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Nees help
i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The meds for Parkinson sort of help. I’ve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinson’s. I also have a very low B2 levels. If I don’t
i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The meds for Parkinson sort of help. I’ve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinson’s. I also have a very low B2 levels. If I don’t
38yroldmale
in
Pernicious Anaemia Society
7 months ago
non responsive or refactory coeliac’s disease
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
RJane83
in
Gluten Free Guerrillas
7 months ago
12 year old suffering IBSD...and Aire2 breath tests. Are they any good?
Hi there, My daughter is now 12 and has suffered most of her life with cramps, loose stools/diarrhoea and bloating. After various tests throughout the years we were told last year it was ibs-d. We've been left to our devices with no support and for a while during the summer, she was symptom free
Hi there, My daughter is now 12 and has suffered most of her life with cramps, loose stools/diarrhoea and bloating. After various tests throughout the years we were told last year it was ibs-d. We've been left to our devices with no support and for a while during the summer, she was symptom free
Ceeative-cookie
in
IBS Network
7 months ago
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Pain management
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
JustVisiting23
in
Restless Legs Syndrome
7 months ago
QOL - Keep Going
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
PabloK
in
Advanced Prostate Cancer
9 months ago
Panic Attack Advice
Does anyone have any panic attack advice? mean I got seriously spooked and feeling major dizziness. I am a bit of afraid if My blood pressure is super high. At the moment I am away from my anxiety medications.
Does anyone have any panic attack advice? mean I got seriously spooked and feeling major dizziness. I am a bit of afraid if My blood pressure is super high. At the moment I am away from my anxiety medications.
jwhitleyjr
in
Anxiety and Depression Support
5 months ago
May be doing IV chemo for the first time. Need tips - really freaked out!
Hi, so I’ve successfully avoided doing IV chemo since 2019. But due to bone mets I just had hip surgery and the pills I’ve been on are not working. I was told by the surgeon 2 days ago that I need systemic treatment asap or I’ll die. I’m having a petscan tomorrow and depending on how it looks, I’ll
Hi, so I’ve successfully avoided doing IV chemo since 2019. But due to bone mets I just had hip surgery and the pills I’ve been on are not working. I was told by the surgeon 2 days ago that I need systemic treatment asap or I’ll die. I’m having a petscan tomorrow and depending on how it looks, I’ll
Verbena1
in
SHARE Metastatic Breast Cancer
9 months ago
Decision Time (again)
Time to decide (again) how to proceed. 2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. Began active surveillance. 10/2023 New status: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral
Time to decide (again) how to proceed. 2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. Began active surveillance. 10/2023 New status: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral
adventure4me
in
Prostate Cancer Network
9 months ago
8CT Scan Protocol
I have SLL, been on BTKs for 2.5 years. I still have a lot of disease symptoms + drug side effects. It's been 2 years since my last CT scan and hematologist wants to do one not because nodes are palpably swollen but because of my anxiety about other symptoms. This doesn't seem reason to expose myself
I have SLL, been on BTKs for 2.5 years. I still have a lot of disease symptoms + drug side effects. It's been 2 years since my last CT scan and hematologist wants to do one not because nodes are palpably swollen but because of my anxiety about other symptoms. This doesn't seem reason to expose myself
Amberesque
in
CLL Support
9 months ago
Inflammation on colonoscopy
Hi everyone I had a colonoscopy today after around a year of diarrhoea, constipation, bleeding, tenesmus, BM at least 5x day and huge amounts of mucus. Lots of biopsies were taken and there were a couple areas of inflammation in my distal rectum, also some small haemorrhoids further down. The biopsy
Hi everyone I had a colonoscopy today after around a year of diarrhoea, constipation, bleeding, tenesmus, BM at least 5x day and huge amounts of mucus. Lots of biopsies were taken and there were a couple areas of inflammation in my distal rectum, also some small haemorrhoids further down. The biopsy
Eevee31
in
Crohn's and Colitis Support
7 months ago
Symptoms of Vitamin B12 deficiency - that I cannot find an answer to....
I had a low Vitamin B12 (125 mg/L) and low folate. One of my symptoms was severe pins and needles - particularly my legs, feet and genital areas. Is it common to have more severe symptoms in one leg more than the other? I have quite severe pins and needs in my left leg, and milder pins and needles
I had a low Vitamin B12 (125 mg/L) and low folate. One of my symptoms was severe pins and needles - particularly my legs, feet and genital areas. Is it common to have more severe symptoms in one leg more than the other? I have quite severe pins and needs in my left leg, and milder pins and needles
Madman070578
in
Pernicious Anaemia Society
7 months ago
Unclear advice from doc
Had aches and pains in joints and raised ESR and CRP levels. After many discussions with GP, he decided I have Polymyalgic Rheumatica. I said i didnt think i did as the stiffness and aches had improved by 80% with no treatment. He had put me on sertraline and i told him it was affecting my bowel and
Had aches and pains in joints and raised ESR and CRP levels. After many discussions with GP, he decided I have Polymyalgic Rheumatica. I said i didnt think i did as the stiffness and aches had improved by 80% with no treatment. He had put me on sertraline and i told him it was affecting my bowel and
worrier62
in
IBS Network
7 months ago
Things, regimens,etc that are probably RLS worthless.
