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covid vaccines
hi all. I’m sure many readers of this wonderful community will be tired of this subject. But I wanted to ask the question- I never had any AF episodes up to and including Covid. When I look at my vaccination dates I see a possible link. Is it possible that the jabs we all had did in fact interfere with
hi all. I’m sure many readers of this wonderful community will be tired of this subject. But I wanted to ask the question- I never had any AF episodes up to and including Covid. When I look at my vaccination dates I see a possible link. Is it possible that the jabs we all had did in fact interfere with
OscarN
in
AF Association
6 months ago
MAJOR CANCER CURE! (yeah, I know it's not PD)
Somehow (and i watch, listen, and skim DOZENS of health videos weekly) i missed this one from a YEAR ago! Even though it is a miracle treatment for "cancer" and not "PD" -- the point is that SCIENCE is working VERY HARD to cure, stop, prevent, slow down ... PD! SO DON'T GIVE UP! ------------------
Somehow (and i watch, listen, and skim DOZENS of health videos weekly) i missed this one from a YEAR ago! Even though it is a miracle treatment for "cancer" and not "PD" -- the point is that SCIENCE is working VERY HARD to cure, stop, prevent, slow down ... PD! SO DON'T GIVE UP! ------------------
PDWarrior1900
in
Cure Parkinson's
10 months ago
Has anyone heard of Parsonage Turner Syndrome? Out of interest.
Hello , I was diagnosed with PMR in September 2012 . I had returned from holiday , had my annual flu jab and noticed awful stiffness in my arms and hips whilst at Yoga . It increased to agonising electric shock pains , from shoulders downwards , my biceps would almost spasm and go hard , the pain
Hello , I was diagnosed with PMR in September 2012 . I had returned from holiday , had my annual flu jab and noticed awful stiffness in my arms and hips whilst at Yoga . It increased to agonising electric shock pains , from shoulders downwards , my biceps would almost spasm and go hard , the pain
Greensleeves
in
PMRGCAuk
6 months ago
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If you get sick...cold, flu, Covid...what did you do?
I'm just over 9 months kidney transplant from a living donor. I've felt great but I do worry, since it is cold and flu season, about getting sick. Probably my biggest worry at this point. I try to wear masks when I am out and take all precautions. I just wondered though if I should get sick what are
I'm just over 9 months kidney transplant from a living donor. I've felt great but I do worry, since it is cold and flu season, about getting sick. Probably my biggest worry at this point. I try to wear masks when I am out and take all precautions. I just wondered though if I should get sick what are
Tankjsl
in
Kidney Transplant
6 months ago
covid
hello iam suffering with covid had it since Sunday , symptoms don’t seem to be going away , has anybody had covid , with hashimotos , am I wrong in thinking having this condition makes illness worse and longer to recover , sorry but been told I have hashimotos, but not sure on how it works thanks for
hello iam suffering with covid had it since Sunday , symptoms don’t seem to be going away , has anybody had covid , with hashimotos , am I wrong in thinking having this condition makes illness worse and longer to recover , sorry but been told I have hashimotos, but not sure on how it works thanks for
Prosecco1997
in
Thyroid UK
6 months ago
Round 50?
Hi all - I've searched the forum trying to figure out the answer to my question but it all seems to vary so much. I am 3 years in on buprenorphine now with RLS being pretty well managed (WOOHOO). I had been struggling to lower that 2mg sublingual dose due to extreme fatigue. I had tried pregablin previous
Hi all - I've searched the forum trying to figure out the answer to my question but it all seems to vary so much. I am 3 years in on buprenorphine now with RLS being pretty well managed (WOOHOO). I had been struggling to lower that 2mg sublingual dose due to extreme fatigue. I had tried pregablin previous
erinjee
in
Restless Legs Syndrome
4 months ago
Pegasys Update 1.0
Finally getting around to sharing my experiences of starting Pegasys. First a little background. Diagnosed with ET JAK2+ in 2019 after a decade of scintillating scotomas with increasing frequency at almost weekly. Aspirin cut this to approx. 90 days! Over the next three years increasingly struggled with
Finally getting around to sharing my experiences of starting Pegasys. First a little background. Diagnosed with ET JAK2+ in 2019 after a decade of scintillating scotomas with increasing frequency at almost weekly. Aspirin cut this to approx. 90 days! Over the next three years increasingly struggled with
Crossefield
in
MPN Voice
6 months ago
D Mannose
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
RosaD
in
LUPUS UK
6 months ago
Covid and Myelofibrosis
hi I’ve just tested positive for Covid, I have post pv Myelofibrosis. I’m waiting on 111 to see whether I need to have some treatment. What are your thoughts and is this necessary now? I think it’s going to be a long wait, so it might be tomorrow. Thank you Mal
hi I’ve just tested positive for Covid, I have post pv Myelofibrosis. I’m waiting on 111 to see whether I need to have some treatment. What are your thoughts and is this necessary now? I think it’s going to be a long wait, so it might be tomorrow. Thank you Mal
Mal42
in
MPN Voice
6 months ago
dont give up the fight against Afib
I have been a member of this forum for some years and learned a few things from its members but up until now i have never posted anything but i thought my story may give some of you people a bit of hope. I first went into afib in 2018 sudenly without any warning my heart rate was 222 and the top line
