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Proton Treatment - When to start the ADT relative to simulation and CT of the prostate
I am talking to two radiologists who have a strong difference of opinion. One radiologist tells me I should start ADT two months before I do the space OAR, markers and simulation, and then start the radiation. Another doctor tells me I should start the ADT at the same time as I do the space OAR and simulation
I am talking to two radiologists who have a strong difference of opinion. One radiologist tells me I should start ADT two months before I do the space OAR, markers and simulation, and then start the radiation. Another doctor tells me I should start the ADT at the same time as I do the space OAR and simulation
CBRD
in
Advanced Prostate Cancer
4 months ago
post-op incisions
Hi everyone, I had surgery (ovarian cystectomy & excision of endometriosis) on 18/02/24 One of my wounds seems to be open. I feel ‘fobbed off’ by doctors who state it will close on its own. Did anyone else’s incisions look like this? Did they heal okay? Also, my belly button scab has now fallen
Hi everyone, I had surgery (ovarian cystectomy & excision of endometriosis) on 18/02/24 One of my wounds seems to be open. I feel ‘fobbed off’ by doctors who state it will close on its own. Did anyone else’s incisions look like this? Did they heal okay? Also, my belly button scab has now fallen
sxnam
in
Endometriosis UK
4 months ago
Worst flare up to date.
Hi everyone I guess I'm just needing to vent as I feel so scared and alone. I have suspected Endometriosis but I'm 90 percent certain I have it. So yesterday morning when I woke up and my bladder was full I was feeling very sore round my pelvic region so went for a pee then after I went everything just
Hi everyone I guess I'm just needing to vent as I feel so scared and alone. I have suspected Endometriosis but I'm 90 percent certain I have it. So yesterday morning when I woke up and my bladder was full I was feeling very sore round my pelvic region so went for a pee then after I went everything just
KB1987
in
Endometriosis UK
4 months ago
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Bad urgency with little result
Hi all, I have Proctitis and IBS.My IBS has severely flared up this week,I have not been for a poo for 5 days. ive been experiencing really bad urgency but only the size of my little finger watery poo comes out and causing pain in my bum. Im on Biscopyl and Pentasa suppositories for inflammation. Can
Hi all, I have Proctitis and IBS.My IBS has severely flared up this week,I have not been for a poo for 5 days. ive been experiencing really bad urgency but only the size of my little finger watery poo comes out and causing pain in my bum. Im on Biscopyl and Pentasa suppositories for inflammation. Can
AGB111
in
IBS Network
4 months ago
Advice re dizziness 5 days post op
I'm day 5 post first lap and still feel really spaced out and dizzy after GA. Pain is getting better I'm off the strong meds but was on morphine for a couple of days. Moving around better but after a couple of hours out of bed I'm straight back wiped out. Is this normal? I did have a lot done in terms
I'm day 5 post first lap and still feel really spaced out and dizzy after GA. Pain is getting better I'm off the strong meds but was on morphine for a couple of days. Moving around better but after a couple of hours out of bed I'm straight back wiped out. Is this normal? I did have a lot done in terms
DarkStar85
in
Endometriosis UK
4 months ago
Advice for pelvic pain please!!
I'm a 29 year old female who has been suffering with issues with my bladder for around 5 years. I've not had any children and never been pregnant. 5 years ago I started getting re- occuring UTI's quite regularly and was referred to a urologist. I, then, started to get bladder incontinence- I was sent
I'm a 29 year old female who has been suffering with issues with my bladder for around 5 years. I've not had any children and never been pregnant. 5 years ago I started getting re- occuring UTI's quite regularly and was referred to a urologist. I, then, started to get bladder incontinence- I was sent
DisneyLover1994
in
Pelvic Pain Support Network
4 months ago
radiation damage to the bladder
my husband has had 4 rather benign treatments of Pluvicto at the recommended 6 week intervals. Treatment #5 is Schilz’s in about 10 days. All of a sudden he is having hematuria and bladder spasms. Can anyone tell me what kinds of treatments are used for radiation burns or irritation to the bladder? Thanks
my husband has had 4 rather benign treatments of Pluvicto at the recommended 6 week intervals. Treatment #5 is Schilz’s in about 10 days. All of a sudden he is having hematuria and bladder spasms. Can anyone tell me what kinds of treatments are used for radiation burns or irritation to the bladder? Thanks
Mcrpca
in
Advanced Prostate Cancer
4 months ago
Help!