THINGS THAT DO NOT WORK FOR RLS All of us with RLS/PLMD have slightly different symptoms. We have tried various 'remedies' to try to relieve our RLS symptoms. We have read articles, some interesting, some ridiculous (bar of soap) that make amazing promises. And there is an entire array of things to
THINGS THAT DO NOT WORK FOR RLS All of us with RLS/PLMD have slightly different symptoms. We have tried various 'remedies' to try to relieve our RLS symptoms. We have read articles, some interesting, some ridiculous (bar of soap) that make amazing promises. And there is an entire array of things to
fritz34
in
Restless Legs Syndrome
5 months ago
Newly diagnosed MBC
I am a cancer survivor of 25 years but a recent ER trip, (I was sent there by my PCP because my blood pressure was really high). Five hours later, a CT scan among other scans and blood work, I was diagnosed with metastatic breast cancer. Left breast same side as previous breast cancer. This time it was
I am a cancer survivor of 25 years but a recent ER trip, (I was sent there by my PCP because my blood pressure was really high). Five hours later, a CT scan among other scans and blood work, I was diagnosed with metastatic breast cancer. Left breast same side as previous breast cancer. This time it was
monkeygirl62
in
SHARE Metastatic Breast Cancer
9 months ago
Good Morning Monday People
Good morning all, I haven't posted in a while since getting my ESA and starting EMDR. I've experienced a lot of improvement and have adjusted well to the Citalopram which leaves me feeling more alive than the Sertraline I was on. I've been feeling contemplative lately about motivation. What are some
Good morning all, I haven't posted in a while since getting my ESA and starting EMDR. I've experienced a lot of improvement and have adjusted well to the Citalopram which leaves me feeling more alive than the Sertraline I was on. I've been feeling contemplative lately about motivation. What are some
ClassicalBlueKitty
in
Anxiety and Depression Support
4 months ago
cancer spread to bone marrow
My husband was told by his doctor that his prostate cancer might have spread to the bone marrow. He is waiting to have Bone marrow biopsy done. Has anyone had their cancer spread to the marrow and what type of treatment have you done?
My husband was told by his doctor that his prostate cancer might have spread to the bone marrow. He is waiting to have Bone marrow biopsy done. Has anyone had their cancer spread to the marrow and what type of treatment have you done?
Peloton
in
Advanced Prostate Cancer
9 months ago
Information and experiences please?
Hello. I am new, here on behalf of a friend with lung cancer. She is an otherwise healthy 75 year-old. A CT scan shows multiple spots in her lungs as well as a mass. She is to hear the results of a PET scan on Wednesday and to talk about treatment. Can you give us some idea what to expect? If the
Hello. I am new, here on behalf of a friend with lung cancer. She is an otherwise healthy 75 year-old. A CT scan shows multiple spots in her lungs as well as a mass. She is to hear the results of a PET scan on Wednesday and to talk about treatment. Can you give us some idea what to expect? If the
marcyh
in
Lung Cancer Support
9 months ago
HCC cancer diagnosis
Hi everyone. my partner recently diagnosed with HCC and awaiting which treatment he should have. Either ablation or resection. The hospital called and told him the surgeon is unsure if it is hcc and wants a ct scan done. Now we are wondering what it could be. Has anyone else had this experience .
Hi everyone. my partner recently diagnosed with HCC and awaiting which treatment he should have. Either ablation or resection. The hospital called and told him the surgeon is unsure if it is hcc and wants a ct scan done. Now we are wondering what it could be. Has anyone else had this experience .
pussycat66
Patient
in
Blue Faery Liver Cancer
9 months ago
MRI on Monday
My first MRI taught me that I am not claustrophobic, LOL, but the noise really made me crazy! I think this will be the first MRI since I started Xeloda earlier this year. Cancer had stopped being E + and became triple negative, not good news at all. So, hopefully this will let me and my treatment
My first MRI taught me that I am not claustrophobic, LOL, but the noise really made me crazy! I think this will be the first MRI since I started Xeloda earlier this year. Cancer had stopped being E + and became triple negative, not good news at all. So, hopefully this will let me and my treatment
PJBinMI
in
SHARE Metastatic Breast Cancer
9 months ago
Confused about cancer
Hi everyone M partner was diagnosed with primary hcc cancer in liver ( as well as cirrhosis ). They are saying that he can have ablation on the lesion or possibly resection but first they need to speak to the surgeon who is at another hosital as they dont do resection at the Norfolk and Norwich hospital
Hi everyone M partner was diagnosed with primary hcc cancer in liver ( as well as cirrhosis ). They are saying that he can have ablation on the lesion or possibly resection but first they need to speak to the surgeon who is at another hosital as they dont do resection at the Norfolk and Norwich hospital
pussycat66
in
British Liver Trust
9 months ago
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