I have been a member of this forum for some years and learned a few things from its members but up until now i have never posted anything but i thought my story may give some of you people a bit of hope. I first went into afib in 2018 sudenly without any warning my heart rate was 222 and the top line
Dikytiker
in
AF Association
6 months ago
New GCA treatment
Three years since I read everything about PMR and now revisiting everything. Scary. 48 hours since treatment started (60mg) and headaches almost gone and most jaw pain / difficulty gone. Except husband cooked Brussels sprouts which I struggled to eat (usually lovely then). Question: I know steroids
Three years since I read everything about PMR and now revisiting everything. Scary. 48 hours since treatment started (60mg) and headaches almost gone and most jaw pain / difficulty gone. Except husband cooked Brussels sprouts which I struggled to eat (usually lovely then). Question: I know steroids
DogAgilityObsessed
in
PMRGCAuk
8 months ago
Rituximab
Hi all, well after 6 months on hyrimoz and no improvement they want to start me on Rituximab. Does anyone know how long you have to wait before you can start, ie this wash out period were you have nothing?? The steroid injections have worn off again, inflammation crp up again tiredness back and the
Hi all, well after 6 months on hyrimoz and no improvement they want to start me on Rituximab. Does anyone know how long you have to wait before you can start, ie this wash out period were you have nothing?? The steroid injections have worn off again, inflammation crp up again tiredness back and the
Akaka
in
NRAS
6 months ago
Covid and Party
👋 Party is this coming Sat . I feel OK with going now after people's advice , so thank you all. Got my N95 mask. Will have sanitiser on me all the time . However I am now facing difficulties, flare up in both knees and one hip in agony and lower back , getting in and out of bed , turning in bed
👋 Party is this coming Sat . I feel OK with going now after people's advice , so thank you all. Got my N95 mask. Will have sanitiser on me all the time . However I am now facing difficulties, flare up in both knees and one hip in agony and lower back , getting in and out of bed , turning in bed
Stavrou1
in
CLL Support
6 months ago
persistent oral thrush
I've been on an increased dose of prednisolone since August last year. I've started reducing since January (tried before with a flare-up). I also use a steroid inhaler for asthma (and rinse afterwards). I have frequent problems with oral thrush. Unfortunately the stuff that seemed to work best - the
I've been on an increased dose of prednisolone since August last year. I've started reducing since January (tried before with a flare-up). I also use a steroid inhaler for asthma (and rinse afterwards). I have frequent problems with oral thrush. Unfortunately the stuff that seemed to work best - the
oldtimer2
in
NRAS
4 months ago
latest results, confused, please advise!
My last results a month ago before treatment with 50 mcg were : Serum free t4 level. 10.2 pmo/L TSH level 7.28 IU/mL After a month of Levothyroxine my results are now:- serum free t4 level. 15.6 TSH 2.87 I asked for, and was told my T3 would be checked but I can’t see it on printout unless
My last results a month ago before treatment with 50 mcg were : Serum free t4 level. 10.2 pmo/L TSH level 7.28 IU/mL After a month of Levothyroxine my results are now:- serum free t4 level. 15.6 TSH 2.87 I asked for, and was told my T3 would be checked but I can’t see it on printout unless
Benjipuss
in
Thyroid UK
6 months ago
Will a COVID (or flu) vaccination affect my blood results?
If I have a blood test 3 or 7 days after a COVID (or flu) vaccination - will it affect my blood results? Should I perhaps make the vaccination after the blood test, so that there is no potential issue interpreting my blood results? If the vaccination affects blood results - how many days after the vaccination
If I have a blood test 3 or 7 days after a COVID (or flu) vaccination - will it affect my blood results? Should I perhaps make the vaccination after the blood test, so that there is no potential issue interpreting my blood results? If the vaccination affects blood results - how many days after the vaccination
mantana
in
CLL Support
6 months ago
B12 deficiency
I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 weeks. Not sure if the covid knocked my B12 down. I had first injection today. I woke up out of my sleep my body burning and dry month. I had that feeling first week of covid it went away. Now I'm not sure if the B12 is fighting
I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 weeks. Not sure if the covid knocked my B12 down. I had first injection today. I woke up out of my sleep my body burning and dry month. I had that feeling first week of covid it went away. Now I'm not sure if the B12 is fighting
Michbell45
in
Pernicious Anaemia Society
6 months ago
update: Zanabrutinib vs Obenven (O&V)
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
Cb1391
in
CLL Support
8 months ago
Back again!!
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
Danni54
in
Restless Legs Syndrome
4 months ago
Current SUPERNOVA Clinical Trial for Reformulated EVUSHELD for preventing COVID-19 infection for immune-impaired individuals
A Phase II sub-study of SUPERNOVA clinical trial (2023) is currently operating to test the efficacy and safety of AZD3152 as a component of a reformulated version of EVUSHELD mAbs prophylaxis for immune-impaired individuals who cannot mount antibody responses to COVID-19 vaccines. Study Understanding
A Phase II sub-study of SUPERNOVA clinical trial (2023) is currently operating to test the efficacy and safety of AZD3152 as a component of a reformulated version of EVUSHELD mAbs prophylaxis for immune-impaired individuals who cannot mount antibody responses to COVID-19 vaccines. Study Understanding
Classicaljazz
in
CLL Support
6 months ago
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