I'm at the end of my tether. I'm 74 and have had UTIs since 16 - usually 1-2 a year, easily treated. A couple of years ago they were getting more frequent and GP gave me standby px for Macrobid and with this I've managed to self treat at the 1st symptom. 5 months ago I had a bad flare up which took several
I'm at the end of my tether. I'm 74 and have had UTIs since 16 - usually 1-2 a year, easily treated. A couple of years ago they were getting more frequent and GP gave me standby px for Macrobid and with this I've managed to self treat at the 1st symptom. 5 months ago I had a bad flare up which took several
Lunadoo
in
Bladder Health UK
4 months ago
Treating constipation hasn't affected the wetting accidents
My son is 8 and has never been dry, day or night. I began toilet training him after his third birthday and I thought at first that I must have done it wrong as he could never keep dry. He would have the occasional poo accident too, but his real problem was wees. I took him to GPs and HVs and was either
My son is 8 and has never been dry, day or night. I began toilet training him after his third birthday and I thought at first that I must have done it wrong as he could never keep dry. He would have the occasional poo accident too, but his real problem was wees. I took him to GPs and HVs and was either
Chinchichip
in
ERIC
4 months ago
FDA Clearance of IND Application for FK-PC101, a Novel Personalized Cancer Immunotherapy for Prostate Cancer
FK-PC101, another step in the right direction it seems! https://www.prnewswire.com/news-releases/cellvax-therapeutics-announces-fda-clearance-of-ind-application-for-fk-pc101-a-novel-personalized-cancer-immunotherapy-302046986.html
FK-PC101, another step in the right direction it seems! https://www.prnewswire.com/news-releases/cellvax-therapeutics-announces-fda-clearance-of-ind-application-for-fk-pc101-a-novel-personalized-cancer-immunotherapy-302046986.html
Maxone73
in
Advanced Prostate Cancer
4 months ago
PSA doubled in last 30 days after 4 months stable since Provenge. What's next?
Update: PSA remained roughly 1.7 to 1.8 for last 4 months after Provenge but yesterday's 30-day PSA test revealed a jump to 3.190 so something is growing quick. I have been off of all ADT since finishing fourth LU-177 injection five months ago and one SBRT treatment 4 months ago. After LU-177, PSA
Update: PSA remained roughly 1.7 to 1.8 for last 4 months after Provenge but yesterday's 30-day PSA test revealed a jump to 3.190 so something is growing quick. I have been off of all ADT since finishing fourth LU-177 injection five months ago and one SBRT treatment 4 months ago. After LU-177, PSA
SViking
in
Advanced Prostate Cancer
4 months ago
Is it PSA recurrence or not...
My friend had a radical prostatectomy a year ago. Since then his monthly PSA results were stable, at 0.006 3 months ago his PSA went from 0.006 to 0.012, then the next month to 0.029. His MO wanted to see the third month's results in order to consider salvage radiation therapy. Luckily, third month's
My friend had a radical prostatectomy a year ago. Since then his monthly PSA results were stable, at 0.006 3 months ago his PSA went from 0.006 to 0.012, then the next month to 0.029. His MO wanted to see the third month's results in order to consider salvage radiation therapy. Luckily, third month's
traveller64
in
Advanced Prostate Cancer
4 months ago
Barrigel is now preferred over "SpaceOAR" gel?
