markers are better than two and a half years ago. 15-3 is
Beryl71
in
SHARE Metastatic Breast Cancer
10 days ago
Anti-Androgen Therapy and Bone Tumors in Prostate Cancer
Sorry guys, but I found this and all I can say is it scared the hell out of me. Now I don't know what to think. Maybe someone can sort it out. https://journals.lww.com/oncology-times/fulltext/2021/08050/anti_androgen_therapy_can_fuel_spread_of_bone.16.aspx Jeff Dunn AO, Professor and CEO of the Prostate
Sorry guys, but I found this and all I can say is it scared the hell out of me. Now I don't know what to think. Maybe someone can sort it out. https://journals.lww.com/oncology-times/fulltext/2021/08050/anti_androgen_therapy_can_fuel_spread_of_bone.16.aspx Jeff Dunn AO, Professor and CEO of the Prostate
85745
in
Advanced Prostate Cancer
6 months ago
My mother's good news
Hello ladies, I wanted to share our good news as a positive example. My mother was diagnosed with ovarian cancer staga 4a in December 2019 (you can read her story in my profile.) She had a PET scan two weeks ago and the results are good - she is stable! The doctors said she will stop taking Olaparib
Hello ladies, I wanted to share our good news as a positive example. My mother was diagnosed with ovarian cancer staga 4a in December 2019 (you can read her story in my profile.) She had a PET scan two weeks ago and the results are good - she is stable! The doctors said she will stop taking Olaparib
Uniquem
in
My Ovacome
10 days ago
21Bedlam21
I have had CLL for a couple of years now. I am on watch and wait. I have posted on this sight before. I had reconstruction from my breast cancer a number of years ago. Both sides. It looks like one side may have ruptured. I have a fast tracked appointment on Friday. I am worried sick. I know I need to
I have had CLL for a couple of years now. I am on watch and wait. I have posted on this sight before. I had reconstruction from my breast cancer a number of years ago. Both sides. It looks like one side may have ruptured. I have a fast tracked appointment on Friday. I am worried sick. I know I need to
21Bedlam21
in
CLL Support
11 days ago
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