Consulted by video with the doctor who is supposed to install my SpaceOAR in preparation for my IMRT. His first words were "we don't use SpaceOAR gel anymore. We use Barrigel." He explains it has fewer side effects but the same radiation absorption characteristics. Here is what "UroToday" says:
Consulted by video with the doctor who is supposed to install my SpaceOAR in preparation for my IMRT. His first words were "we don't use SpaceOAR gel anymore. We use Barrigel." He explains it has fewer side effects but the same radiation absorption characteristics. Here is what "UroToday" says:
mababa
in
Advanced Prostate Cancer
4 months ago
Reducing or eliminating IBS symptoms
I thought I should share this, if your IBS symptoms is frequent stooling (not diarrhoea) you can try peppermint oil capsules say 30 mins to 1 hour before a meal (once a day) combined with deliberate reduction in stress and relaxation from worry; I believe it will work, at least 90% reduction. The best
I thought I should share this, if your IBS symptoms is frequent stooling (not diarrhoea) you can try peppermint oil capsules say 30 mins to 1 hour before a meal (once a day) combined with deliberate reduction in stress and relaxation from worry; I believe it will work, at least 90% reduction. The best
overcomer42
in
IBS Network
4 months ago
AUS revision surgery?
I'm seeking advice on having a second AUS surgery. My background: I had a prostatectomy in 2016 and radiation a year later because the cancerous tumor had penetrated the sack. I have since had undetected PSA but have suffered with severe stress incontinence. I had AUS surgery in 2018 but it failed because
I'm seeking advice on having a second AUS surgery. My background: I had a prostatectomy in 2016 and radiation a year later because the cancerous tumor had penetrated the sack. I have since had undetected PSA but have suffered with severe stress incontinence. I had AUS surgery in 2018 but it failed because
allnewstuff
in
Advanced Prostate Cancer
4 months ago
Gluten ataxia
I was diagnosed ga last yr but got steadily worse since I have been very careful what I eat ( no cheating ) but worse symptoms
I was diagnosed ga last yr but got steadily worse since I have been very careful what I eat ( no cheating ) but worse symptoms
Tazwaz
in
Ataxia UK
4 months ago
feeling down
Hi there , I have had IBS for 10 years now it is generally IBS c but recently it has changed to IBS d I still visit the toilet at the same time each day (usuallytwice) but instead of Constipation I end up rushing and end up filling the toilet non solid but not bad diarrhea . Has anybody else had this
Hi there , I have had IBS for 10 years now it is generally IBS c but recently it has changed to IBS d I still visit the toilet at the same time each day (usuallytwice) but instead of Constipation I end up rushing and end up filling the toilet non solid but not bad diarrhea . Has anybody else had this
nigelroget
in
IBS Network
4 months ago
Janux immunotherapy drug (JANX007) for mCRPC
Are folks familiar with this treatment, JANX007? If something like this were rolled out, how widespread could it be given? I'm not very familiar with immunotherapy treatments. https://investors.januxrx.com/investor-media/news/news-details/2024/Janux-Announces-Encouraging-Safety-and-Efficacy-Data-in-Ongoing-Dose-Escalation-Trials-for-PSMAxCD3
Are folks familiar with this treatment, JANX007? If something like this were rolled out, how widespread could it be given? I'm not very familiar with immunotherapy treatments. https://investors.januxrx.com/investor-media/news/news-details/2024/Janux-Announces-Encouraging-Safety-and-Efficacy-Data-in-Ongoing-Dose-Escalation-Trials-for-PSMAxCD3
nyc_son
in
Advanced Prostate Cancer
4 months ago
Some Reference Material - NECP/SCCP
-----
I am constantly updating this post as I come across additional relevant material.
----- Emerging Insights in Small-Cell Carcinoma of the Genitourinary Tract: From Diagnosis to Novel Therapeutic Horizons, 2024 https://ascopubs.org/doi/10.1200/EDBK_430336#:~:text=Small%2Dcell%20carcinoma
-----
I am constantly updating this post as I come across additional relevant material.
----- Emerging Insights in Small-Cell Carcinoma of the Genitourinary Tract: From Diagnosis to Novel Therapeutic Horizons, 2024 https://ascopubs.org/doi/10.1200/EDBK_430336#:~:text=Small%2Dcell%20carcinoma
skiingfiend
in
Advanced Prostate Cancer
4 months ago
When to test?
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
edeuweed
in
Pernicious Anaemia Society
4 months ago
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